October 2011 Chemo group

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  • Moonflower83
    Moonflower83 Member Posts: 92
    edited December 2011

    Hmm no it´s mostly there, when the air in my room ist dry because of having the heating on...I can´t describe it very well, its like there´s something in my throat that doesn´t come out. It´s not constantly there, just the days after chemo. I try to let fresh air in my room, to drink a lot, but it is very annoying. And of course it scares me, although my onc told me, that chemo affects all mucuos membranes...

  • auntienance
    auntienance Member Posts: 4,216
    edited December 2011

    Moonflower, the biotene gum helps (stimulates saliva production). lorikristine, you said it sister!

  • Moonflower83
    Moonflower83 Member Posts: 92
    edited December 2011

    Auntienance, here in Germany ther is no biotene gum. I have to ask my pharmacist....perhaps he knows about something similar.

    Thank you!

  • cfdr
    cfdr Member Posts: 549
    edited December 2011

    Moonflower, I also have had a cough, but only if I inhale deeply. Then i get a tickle at the bottom of my throat that causes me to cough. Makes it tough when I have to sneeze or yawn.

  • stjude10
    stjude10 Member Posts: 390
    edited December 2011

    Just had my final AC today. Yay, halfway done! Hope I handle it as well as last cycle.

    I constantly have a stuffy nose. Always blowing it. And what feels like a phlemmy throat. The only time my nose feels clear is toward the end of the Cytoxan when it kinda burns up there.

    Hope all is well this week with all my Oct. sisters.

  • Pippen
    Pippen Member Posts: 9
    edited December 2011

    The days seem to go slow right after chemo - finished my 4th treatment last Thursday, been more tired and dizzy from the SEs, also expecting company this weekend, so am anxious to get my house in order. Planning on a long nap this afternoon. Trying to get laundry done too. Some asked about work, I work 3 days a week, but the week after chemo I take Mon and Tue off and work a half day on Wed. Thus is isn't so hard. I don't envy you having a mastectomy in the middle of treatment, that would be so hard to face. I still have two more treatments to go, the week after Christmas will be getting number 5, and then one more in Jan - TC - so far not too much peripheral neuropathy, occasionally if I let my hands or feet get pinched from the way I'm sitting. I am noticing a significant dryness all over my extremities though - using lots of lotion after showers and in between, always putting lotion on. This week I celebrated my birthday with friends and found it hard to eat anything fun, chocolate cake didn't taste good, but the chocolate milkshakes from In & Out sure help. My day is expanding as the stomach is rebelling from whatever I had earlier today... Oh well... one more day down and hopefully by Thurs will feel closer to normal again. I find that the fresher the vegetables are and cooked, the more they taste like what they are, with an occasional exception. Fruit is a little more difficult to decide - I just put them in a shake so have a blend. Christmas will be done early for me this year as we celebrate on Sunday this week. Merry Christmas everyone blessings and peace to each of you as you continue to walk this walk of BC. 

  • NancyJill
    NancyJill Member Posts: 218
    edited December 2011

    Good luck to everyone finishing up chemo! I have three more Navelbine/Herceptin treatments, then Herceptin alone the rest of a year. We are doing it! We are strong!

  • TAPPY
    TAPPY Member Posts: 283
    edited December 2011

    I cough all the time to...I do think it is becuase my throat is so dry and I have sinuse drainage and left over gunk from a cold 6 weeks ago.

    As long as you are not coughing up gunk, but just mention it to your onc next time.I chew orbit bubblemint gum and it seems to help ( I dont care for biotene anymore ) my cough and dry throat issues.

    Lori - congrats on your last AC !!!! I was so glad to put that behind me.

     I got to go to our Christmas lunch today for work - I had a Portobello Veggie Panini - and it tasted wonderful.   I love it when I can truly taste something and enjoyt it. Tis the little things..

  • Normandy18
    Normandy18 Member Posts: 30
    edited December 2011

    I haven't posted in a while because my 3rd round of FEC really kicked my butt. My WBC crashed, I had a 102F fever (38.8 C) and I got my first mouth ulcer. My primary doc put me on mega doses of antibiotics and told me not to go to the hospital because I had no immunity. When I saw my onc this past Monday, she was quite upset that I wasn't sent to the hospital. I have my tx every three weeks and I felt horrible for most of this time.

    I have just started Taxotere last Monday (Dec. 12th) and so far I feel pretty good. Though from reading posts, it looks like SE kick in on days 4-5. I had my Neulasta injection yesterday, so waiting for the bone pain to kick in as well. My taste buds seem pretty good right now--will that change? I am a big coffee drinker, but have not felt like coffee for about a month--today the urge for coffee returned and i am enjoying my first cup!

    Take care!

  • stjude10
    stjude10 Member Posts: 390
    edited December 2011

    Oh Normandy, the enjoyment of that first cup of coffee after a break from it. Yummo! Hoping your next tx goes better for you!

    Yay Tappy on getting to enjoy your lunch. I too am going for lunch today w/my office. Looking forward to it, as I'm able to taste!

    My red count keeps dropping a bit. Nothing to be too concerned about yet, but keeping an eye on it. MO says I am anemic, and I told him now I have a reason for being so lazy!

    Now that I'm monitoring my glucose levels at home. Wow! I've been doing great until that little bag of steroids yesterday. It jumped way up yesterday after tx. I was told I'd be having the protocol dosage of steroids for the Taxol next time. Worried about what that's gonna do. I'll probably not see again. MO wants to make sure I can handle the tx before cutting them down. NOT looking too forward to that.

    NancyJill= you said it best. We are strong! October sisters rock!

  • dechi
    dechi Member Posts: 173
    edited December 2011

    Well - Here I go for round 3 of AC today.  Hoping that my SE are not as bad this time with nausea, etc.  I'm going to ask for different nausea meds and see if that helps.  Only 1 more AC after this round and then on to Taxol & Herceptin...

  • stjude10
    stjude10 Member Posts: 390
    edited December 2011

    Good luck dechi, you're just a day behind me in your tx. I handled the 3rd one so well, I asked MO yesterday if he gave me the right stuff. Best of luck to you! Next stop...Taxol.

  • Moonflower83
    Moonflower83 Member Posts: 92
    edited December 2011

    cfdr and Tappy,

    thank you, it helps me a lot to know, that I´m not alone with my problem. It´s just dry cough, no gunk...it doesn´t stay all the time...I mostly feel it coming, when the air is dry or someone is cooking and there´s smoke in the air.

    I told my onc about it, she said it is normal, because everything gets dry during chemo. But I still was concerned about it. 

    Oh yeah, I can imagine how great it feels to taste everything like it was before chemo. In my case I still have problems with it, espacially with bread (tastes like paper) and sour stuff. I can´t eat oranges any more. And suddenly I don´t like meat (except chicken), although I always ate it before. I´m really into potatoes ( fries *yummy*),tomatoes, pears and melons....and dark chocolate. Sometimes I wake up at night and have to eat a piece of it :-)

    Unfortunately coffee tastes different, so I can´t enjoy it very much :-(

  • dechi
    dechi Member Posts: 173
    edited December 2011

    Thanks!  I'll be glad to get this 3rd one behind me!!

  • Lady-di
    Lady-di Member Posts: 150
    edited December 2011

    Hi everyone,

    Had first DD Taxol tx yesterday and so far so good. With having to take steroids a day before the tx this time I find I'm not sleeping much but today will be my last day taking them. My next tx will include Herceptin also.

    I understand exactly what you guys mean about the coffee. I have always loved it. I still make it every morning but I find I only drink a third of it. I'll even make a second cup later but never actually finish it. At least I don't end up with a coffee headache that way.

    My christmas party sat night was really good. It was great to see everyone. Wore the wig and felt like it was my coming out party with it as I haven't seen most of them since hair fell out. I actual think my hair is starting to grow back a bit. I defiantly noticed that little hairs are on my head that weren't there before. I just hope they stay and grow and don't fall out now with starting taxol.

    Hope everyone has a good week and SE are kept to a minimum..

    Diane

  • NancyJill
    NancyJill Member Posts: 218
    edited December 2011

    dia 123: my hair mostly fell out by Day 14 after Taxotere/Cytoxan. However, I only had one round of that treatment, on October 4, since I was alllergic, and now my hair is starting to grow back, too! You may not get your hair back yet if Taxol works like Taxotere, which I think it does. Good luck with getting some sleep soon.

  • fredntan
    fredntan Member Posts: 1,821
    edited December 2011

    my first dose of Taxol was  good. got myself worked up and had nausea before tx. threw up some.

    but after all the predrugs-decadron,emend, benadryl,zantac-I just slept through everything and all day. didn't have any of those steroid highs. now just feel tired and bitchy. yelled at DH and told him either get that GD dishwasher fixed or call professional in. I wash the dishes before I put them in, and wash them after. what the hell is the point?

  • TAPPY
    TAPPY Member Posts: 283
    edited December 2011

    So far Taxaol has just made me very tired from all the benedryl.

    I was there for 5 hours...what a a bummer, but I did sleep for most of it.

    Just very gorggy, with very little nausea, which is a blessing.

    I did throw up the burger I had for lunch, I guess it was just to rich....but I was hungry after treatment.   I also heard your whit blood cells crash on this and they watch it close,

    my face is really read and puffy from the oral steriod.  I hope it only last for a day or two like the IV ones did..

    My doct said to try aleave for any joint pian which may or may not hit for a few days.

    Goint in for the neustla shot today - I am so tired aif appointments..

  • TAPPY
    TAPPY Member Posts: 283
    edited December 2011

    Holy bone pain batman....

    Ok - so no nausea issues...but I am having some serious bone pain today (Taxol treatment was Thursday).  

    After trying OTC  - which did not touch it..I had some Roxicets left over from surgery, they barely take the edge off of thepain...which is in legs, hips, ankles...

    What do docs normally prescribe for this ?  I need something that is going to let me sleep...ugh !!!

  • WIMusicMaker
    WIMusicMaker Member Posts: 78
    edited December 2011

    Good Morning Everyone!

    It has been pretty quiet on here so I hope everyone is feeling well and just too busy to write.

    Tappy I know some people talk about taking Claritin to help with the bone pain. I get upper back and shoulder pain and using a heating pad seems to help a little.

    Terry I hope you are doing well after your surgery. I have been thinking about you!

    I got a HUGE surprise on Friday night. I am a middle school band director and the kids dedicated the December concerts to me. They also put out a donation bowl and collected enough money to purchase an iPAD for me! I couldn't believe it. My 8th graders also sent the most wonderful letters. I really could feel the love of my students!

    I have been feeling great this past week. I am making Christmas cookies, shopping, sewing some presents, and cleaning the house. How wonderful it is to do normal tasks. 

    I hope everyone has a great day!

    Mary

  • Lady-di
    Lady-di Member Posts: 150
    edited December 2011

    Mary.. Thanks for sharing such a touching story. It's so nice that your students and school did sometime special for you. It must have been great reading those letters. Glad you are able to get to those normal tasks with the holidays coming.



    Tappy.. I too have had alot of bone pain this weekend with my first taxol tx. Was told to alternate taking Tylenol and ibprophen every 2 hours but was also given a prescription for tylenol 3 to take as needed.



    I pretty much spent the weekend sleeping. Don't think I have ever slept so much. Stomach issues were not as bad as with the AC but I was careful with what I ate.



    Terry. Hope your doing well.



    Happy Monday everyone!!,



  • fredntan
    fredntan Member Posts: 1,821
    edited December 2011

    I've been doing pretty good too. felt real bitchy those first couple of days after taxol. had some bone pain in lower legs-but he said I didn't need the neulasta shot this time around-I'm getting the t axol weekly. appetite good. mouth issues not as bad with taxol.

    But I've got this left knee pain that comes and goes. the NP at oncologist suggested it was probably a bakers cyst. I googled it and it looks like it is one.

    was going over my bills from all this crap. I can't believe how much hosp charge for stuff-each bx was around 9K, port 9K, mast 22K-just have to pay the copays. No wonder Interventional radiologists make so much. These are the type of docs I work with and they are all loaded.

    I'm just really wanting this christmas week to get over and out of the way. It also seems my friends have forgotten about me. Its kind of sad when friends on facebook-whom I've never met-ask more about me than my nearby friends. IDK I guess they are busy-I can't even seem to connect with my sister. she lives rite down the road-all she talks about is twilight. feels like my brain is mush and all I think about is BC.

  • stjude10
    stjude10 Member Posts: 390
    edited December 2011

    Good morning gals!

    Had 4th AC last Tues. Not as well as w/the 3rd one. Having some mouth and taste issues as well as fatigue. It's funny, as I am fatigued, I'm also dealing w/insomnia...whatever.

    Mary, your students sound absolutely fabulous! You are truly blessed to have them care so much for you.

    Fran, I too am dealing w//trying to understand my close friends. When my DD was dx last year, most of them jumped ship. Not sure why. I think they are afraid my bad fortune will rub off on them. Like it spreads and is contagous.

    I hope this week is a good one for all, w/minimal se's.

    Terry, hope you're doing well. Looking forward to hearing from you when you're up to it.

  • wildrumara
    wildrumara Member Posts: 450
    edited December 2011

    Hi ladies - Just wanted to pop in and say hi!  I had an ultrasound today (2 weeks post treatment 4)to see how my tumors are responding to neoadjuvant and thankfully they are responding!!!  My MO told me there wasn't much change when she's palpated, so I've been very concerned,  but actually, they are shrinking (not a huge amount) but they are shrinking and they are much, much softer according to the surgeon.  According to him, they were hard as a rock when I first saw him and now they are very squishy!  Therefore, I feel a lot better.   They said to stay the course and complete the six treatments of TC.  So, its good news that the TC is working, but I hate the fact that I have to go through two more treatments.......they really have been getting harder each time....Oh well, so I am going to have a rough Winter....that's what I keep telling myself.  By the end of February, chemo and surgery will be behind me!  Nice to read everyone's posts!  Hang in there!  Keep Fighting and Happy Holidays!!!!!!

  • TAPPY
    TAPPY Member Posts: 283
    edited December 2011

    Wild - I am always glad for any good news...And I to keep saying this will be over soon

    Lor- I am so tired and cant get a good night sleep either...I long for a nice long sleep.

    Doc called me in some Lortabs for the bone pain, so I hope it will help.  I do have the stronger meds left over from surgery to...I swear - I never took so much as a vitamen before...and now I will need Betty Ford when this is all done:(

    It is daunting the meds we have to take to pull us thru this.

    I am skyping with  Hubby (who is still in Hungary) - and that picks me up :)

  • fredntan
    fredntan Member Posts: 1,821
    edited December 2011

    My momma said that if I get addicted to the stuff shell send me to Georgia. There's a good rehab place there. So I take a xanax every nigt and then later if I'm still up a ambient

  • wildrumara
    wildrumara Member Posts: 450
    edited December 2011

    TAPPY - Take one Claritin the morning of your Neulasta shot and then the day after your Neulasta shot.  That has helped me tremendously!!  Some people on these boards have take it longer, but I've been fine with just two days.  I remember after my first treatment I told my husband my bones felt like they were on fire....especially in my pelvis area.  Almost felt like labor pains!!  

    I know what you mean about taking pills......took occasional Advil for headaches and that was it.  Now I'm afraid I'm going to get addicted to Ativan.  It really helps me sleep though.  I'm taking 1/2 pill a night, so its 0.5 mg.  I haven't had surgery yet, so I can only imagine the pills I will be prescribed after that.  I've never had a stitch in my life, let alone surgery before.  I have no idea what pain is!!  I had epidurals with all three of my kids deliveries so I had very minimal pain.....I am going to be a wreck! 

  • TAPPY
    TAPPY Member Posts: 283
    edited December 2011

    I never took a pain pill with my surgery....the drains were uncomfy....but I did not have pain...it was tender and during the healing process you could tell the nerves were acting up...but as it healed that went away. It was mostly just aggravating because I am a side sleeper and it was hard for me to be on my back ........  My port surgey was painful but he had trouble getting it in.........but the double mas - was not - so dont fear the surgery.   I had lymph nodes taken from both sides and under my arms was tender....but not really painfull 

    The bone pain does feel like labor  - good way to describe it, it is mostly in my legs and hips....I took the Claritin - but I am thinking this could be from the Taxol as well.

  • sherrybaby
    sherrybaby Member Posts: 80
    edited December 2011

    Tappy,

    I am also on Taxol right now and the Claritin is NOT helping so I don't think it is from the Neulasta (I have not had pain like this from 5 prior treatments and Neulasta shots). My hips and knees are absolutely killing me. I am waiting for my MO's office to open because nothing has helped. I have tried heat, cold, and several different types of anti-inflammatory drugs. I finally took one of my pain pills from surgery last night just so I could get to sleep.

    I hope everyone is doing as well as they can with chemo, side effects, tests, and other things we all have to go through right now. My DD is home from college and I am trying to enjoy her visit as much as I can Smile

  • cfdr
    cfdr Member Posts: 549
    edited December 2011

    I've also found that melatonin can help me sleep...I'll usually take it about an hour before I want to go to bed. Although if I'm still awake an hour or so after going to bed, I'll go for 1/2 an ativan as well. I also took a full ativan the night of my tx and the two nights after, when I was still taking the dexamethasone, to counteract its effects.

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