Has anyone started a Dec 2011 group?

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  • maryhope
    maryhope Member Posts: 15
    edited December 2011

    Chemo class...No one from my ONC told me about that, or LAURIELOOMIS did you sign up for a class at a support center? Sure would like to take a class, will have to check that out.



    3MOMSTMAMA, u r right! I'm learning so much here.... Today writing down all the foods for mouths sores..I already have Refux so I'm worried about nausea...going to take whatever I can to fight nausea!



    I've taken anxiety med for years for sleeping issues, highly recommend it! That so helped me get through my Mastectomy...Nurses family and friends keep saying you are so strong. I keep thinking it was my happy pill or maybe it's what KELLOGGS said earlier, don't know how else to handle it, can't get out of this one! So trying to keep up a good attitude! Pet scan tomorrow.



  • naan1004
    naan1004 Member Posts: 520
    edited December 2011

    Tricia, we all went through your stage, fear, anger, sorrow, that's y it's great that u found this group to vent and ask questions to.  My kids were freaked out too when they heard I'll be losing my hair, but i reassured then that it will grow back once I'm done with the treatment.  Hang in there!

  • naan1004
    naan1004 Member Posts: 520
    edited December 2011

    If you didn't see this on the Tonight show, I hope you're sitting down
    when you read it. This is probably the funniest date story ever, first
    date or not!!! We have all had bad dates but this takes the cake.

    Jay Leno went into the audience to find the most embarrassing first
    date that a woman ever had. The winner described her worst first date
    experience.

    There was absolutely no question as to why her tale took the prize!

    She said it was midwinter...Snowing and quite cold... and the guy had
    taken her skiing in the mountains outside Salt Lake City , Utah .

    It was a day trip (no overnight). They were strangers, after all, and
    had never met before. The outing was fun but relatively uneventful
    until they were headed home late that afternoon.

    They were driving back down the mountain, when she gradually began to
    realize that she should not have had that extra latte. ! ! They were
    about an hour away from anywhere with a rest room and in the middle of
    nowhere! Her companion suggested she try to hold it, which she did for
    a while. Unfortunately, because of the heavy snow and slow going,
    there came a point where she told him that he had better stop and let
    her go beside the road, or it would be the front seat of his car.

    They stopped and she quickly crawled out beside the car, yanked her
    pants down and started. In the deep snow she didn't have good footing,
    so she let her butt rest against the rear fender to steady herself.
    Her companion stood on the side of the car watching for traffic and
    indeed was a real gentleman and refrained from peeking. All she could
    think about was the relief she felt despite the rather embarrassing
    nature of the situation.

    Upon finishing however, she soon became aware of another sensation. As
    she bent to pull up her pants, the young lady discovered her buttocks
    were firmly glued against the car's fender. Thoughts of tongues frozen
    to poles immediately came to mind as she attempted to disengage her
    flesh from the icy metal.. It was quickly apparent that she had a
    brand new problem, due to the extreme cold.


    Horrified by her plight and yet aware of the humor of the moment,
    she answered her date's concerns about' what is taking so long' with a
    reply that indeed, she was 'freezing her butt off' and in need of some
    assistance! He came around the car as she tried to cover herself with
    her sweater and then, as she looked imploringly into his eyes, he
    burst out laughing. She too, got the giggles and when they finally
    managed to compose themselves, they assessed her dilemma. Obviously,
    as hysterical as the situation was, they also were faced with a real
    problem.

    Both agreed it would take something hot to free her chilly cheeks from
    the grip of the icy metal! Thinking about what had gotten her into the
    predicament in the first place, both quickly realized that there was
    only one way to get her free. So, as she looked the other way, her
    first time date proceeded to unzip his pants and pee her butt off the
    fender.


    As the audience screamed in laughter, she took the Tonight Show
    prize hands down. Or perhaps that should be 'pants down'. And you
    thought your first date was embarrassing. Jay Leno's comment... 'This
    gives a whole new meaning to being pissed off.'

    Oh and how did the first date turn out? He became her husband and was
    sitting next to her on the Leno show.

    If you laughed at this pass it on.

  • maryhope
    maryhope Member Posts: 15
    edited December 2011
    Naan1004 Thanks for the hard laugh! I could just picture the whole thing happening!! They win in my book!!
  • keepnfaith
    keepnfaith Member Posts: 39
    edited December 2011

    Well, things didn't exactly go as I had thought today. Instead of it being first day of chemo I actually had a consultation. I wasn't the only one who thought it would happen today because they had even prepared my port for it. Which didn't hurt, much to my relief. (Wasn't sure) 

    Instead we just went back over my diagnosis. I was orginally told my tumor was 1.9 cm, found out it's actually 2.6 cm, to me that's a big difference and I was shocked.

    Will be given Adramycin and Cytoxan every 2 weeks for 4 treatments and recieve a shot of Neulasta day after each treatment. Then Taxol every 2 weeks for 4 treatments. They are trying to get me scheduled for an Echo this week to begin my chemo next week. 

    So found out the tumor is bigger and they decided to change the treatment plan/drugs than what was first told to me. I don't know whether to be relieved or upset. Think I just want to get this behins me....

  • Mardibra
    Mardibra Member Posts: 1,111
    edited December 2011

    Second AC treatment for me tomorrow. I'm hoping my experience is the same as the last one because it really wasn't that bad. Totally doable. So for you ladies starting soon, the build up to the chemo was worse for me than the actual chemo. Try not to stress out too much.



    Hair is falling at a pretty good clip. I can't run my hand through my hair without 20 strands coming out. It starting to get pretty messy now so I'm glad my "hair be gone" party is scheduled for Friday night. A party is my way of adding some happiness to a bad situation (I love my hair!). You will each find "your way" to handle.



    Rachelvk - glad to hear your tx went well.



    Chin up gals!

  • Terry71
    Terry71 Member Posts: 293
    edited December 2011
  • seacretgardn
    seacretgardn Member Posts: 269
    edited December 2011

    Rachelvk, hope you continue to feel well. Mardibra, good luck tomorrow, happy you'll have one more behind you. Hoping you do as well or better than the first round.



    I dont know, feel like I'm doing something wrong. It'll be one week since tx tomorrow, I was so lightheaded and weak today, took my pulse, 105, that was just getting off the couch! Went in to have blood count checked, was ok. Mouth and throat sore, even with all the gargling and biotene.



    Listening to those of you who have been able to return to work, or who take care of young children, leaves me feeling so inadequate.



    Now to add insult to injury, I'm breaking out like a teenager!



    Ok, sorry, no more complaining from me.





  • rachelvk
    rachelvk Member Posts: 1,411
    edited December 2011

    Okay, I've had a chance to catch up a bit.

    rcm - This is a stressful time. Take the time you need to absorb it, and you'll find your 'own' way to deal with everything, like what to do when you lose your hair. I don't think I'll do a shaving party, but when I went to get my hair cut short, I dressed up. I'm sure you'll do fine.

    momof3boys - It's good that things are moving so quickly, even though it's mindblowing. Do keep the exercise up - were you offered PT after surgery? I didn't lose any weight after surgery, but I had a lot of meals brought over by friends, and cookie baskets, so that didn't help. But I'm still about the same. My onc warned me about possible weight gain but didn't say it would be bad. They should take your vitals each time, so there may be some time to adjust. It's great that you have a good relationship with your onc.

    RachelsLife - Welcome to another Rachel! Though I am sorry you have to go through all this. This board is truly great, and you'll benefit from all the advice. I think this helps us prepare for what's ahead.

    To all the moms - I give you all extra kudos. I can't imagine going through this while having children to care for - both in terms of their day-to-day needs, and helping them dealing with what you're going through. I have so much respect for those of you who must be extra strong to go through this with a family.

    Julie - Thanks for that story!!!  I hope we all have men (or find them) in our lives like that guy.

    Keepnfaith - I'm sorry you're facing that delay. It is scary when the tumor winds up being bigger, but it's good that you're getting chemo first. I waited over 2 months for surgery, in which time my tumor went from 1.7 to 3.2, with no chemo until now. But they'll get you going on your treatment and I'm sure  you'll be fine.

    mardibra - Good luck with tomorrow. And have a great time with your party! I haven't decided what I'll do, though my hairdresser is willing to come to my home if I want to shave my head.

    Terry71 - Glad to hear surgery went well, and that the pain is minimal. And 1 drain! You'll have that one out in no time!

    seacretgardn - Thanks for the wishes. And don't push yourself. We all are reacting differently to this. Try to do little things as you can, grabbing bits of 'normal,' but listen to your body. I learned that big time after surgery.

    Day 2 for me has gone okay. I took the Tylenol and Claritan as directed, and so far no problem with Neulasta, though that might show up tomorrow. I worked 3 hours this morning, then Mom picked me up and drove me for the shot. I did take one of the additional anti-nausea meds when my stomach got a little noticeable (in addition to my last Decadron and the Emend this morning), but so far, so good. Taste is okay still, but I have gotten a few weird messages from my tongue, so I'm wondering if that will be the first to go. Waiting for my boyfriend to get off the phone - the plan is ice cream, movie and then bed (later than I should, I suppose. I'm an unrepentent nightowl, and it sounds like chemo will make that even worse!)

    Okay, I've written enough for a book. To everyone - one day at a time. We'll make it through.

  • Mardibra
    Mardibra Member Posts: 1,111
    edited December 2011

    The one thing I have learned from these boards is that chemo throws everyone a different cocktail of SE's - both mental and physical. Don't stress over what you think should be happening. Each experience is different. They thought my tumor was smaller than it turned out to be too. Surprise! Not the kind of surprise I like. After chemo I'm headed for a mastectomy. surprise! I believe all our journeys will be filled with some surprises...both good and not so good.



    Mastectomy today and posting tonight? I'm impressed!

  • Terry71
    Terry71 Member Posts: 293
    edited December 2011
  • momof3boys
    momof3boys Member Posts: 896
    edited December 2011

    Hi Rachel

    PT wasn't suggested to me after the double mastectomy and immediate reconstruction. Interestingly, my PS put me through a bunch of range of motion and strength tests before the surgery, and I'm physically fit. I'm concerned about weight gain because: psychologically I know it will be hard for me to take one more thing! I just recently lost 30 lbs and am very happy right now with my weight. My oncologist said some weight gain is normal, but to watch. She said a lot of women overeat between chemo in anticipation of being sick...and a good number aren't that sick after all. Also, she said that in her experience, women with a healthy weight do better during and after treatment.

    There's actually a gym attached to the facility that I will receive my chemo and my insurance covers the membership (it's owned by the Drs in her practice). She also recommended swimming and again said she'd write a prescription for it so I could use an indoor pool near my home that is located in a rehab hospital.

  • rachelvk
    rachelvk Member Posts: 1,411
    edited December 2011

    It's good that you can use the gym and swim.

    I chose my PS in part because he had me see a PT before my bmx, and I'm seeing him now (shoot! Almost forgot today's stretches). I lost about 10 lbs a few years back, which for me was a lot because I'm under 5', but about 8 have come back since then. I hope I can get back there some time. But I still was an okay weight - probably should be 5 or 10 lbs lighter to be in a better position. I also had to stop fencing a few years ago when my knee started giving me trouble, which is probably why the weight came back (in fat, not muscle). Let's hope for the best as we make it though chemo - on to better and healthier! 

  • markat
    markat Member Posts: 909
    edited December 2011

    Hi ladies. My onc sent me to the ER today for my headache. Had fluids and CT scan which came back clear. So I guess my ongoing headache is just a fun se that I get to live with.



    Oh well. You all are so strong! Hugs!

  • maryhope
    maryhope Member Posts: 15
    edited December 2011

    Keepnfaith, that same thing happen to me with tumor sizes ( MRI wouldn't work so it took 3 hrs. to complete the test) The test said I had a 8cm tumor, thats what the surgeon told me who did my Mastectomy. Turn out to be two smaller tumors. So many things have change on me. First they told no radiation now my ONC called me this week and said they had a meeting and I will have Radiation after chemo.. REALLY!!!! So what are we suppose to do say NO! So here we are venting! Don't be upset what is the difference, no such thing as having a little cancer...One big tumor, or two smaller ones cancer is cancer!

    Oh yes, the reason I have to have radiation now is because my 3 nodes are a lot bigger then they thought. I will win this!! They can change there minds all they want, but I'm keepnfaith!!!



    You girls that just had Mastectomy, PLEASE Take it easy. I felt not to bad at all the first week. The second week it hit me hard! Heal fast!

    Nighty night





    Nighty

  • keepnfaith
    keepnfaith Member Posts: 39
    edited December 2011

    Mary Hope,

    I understand it changes, even states it in my paperwork.(ha) I don't know what I was expecting but apparently none of that was it. You are right cancer is cancer. I just have such a mixture of emotions and they are constantly changing. Today was one of the downer ones. Crying for no reason, then sitting around laughing with family, hungry, then nauseated, whew! It's enough to wear you out! Tomorrow I plan on getting out for a girls day. Me, sister, mother, and daughter. We've had a tough year and we deserve it. 

    Thanks everyone for all the information and support! ~hugs~ 

  • maryhope
    maryhope Member Posts: 15
    edited December 2011

    Keepnfaith



    You will have fun tomorrow sounds great! When I have done the same thing with my family, that helps so much not to think about it!!! I have been getting so silly with my family, to make them laugh.

    One nice thing coming out of this, is I laugh more with my family and we have become so much closer! I love that fact.. I have been doing crazy things to them. Nurses and staff as well! I never feel like I did my job, in less I have a tech and anyone around me laughing..maybe it's not good for a 58 yr old to be silly, but things are flying out of my mouth I thought I would never say!


    < /MARKAT, sorry about your headaches, a trip to the ER had to scare you!! Maybe in time they will fade. Are you able to take tylenol? Or something for the headaches...sleep well!

  • laurieloomis
    laurieloomis Member Posts: 43
    edited December 2011

    Had my chemo class yesterday and although informative, you ladies are in the trenches and  have first hand experience...your posts, thoughts and information are so much more valuable!  A/C, anti nausea, neulasta, hair loss, etc...... here I come  Blah!  

    mardibra, glad to hear your first A/C went well..here's hoping the second will go as smoothly!

    To all, holding your hand..positive energy all around

    Laurie

  • Mardibra
    Mardibra Member Posts: 1,111
    edited December 2011

    Laughter through tears. One of the best emotions!

  • rachelvk
    rachelvk Member Posts: 1,411
    edited December 2011

    MaryHope and Keepnfaith - This is a real rollercoaster of a disease. Just stay on top of your treatments, learn what you need to, and be ready for changes. But don't lose your grounding in your life - you may have to pull back on some things, but you might also find new ways to explore and experience life. I've had more time to read, and to really enjoy some little things. And you'll learn to appreciate the support of friends and family. (I had written something even better, and then I hit a key and it disappeared.... I hope this was somewhat uplifting). And we're all here for you as well.

    Laurieloomis - I feel I learned so much from these forums as well.

    I woke up early this morning (7 am??? Never unless I have to!). My stomach was trying to make up its mind, but some Prilosec and Emend seems to have quieted it down a bit. I'm a bit achy, so I took another Tylenol. I'll still try to get in to work for a few hours today. Wishing everyone no or limited SEs today. 

  • markat
    markat Member Posts: 909
    edited December 2011

    Yes Maryhope I was very scared!  I had talked myself in to every other possible horrible thing besides cancer that a person could have.  Hopefully for the next tx this wont happen.  It might be the Herceptin causing it, who knows.

    Good luck today Mardibra!  Hope the SE's aren't bad!

     Rachelvk I hope you feel good today!  

    I am now 11 days out from TCH.  I'm feeling great besides the headacheUndecided  This neo adjuvant therapy is different.  I technically don't have a concrete stage yet because I haven't had any surgery.  They staged me at IIb because according to petscan and MRI my tumor is 4.6cm and I have 1 lymphnode that affected.  After my chemo I will decide if I want a lumpectomy or masectomy.  I'm leaning towards BMX.  

    Emotions are crazy.  I go from laughing to crying all the time.  I think the Ativan helps with the laughing though.  

  • mamabee
    mamabee Member Posts: 546
    edited December 2011

    Hi everyone! I've been lurking and reading your posts since the beginning and they've been a huge help, but I guess it's time for me to come out and say "hi" as I start my chemo tomorrow. I'm having neoadjuvant chemo to try to shrink my tumor and get better margins for my surgeon - my cocktail will be TAC x 6. I guess I'm a little anxious, but, in a weird way, excited also to just get this started. I'm 47, found a lump about 6 months ago, waited because I've always had lumps, cysts, fibroadenomas, etc., and because magical thinking told me "hey, you're only 47, you can't have breast cancer." Well, I'm here to tell you magical thinking doesn't work. Anyway, the past is over and now it's time to concentrate on the future.

    I have 4 children at home - 14, 12, 11 & 9. I'm trying my hardest to be strong for them so they don't worry about me. My husband is a huge help and I have absolutely amazing friends who've already done a lifetime worth of work for me.

     Ok, so the steroids have kicked in and I can't decide which do first - wash all the windows in the house or eat a half gallon of ice cream. Tongue out Have a great day everyone! 

  • capinva
    capinva Member Posts: 138
    edited December 2011

    Had my first tx of taxol and doing really well. I was able to eat lunch after tx which I could not do with A/C. Planning on working tomorrow. The nurse just told me I may have joint pains but that should be it. Have the anti-nausea meds just in case but I don't think that will be necessary. With the A/C my stomach was revolting by the time I got home even with the anti-nauseau meds in the IV.



    Good luck ladies and praying for no SE

  • Mardibra
    Mardibra Member Posts: 1,111
    edited December 2011

    Mammabee - eat the ice ream with one hand and wash the windows with the other!



    Had my second AC today. Uneventful for the most part. They did change my Emend from pill form to IV. So no Emend pills tomorrow and Saturday. Just woke up from a 4 hour nap. Kind of shocking given all the steroids they gave me! I will likely be up all night so some cleaning will be happening. Maybe my stomach will accept some ice cream chocolate Haagen Daz.



    My brother and sister-in-law who live out of state are going to join my "hair be gone" party via Skype so we can share a margarita....virtually anyway. Getting buzzed for my buzzing!



    Happy thoughts to all!



    Christine



  • Mardibra
    Mardibra Member Posts: 1,111
    edited December 2011

    Capinva - good to know that taxol is easier than AC. That is coming up for me.

  • laurieloomis
    laurieloomis Member Posts: 43
    edited December 2011

    capinva...so glad you're doing well! I hope all your SE's are minimalSmile

    Had a pretty good day....yesterday I was a sobbing mess..the up & down emotions are exhausting! Tomorrow's Friday, looking forward to the weekend

    mardibra....have a good time at your hair shaving party,  I guess I should be planning mine soon tooFoot in mouth

  • rachelvk
    rachelvk Member Posts: 1,411
    edited December 2011

    Okay, I'm starting to feel zonked. I actually pulled off almost an 8-hour work day. I hadn't planned to, but we were having a pledge drive at the station (public radio) and I spent most of the day manning the phones. Got some production work in. But I'm glad to be home.

    Otherwise, so far so good. I'm achy, but just took some more Tylenol, and the stomach is staying settled for the most part, though not entirely happy. The only weird thing is that I have this odd pink/purple/beige rectangular patch on my stomach on the opposite side from where I got the Neulasta. It appeared last night, about 2-inches long. It's not a rash, it doesn't look like a bruise, and it doesn't itch or anything. I meant to call about it today but didn't get a chance. Anyone ever have anything like that? It seems like it may have subsided a little, but I'll watch it.

    Wishing everyone a quiet, restful night. I'm calling it an early night. 

  • Mardibra
    Mardibra Member Posts: 1,111
    edited December 2011

    Laurie - sorry for emotional swings. That must be tough.



    The other ladies on this board provided invaluable advice on when to expect hair loss to begin. Just as they sai, it started on day 12 nd by today, day 15, it was coming out in clumps. Hair everywhere! For cleanliness issues alone, it has to go! So wether it's a social event or a private event you will figure out what is right for you.



    Today i bought one of those baseball hats with the hair attached to it. Figured it would be good for quick errands where wearing Esmarelda might be too much. It not an exact hair match but it's close enough. Doesn't need to look like my hair just needs to look like hair.



  • seacretgardn
    seacretgardn Member Posts: 269
    edited December 2011

    Mardibra, your stamina amazes me. Day one by the time I got home, I was down for the count. You're shopping, and planning your party! Good for you!



    Maybe I should give up my chamomile tea for a margarita!



    Rachel, I didn't experience anything like that after my shot, sounds like you're doing a lot, get some good rest.



    Markat sorry about your headache. Glad to hear you're otherwise doing well.



    Mamabee, will be thinking about you tomorrow. Here's to minimal SEs!



    Laura







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