Just Diagnosed With IDC

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Kaara
Kaara Member Posts: 3,647
edited June 2014 in Stage I Breast Cancer
Just Diagnosed With IDC

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  • Kaara
    Kaara Member Posts: 3,647
    edited November 2011

    It wasn't the news I was hoping for, but it is what it is and I have to deal with it.  I am meeting with the bs next week to discuss options, but he has suggested a lumpectomy and possible radiation.

    Mine is grade 1 stage 1, small 5 mm, so I'm not sure about radiation, and chemo is definitely off the table.  I am in possession of an article from The Boston Globe about a study that says women over 70 with early stage IDC do not benefit from radiation or chemo.

    Anyone else have info on this? 

  • Beesie
    Beesie Member Posts: 12,240
    edited November 2011

    The information I've read on this seems to be mixed.  Here's one study that suggests that whether radiation provides a benefit depends on whether the cancer is ER+ or ER-, and if it is ER+, whether Tamoxifen is taken (in which case radiation may not be required):

    Emerging Trends in Radiation Therapy for Women Over 70 With Early Stage Breast Cancer 

    There are a number of individual factors that need to be considered, other than just age.  A 5mm tumor that is HER2+ is quite different than a 5mm tumor that is HER2-.  ER-/PR- is quite different than ER+/PR+. Margin size is critical.

    An ER+/PR+/HER2- small low grade tumor might present a very low recurrence risk (local recurrence) if the surgeon is able to achieve wide margins (ideally 1cm) but the recurrence risk might be considerably higher if the margins are narrow. Similarly, even with good margins, an ER-/PR-/HER2+ tumor would present a greater risk.

    How you view risk also comes into play.  For one woman, a 10% risk of local recurrence is too high and she's willing to have radiation to reduce the risk to 5%. Another woman is fine with a 20% risk of local recurrence and is happy to pass on radiation.

    With a 5mm tumor, unless it is HER2+, it's highly unlikely that chemo will come into the mix. So the question hopefully is only about radiation and hormone therapy and that's when you have to consider these other factors.  My mother was 80 when she was diagnosed with a similar size tumor to yours.  She had a re-excision so that they could widen the margins and with that, it was determined that she would get little benefit from any additional treatments. With luck your situation might be similar, if you have wide margins after surgery and if the pathology is favorable. But your situation could be different, if wide margins can't be achieved and/or if the pathology is different.

    Something else to remember is that until you have your final surgery and all the cancer is removed, you can't be sure of your diagnosis.  Grade can change (a tumor can be more than one grade) and the size can change.  So do your homework but realize that you really can't make this decision until you have all the facts.  And that won't happen until after surgery.   

  • Lme002
    Lme002 Member Posts: 72
    edited November 2011

    Hi Kaara,

    Sorry your diagnosis was not what you were hoping to hearFrown. I wish you good luck with your treatment plan and jsut know I will be praying for you!

    Lisa

  • Kaara
    Kaara Member Posts: 3,647
    edited November 2011

    Thank you Beesie:  I appreciate that information.  I'm hoping for the best.

  • Lynzey4
    Lynzey4 Member Posts: 1
    edited November 2011

    Hello.. I just had a lumpectomy & after they removed some of Mass, they did a biopsy & the results came back Stage 1 Cancer.. Not the news I was expecting, I thought I was done, but now I find I've only just begun! I opted to having a double masectomy rather that go through the another lumpectomy with radiation. I just didn't want to wait for the other shoe to drop, My Surgery date is Dec.1st, 2 weeks, I got 4 boys and Xmas is around the corner! I'm scared but after the pet scan, they also found a nodule in the back lower lope of my lumg, Now they want to deal with the lung first, So being the BOSS of ME, I decided to wait on the lung til after the Mascetomy & the reconstuctive surgery, since they really don't know if the lung is cancer or just inflamed infection. I'm so confused! Should I do the Latissimus Dorsi Flap Reconstruction, that the plastic surgeon wanted to do, If I do, it will make it harder for the lung to be dealt with (The nodule is located on bottom lope closest to my spine) Or should I change it to a One Step Alloderm, to allow access to the lung later on down the road??? Has Anyone had the One Step Alloderm??? Need Advice Quick!

  • kate2011
    kate2011 Member Posts: 121
    edited November 2011

    Hi Kaara.

    Sorry for your news.  You might want to talk to more than one oncologist to make sure you are confident in the treatment path he or she recommends.

    I didn't care for my first oncologist at all!  My second one was much better, and was in agreement with the surgeon & radiation oncologist.

    Best of luck.  Please keep us posted. 

  • Kaara
    Kaara Member Posts: 3,647
    edited November 2011

    Thanks for the well wishes everyone.  I have an app't with my BS on Monday afternoon late.  I will get the final receptor results then and have a better idea of what I am facing.

    Lynzey4:  I'm new to this journey also, so can't help you, but there are a lot of ladies who are very knowledgeable on these things, and they will give you direction. 

  • Likeachickadee
    Likeachickadee Member Posts: 116
    edited December 2011

    Kaara - good luck to you.  New here too and I'm a little overwhelmed with all information and options due to the many different faces of BC. 

  • Kaara
    Kaara Member Posts: 3,647
    edited December 2011

    Had my surgery on Monday and it went well.  BS said no surprises and we will get the final pathology on Thurs or Fri of this week which will tell if nodes are involved and whether he got clear margins.   I'm hoping for the best outcome possible, then I will have to decide on radiation.

  • miricurt538
    miricurt538 Member Posts: 73
    edited December 2011

    Lynzey4 , you really have a load on your plate.So many decisions make me want to throw up my hands and say "to heck with it.  Do what you want to or do nothing.  Then I come to my senses and know it doesn't work that way.I see your posting was written back in November so you are well into whatever you decided to do.  I wanted to wish you well and send a sisterly Feeling of love to you.   tell your kids I hope their Mom will be well soon.

  • miricurt538
    miricurt538 Member Posts: 73
    edited December 2011

    Kaara, I'm so glad to hear your surgery went well.  Have you had much pain?  I really didn't.  Took it easy for two or three days and then had to start shopping for Thanksgiving.  And cooking and cleaning and I think I did too much.  I read later that it takes several days to recover from anathesia.So be good to yourself and take it easy for a while.  I know what you mean by decisions about radiation.  I don't want it if I don't need it.  I see the Rads oncologist tomorrow and plan to ask him if we can do the oncotype DX test.  The med. oncologist called me in a prescription for Tomoxifen but I haven't picked it up.  She gave me one for Arimidex when I was in her office but I changed my mind about that and called in for the Tox.  It's just soooo hard to know what is best to do.  Good thoughts going your way and take care of yourself.  Let us know when you find out something.      WinkLaughingSealed miri

  • Kaara
    Kaara Member Posts: 3,647
    edited December 2011

    miricurt538:  I had a little pain the day of surgery and yesterday, but I slept good last night and since getting home from the hospital I am only taking tylenol.  When the dr. said I would get very constipated from the narcotics I decided not to do them unless absolutely necessary.  I asked for the oncotype test as well.  I don't think I want to do the tomoxifen or other anti hormone drugs, so I'm sure I will have a fight on my hands with the onco.  The way I see it is it's my body and I should be able to decide what is best for me.  

    I cancelled the big Xmas party I do every year for the family...let someone else do it!  I have a lot on my plate and big decisions to make so I just don't feel like preparing food and hosting a big event this year.  Life will go on:)  We're actually thinking of taking a cruise around New Years if we can get on at the last minute! 

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