DIEP 2011

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  • treesprite
    treesprite Member Posts: 359
    edited December 2011

    beacher4209: try doing a search with his name, there are also often threads specific to finding docs in particular locations. It took me awhile to find my doc but after some diligent searching, I found some comments.

  • treesprite
    treesprite Member Posts: 359
    edited December 2011

    just did a quick search - Granzow is mentioned in many posts . .happy reading! You can also private message women who mention him . . often they will fill you in more specifically via private message.

    No worries . . . many women here on the forum to support you as you go through this!

    kathy 

  • charlottesmama
    charlottesmama Member Posts: 250
    edited December 2011

    Hi ladies. There was a really good piece on Sound Medicine (NPR) about DIEP reconstruction. Here's the link: http://soundmedicine.iu.edu/. Look for the show dated December 11, 2011.

    Hope everyone is doing well. 

  • mgm1953
    mgm1953 Member Posts: 79
    edited December 2011

    hi there

     those of you who are doing vitamins and homeopathics....how long did you or are you going to stay on the regimen? I've been taking the oral arnica, and alternating arnica gel and vitamin E on the incisions (and alternating aspirin days with tylenol days since I'm still uncomfortable). It'll be 5 wks for me on Tuesday. some days it's hard to be patient. want to feel "normal" again. hope the rest of you are feeling well.

     xoxo

    mgm

  • Snobird
    Snobird Member Posts: 593
    edited December 2011

    I was off all pain meds by 2 weeks out. I never used arnica gel just oral arnica before and after for 2 weeks. Vit E I used everyday for 3 to 4 months. Mostly I found that walking and yoga were the most beneficial things that helped me along in my recovery.

  • bdavis
    bdavis Member Posts: 6,201
    edited December 2011

    I am 4 weeks, and have really almost stopped the arnica... mostly because I can't see bruising anymore, so I don't think about it much. I use the brown tape on the incisions (just started a couple of days ago.

  • goldlining
    goldlining Member Posts: 1,178
    edited December 2011

    I am 4 sleeps away from my DIEP (butterflies!!!) but post mx, I found that I was dying to walk at about 4 weeks post-op and an hour on the treadmill at about 4.0-4.5 pace was an absolute turning point in feeling "normal" and much less pain. Now that I know that, I plan to try to walk sooner this time.

  • carol57
    carol57 Member Posts: 3,567
    edited December 2011

    Goldlining,

    When I had some healing challenges--some skin died on one of my flaps-I spent a lot of time researching the whole wound-healing process, just to understand what was going on in the body as my wounds closed, very slowly over time.  I bumped into one study that was quite interesting, demonstrating that aerobic exercise speeds up wound healing.  I have to believe that speedy walking that's fast enough to elevate the heart rate does the trick.  So, that's wonderful news for those of us who have the love of activity, because diep brings a passel of healing, whether we end up with extended healing challenges or not.  BUT, ask your PS about guidelines for when it's OK to break a sweat, because I know that some PSs advise being careful during the early weeks about that, as we do not want to over-tax the spankin' new blood vessel connections.

    I started walking at an accelerated pace at about week #3 or #4--can't remember exactly now, but I was walking multiple miles at a no-sweat pace within two weeks.  The amazing Bdavis has posted that she logged an incredible number of miles in an organized walk, within a short time post diep. So a walking goal is realistic, and good for you that you're already planning on it!

    I can find the aerobic exercise/wound healing study and post details at some point, but at the moment I'm at a hotel with DH, the night before my 6 a.m. Stage 2 surgery in a city three hours from home. So I won't be on the Internet for a day or so.  But if anyone is interested in that study, say so and I'll find it and post details in a few days.

    Good luck Goldlining...and good luck getting real sleep between now and then!

    Carol

  • goldlining
    goldlining Member Posts: 1,178
    edited December 2011

    Thanks Carol. My PS knows I want to walk / run so I will definitely ask him!
    Good luck in the morning. Hate those 06:00s. My OR call time is also 06:00 on Thursday but fortunately I live 20 minutes from the hospital (at 06:00 -- double it at 09:00).
    I will be snuggling up with my valium at bedtime for the next several days for sure!
    And good luck to everybody else up this week!
  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited December 2011

    goldlining - 4 sleeps away for me too. We live about 15 minutes from the hospital (at least double during commuting times (which is almost all day, I live in Los Angeles) but my in-laws live about 4 blocks from the hospital so we're staying there the night before. That way DS can sleep while DH and I go off to the hospital and then DH can come back once they wheel me away and take DS to school. 

    Best wishes to all surgeries this coming week. I'm going to try really hard NOT to think about this upcoming surgery tomorrow during our family day at Disneyland. Then it'l be back to the worry.

    Speedy healing to those done with surgery and lost of sleep dust for those anticipating surgery.

  • goldlining
    goldlining Member Posts: 1,178
    edited December 2011

    Oh CookieMonster, take me in your pocket to Disneyland tomorrow! I want to ride California Screamin' OK? Front row. Best coaster ever. 

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited December 2011

    I'm not sure we'll ride it, don't know if the young 'un is tall enough. (he's only 8 years old) You're welcome to ride in my pocket on all the rides though.

  • goldlining
    goldlining Member Posts: 1,178
    edited December 2011

    Yeah, 48", but according to the CDC, that is between 10th-25th percentile for 8 year old boys. Maybe tomorrow is his lucky day :-D

    Have fun!! 

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited December 2011

    If it's 48" then he's good to go. 10-25th percentile means that 90-75% of boys are bigger than that. While he's little, he's big enough to ride it, now it's only the 52" rides (Indiana Jones) that he can't go on. Cool!!

  • Kay_G
    Kay_G Member Posts: 3,345
    edited December 2011

    Cookie monster, have a wonderful time at Disney land! What a great distraction for you. When my DD was seven, we went to Disney world. She was just barely tall enough to ride the tower of terror. She had her mind set on riding it because her big bros. talked about it so much. I let her do it and set next to her. When we did the first drop, I didn't hear her scream or anything and thought, wow, she was right, she likes it. I turned and looked at her and now I know where the expression scared stiff comes from. She was completely frozen in terror and couldn't even scream. About a year after that, we went to a restaurant that had a feel to it like the lobby of the tower of terror. It brought it all back to her and she was scared again.



    As others have said, I feel for you ladies going through this with young kids. My youngest was 13, so very self sufficient if she had to be, although she might not have liked it. Sending you good thoughts and prayers for a smooth surgery and quick recovery. Let us know how you're doing as soon as you can. Good luck and enjoy Disney land!

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited December 2011

    Thanks Kay - I'm hoping that it's exactly the perfect distraction for us all as once surgery hits our lives will become much less fun. Doing this while we all still can.

    I've joked that I might get very grumpy if I don't have internet access soon after surgery, so I suspect I'll be on pretty quickly, I may be totally loopy, but I'll be online.

  • treesprite
    treesprite Member Posts: 359
    edited December 2011

    I LOVE Disneyland! I haven't been in way too many years, last time my younger son and I got up super early and road the CA adventure rides over and over and over until the lines got too long . . . 

    any energy given to worry is wasted; you can't teleport to the future so you might as well be in the moment to the best of your ability. If you feel the anxiety, pull your attention to noticing what is in the moment - especially that which you can feel,see, smell, hear and experience via all your sense pathways; it isn't easy to do but should be easier while in Disneyland! Going on rides is a great idea . . they really get your senses going! Also things like sour lemonade, spicy food - also stimulates your physical senses and helps keep you in the moment.

    I was anxious up until the day of and then became very calm and literally floated on into surgery -- at some point, you realize you have done everything withing your control and the rest is up to whoever your personal God is and your team; visualize all of your support in circles surrounding you during surgery . . . you, your surgerical team, your inner family, your friends, and see your God as holding all of you. They are all there to do for you and your job is to relax and let your body be cared for; visualize your cells and antibodies working to protect you from infection and then healing; during surgery, the best for your body is to relax and let everyone do their thing. I visualized angels beating their wings gently over my flap and my cells as guards inside my skin warding off infection. Made me feel better and that worked for me!

    I'm excited for all of you with upcoming surgeries . . the tough part will be over and you will be on to your new normal; the waiting is the hard part.

    I was so happy to get my new boob; I have my post stage 2B check up today - love seeing my PS and his staff . . . they are all so kind and love the fact that I am always positive (well, except when I'm grumpy!) . . . I'll be kind of sad to not be seeing them although I am super glad to be through this journey! 

  • ReadingMama
    ReadingMama Member Posts: 573
    edited December 2011

    First shower yesterday - so exciting!!!  For me 10 days out.  I'm going back to PS this afternoon to see what else we can do about this infection in the left (cancer breast).  Feeling a little stronger each day, thanks.

  • mgm1953
    mgm1953 Member Posts: 79
    edited December 2011

    readingmama- hope that infection resolves swiftly

     treesprite- so happy your surgeries are over. know what you mean about visiting the PS. that support is important...and this is a lonely journey (except for on this forum :)

    bdavis- what brown tape??? did you use it after stage 1? 

    poz vibes to all

    mgm

  • bdavis
    bdavis Member Posts: 6,201
    edited December 2011

    mgm.. It is scar tape.. Only to be used 4 weeks post surgery... and since they were revising all scars, I did not use it after stage I, just stage II.

  • Kay_G
    Kay_G Member Posts: 3,345
    edited December 2011

    Reading mama, hoping the infection is getting better.

  • treesprite
    treesprite Member Posts: 359
    edited December 2011

    Betsy - showed my PS and his assistant the silicone nipple protector - they loved it!

    Reading Mama; isn't that first shower after surgery THE BEST!

    Many hugs at my PS today . . . I'll see them in a few months for my tattoo and a few months after that for follow up but today was the first visit where we weren't planning for the next surgery. If you have to go through this, so great to have a team that cares and does their best for you. I think my first visit with them was October 2010; they feel like my extended family . . .  . my PS is only to second to my DH for number of times touching my boobs . . not sure how that figures into the mix!!

    damn, my boobs look good!

    he he . . .

    Kathy 

  • beacher4209
    beacher4209 Member Posts: 540
    edited December 2011

    treespirit, i probably already asked you this but who is your ps?

     DIEP LADIES!!!! what is starting to scare me about the diep is reading about infections , i read alot of threads from past to present,and it does not seem to be uncommon for this to happen ! also its just so crazy that everyone goes to nola,deip has been around for a little while now there has to be ps's that are now just as good,it seems so unfair to here nola or nothing for us ladies who cannot afford to fly across the country.we nees support from diep ladies that have had good result elsewhere 

  • bdavis
    bdavis Member Posts: 6,201
    edited December 2011

    beacher.. as far as I know, I am the only NOLA person on this page... there are many women who have chimed in with various PS around the country.

  • beacher4209
    beacher4209 Member Posts: 540
    edited December 2011

    Maybe it another site ?? But what ever ladies have chimed in about there p deip ps in Cali please refresh my memory Thanks

  • treesprite
    treesprite Member Posts: 359
    edited December 2011

    I love my PS; he is Dr. Louie with University of Washington. He was fairly at UW new when I first met him; I watched an online video of him talking about DIEP and had a feeling he was the guy for me and meeting with him confirmed it. I consulted another PS and met with him twice before I made my decision, so three consults with two docs before choosing. I asked them both a million questions, even ones that felt uncomfortable to ask . . how many have you done, how many failures, how many complications, what kind. My first consult I was timid, but got braver with number two and three consult.

    Go to the forum search page and try several different ways of searching for surgeons in your area and then send private messages to women asking about their experience. Call the major hospitals and ask who performs DIEP, contact your local teaching hospital and ask them who does DIEP in the area; call PS offices and ask if they do DIEP and how many they do. 

    There are many good one PS's all around the country. Women that love NOLA, LOVE, LOVE, LOVE it and you might get the idea that you are crazy if you don't use NOLA - that is how I felt at one point, but I realized that I didn't want to fly out of state if I didn't have to and that I needed to make the choice was right for me personally. When I talk to women, I always mention NOLA because of all their experience but there are several good options here in Seattle and in California.

    Try to breathe and tell yourself that whatever choice you make, it will BE the right choice for you.

    Complications can happen anywhere  . . . even NOLA; all you can do is to do your homework, prepare yourself as best you can and then do what you can to prevent infections and other complications. Forum like this draw women with complications because they are looking for information and support, so that will create the impression that infections happen more frequently than they actually do when you are looking at everyone who had DIEP.  Your doctor will know what to do if it happens. I had four surgeries and no infections; it is more common to NOT have any complications so the odds are with you, especially if you do what you can . . . keep warm and but everyone about hand washing including yourself and family . . .you only have to be diligent until things heal over, so the window for infection is relatively brief considering.

    I had significant necrosis but that is no one's fault and I am quite happy with my outcome  . . I had some disappointing days but I have made peace with my outcome. There is no perfect decision, there is only the decision that is best for you based on the information that you have available to you. 

    Maybe take a day or two off from thinking about it and try not to read the posts that talk about complications; If you know that DIEP is the right way to go for you, focus on finding your doc and getting a date.

  • c8ndygr1
    c8ndygr1 Member Posts: 186
    edited December 2011

    Beacher, I had my DIEP in Northern California. Is that too far for you?

  • NotAfraid
    NotAfraid Member Posts: 218
    edited December 2011

    CookieMonster 

    My 2MX and double DIEP only took 7 hours.  I think you'll be surprised. 

  • NotAfraid
    NotAfraid Member Posts: 218
    edited December 2011

    (I'm getting caught up - way behind!)

    Beacher - I looked into Granzow as well, but went with Dr. Festekjain at UCLA.  I couldn't have been happier with EVERYTHING at UCLA.  I go to UCLA for ALL my medical care and I've never had it so good.  Now, if I could only get a helicopter so I didn't have to get on the 405......

     CookieMonster - Good luck!  Your PS is not delusional when he says you'll have your arms up and be sitting up pretty quickly.  I had a second surgery to add another vein and I was up sitting in a chair and raising my arms above my head on day 3.    I'll be at UCLA on Thursday and I'll be thinking about you.  

  • mgm1953
    mgm1953 Member Posts: 79
    edited December 2011

    beacher-

    i went with Dr. Lee at Kaiser West L.A. Big surgical team, cause it's a teaching hospital for USC's plastic surgery dept.

    no infections or complications, wonderful staff.

    he's been doing these for years, trained another PS there, a woman named Dr. Poh.

    good luck

    mgm

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