Alcohol and breast cancer question!!!
Hi again awesome ladies!
I am in the middle of my 33 radiation treatments. I was very fortunate that I did not require chemo, but I am fearful about taking the tamoxifen, which is another story.
I have been pretty upset about something. Some of you may think it's stupid, but after dealing with a breast cancer diagnosis, I felt this was like a kick in the mouth.
I am 42 and I have always considered myself a light to moderate drinker. I am part of the PTA, play neighborhood bunco and mah jongg, go to mom's happy hours and nights out and I enjoy wine in the house, but don't drink every day, sometimes not for a couple of weeks.
I was in the medical oncologists office going over some of the possible side effects with his Physicians Assistant and she looked me dead in the face and out of nowhere said "You know you can never drink again- the chances of the breast cancer coming back increase with alcohol consumption.". I was pretty shocked and when the doctor came in I must have been lost in all the other crap that we talked about that I didn't mention what she said.
I saw my surgeon a couple of days later for a follow up and asked her about it and she said that I had to live my life and everything in moderation is fine. There is nothing that can tell me how you got breast cancer and nothing that I can say will give it to you again for sure.
But the PA's statement has stuck with me the last couple of weeks and I have not had a drink and I am feeling wierd about it. I read the study on it and just wanted to vent. I wish she had said I couldn't have ice cream any more....
Has anyone had a similar experience? What are your thoughts?
Comments
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Great question and I wish I knew the answer. I am too a very social drinker. It has crossed my mind, wondering if there was any connection. I will tell you that alchol does affect me differently on tamoxifen. I have cut back quite a bit.
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My oncologist said everything in moderation. You need to live your life. I was in Vegas this weekend and had 3 cocktails, broke out into a horrible sweat and was pretty buzzed. Maybe from the Tamoxifen?
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The discussion of alcohol always creates a semi-firestorm here it seems, but I'd encourage you to look at the most recent info about the risks associated with even light drinking on the main page of this site. You can also Google " alcohol and breast cancer recurrence" and find lots,of information that way.
I've made my peace with saying goodbye to alcohol and although it was hard at first I feel it's worth it and that my life is just as good, better even, than it was before.
Be well. -
paige-allyson-
I was not trying to create a "firestorm" and I have already "googled alcohol and breast cancer recurrence". I just wanted to some other feedback from real people with similar questions.
I am glad that you are happy with your choice. I have NOT come to that point yet, as I was only diagnosed with breast cancer within the last 2 months and have still NOT come to terms with that. It is all a bit overwhelming!
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See BC.org article based on latest. Look under Treatments & Side Effects (very top of this page,) then under Lower Your Risk.
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brilliance2, it's a personal choice and I have certainly reduced my alcohol intake. But I had ILC which studies have shown has a greater link with alcohol consumption, and I believe it was THE factor in my case. Nonetheless, my onc has no problem with me drinking and even makes little jokes to encourage me. He is a very experienced doc.
Just want to suggest that you may want to consider something other than an 'all or nothing' scenario. For example limit drinks to one drink once or twice a week or just on special occasions.
I mainly drink red wine, which is reputed to potentially have health benefits, and is indicated in the Anti Cancer diet book.
I'm not giving advice, just sharing what I have done. Definitely ask what your onc thinks. -
Hi Brilliance2- just to clarify- I absolutely did not think you intended to cause a firestorm- just commenting because that it's tended to sometimes despite the best of intentions. I agree with Racy that it's a personal decision and also like her I had ILC which is more associated with alcohol use.
I'd love to go the just on special occasions route but my default mode is to drink semi-excessively or not at all : o Sad but true -
Brilliance -- I agree with the others in that it's a personal choice/decision. My onco did tell me that there are 3 things that will increase my survival rate/decrease my recurrence chances: Increase exercise, decrease alcohol, and maintain ideal body weight. I'm trying hard to work on all 3, but it's not easy. I did lose 30 pounds since my diagnosis and haven't gained it back, but I would like to lose another 20. I'm also trying to walk and bike ride more, but work often gets in the way. I have definitely cut back on my alcohol consumption, but I haven't been able to give it up entirely. The onco said half to one glass of wine a night is okay. Well, what fun is half a glass of wine?? I'm trying hard to stick to the one glass or less per night. It's not always easy when everyone else is having 3 or 4 glasses. Anyway, just thought I'd share my thoughts on the subject. Good luck with your treatments and welcome to the site, although I wish you (and I....and everyone else) didn't have to be here. I just had rad #21 of 30 today and am really looking forward to being finished with it all before Christimas.
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scc218, Two years ago (when I did my rads) it was said that one glass of red wine a day (like 4 oz.) had a protective effect against skin breakdown. I don't know if that is still the current view for rads.
Three or less servings of alcohol a week is the new B/C benchmark.
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I have tried having two drinks in the last year since my diagnosis. I didn't get anywhere near finishing them, since they made me sick. Not throw-up sick, but churning, acid stomach, man-I-wish-I-didn't-do-that sick. The appeal of liquor is certainly less than before, but then I've been on a boatload of liver-trashing chemo pretty much non-stop all year.
Longer term, I plan to limit myself to a few drinks a year. And yeah, that's a total drag for an oenophile (lover of wine) who used to partake of a luscious glass of decent wine with nearly every dinner. Not it's going to be special occasions, and even then, limited to two glasses.
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Yup - everyone's personal opinion. I'm having a drink whenever I feel like it!!
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I am struggling with this too. Before diagnosis I was an infrequent drinker. I could go a month or two and not have a drink, then go out with colleagues and want to have 2-3 beers or wine. The only other time I drank was on vacation, and then it was every day with meals for maybe 10 days. I really have no interest in being able to drink a small glass every day. I know I could give it up completely, but now I am trying basically to avoid it as much as I can, but allow myself more than a small glass on the odd occasion, or my birthday for example. I wish the studies would indicate whether drinking 2-3 glasses of wine or beer on a single occasion once or twice a month would be equivalent to the tiny daily amount. One ray of hope. I was at a conference and the radiologist at the breast center mentioned maybe we would learn that folic acid cancelled the problem, so you could pop a pill and have a drink. If you Google folic acid, alcohol, and breast cancer you will see some research. I just don't know if I trust it enough to rely on that escape hatch. All my adult life I rarely drank, now when I really could use the buzz now and again, I feel I shouldn't. Too bad pot isn't legal. That might even help breast cancer. What a &*^%ed up society we live in.Last thing, sorry for the spam. One reason the alcohol thing counts so much for me is I know I can cut back drastically and/or give it up. So out of the 3 advised things to prevent recurrence, it is the only one I have succeeded at. I have been a total failure at the lose weight and exercise part. I was already overweight at diagnosis and since I have been on Tamoxifen for almost 2 years, I have gained.
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Thank you all for the replies. It has been hard adjusting to the whole breast cancer things to begin with, this just added to it. I have never been thin in my adult life, always the life of the party, outspoken without alcohol, but this just shocked me when the PA said it to me.
I appreciate your feedback. Not telling anyone, combined with not drinking, combined with radiation and soon tamox has flipped me out a bit!!
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PAs, with all due respect, are not medical oncologists, and should not be handing out lifestyle changing orders to patients. If such changes are needed, it should come straight from the horse's mouth, not from a surrogate.
AZA
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I agree with all of the posts that say it is a personal decision. I am in the midst of radiation treatments and I freely admit that when I read a glass of red wine a day during radiation might help I said hurrah. I have had 22 treatments with 12 to go. So far no skin breakdown but some reness and itching. I also read that three glasses a week is an optinum number and I will probably go with that after radiation. That being said I believe that there has to be quality to life as well and if that means you occasionally err in excess then its nobodies business except yours.
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I lift a theoretical glass to all of us trying to figure out how to just move forward...
(I say that as person who rarely drank, but liked the idea that once and a rare while, I could go and get smashed...like once every two or three years...and has given up the thought that I would occasionally go and have that drink or those drinks.) I know that once in a great while would probably be okay...but I also know that since I know it is linked to recurrence that I will never choose to. It is the idea I am giving up, more than the actual drink. Sigh. So...I lift that theoretical glass to us all...
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They have not actually isolated what is is about alcohol that ups the risk. One of the theories is that alcohol may have something to do with estrogen production. If that turns out to be the case, maybe it will not matter so much for ER-/PR-.
So, gillyone, you may have that going for you.
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I agree with the fact that its'a personal choice. When I was diagnosed I poured my wine down the drain. I didn't touch it until probably 8 months later. I am a social drinker, I like to have a glass while I cook dinner, while sitting around a campfire chatting with friends. There are so many women who have never had a drink, eat perfectly, exercise- maintain the perfect weight etc and they got BC. So I decided to not be such a nervous Nelly about it. I enjoy my wine, life is meant to be enjoyed and if I never had a drink again it would kind of suck- for lack of a better way to put it. I don't feel guilty about it when I do it.
I may be the one person who has replied so far that can simply say, cheers! You are not alone in the way that you feel.
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I too was told not to drink alcohol again. I am not a serious drinker, but enjoy a glass of wine or an occasional Margarita. I usually have only one drink. Never more than two!
I decided I was going to keep living my life, but in moderation. I have cut way back, but will not quit altogether, because I enjoy that relaxing conversation time with my man before dinner - or that glass of wine with a company meal.
One thing that makes it easier to cut back? Hot flashes are far worse with alcohol - even one drink.
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Hi Brillance, I am a 6 year survivor and you bet your booty I drink. I drink beer whenever I want it, after work of course. Over the last 6 years I have met several women that have never drank and recurred and women that quit drinking and recurred. So my montra is do what you want to do! You can be the healthiest person in the world and get cancer, it is a game of chance. They say alcohol increases chances because of sugar but next week they will be saying something else, right?
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Brilliance~~Please read the articles by the founder of this site by going to the home page. Marcia addresses this after her own diagnosis. I had asked about replacements for a nightly glass of wine and she has alot of answers. I love my wine in the evening and have had to cut down but know I will not give it up. We have a very social life and I enjoy a few glasses when out with friends. My frustration is knowing I thought I was doing everything right and got BC. I think it was too many years on birth control pills. I always drank much less than my girlfriends and always had a healthy weight and yet I was the one with BC. My surgeon and oncologist both said alcohol is fine in moderation. I do the best I can to stay healthy but agree there is so much that is out of our control. Good luck to you!
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In my youth I drank a lot... and then once I had my kids, starting 20 years ago, I cut way back... but still had some nights where I had more than 2 drink... Even during chemo, I had a couple of drinks... my MO said not too much so as not to tax the liver... Now that I am past chemo (7 months) my desire for alcohol has decreased. So I am going with whatever I feel like... I may chill 3 Coronas and drink one... or go to book club and have 4 glasses of wine. I drink maybe 2-3 nights a week, and usually very lightly, one beer... Do I think drinking in my twenties caused cancer? I have no idea. But if it did, then that explains why there is so much BC, as MOST people over indulge in their youth... And I have plenty of friends who drank more than me and are BC-free... I think its more likely the plastic or the pesticides.
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I hate all these 'statistical' studies and don't pay much attention to any of them. The cynic in me says that these are just easy to do and half of them are done just to grab some of the funds available for research.
My lifetime average re alcohol would probably be 2 drinks a year ... or less. I just don't like wine or beer and only have a mixed drink on rare occasions. My older sister has had wine with dinner every day for a couple of decades now and she is not the one with breast cancer - I am.
The latest one I saw was that tall women were more likely to get breast cancer ... but hey I'm 5'2" so I guess I'm OK there too. That they are wasting research $$$ on crap like that makes my blood boil.
Honestly I'm getting furious and furiousier with all these wild guesses. It just makes us all chase our tails trying to do - or not do - this, that or the other with the false promise that it will protect us.
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I drink. Then again, if I stopped drinking, I wouldn't have any risk factors to fret over. Normal weight, excellent blood pressure, not diabetic, exercise, no family history.
CHEERS! Anyone want to join me in toasting our sisters? May next year be a good year for all of us! -
voracious - I'll join in the toast. CHEERS!
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I am with Brenda69 and Voraciousre ! They are ALWAYS changing their mind about what is good and bad.Also Some people that drink also do NOT exercise and that is NOT in the studies... Several people I know quite well with BC.. did not drink and eat and excersie right.. but they still got it.. So CHEERS !
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CHEERS!
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My onc said 'two glasses of wine per month.' She said that amount wouldn't affect my estrogen levels.
Er... this translates in real life to five ounces every two weeks. WHAAAT?
So the way I have handled this is I have utterly convinced myself that she meant to say "two glasses a week." Yup. Sure of it. :-O
Well, anyway. Cheers!
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There is such a wide array of advice/opinion/study on this subject. My BS, MO (and the RO I consulted with) all were of the opinion that 1 glass of wine a day...or...1 or 2 glasses on the weekend only was ok. They all said that each person has to figure in QOL. I still struggle with what the "right" answer is. I definitely drink less now than I did before dx. I do still like to have a glass or two of wine on the weekend. I do not know if this will make a difference or not, but I have made the change to buying wine that is Organic and No Sulfites Detected. I no longer buy conventional wine or wine that has added sulfites.
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Hi, Brilliance. Great subject, especially with the new guidelines on alcohol. Since the emphasis on this is how alcohol affects estrogen levels, there's a question whether I need to be as concerned about this since I'm triple negative. But in any event I'm a very modest drinker -- maybe a glass or two of wine a week, but on an occasion like an evening out with friends I might have have a bit more. My oncologist is fine with "everything in moderation" and I'm going with him since he makes sense on so many subjects and is with one of the top cancer hospitals in the country. But I know everyone must come to their own decision on this, just as they do with diet and exercise. These all all risk factors and there are some of us, god bless them, who after a breast cancer diagnosis go macrobiotic, exercise for an hour or more every day and never drink again. But that's just not for me. I need to be able to lead a healthy life that I can still enjoy. And that includes some moderate drinking of wine. I think Laurie08 said it very well....so A Votre Sante all!
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