A Surgical Cure for LE--NOT

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kira66715
kira66715 Member Posts: 4,681
edited June 2014 in Lymphedema

I had previously spoken to a surgeon who was doing microvascualar anastomosis for lymphedema, and he honestly told me it was no cure, but could help.

The NLN says:

Surgical Treatment of LE
Surgery for lymphedema is not curative, but it has been used in specific circumstances for control of a severe condition. Circumstances where surgery may be considered are: reducing the weight of the affected limb, minimizing the frequency of inflammatory attacks, improving cosmetic appearance, or fitting the limb into garments. As with all surgical procedures, the risks and benefits must be weighed against the individual needs of the patient, and the expertise of the surgical team. Surgery is usually only considered when adequate trials of all usual methods of treatment have failed.97,98 There are several types of surgical procedures available that have been used for lymphedema: (a) excisional operations, including debulking and liposuction, (b) tissue transfers, and (c) microsurgical lymphatic reconstruction. There are very few surgeons who perform these procedures. It is extremely important that patients with lymphedema are treated by surgeons experienced in the care of lymphedema and who work with certified lymphedema providers for the patient's on‐going care after surgery. Surgery for lymphedema must be done in conjunction with CDT.147 

So what pops up on my google alerts--a surgeon who states he can cure LE--ironically, on an insurance site and as it's experimental--it's not covered by insurance:

http://insurancenewsnet.com/article.aspx?id=304541 

New Surgery at UAMS Provides Dramatic Reduction in Arm Swelling for Lymphedema Patients
Targeted News Service


LITTLE ROCK, Ark., Nov. 28 -- The University of Arkansas for Medical Sciences issued the following news release:

The University of Arkansas for Medical Sciences (UAMS) is the first in Arkansas and one of a handful of medical centers in the country offering a new surgical alternative to treat lymphedema, the chronic arm swelling frequently associated with breast cancer treatment.

The unique microvascular procedure at UAMS is performed by Mauricio Moreno, M.D., who learned the new surgery during his advanced training in microvascular reconstructive surgery prior to joining UAMS in 2009.

The surgery is the only permanent, effective treatment for lymphedema, which is caused by damaged lymph nodes that can no longer cycle excess fluid out of the arms and legs. In the United States the condition usually is a side effect of mastectomy or radiation therapy that compromises the lymphatic system. The result is swelling, numbness, discomfort and a high risk of infection.

Valerie Davis, of Smackover, the first lymphedema patient to have the surgery at UAMS, said the swelling from her mastectomy four years ago was disabling because it restricted the use of her left arm.

"The swelling was outrageous, even when I wore the compression sleeve," Davis said. "It was really aggravating; I couldn't lift things like I wanted to."

Patients with lymphedema commonly see about a 20-40 percent reduction in swelling using massage and compression therapy, the traditional treatment for lymphedema. Such therapy involves extensive massaging to push the fluid from the extremities back to the torso. It is a temporary solution that has to be performed regularly because lymphedema does not improve over time - it only gets worse.

Davis said she tried the traditional treatments, which helped some but were a big inconvenience. When she heard about the new procedure, Davis said, she couldn't pass up the chance it would bring relief.

"Dr. Moreno told me it had a 70 percent chance of working, so I took the 70 percent," she said, adding that she's happy she took those odds.

Davis saw an 81-percent reduction in her arm swelling within a month from the procedure.

"It was worth it," she said. "I'm doing so much better now, and Dr. Moreno said the swelling would likely continue to go down."

Lymphedema surgery involves connecting tiny lymphatic vessels to tiny blood vessels (less than 1 millimeter), giving the excess fluid a new pathway out of the arms or legs. The surgery was developed in Japan in 2003, and Moreno learned it from a surgeon who brought it to the United States from Japan.

If it were only so.....

I've got to add: he's an ENT--here's his profile

http://www.uamshealth.com/Physicians/ClinicalSearch/Details.aspx?id=10&sid=1&PhysicianId=2322&ucLastName=1%1B2322&SearchMode=lastname&PageSize=10&PageIndex=0

And another press release from them, naming an internationally known breast oncologist who pioneers lymphatic protection--Suzanne Klimberg, M.D--who pioneered lymphatic mapping

http://cancer.uams.edu/News/Default.aspx?sid=2&nid=9270&showBack=true&PageIndex=0

glad they're investigating, but wish they'd stick to the facts in their press release

Kira 

Comments

  • Binney4
    Binney4 Member Posts: 8,609
    edited November 2011

    So, is it the doctor or the reporter who got this so wrong? Or both? OutrageousYell -- whatever happened to "Do no harm"?

    Binney

  • Nordy
    Nordy Member Posts: 2,106
    edited December 2011

    I have to say... I have spoken and had consults with two different microsurgeons that perform anastomosis. They both told me it is not a cure... but both have said they have had moderate to good results in decreasing the lymphedema. Ultimately I opted against this surgery because the second surgeon I spoke to was very up front with me and told me because the connections are so superficial I would always have to "baby" my arm. For me this means: no martial arts, no pulling a wetsuit on and off at a rapid pace during a triathlon, no rough housing with my kids. For now I choose the lymphedema over these restraints. Who knows... maybe someday I will change my mind... and if I do, I would certainly go with the doctor that tells me the precautions up front. AND it will be with a microsurgeon (likely one that does free flap breast reconstruction) with an outstanding reputation...

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