Anyone from Montreal, Qc?

Bonjour tout le monde!

I live in Deux-Montagnes, which I never minded til this pesky BC which requires me to travel into the city so often for treatments.I feel very isolated out here. I was diagnosed Feb 11, 2011 at Ville Marie by Dr Brabant. Dr K did all my tests after that. Wonderful doctor...the waiting to see him sucks the big one though. Started chemo March 17 with Dr Stern at St Mary's, but she tells me I need to switch to MGH or JGH for rads. She also said I could choose either Dr K or Dr Brabant for my surgery...not sure which way to go...

Off to a LGFB today at MGH. Very excited.

Is anyone in Mtl getting chemo right now? I completed A/C #3 last week, One more on the 28th followed by 4 Taxol, finishing June 23rd...can't go fast enough

Suebee48: I have implants in both breasts even though I only had ILC in the right breast. I opted to have a mastectomy on both breasts (after the right breast lumpectomy) because of the type of cancer I had which is very hard to detect. Lobular carcinoma grows in a "linear" pattern as opposed to a "lump" and is harder to see on a mammo. I was worried that there was something in the left breast despite the fact that they din't see anything. The pathology from the mastectomy didn't find any other cancer in either of the breasts removed but I at least I have some peace of mind now. The surgeon (Dr Dionisopoulos) did a wonderful job and they are pretty well matched and even. That's about the only good thing to come from this darn cancer...... even, firm, DD's !

And yes, above all else - One day at a time......... it's a long process but you'll begin to see the light after each treatment. Things will get back to normal - a new kind of normal.

Terri

Marie,  I'm sorry to have to welcome you to this site. It's not a place that I wish anyone to be. But if you have any questions or if we can help you in any way please feel free to ask. We have all been where you are now and we know what it feels like to get a diagnosis. We know the uncertainty and all the feelings and emotions that come with a diagnosis. What hospital are you going to? Do you know when you will get your results?

Regards,

Terri

you know what I find hard, is that I don't know where I fit, so I am not a survivor, but I am not like the regular person with low risk since I know I have the gene

They are testing me for my gene, I never had in my life a mamography, I was supposed to plan for one in a year but things go a bit accelerated with my last appointment.

 I was suggested to have surgery to avoid complication in the future, but I was also asked because I have kyst on my ovaries if I want to adopt or have child naturally because maybe I should have them removed as well. This, though, I knew since I was 14, but I only have a small kyst at the time, but now, I have plenty on my right side and a few on the left. Last time I had an echo I had a huge one (well maybe not that huge but for me I found it was) on my right. It is why it sometimes hurt when I press my belly.

Why I was being tested is because the more it goes, the more tired I feel and I started to bruise everywhere for no reasons and because of my family history. Maybe I should not worry about it, since I see all of you have been diagnosed (I do admire you so much for being so strong)  but when I see how my mom is and how it is hard for her now, I certainly don't want to go through that.

She have her biopsy tomorrow for what would be, another breast cancer. She had breast cancer 5 years ago. have been diagnosed on her birthday had the 5 year anniversary this year , but started to feel sick 2 months after and now she looks really in pain and sick. I do have to add though that in between she also had lung cancer (3 years ago) and had almost her entire right lung removed.

 Marie

Thanks Terri,

 I think too the bruises are caused by something else, well I hope. I do find myself pretty young to have both breast removed since I just turned 27 in April. I will be updated on the test in 2 weeks when my mom will have done her blood test.

 Thanks again for your support It is nice to have a place to vent and also read on different topics

Marie

Marie,

Yes, this is a great place for meeting ladies who are going through the same things. It was a great help to me in the beginning when everything was new and scary.

Lucie, Have you heard back for your results? 

Terri

Giva make sure everyone knows which arm was effected by the surgery. If you have to wear a medicalert bracelet so that you will not receive any future IV's and no one will try to take blood from that arm if you are not able to speak for yourself. Lymphoedema is not life threatening but can be uncomfortable. You can bandage the arm to help with swelling if it should occurr. Nothing you eat is going to have any direct effect on the arm. Use insect repellant in the summer and be more cautious arround wasps and hornets. Lynn was stung by a wasp on her right arm (17 nodes removed 11 involved) at a dragon boat race and it swelled up quite surprisingly.

Giva, I've never had radiation or chemo for my cancer so I can't answer you but I just wanted to wish you luck. I'm sure someone with more experience in radiation will stop by to answer your questions.

Regards,

Terri

Hi worriednlost,

I was diagnosed and have been treated at the Jewish General. Although I don't know much about brain mets, I have total confidence in the JGH and my Dr's have been great from my breast surgeon to my Onc Dr Panasci. I've got nothing but good things to say about the hospital and the care they give, their professionalism and the facility as a whole. They are expanding again and as far as equipment goes they are top notch. They've also got lots of funding and personal donations. The Segal Cancer Center is amazing....

I guess it's a matter of personal choice and you have the final decision but you are right in asking around for opinions and gettings some facts  before deciding. I'm sorry that you have to be here with us on this thread. This darn disease is affecting so many of us. If you have any other questions plese feel free to ask. Hopefully someone with experience in what you're going through will have some answers for you.

Terri

Hi Ashley2, welcome to our thread. We're not a big group here and the thread isn't all that busy these days  but I just wanted to welcome you and hopefully someone with experience with neupogen will help you out. I'm living is St lazare so we're quite a ways away from each other. We do sometimes get together for coffee so maybe we can organize something for sometime this summer so we can meet some of the new girls on this thread.

Regards,

Terri

hello Babs, I have this pain today - day 7 - and it is crazy!!! never feel something like this in my back ( spine) and I have 2 kids. I already took 6 tylenol and motrin, but nothing...it is 2 AM..........checking on internet something to do with this pain!!! I 'll call in this morning my MO if I should continu my shuts

thanks 

thank you verry much,bubs,  I'll call today my MO . with 4 tylenol and 1 advil I was ok at 2.30am. now I am like a b it dizzy and pain just my upper spine but nor so bad like in the night . I didn;t start taxol yet, will be in 13 june the first. just finished the AC. 

thanks 

hi Babs, should I understand I'll not need neupogen with taxol? no risk of neutropenia with taxol weekly?

very happy so. it is the first time I receive the neupogene and my AC was delayed twice . no fever ,just the CBS law.

because I don't want delays in my treatment ....... 

thanks....