Victims of the Canadian Healthcare system

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  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited November 2011
    Amen!  Thanks for an excellent post, Beesie (as usual)...Smile
  • NannaBaby
    NannaBaby Member Posts: 510
    edited November 2011

    *applause*

    The point of this thread, that I started, is whether you agree with me or not that the government thinks too much about the $$ than the wellbeing of Canadians.

    I wasn't asking whether or not it exists only in Canada or not. I understand it happens in other countries too. And not just breast cancer and not just young people.

    I want health guidelines set for all Canadians by sex and age.  Just basic stuff you should get checked and how often. And a regulating body to enforce the guidelines.

    I am trying to make a difference for young adults in Ontario, Canada.  I can only focus on so much.  Either you support me in trying to make a positive change or leave.  Stop posting here.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited November 2011

    Nannababy -- To your first point:  I think some of us have explained that, while healthcare costs are rising every day, there are, in fact, guidelines that provinces are expected to follow, if they are expecting to continue receiving funding from Health Canada, the federal body.  Your concerns are more properly directed to the Ontario Ministry of Health and Long-term Care.  Your difficulties with individual doctors should be documented and directed to the College of Physicians and Surgeons of Ontario.  As for "regulating" -- how many times you get checked, etc., well -- fortunately, we are able to exercise free will in our democratic country, and can choose to have regular checkups...or not.  Please take a moment and think about what you're actually asking.

    I believe we all appreciate what you have endured and we do support any efforts to make things right, but telling us to leave, or to stop posting here, is a strange way of engendering our support.  Since this is a public website, I think perhaps you've overstepped your bounds as a poster.

  • NannaBaby
    NannaBaby Member Posts: 510
    edited November 2011

    I have worked in health care for many years.  That is what I studied.  The Ministry of Health and Long Term Care have strict enforced regulations for elderly in nursing homes. But nothing like that for private clinics and hospitals.  I have done some research.

    And it's true, everyone is able to accept or deny whatever treatment they choose.  But at least it should be offered to every Canadian by the professionals. Regardless of their ability to advocate, speak up and their cognitive level etc.

    I can appreciate that doctors can excercise a great amount of clinical judgement.  But at least the basics should be offered to every Canadian regardless whether they want it or not.  The clinics would be enforced not the patients! How dumb would that be?! Here's a $fine cuz you missed your annual physical?! I'm not stupid. 

    And medical funds are allocated to the provicial gov.  It's different from province to province.  And they don't don't have guidelines for all ages, all sexes as to what needs to checked by whom and how often.  Where are people supposed to learn about what regular checkups entail? School?! Heck no! That's why the fed. gov. has increased their education campaigns and helping Canadians make better, healthier choices.  Medical checkup guideline is important and should be as important as the Healthy Eating Guide and Physical Fitness Guide.

  • NannaBaby
    NannaBaby Member Posts: 510
    edited November 2011

    And all sexes isn't a mistake either.  It's not just male or female anymore. In case you're not aware.

  • NannaBaby
    NannaBaby Member Posts: 510
    edited November 2011

    First doctors are paid by the clinic owner.  The clinic owner is paid by the provincial gov. and the provincial gov gets approx 50%money from Canada Health Transfer not Health Canada.

    The federal gov. directly spends $ nationally for Indians, Veterans, Disease prevention, health info/protection and research..

  • Beesie
    Beesie Member Posts: 12,240
    edited November 2011

    "The point of this thread, that I started, is whether you agree with me or not that the government thinks too much about the $$ than the wellbeing of Canadians."

    Okay, if that's the question then my answer is that I don't agree.

    This is a hugely complicated issue and what the government is trying to do is find balance. The government has an obligation to the people of Canada both from the standpoint of doing what's necessary to keep Canadians healthy and provide all the necessary healthcare options, and from the standpoint of managing our (the government's - but they work for us) money. Do they get the balance right every time?  No. The issues are well known. But overall the system works a lot more often than it doesn't work. 

    The fact is that issues related to improving healthcare - making more options available to patients, reducing wait times,  increasing the availability of family doctors, etc. etc. - is a huge focus of our governments (federal and provincial).  Budgets are a focus too.  That's simply reality.

    By the way, I do wish that we had consistent treatment guidelines across the country, not province by province guidelines.  But that's federal government vs. provincial government politics, an issue that's been around since Confederation.  Personally I would prefer a stronger federal presence in healthcare but that's just not how our country is set up.  Look at the U.S.. They have more power in the States vs. their federal government - and that in fact could be the issue that brings down their healthcare legislation.  Here in Canada we actually have a stronger federal government, with more power as it relates to healthcare (although for me, not enough).

    Such a complex issue, with no easy answers.  

  • thenewme
    thenewme Member Posts: 1,611
    edited November 2011

    NannaBaby,

    Your original post asked, "who agrees/disagrees with me?," and you got a lot of responses that seem to indicate most disagreed with you. 

    Now you say "Either you support me in trying to make a positive change or leave. Stop posting here."  

    I guess that pretty much sums it up. 

  • NannaBaby
    NannaBaby Member Posts: 510
    edited November 2011

    Yes, the system is f*cked.  In a lot of ways!  We all pay good money for OHIP and are stuck with what we can get.  If you don't like you family doctor, tuff.  At least you have one.  And so on.  I agree wait times are rediculous.  Again, it has to do with educating the public.  For example, you don't go to the emergency for a sore throat! Or a cold!  The emerg. in my town is like a walk-in clinic.  Mainly because there isn't a walkin clinic within 40km!  We need more doctors for sure! Not going to argue that. 

    To sum up my "argument"... the government needs to educate Canadian residents on how to take care of themselves, when and how often to get checked.  And the professionals need to be monitored that they are not neglecting the patients needs.  If their patient is in their office only every 5 years or so, they should make sure they ask their patient if they have received all the necessary check ups since their last visit.  

    I am a "victim" because I had no control/choice of who my primary care doctor was.  I had no control over his clinical judgement and care he thought I needed.  I expressed my concerns, they were ignored.  I expressed what tests I wanted, ignored.  I expressed I wanted to see a OBGYN, ignored.  I expressed I wanted a female present during my pelvic exams, ignored.  Sure, it's unfortunate that I got stuck with such a loser, but what else was I to do?  Go to a walk in clinic? As soon as I say I have someone regualrly following me, I'd get told to go see him.  Once I went to see another doctor.  And my fam. doctor called to give me shit! Apparently the clinic owner penalized him for losing a visit. $$$. I complained to the college.  That takes 10 months minimum before they review my complaint. 

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited November 2011

    NanaBaby - I can understand your anger. We have a public health system here in Australia - I would never use it!! We can also have private insurance for hospital treatment and dental etc. We are not restricted as to which GP we see. The stories I've heard would make you hair curl. One man my DH knew was diagnosed with bowel cancer and had to wait 3 months for surgery - that is not acceptable.

    We have free mammograms here if you are over a certain age, but this free country wide clinic is being sued by several people (one has since died) because they failed to diagnose their bc. They even made a mistake with me where they missed one in the other breast 2 years ago. It was found a year later by a private breast screening clinic. I will never go back there and now go to the clinic which did find it. I'm sorry they refused you a mammogram - a doctor's order should never be refused.

  • LittleMelons
    LittleMelons Member Posts: 273
    edited November 2011

    I agree that explicit guidelines should be put in place so that symptoms of breast cancer in young women are not ignored and have less chance of being misinterpreted. For example,  people of any age presenting with symptoms such as NannaBaby had, i.e. inverted and bleeding nipples,  and others such as red, swollen and orange peel breasts should automatically be sent for bc screening tests - mammos, biopsies, MRIs.  This would prevent tragic cases of misdiagnoses in young women such as Mrs_X_Sunneedazee from these boards whose ibc was not diagnosed for so long.  And doctors should be better educated about the symptoms.

    I am generally a huge fan of the Canadian health care system and think it works very well overall.  and so are the majority of Canadians which is why our Prime Minister, who used to promote private health care, now praises our universal public system (at least in public before elections).  

  • NannaBaby
    NannaBaby Member Posts: 510
    edited November 2011

    We should have a choice to use private or public or both.  I have my own personal insurance thru work.  It's to bad I can't go and pay for care and have more choices. The OHIP covered things would not be paid by my insurance.  Only some things, but definately not primary care doctors and cancer clinics.

  • Beesie
    Beesie Member Posts: 12,240
    edited November 2011

    Gosh I'm confused.  NannaBaby, you want consistency in treatment standards and you want monitoring of doctors and you want doctors to check up on their patients.  But then you say that you'd like to have a choice to use private and public or both.  "It's to bad I can't go and pay for care and have more choices."  But wouldn't that lead to exactly the type of inequity and inconsistency in treatment that you are railing against?  Doesn't that mean that someone without private insurance - me, for example - would get a lesser level of care?

    There may be a place for private clinics but I think we need to be very careful about that types of treatments and procedures they are licensed to do.  We cannot have a private system that skims off the top, taking the best doctors and allowing all the rich patients (or those with really good insurance) to jump the queue and/or get better treatment.

    Personally I'd like to see the implementation of user fees.  A small fee - maybe just $5 or $10 - whenever we go to a doctor or clinic or the emergency room (except in cases where we have a referral).  That would be affordable, it might cut down on some of the abuse of the system (but hopefully wouldn't stop anyone from seeing a doctor who needs to see a doctor), and it would add a lot of money into the system.  I think the concern about user fees is that once they are in place, there is a risk that they could be increased - to the point where one day they are no longer affordable.  That obviously would be a problem and I think that's why the subject of user's fees is such a no-no with our governments.

    By the way, to your comment about educating patients, have you not seen the Ontario television ads or received the Ontario booklet that tries to educate Ontarians about all the health care options available?  I can't find the booklet or the ads on-line, but here is the website that talks about this:

    http://www.health.gov.on.ca/en/public/programs/hco/options.aspx  

    I became aware of TeleHealth Ontario from seeing one of the television ads and I called them one time and got terrific service.  The general nurse that I spoke to couldn't help me so she had a specialized nurse call me (within minutes) and I was told exactly what to do about my concern, what to watch for and what to do should anything further develop. I thought it was great and for that particular need (which worried me but probably was not serious), it was so much better than going to a clinic or emergency. 

  • NannaBaby
    NannaBaby Member Posts: 510
    edited November 2011

    The thing is Bessie. I am not rich but I am comfortable. I would pay for private care and jump the queue so to speak. It should be an option. It's unfortunate that the "richer" get stronger and healthier and the "poorer" suffer with less. But the way things are working now, and we worry that everyone should be treated equally regardless of their finically status, is forcing everyone to participate in a universal program that not everyone wants to participate in. Anyways that is a different story.

    I'm gonna stick to the fact that we need better regulations and monitoring. Protect the patients! The docotrs have way too much power over us!

    And I have seen those Ontario tv ads. The lady burning her hand on the stove etc. but that doesn't explain what and how often to check things checked. I have called telehealth a few times. Cuz I wasn't sure if I should bog up the emerg... And I agree. The nurses are very helpful!

  • NannaBaby
    NannaBaby Member Posts: 510
    edited November 2011

    Hope everyone is having a good weekend :) 

  • ricia
    ricia Member Posts: 30
    edited November 2011

    I'm pretty sure the public system would work 300% better if it weren't for the trajectory toward privatization in the first place (that has been underway for a long while now). But that's a topic that would need to be covered via a big fat book, 'cause there's just too much to reference for a wee forum post. Plus the whole public vs private debate just makes me mad. We shouldn't be made to choose as far as I'm concerned.

     Anyhoooo... I just wanted to say 'hey', as a sister Canuck, really.

     Oh but also wanted to add to the thread a short version of my diagnosis story... I approached a total of four doctors, over the span of approx 2 years with the suspicion of breast cancer... 'Twas of course the fourth one that took me seriously enough to line up the necessary tests. Once that happened, I had the confirmed diagnosis rather quick-like; at 40 years of age. Until then, however, my concerns were readily dismissed because I was "too young" to worry about cancer. 

    Of course there is no way for me know, but I cannot help but wonder: At what point in that two years did the cancer become metastatic? What would my prognosis have been, if the first (second, or third) doctor had taken my complaints seriously?

  • NannaBaby
    NannaBaby Member Posts: 510
    edited November 2011

    Hey Ricia - That is terrible run around for u! 4 doctors over 2 years?! That blows my mind!  What do you mean metastatic? Your signature says 3a. Mets would mean stage 4... or do you mean it metastasized to regional lymph nodes?

  • ricia
    ricia Member Posts: 30
    edited November 2011

    Hi NannaBaby: Yes, we have only evidence of regional mets thus far. Keeping eye on liver spot and lung issues, for eg, but no bone mets. My understanding is that the official metastasis diagnosis was based on indifferentiation of original tumour borders + chest wall (muscle) invasion combined with lymph-node biopsy. And yeah... The sort of trouble Ive had with doctors that presume too much, and do too little listening, extends into other health issues Ive had. Its tragic really, for everyone whom suffers the consequences. I do believe its directly related to them having too little time, too large case-loads, and not enough resources....

  • NannaBaby
    NannaBaby Member Posts: 510
    edited November 2011

    An article about the new Canadian Breast Cancer screening guidelines...

    http://www.medicalnewstoday.com/articles/238021.php

    "Women should not carry out clinical breast exams and breast self-examinations if
    they have no symptoms pointing to breast cancer, the guidelines also
    recommend."

    $$$$$$$$$$$

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited November 2011

    Nana, I popped back in to see how you're faring...hmm. How does NOT using mammogram machines = $$$$$$$???? Wouldn't it be the other way?? They'd WANT to use the machines so they could make money...right??

    I don't understand the statement about not doing SBE as that is normally the way one finds a lump! Silly comment, isn't it?

  • Mantra
    Mantra Member Posts: 968
    edited November 2011

    If something doesn't sound right, question it. When I was in my forties, my GP sent me to a gyno. I had been previously been diagnosed with a beneign ovarian cyst that showed up on the ultrasound. GP kept feeling year after year and when I was past menopause and it was there, he said I need to see a  gyno.

    Referred me. The gyno walked it, and I quote "we're going to go in a rip those puppies out". I said, don't you even want to examine me? No, there's no need just book your surgery with my receptionist on your way out."  I did. Then I went straight to my GP and told him exactly what happened.

    He had this shocked look on his face and said "uhmmm, he's a really good gyno." Are you sure nothing more was discussed?" I told him I was fully dressed and the appt was as long as it took to say the "we're going to rip . . . . " sentence.

    I could see his mind working and I finally said, "If I was your wife, what would you tell me to do." He immediately said "Get a second opinion."  I did and a third too. 11 years later I still have both ovaries but see my gyno annually to have an ultrasound. 

    I also learned, if one doctor doesn't feel a test is necessary (but I do), then I will keep asking my various doctors until someone provides it. I never take no for an answer.

    I can't ever recall being turned down for any doctor order test. Isn't their job to follow doctor's orders?

  • pickle
    pickle Member Posts: 1,409
    edited November 2011

    The Alberta government just launched a cervical cancer screening program. Every female over 18 received a letter informing them that yearly paps should be done for everyone over 20 or sexually active women whichever comes first. Yearly reminders will be sent out. I spoke to my doc a while ago about this issue. It would be great to see yearly reminders for paps, physicals etc sent to patients just like the dentists do. My doctor said that software is outdated and thus far tere isn't a way to electronically do it. He said he doesn't understand why the software devlopment companies haven't started to do this. It would be huge revenue for a company to develop it. For now at least, we are making some strides in breast cancer and cervical cancer screeing reminder. In Alberta, we don't pay any fees for health coverage nor do we have a provincial sales tax. My own personal experience since my dx has been remarkable. I have never had to wait for anything. After I finished chemo I
    was discharged from the cancer center back to my GP. My onc sent my doctor a letter about what examinations to do every 6 months. Regular scans are not recommended if there aren't any symptoms. I have a yearly bone density now that I am on an AI. I know that most women in the US see their oncs every 3 months for 2 years and they get many more scans than we do but screening without symptoms doesn't appear to change survival outcomes. I am able to email my onc if I have a concern. I had a bad rash kast Christmas n my mx site and under my arm. My gp thought is was an allergic reaction. Within two weeks it was worse. I emailed my onc and got in to see her the next

    day. She wanted to see it to make sure it wasn't skin mets.

    There are shortcomings in any medical system but I am so grateful that we can all have axcess to the same treatments etc regardless of our economic or socio status. I have extended healthcare through work, for drugs etc and if a person is lower income they are covered through Blue Cross or other programs. Our sytem may not be perfect but I have been more than satisfied with my own experience.

    If you aren't getting what yiu need, persistence and self advocating can really help.

    Good luck

    Sorry for spelling errors. I don't type well on my ipad

    Beth

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited November 2011

    Well said Beth.  I live in Ontario and have many health issues and have never had to fight for any tests.  Ask and you will receive.

  • PLJ
    PLJ Member Posts: 373
    edited February 2012
  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited November 2011

    Hello there,

    I have gone through Breast Cancer, Thyroid Cancer and DBS surgery for Parkinson's Disease.  All my testing was done through protocol and in a timely fashion.  Time from diagnosis to surgery was minimal.  My DBS surgery took 1 year to schedule but that was because I wanted a specific neurosurgeon.  So please don't badmouth our health system here.  If I were living in the US, I'd be living on the street.

    My family doctor has never left any stone unturned with regard to my health, including scheduling tons of tests, which were not denied and that I felt were unnecessary. I also have regular check ups with all my specialists, which are many.

    ETA - I am dealing with a fibroadenoma right now and I have had 4 ultrasounds and 2 mammos within the last year.

  • marjie
    marjie Member Posts: 1,134
    edited November 2011

    I had breast exams with each physical/pap, but ended up finding my own lump while in the shower.  From my reporting the lump to mammogram to diagnosis and surgery was 'fast and furious' - I can't complain at all...I was very impressed and happy with my care.

    I do personally believe though, that mammograms should be standard procedure at 40 instead of 50, only because so many women are diagnosed before 50.

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited November 2011

    I agree Marjie, but that protocol has been set in the US as well.  I guess we're following suit.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited November 2011

    and in the U.K. too, I believe.

  • marjie
    marjie Member Posts: 1,134
    edited November 2011

    Yes - exactly ... following suit. 

    That being said, without going through what I have been through, I wouldn't be paying any attention to these debates.  I guess by diagnosis we are all forced to become our own advocates to a certain degree.

  • GG27
    GG27 Member Posts: 2,128
    edited November 2011

    I wonder if the debates are because so many womens cancer isn't found through mammograms.  Mine wasn't, even the week before my surgery the mammo didn't show any of the tumors, I found both of mine through BSE.  I was never told I had dense breasts or the suggestion of any other screening.  I also have no other risk factors such as family history.

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