October 2011 Rads

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  • lovetosail
    lovetosail Member Posts: 544
    edited November 2011

    Thanks Marthah for starting this thread, and congrats on finishing up soon!

    Pam - you're done!  whoo hoo!

  • Robyn6463
    Robyn6463 Member Posts: 167
    edited November 2011

    Natters - I'm not having any pain on my chest right now, but I've only had 6 treatments so far...22 to go. Puppy doesn't bother, although my big dog knocked me over last night!!!!

    They've added a treatment for me on Sunday, because they'll be closed for Thanksgiving Thus and Fri next week. Ick, 6 days in a row, but that means I'll be finished on 12/16...if all goes well!!!!

  • Natters
    Natters Member Posts: 361
    edited November 2011

    Robyn, if I don't get any delays then I think I will be finished Dec 15th, so we are practically rads twins. You are lucky you don't have any skin issues yet - I started getting sore and red right away. But I must say, my skin is holding up OK, including the skin under my breast. No blisters or peeling yet and I just completed #10 last night. Luckily, my incision was on the outside of my breast.

    I was so, so happy to wash away all those markings off my chest this morning in the shower. When I got dressed, I was happier looking in the mirror. No more big Xs or crosses, just a few little extra  freckles.  I'm wearing a cardigan over a V-neck cuddle-dud and I left the buttons open because there isn't a big X with ugly tape in the middle of my chest anymore :)

    rn4babies - I am olive-skinned, too, and it does NOT protect you. Normally, I rarely get sunburns, even though I spend a lot of my free time outside and on the water. But my left breast sure looks like I got a bad sunburn on it now! it gives me more empathy for light-skinned folks who burn like that every time they go on vacation...

  • marthah
    marthah Member Posts: 322
    edited November 2011

    Boost #1 down, 4 to go.

    It was an interesting experience. Prior to each boost, they do an ultrasound to find and verify the tumor cavity they mapped out yesterday during my sim. 

    Anyone else experiencing this as a part of their care?

  • pam53
    pam53 Member Posts: 131
    edited November 2011

    Yeah!!!  Woo-hoo!  I am done.

    Hang in there all--it does happen.

    Got hugs from the radiation therapists.  I almost cried!

    On to the recovery board,  See you all real soon!

  • lovetosail
    lovetosail Member Posts: 544
    edited November 2011

    How many of you are getting swelling in the treated breast?  I had a uni-MX and DIEP recon, and have had 10 of 35 treatments and I notice the treated breast has gotten larger.  Thankfully, no pain, blisters or redness yet, just swelling.

  • Natters
    Natters Member Posts: 361
    edited November 2011
    lovetosail, my treated breast is significantly larger than the untreated breast after 10 tx, despite starting off about half a cup size smaller. I'm into my largest bras and I need to just put away all the smaller ones for now. I just ordered some bigger ones online because this swelling makes even my larger bras feel too tight. Also, it's getting really painful to sleep on my stomach and that's my favorite sleeping position, so it is affecting my sleep. But all moaning aside, I am really grateful that my skin is holding up OK, especially the "underboob" where the nurse keeps expecting me to have problems. 
  • 5kidsMom
    5kidsMom Member Posts: 118
    edited November 2011

    lovetosail, I have swelling too!  I don't have a breast there Wink but my underarm, my side and the upper part of my arm are swollen.  My RO seems to act like it's normal

    I'm in awe of those of you that are wearing bras.  I had to quit within the first 2 weeks of treatment, and am wearing my surgical camis when I go out, nothing when at home.  Too swollen, and it just rubs on the open places--icky! 

  • Natters
    Natters Member Posts: 361
    edited November 2011
    5kidsmom -it hurts to wear a bra because of my nipple, especially - but it also hurts not to wear a bra because the affected breast is now D/DD and it hurts when I move and it's just swinging around loose....
  • lovetosail
    lovetosail Member Posts: 544
    edited November 2011

    OUCH - Natters the needing a bra but not wanting to wear one - sounds uncomfortable.  I am lucky in that I am a little B-cup and can go with a wife-beater t-shirt under my normal shirt and it passes muster.

    5kidsMom - how many tx do you have left?  Sorry you're so uncomfortable.  I assume by your name you have 5 kids - what ages?  They must keep you busy!

  • Natters
    Natters Member Posts: 361
    edited November 2011

    lovestosail, I ordered some cami with built-in shelf bras that Joan suggested because I'm sure I'll get to a point where I can't stand the bras. Normally, those suckers don't provide enough support but I think I will start not caring soon.

    I can't imagine taking care of kids and working full-time (and maybe taking care of a husband, too). Those of you in that situation are ROCK STARS. It's all I can do to stay on top of things minimally at work and help take care of 2 pets. I am sure kids would wear me out!!! 

  • Silia
    Silia Member Posts: 330
    edited November 2011
    Re: pets and our chests, I'm doing a good job of keeping the dogs in line but one of the two cats here has gotten very clingy with me - he wants to be on my lap constantly.  If I have the laptop on my lap, he'll try to jump on my chest - eowwww!  Robyn, will you be posting a pic of Jasper?!
    The last 2 mornings I've had pain just below my incision on the R (radiated) side.  Maybe this is the "underboob" I think Natters mentioned!  Not sure why it hurts the way it does.  Wondered if it was gas (I know someone who once had her husband take her to the ER in the middle of the night.  She thought she was having a heart attack and it was only gas - thank God.)  I was doing Pilates earlier today and it started to hurt on my back in the same spot that hurts on my front.  Instructor suggested I might have a rib roll.  I'm heading to rads in a few minutes so will mention it to the RO in case it's something rads related...  (Really wishing it was on the non-rads side so I could know it's just from lifting a case of water a couple of days ago.)
    Hoping everyone is having a good (or at least decent) day.  We ARE getting through this one day at a time.
  • 5kidsMom
    5kidsMom Member Posts: 118
    edited November 2011

    Natters what a dilemma!  The post surgical cami's I have have the built in "bra" but are not tight at all.  I'm small though, so not sure it would be helpful for you.  I have to say I'm always encouraged when I see that note in your sig line "age 41 at dx" me too :)  I'm the only one I know around here, that has cancer in her 40's.  Encouraging to "know" someone else in the same boat!

    Lovetosail, yep, 5 kids :)  they are 4, 7, 10, 13 and 16 next week.  They do keep me busy, but I think that helps.  I homeschool them so we are always going somewhere, or have stuff to do.  Pretty spent these days though, so I'm planning to take all next week off and do lots of "fun" stuff with the youngers between now and Christmas.  My oldest one was also dx with Crohn's disease this year, so she keeps me hopping with her treatments and other doc appointments.  There are days that if it weren't for my kids, I'd be staying in bed, depressed.  The fact that I have to get up and make things as normal as they can be, for my kids, that helps :)

    So Pam graduated today, who is next?

  • lovetosail
    lovetosail Member Posts: 544
    edited November 2011

    5kidsMom - between your daughter's Crohn's and your BC, I guess you guys are seeing a lot of docs these days - so sorry for that being added to your lives!  I hope your daughter is doing well with her Crohn's, not an easy condition, esp as a teenager.  Since you homeschool, I guess all this provides some "teachable moments" for you re: science/health - of course you would prefer to teach them science/health without the personal experience (!!!), but for me, one positive thing I can take away from this entire journey is learning more about cancer and treatments, and gaining a whole new perspective and respect for health science professionals.  I am a statistician in a research genetics group, but being on the patient end has really taught me a lot.

    Have fun with your children next week!

    I agree with Natters, anyone who goes through all this while taking care of kids really has my admiration - I can barely take care of myself through it.

  • dawmson
    dawmson Member Posts: 75
    edited November 2011

    Pam - yayyyyy! You are done!! Bet that beer tastes great tonight. 

    5kidsmom - Weird about your MO. I hope they set you up with someone great. I agree, it's frustrating to have to start over. I think the idea of mammos and MRIs in the future is definitely stressful, particularly that first one after you finish treatment. I know that I'm getting stressed. The doc that did my biopsy scheduled me for a follow-up mammo the first week in December (6 months after the biopsy). I need to call and see if I absolutely need it then. I think my breast surgeon said I should start 6 months after surgery. Really not mentally ready to go back into that mammogram center so soon. Oh, and I'm 43, so I'm in that 40s group too. Lucky us. 

    marthah - My boost experience sounds like it will be different than yours and others. I don't have to do another sim, they told me, and they also said the treatments will be quicker than my current ones because they don't have to set me up with the breath control/gating device.

    Silia - I've been having pain near my scar too - shooting/stabbing pain that lasts a couple seconds then goes away. Sometimes I have just one, sometimes they're in clusters of 5 or 6. I did some Googling and it might be nerve pain. I'm going to ask my RO about it today when I have my weekly check-in

    All - I have been going braless since about week 3. I'm an A cup, so while I don't have to worry about swinging in the breeze too much, in clothes I look like I have no breasts at all. Which led to a really awkward exchange with a friend of mine not too long ago, who wasn't up on the details of my lumpectomy and asked me when I was going to have my reconstruction. Urgh... 

  • 5kidsMom
    5kidsMom Member Posts: 118
    edited November 2011

    Just had to pop in quick after my appt and share with those who will really understand. . . . the techs told me today that tomorrow is my LAST boost to the scarline :)  Yay!!  I still have boosts to the intramammary node, but it just puts it one step closer.

    More good news: they are doing appts this Sunday for those of us VERY close to finishing!  That means my last day is one week from today  ::::tears::::  I cried half the way home just overwhelmed to think that 10 months after starting tx I will FINALLY be done!!! 

  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited November 2011

    Congrats to all who are finsihing. I finsihed Monday and already feel like my skin is healing! Isn't that weird?

    MAybe psychological but it works for me.

    I too got those zaps in my breast from time ot time. Never mentioned it to the  rad onc but thought it had something to do with the treatment.

    Going to celebrate Friday night by going out to hear a friends band and  dance as much as my sore breast will let me.

    Stay strong everyone!

  • dawmson
    dawmson Member Posts: 75
    edited November 2011

    About those shooting pains - my RO said they are indeed nerve pain, but not related to the radiation. It's the nerves regrowing around the area where they remove the cancer. 

    He said that the nerves regrow 1mm per YEAR and that I might experience these pains for up to 5 years. Yikes. But he also said that within a year my body may not even notice them, since it will just get used to it.

    I wish my treatment center was opening up on Sunday. My last treatment is the Monday after Thanksgiving and I'd LOVE to not have to go back for one last visit that week. Oh well... 

  • Silia
    Silia Member Posts: 330
    edited November 2011

    Based on all the input, now I'm wondering if I'm feeling nerve pain vs. a muscle "rib roll"... RO suggested I not Pilates for a week which is really disappointing. I so need to strengthen and get in shape. Anyway I'm going to put a heating pad on my back now. Sweet dreams to all.

  • rn4babies
    rn4babies Member Posts: 409
    edited November 2011

    #17 of 25 regular today, then 5 boosts. I imagine my boosts will be to my underboob which is already a disaster area because that's where my incision line is. I wore a cami without a shelf to work today and was miserable. 1) no support  2) I sweat so much in it because it is so much more material than a bra. I run around alot at work and also am currently going through menopausal hot flashes so I'm soaked constantly.  (Geesh, what's going to happen when I start the Tamoxifen?) I'm a D cup, too. I've already spent quite a bit of money trying to come up with a somewhat comfortable solution.

  • marthah
    marthah Member Posts: 322
    edited November 2011

    rn4babies,

    I understand your concern. I'm a D too. I can't imagine having my scar line in the crease...yikes! If you can call it this, you can say I'm fortunate in that my scar is on the outside at an angle, pointing outermost to the 10 o'clock position. 

    I've had some pretty good luck with some inexpensive sports bras by Bestform. I found them at K-mart for $8-$10 each. I got the ones with more "bounce control" and that included fasteners, rather than the over-the-head style. One fastens in the front; the other in the back. I have spent more $$$ on bras in the past 6 months than I have in the last 6 years!

  • Ceeztheday
    Ceeztheday Member Posts: 403
    edited November 2011

    Hi everyone. Wow. I was SO FAR BEHIND on posts. Just got back from two trips. One fantastic getaway (blues cruise on the Holland America ship Zaandam), the other trip mostly boring and crappy (convention and managers meeting). I even had my birthday during meetings. Bummer. Did have two fun days in Vegas and saw the ventriloquist Terry Fator, the musical Jersey Boys, and the Gospel Brunch at the House of Blues. So, now it's back to work and boy am I tired. Anyway, I'm so far behind that I'll just have to say congrats to those who are celebrating, hugs to those who are sad, good luck to those who are expecting news, and thanks to everyone for all your information and inspiration.

  • Reality
    Reality Member Posts: 782
    edited November 2011

    Hello to all - I did not have my laptop for a couple of weeks, so I am catching up on our thread - I missed you guys and all of the great people on the November thread for rads. Congrats, MostlySew- thanks for your encouragement. I really needed it this week. My routine was broken by three days without treatment due to a broken machine. It was nice not making the two-hour round trip each day, but I knew I would "pay" - I certainly am going to pay. I expected to make up the three missed days, but because there was a weekend in-between the missed days, I have to add two extra days on to treatment. I realize that in the big picture, this tiny set-back is no big deal - but we all know how good it feels to mark those treatments off the calendar!

  • Teresa5
    Teresa5 Member Posts: 16
    edited November 2011

    Hi everyone...I too am getting close to the finish line. Time really does go by fast. I can't believe I have made 27 trips for rads already.  I am definitely feeling some fatigue, but I am not sure if it is the rads, the chemo prior to the rads, or the travelling every day. I had my first of seven boosts yesterday. I did not have to have another sim done, but the RO did come in to check the set up before I had my first boost. I have alot of markings on me that I am not suppose to wash off. I am in a fair amount of pain today. Mostly the nipple area, which the RO tried to keep out of the treatment field for the boosts, but could not completely. Did anyone else have burning go through onto their back/shoulder area? The radiation went through and I have a square burn on my shoulder. The RO said it was relatively rare.

  • Natters
    Natters Member Posts: 361
    edited November 2011

    Teresa, no burn on my shoulder, but I've only done 12 tx. We may also be getting different doses. Are you very thin? Someone on another thread mentioned that how much tissue they may or may not have to get through may also have an impact on our burns.

    I think I'm peeling in my underarm and losing some hair there, so now I will moisturize more in that area. I wasn't sure how far they were going because they don't need to radiate my axilla and so far it hasn't hurt, so I haven't been using as much product up there. I feel like the RO and rads nurse barely look at me once a week - feels like a waste of time to even have those visits. Although they did give me some little tubes of Aquaphor, and I do like free stuff. It is so much stickier and thicker than the Miaderm, but it may help provide a buffer for my poor sore nipple.

    Very weepy and emotional this week, very hard to work and get anything done.

    Nat 

  • Kay_G
    Kay_G Member Posts: 3,345
    edited November 2011

    I have a square burn on my shoulder, finished rads last Friday. The RO was expecting it there for me. That and the small area right ontop of my clavicle are the only areas that are bothering me, but still no blisters or oozing, maybe a very light peeling. RO said it would continue to get worse for up to two weeks before starting to heal, but I am with paintingmywaythrough, I am already starting to heal. Also, RO nurse kept asking me about feeling zingers in the breast,said a lot of people do and they are normal. I did not, but I have no feeling inmy reconstructed breast and little in my armpit. Congrats to those who finished and hang in there the rest of you. One day at a time. Also, I just turned 48 at diagnosis, so older than you're 41, and with only a 13 year old left at home. I both admire and feel for you getting through it with 5 kids at home, and homeschooling them to boot. Take good care of yourself.

  • truebff
    truebff Member Posts: 642
    edited November 2011

    Congrats to ALL you brave courageous women who are just finishing up.

    I hope I hope I do too. Each day is a decision and my body is not happy with me about this treatment one bit.

    Yesterday (Wed. 3rd treatment in a row day), I went in feeling better for a change, but immediately after rad, got all jumpy in my chest area, jittery, like my molecules were jumping around nervously inside me and immediately felt so wiped-out tired that I almost fell asleep waiting for the doctor to come. It was very disconcerting to feel "together" and then, minutes later, to feel way NOT.

    A nurse suspected my rapid heart was possibly caused by dehydration. I am also losing weight rapidly at this point. I'm dizzy, nautious, and very nervous after some of these treatments and food and hydration are hard to remember under those conditions.( I try to drink water when I get there each day before my treatment, 1-3 cups in case I haven't hydrated ahead of time.) It is very difficult to eat when I am nervous or in pain as well. I wish I could get a muscle relaxant before and after each treatment so my shoulders would go back down from the fourteen inches hiked up they seem to lerk at under this stress.

  • marthah
    marthah Member Posts: 322
    edited November 2011

    Okay, now you all have me thinking about back burns! LOL Yet I know it's impossible for me because my rads treatments were from the sides. But just in case, I'm going to ask DH to look at my back tonight.

    Eeeeeeeeeeek! Yell

  • marthah
    marthah Member Posts: 322
    edited November 2011

    true,

    have you had chemo?

  • 5kidsMom
    5kidsMom Member Posts: 118
    edited November 2011

    Only 5 boosts left for me, and only ONE field left!!  Woo hoo!  Finished the boosts to my scarline today.  Not sure what you call the thing, looks like a lens at the end of the machine that delivers the rads. . . . . anyway, custom shaped to my scar, and apparently they make one for several different areas.  This one they won't be using anymore, so they let me throw it in the recycle pile :) 

     Who else has used zinc oxide on their sore areas?  Nurse gave me some for the "raw meat" looking area under my arm and along my scar.  Done with rads there, supposed to use this 5x/day, but they assured me it would ruin all clothing it comes into contact with.  My plan is to use dh's old shirts, but sheesh, how the heck am I going to be able to go OUT with that stuff under my arm, leaving a huge grease spot there?  Thinking I'll cover it when I have to go out, in spite of being told not to.  I can just limit my time out of the house, and uncover it at home.

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