I say yes, you say no, OR People are Strange

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  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited November 2011

    You ladies are pure magic!

  • YramAL
    YramAL Member Posts: 1,651
    edited November 2011

    Yesterday was the 2 year anniversary of the mammogram that spotted my cancer. I'll never forget the date because I had the day off because it was Veterans' Day. My diagnosis day was December 7-Pearl Harbor Day-and I'll never forget that date either.

    I'm coming up on my 2 year checkup in about 3 weeks. I'll be having a mammogram on both breasts this time, some blood work, and of course a physical exam. My onco doesn't do scans without symptoms, and I'm OK with that. I'm trying not to think too much about it, but I'll probably be a wreck the day of my mammo. I feel like, my cancer seemed to come out of thin air-I never felt my lump, even when I knew where it was-who's to say it won't come again?  

    I'm grateful that I have a very busy life, with not a lot of time to think about this stuff.

    Mary 

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited November 2011

    Mary - you will be just as boring as the rest of us, I just know it. I actually ignored the 2nd anniversary of the 1st one and the first anniversary of the 2nd bc is soon, but I'm trying hard to forget when it was - in a week or so I think or even it might have been going on right now a year ago. I'm someone who doesn't forget anything but this thing might just go by without me thinking about it - oops, I'm thinking about it right now.

    Got some energy and cleaned the shower, loo and hand basin - can't be bothered to clean the floor. Watching the golf (Aus open) and Tiger's incredible slide down from 1st.

    Sue

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited November 2011

    Halfway through my romantic weekend with Xanax.  Hoping to get good results early tomorrow so I can slap myself silly and get back to Sanityville. 

    I hate scans.

  • Wabbit
    Wabbit Member Posts: 1,592
    edited November 2011

    enjoyous ... Hope you can find something to take your mind off the wait ... waiting sucks.  There are those who do such productive things as clean house to take their mind off it??  Nope ... me neither.  Retail therapy maybe??  Wishing you good EARLY scan results.  (((hugs)))

    Sanityville however is highly overrated :) 

       

  • artsee
    artsee Member Posts: 1,576
    edited November 2011

    E...do you want to elaborate about the romantic weekend with Xanax? It seems interesting. Is this something I need to go on perhaps.Wink

    Suesie...I think I can relate...Is it like "if I don't think about it or talk about it will go away?" That's my motto anyway.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Otter,

    I was lurking around that thread on Stage IV - sometimes I just want to jump into this screen and give a person a HUG, and a HUGE thank you.  I don't think we often know, when we post, how many people will suddenly just feel a wee bit better, or feel better understood.  As empathetic as our friends, family can be, sometimes I think it's really takes someone who has ( or had) this Beastly disease to understand, deeply, fully.  Understanding that a "rant" isn't a comstant complaint, it's a real need to just speak one's truth - at that moment, and to be heard, and know that it's ok to be outrageously silly soon, and laugh, and not have the "rant" held against her.

    Think that's why, a ways back, it hurt me so much to know that women who post on this thread were being made fun of at another website, don't know if they still are, cuz I passed as quickly as I could into just ingnoring the hateful, mocking comments.

    MAGIC.  As BD said.  Just magic.

    Artsee - if I were tha allergic to perfume, I'd let the teacher know b4 the class, and ask that it be as perfume free as possible.  The "note" in perfumes that gets to me is Musk ( which is in a lot of perfumes) - I think being open, really up front about the problem a person might have, makes it easier for the group to work with it.  So easy to go without perfume/cologne for one day, or days, kinda like not having peanut butter if you know some kid is gonna have to reach for an epi-pen, sometimes even if you go near her.

    Mold, mildew is such a dangerous allergen, even if a person isn't as allergic to it as I am, it's' not good to be around it for a long period of time.  Instructor, who I met for the first time yesterday, emailed me to let me know they're having the whole Library checked.  It's a bummer to get rid of, especially in old, once flooded buildings.

    SUSIE: if this feeling of depression continues, I hope you'll consider taking some medication for it. Not something to fool around with - and goodness knows we each have so much to deal with, it's not surprising.

  • artsee
    artsee Member Posts: 1,576
    edited November 2011

    The whole school knew about her allergies. She takes the class every year, after the fact I found out she brings her own sheets etc. I think it was up to the school to put it into the mailings that tells you what to bring and what is going on everyday of the week.

    It's the way she presented it is what ticked me off. It was warm out and I felt smelly (ugh) so after lunch and one little spritz (no Musk), the world came to an end.

    After all that I find out most everyone was wearing some kind of body moisturizer with fragrance.

  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited November 2011

    Well we got all the deck furniture in, so I can't pretend winter is not coming, anymore. I got out my gloves and went through hats and scarves to see which ones were still good and all that lovely stuff. My boots are buried somewhere. Tomorrow sounds like a good day to look for them.

    Yesterday DH and I went shopping and he did very well. I got an outfit for work and two other pairs of pants because even though I have been losing weight, I gained it on my tummy and am not losing it there. (Rats).

    I also went Christmas shopping for the grandkids.I love to buy clothes for little kids Thank goodness everything was on sale! I did get some REALLY good bargains for the little ones.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Artsee - don't know what to say - except she could have done it in a nicer way.  As a person who has severe allergies, often leading to asthma attacks - as happened for me yesterday, I can really see both sides.    There are just some fragrances that some people react badly to.  My docs have signs all over the place asking women not to wear any fragrance, of any kind.  Kinda like no smoking now, at least here in the "East."  Very ususal to ask participant in courses not to wear anything that has a fragrance.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited November 2011

    "Fragrance-free" is a posting I see in all hospitals, my gym, the community centre -- it's now almost as common as the No Smoking sign in all enclosed spaces.

    But at my last onc appt, I took a stack of magazines I'd already read (as I usually do) and placed them in the waiting room.  I noticed there were no other magazines, books or brochures to be found anywhere.  It wasn't until a Board meeting the following week that I discovered the removal of all reading material was a safety measure, to combat the possible spread of MRSA, with which our hospitals had had great difficulty. 

    I certainly can't disagree with this safety measure; will just have to remember to take my own reading material next time!

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited November 2011

    I'm OK girls. Said to DH last night we are both probably suffering from PTSD. Even after 8 years he still is freaked out about his cancer and met to the lung (4 years). I'm still missing the travelling - I really liked it (especially not cooking) and I miss my grandson.

    I did fill my green bin with the palm fronds later yesterday, now I still have some left - will have to wait until it's emptied next week.

    Take my first Aromasin today - wish me luck.

    Sue

  • artsee
    artsee Member Posts: 1,576
    edited November 2011

    Seeing as there is a huge variety of short and long survivors I'm going to ask a question.

    On your scars, do any of you still have acheness in there? Lumpectomy or mas. scars? I'm almost 4 years out and still can feel slight pulling when I stretch or move my muscles around. I think it's weird but I do have a lot of scar tissue that formed in there. Four weeks ago I had  a mamo and US that showed nothing. Any ideas? Maybe it's from the big squeeze. Thanks.

    Oh, Suesie...good luck on Aromasin. I started on that too.

  • YramAL
    YramAL Member Posts: 1,651
    edited November 2011

    artsee-I'm almost 2 years out and I still have some achiness in my lumpectomy and sentinel node scars. Mostly, though, they still itch quite a bit at times.

    Mary 

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited November 2011

    Artsee - were you already on Arimidex? I wonder how long we need to take it to find out if the SEs will be worse.

    Sue

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited November 2011

    I spent the day helping my daughter to organize and clean her apartment.  Xanax didn't like me being away, but he just has to deal with it.

    I'm too tired to be stressed about the scan now.  So yes, White Rabbit, cleaning/organizing actually does help!  We actually worked some retail therapy into it, buying some new towels, an air purifier (DD has asthma), a new broom and dustpan....you know, the fun stuff!

    Oh, and the cat decided to get lost in the attic.  THAT was fun.

  • YramAL
    YramAL Member Posts: 1,651
    edited November 2011

    enjoyous-if you would like another day of intense cleaning and reorganization, you can come to my house! Seriously though, I hope your scans are good and your anxiety is for nothing.

    Mary 

  • Wabbit
    Wabbit Member Posts: 1,592
    edited November 2011

    Awww the kitty was trying to help distract you.  Nice kitty  Wink 

  • artsee
    artsee Member Posts: 1,576
    edited November 2011

    Thanks for all the input.

    Sue I was never on Arimedex. Started on Aromasin 31/2 years ago but it was too hard on my body. Switched to Femara and I've been pretty good until I switched to it's Generic. Now it's like getting hit by a train. My knuckles are getting ridiculously miss shapen.ugh!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    E - still hoping for the most good & boring scans you've ever had.   when will you get the results?

    Susie - I'll be very interested to learn howyou tolerate Aromasin.  I'm starting my 5th year on Arimidex - am determined to finish 5 - then, what's next?  Option to take Tamoxifen, but I don't want to give up the SSRI that has kept me ( a version of) sane for years.

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited November 2011

    Good morning, all!

    No word on the scan results yet.  I'll post as soon as I know anything unless it's bad, in which case I'll freak out and drive to parts unknown.

    WR - Yep, kitty (whose name is actually Kitty) and her Great Attic Adventure distracted me quite a bit!   It's fun rolling around in ancient attic insulation and banging my head on rafters. :-)

    Artsee - I think our own HL had a bad reaction to the generic of some drug.  It turns out that the generic used different fillers or coloration and that's what caused the reaction.  Odd that something so small can have such a profound effect on our entire bodies.

    Speaking of small things with a big impact - did you know that a gram of all-natural 100% organic botulinum toxin can kill one million people? Yikes.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited November 2011

    Artsee -- Exactly the same thing happened to me when I switched from Femara to generic letrazole (made by TEVA).  I stayed on the generic for a couple of months, then went to my pharmacist to check if my supplemental insurance co. would pay for the name brand.  He checked and said yes, and I've been on Femara ever since.  My onc also said that she would have written "No substitute" on the Rx if it had been necessary.  Several of her patients have experienced the same thing going on a generic -- it's as though all those crummy symptoms we first experienced came rushing back.  Ugh!

    E -- fingers crossed, as usual, for really, REALLY boring scan results! 

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited November 2011

    Good morning ladies,

    I'm off to see my thyroid doc this afternoon.  Gonna be quite an adventure.  I have to take public transit as Ray was busy at work today.  Speaking of which, been reading the Alternative thread.  Wonder how those gals propose one deals with thyroid cancer.  It can never be totally removed with surgery alone, so the radiation treatment is a must!  Also wonder how they would deal with PD.  I spent thousands on naturals rather than the mind altering drugs at the beginning of my illness.  A TOTAL RIPOFF!!!!!!!!

    I read something on one of those threads that has me puzzled as well.  They give WBR as a preventative measure???? Really???? Was that Dr. Conrad Murray in charge of that treatment plan perchance????????? Totally Mind Boggling!!!!!!!

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited November 2011

    E, thinking of you as well.  I seem to have ongoing doctor's appointments with all my medical problems so have become immune to the anxiety.  Six month oco visits, six month thyroid dr. visits, one year mammos, 6 month PD visits, and monthly tune-ups.  Ain't life grand??????

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited November 2011

    You're single-handedly supporting Canadian doctors, Blue!

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited November 2011

    Yep, gonna bankrupt OHIP.

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited November 2011
    If only you had China's system, eh?  Wink
  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited November 2011

    Blue, I'm guessing some sort of suppository or enema would help with the PD.

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited November 2011

    Well if Michelle Bachman "admires" China, then it MUST BE GREAT!   Aren't they communists over there?

    Anyhow, I'm off!

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited November 2011

    LOL! E!!!!!!!!!  A tea enima I would think!  Ahh shoot, lets make it a rum and coke!

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