October 2011 Chemo group

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  • reesefoggy
    reesefoggy Member Posts: 65
    edited November 2011

    wildrumara:  Yes on the headaches what seems to work is tylenol migraine. Nothing else worked for me.

  • reesefoggy
    reesefoggy Member Posts: 65
    edited November 2011

     Ladies for those with stomach issues and if you have thrush issues, take acidophilus or primadophilus daily and double it the day before and during chemo. I started it two days ago (little late) and it really helped me. It is an active probiotic.  I got thrush so bad this last treatment, I couldn't eat for days and could barely gag water down. It was just awful.

  • Whatever_it_Takes
    Whatever_it_Takes Member Posts: 2
    edited November 2011

    I started my TC treatments on October 12. I'm 11 days after my second treatment. My hair started falling out in clumps about 14 days after my first treatment. I finally took the razor to it and am now bald. For the first week of baldness my scalp looked fine. For the last week though I've had this terrible breakout. It looks almost like acne, there are some small whiteheads. It isn't itch or anything.

    Has anyone else experienced this? Is it normal? Any solutions for helping clearing it up?  Thanks for any tips you might have.

  • fredntan
    fredntan Member Posts: 1,821
    edited November 2011

    I'm doing pretty good. only issue is mouth is sore. don't have thrush, just very tender. been doing the magic mouthwash-gawd I hate the taste of that. and drinking lots of water.

    no bumps on head, just got this hair stubble that is having trouble falling out. have to pull it. messy

    been doing fruit shakes, soft foods 

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited November 2011

    MRBerton - watch your scalp for infection.  The advice on the street is to not actually "shave" the scalp to avoid infection.  You might try some antibiotic cream on the bumps.

    I found using a lint roller on my scalp extremely effective in picking up the loose hairs and keeping the falling hair mess under control.

    If you get thrush, talk to your doctor.  It is a fungus and there are treatments to help eradicate it.

  • WIMusicMaker
    WIMusicMaker Member Posts: 78
    edited November 2011

    Hi Everyone,

    My new favorite drink is a glass 3/4 full of ice water and I top it off with cranberry juice. I thought I would share in case some of you are as sick of plain water as I am!

    MRBerton I feel your pain! This last time I had horrible acne on my scalp. I did put a Neutrogena product on it called Clear Complextion and it seemed to help a little. It will clear up. I am 13 days post last treatment and my head is all clear.

    I have been very lucky in that I have not had any mouth sores-one of the few side effects I have not experienced! I use Biotene toothpaste and mouth wash. I brush every time after I eat. I also suck on ice during treatment.

    A quote I found that hit home with me is this: "You never know how strong you are until being strong is the only choice you have". I wish you all strength today!

  • reesefoggy
    reesefoggy Member Posts: 65
    edited November 2011

    MRB:

    Yes I get the same. My dr told me to take benadryl. I take it two to three times a day starting the two days after chemo for five days. It worked. I still got bumps that itch on the back of my head but nothing like the first time. He said if that did not work he would put me on prednisone for that duration instead. I also use the spray benadryl on the spots and it helps with the itch. 

  • julsjewels11
    julsjewels11 Member Posts: 66
    edited November 2011

    TallM-great news with your progress-you keep kicking that cancer!

    Luvrving-you look sassy with your red hair coming back in.How are you feeling generally, six weeks out from tx?

    Terry-bet you are anxious to get your last treatment over. I have my last one of A/C on Tuesday and then onto the Taxol. I have heard that the nausea isn't as bad but the aches and pains start-anyone got any comments on this transition? I think I'll load up on Tylenol. These sore feet are awful- can't even go for short walks...I am hobbling like a 90 year old! At least they don't hurt when I am sitting-I think my butt will be flatter soon!

    I haven't had any head pimple issues and my hair still hasn't completely fallen out although it is thinning-still bristly and I just use my regular shampoo. I have developed some pimple type spots on my body- that clear by themselves- guess it's the system breaking down somewhat.

    Anybody else feeling queasy a lot of the time? I am on the verge most days and all day. Makes it hard to get the water down- I shall try the cranberry juice with it-white tea seems okay too.

    Carla-I don't know how do your job- any chance of taking a leave- it all seems just simply too much to deal with!

    Dia123-I'll maybe look into the wellness group although a little harder for me to get at from here in Dover.We seem to be on the highway a lot as it is.

    Have a pleasant rest of the day and get some rest all,    Warm Hugs and Thoughts, Juls

  • Terry71
    Terry71 Member Posts: 293
    edited November 2011

    Jewels: YES I am so looking forward to my LAST treatment, Im excited and we are having cake at the hospital Thursday, Me, my nurse and a few of the other patients ( friends) I have met while having my treatments.... LOL Ya my butt is gonna be FLAT in no time, these sore feet are horrible, and the tingling in the fingers is annoying too....  The taxol does bring BAD aches and pains just ask my DH and our son. It brings me to tears literally!!!!!!!! Lasts about 10 days with me and it is NO fun at all........ as for nausea none at all really just a yucky taste in my mouth like metal which makes you gag, I take my metoclop and it goes away in 10 mins. Take 1 Claratin the day before the day of and for 5 days after, that is suppose to help... Im trying it this Last round, hey if it works it works right???  I hobble like a 90 yr old too, hell I bet some would beat me in a race right about now LOL  My hair never totally fell out either I still have a fuzzy head and that darn little Tuff on the top its funny my mom says I look like alf alfa Grrrr thanks mom haha....

  • Terry71
    Terry71 Member Posts: 293
    edited November 2011

    And i still dont know how to post pics!!!!!!!!!!!!!!!!!!!!!! Its making me sad.....

  • fredntan
    fredntan Member Posts: 1,821
    edited November 2011

    I went to our local health food store today. and talked to the owner about wheatgrass. She said not to take it until after chemo, unless my doc ok's it. I was all ready to buy it, she usually talks me into buying all kinds of stuff. I think I'll wait until chemo is over.

  • Lady-di
    Lady-di Member Posts: 150
    edited November 2011

    WIM- I came across that quote a few weeks ago and it became one of my favorites also.



    Juls- I hope you don't mind or think it forward of me, but i did a little research and found that Simcoe has some support groups there. I think it's much closer to you. If you google "CSRP Simcoe" it should appear.

  • julsjewels11
    julsjewels11 Member Posts: 66
    edited November 2011

    WIM-that is a great quote-how true!

    Dia123-thanks, not forward at all- we can all use the collective help we can get. Hope you're having a good day...at least WE haven't had snow yet!

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited November 2011

    Terry - there are a couple tricks to posting pictures.  First, your picture must be on the internet somewhere, it won't post from your computer's hard drive. So Facebooks, Flickr, Picasa, Shutterfly...any of those places are examples of where you can upload your photo.  Once you've done that, if you are using Internet Explorer, you can click on the picture, right click your mouse and select copy, then click inside the text box here, right click and select paste.  It will ask you if you want to allow the external content and you answer yes.  From other browsers (Chrome, Firefox, etc), click on the little green tree icon in the grey area above the text box, then paste the picture link in the Image URL text box. 

     Juls - I am feeling quite well and have regained most of my energy even though I had surgery 2 1/2 weeks ago to remove my TEs and a quick office procedure to remove my port.  I did feel more joint aches and pains during Taxol, especially on days four and five.  I had Neulasta with Taxol, too, and I did continue to take claritin.  That red hair, by the way, is right out of a bottle!  My hair was coming in more white than grey and I decided I needed to spice it up a bit.  I tried a reddish color the first time and it came out sort of copper.  This time (two weeks later) I used chestnut brown.  It still pulled mostly red but it's darker and looks better.  It's kinda fun!  My kids say I look "artsy"...lol. My eyes are green so the red is not out there too much.  It's a non-permanent color, so I can change it again in a few weeks.  Might as well have fun with it!  And I am finally getting eyelashes and eyebrows, yippee!!!

    Hang in there, sisters, you can get through this!  Hugs to all!

  • TallM
    TallM Member Posts: 1,596
    edited November 2011

    Hi all:)



    It sounds like we are all hanging in there.



    Chemo rash-mines all over my face. Dr gave me hydroxorizone cream & doxycycling. I was also told to keep it moist w/a good lotion. It's slowly getting better but still Yucky. Benadryl is good too.



    Mouth sores-thank goodness mine aren't to bad. So sorry for those who have these!



    Metal mouth-YUCKY is right. Hot Tamales have really helped me. I eat 1 @ a time & it helps. I'm on my 4th box:o. Also kettle corn helps.



    Juls-sorry about the feet! I can't imagine. My joints (ankles & knees are sore & make me walk slow) but the feet are a more tender area:o. I have no suggestion to help you there:(



    Well another week is to begin. Strong & brave we will be as we knock another week out of here! Keep hitting every ball that comes your way & when the 9th inning comes victory will be ours:)



    Big hugs to all you valiant ladies. Each one of you is so amazing & gives me so much strength. Thank you!



    Big cyber Hugs to all!

    -Malinda

  • Terry71
    Terry71 Member Posts: 293
    edited November 2011
  • Terry71
    Terry71 Member Posts: 293
    edited November 2011
  • TallM
    TallM Member Posts: 1,596
    edited November 2011

    Terry-

    Beautiful before & after! It is a shocker. I'm so sorry you had to lose your beautiful hair too:o. I like that you posted & figured out how to:) I'll have to see if can figure that out eventually:) I haven't lost all mine yet. I have a pixie cut to help transition. You're a brave women! Hangmim there. I hope don't shed to many tears. Our morphing bodies make it so we hardly recognize ourselves when we pass by a mirror. I guess we are to remember our inner beauty & embrace the new exotic look.



    Hugs-

    Malinda

  • Terry71
    Terry71 Member Posts: 293
    edited November 2011

    Malinda: Thank you so much for the comment, It sure was a shock The first pic is just after my first haircut, it was way longer than that, down past my butt :-(  Im hangin in there, I look at myself in the mirror and think wow thats NOT me, I want my hair back, gonna take me 30 years to get it that long again LOL 

  • perts1
    perts1 Member Posts: 62
    edited November 2011

    Terry you look great!  Both the before & after pics!  Where do you live with all those wonderful trees?  We don't have to all be raving beauties to look wonderful in our pictures.  Ok my friends!  On to conquer next week!

  • Terry71
    Terry71 Member Posts: 293
    edited November 2011

    Perts: I live In Northern Ontario Canada 

  • Terry71
    Terry71 Member Posts: 293
    edited November 2011

    If any of you have facebook you can add me Terry LeBreton-Dashnay

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited November 2011

    Yeah, Terry!  Glad to see you were able to post the pictures!  I can see why you were upset over losing your hair, but you look good! 

  • TallM
    TallM Member Posts: 1,596
    edited November 2011

    An FYI I didn't mention that may help is Popsicles. It's a temporary relief of the tongue/metal taste. I found some cocunut & other subtle flavors that taste good at the health food store.



    Good luck this week to all us raving, exotic beauties:)

    -Malinda

  • Terry71
    Terry71 Member Posts: 293
    edited November 2011

    LuvRVing: Awee thank you :-) the positive compliments help.... and ty for the tip on how to upload them..... Also Good luck o eveyone who has treatment this week. My last one is Thursday the 17th :-) :-) 

  • Terry71
    Terry71 Member Posts: 293
    edited November 2011
  • TAPPY
    TAPPY Member Posts: 283
    edited November 2011

    Terry  - you look great bald.  You rock it.  I just look like a little wrinkled boy lol.  

     You will get your beautiful hair back..

    And ditto on who ever mentioned popcycles - the tropical flavors are great...I get the sugar free ones.

    Well off to bed...I am going to attempt a few hours each day for work.

    Treatment 3 is this week...Hope to be feeling well by Thanksgiving....small goals..

  • Blayze7
    Blayze7 Member Posts: 35
    edited November 2011

    Hello all I had my first round og chem on Oct. 27th and was very scared. I did not know what to expect. My Oncologist stayed with me and put my mind at ease. I have been taking a walk everyday I find that the walks give me more energy. I do have to say that when you are tired just rest. My next chemo is Nov 17th that is a week from Thanksgiving but I feel so blessed that everyone around me is cooking something and bringing it to my house so that if I need to rest for awhile I can and dont have to worry about messing up anyones holiday. I feel so good about that.

  • stjude10
    stjude10 Member Posts: 390
    edited November 2011

    Welcome Blayze7= I think your plans for the holiday sound nice. That will make it stress free for you!

  • auntienance
    auntienance Member Posts: 4,216
    edited November 2011

    Michelle - thanks for the info on the pics. Good advice as always!

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