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  • lulujune17
    lulujune17 Member Posts: 47
    edited November 2011

    dexxy,what a beautiful picture sweety,i don't c any 80 too!! Keep smiling,you have a wonderful smileSmile 

    Hope everyone is doing fine with the least SE,and hope you had a happy halloweenLaughingI did,i am eating chocolates since yesterday..LOL

    Tomorrow my 4th FEC,will be half way through,,YAAAY!!! Can't wait till all this is over.

    Take good care of yourselves beauties and and have a SE free nightKiss

    Love you all.

    xoxoxoxo

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  • J-Bug
    J-Bug Member Posts: 626
    edited November 2011

    I got a bmx date confirmed today - finally! Next week on Wednesday, I will move forward in another step of healing my body of this cancer. We are doing bmx with snb on both sides with the possibility of doing an axillary node dissection on the right side if any cancer is found in the snb. I have beat these doctors to death with my questions and I am as ready as I can be now. I am so glad that I had this space in time to deal with this part of the process, doing chemo first. 

    rabbit: I don't know where I will be with employment and cancer issues when the Chicago walk is on, but that is so close to me, I would consider that one too. I will have to see if there is a Milwaukee one. 

    Good night all! 

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  • Cathy_C
    Cathy_C Member Posts: 61
    edited November 2011

    So Monday was my #7 starting to feel poopy. One more to go on 11/21, but that makes me happy. MO says radiation will start right after the new year. So at least I have December off.

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  • bcisnofun
    bcisnofun Member Posts: 488
    edited November 2011

    dexxy - I think you look beautiful.  What a great picture!

    Cathy - only one more is a great feeling.  I hope the poopy feelings don't last too long.

    jbug - congrats on a date.  I know it must be a relief to feel like you're coming to the last big hurdle.  You've been through so much - prayers coming your way. 

    Rabbit - I like your moderation is best plan.  I agree.  Congratulations on your successful presentation.  I'm sure they will not forget you or the lesson.  What a time you've had with chemo.  I can't wait for you to be done done done!  Hope you enjoyed your casino trip and good luck with your hosparus training.  What a terrific mission.  Thank you for doing this amazing work. 

    I was at a neighborhood party and someone introduced me to a woman because they knew about my diagnosis and they knew she too had breast cancer in the past.  When they told her I had breast cancer, she stopped everything and looked me in the eye with that look that we all know so well.  Love and understanding and compassion.  she hugged me and told me she was diagnosed in the 70's.  she's a 30+ year veteran.  I don't know about you guys, but I love meeting those long term survivors! 

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  • dexxy
    dexxy Member Posts: 229
    edited November 2011

    bcisnofun and Lulujune- thanks! so lucky to have my husband he makes me smile :) 

    bcisnofun-great to hear you're story of meeting a 30yr survivor.  We all need a little of that

    Jbug congrats on the date, I'm rooting for ya and looking forward to you're next healing step

    Rabbit-congrats on the talk!

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  • Cathy_C
    Cathy_C Member Posts: 61
    edited November 2011

    bcisnofun: I like meeting those survivors also, like all of us they just understand what we are going through.

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  • bcisnofun
    bcisnofun Member Posts: 488
    edited November 2011

    I hope everyone of us is that survivor for many others in our lives....or instead I wish that we are the ones that people ask questions about cancer to because it has been cured!

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  • misswim
    misswim Member Posts: 931
    edited November 2011

    Jenn, stay home and away from crowds. Make sure to keep tabs on your temp and rest! And listen to your onc, if you don't feel well, go to the hospital.

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  • rabbit
    rabbit Member Posts: 613
    edited November 2011

    Just a quick check in. Taxol is definitely wearing me down but dealing with the other SEs is much easier than that nasty docetaxel!! 

    jenn, I hope you are feeling better, I don't know much about those blood counts, sorry, wish I could help more. 

    dexy, love that pic, it's beautiful!

    lulujune17, I was glad to finish FEC, did you find it got easier? My first few FECs were pretty brutal, but by the 4th one it wasn't too bad.

    Hi to all, really drained lately, not getting much work done and certainly not getting on the forum as much as I would like to :(

    xoxoxo to all 

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  • kk11
    kk11 Member Posts: 210
    edited November 2011

    Hi ladies - just wanted to check in really quick (will have to catch up on your posts later). I had my exchange on Friday. It's been more painful than I anticipated. I think I expected it to be a breeze compared to my MX, but it's not. It's certainly not as bad, but I am definitely uncomfortable. My back hurts (I can't seem to sit or sleep right), my arm hurts (so I can't type much), and the wrap is fastened really tightly around my chest, so my skin is bothered (but I have VERY sensitive skin), and I feel like I have bruised ribs. I am sure once I am able to remove the binder wrapping and switch to a Z-bra, I'll feel much better. I don't mean to scare anyone that's going through the exchange soon. I've heard others have had a much easier time, so it just depends from person to person. I'll be back soon to check in on you ladies! Congrats to those of you who have finished chemo recently!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Dexxy - You look beautiful in the pic!

    I am just moving along with rads.  13 down, 17 to go.

    Have a great week everyone!!

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  • misswim
    misswim Member Posts: 931
    edited November 2011

    Girls, I miss you! I hope everyone is doing ok!

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  • lulujune17
    lulujune17 Member Posts: 47
    edited November 2011

    Good evening beautiful ladies, Just had my 4th and last FEC on Wed. I felt terrible rabbitCry The first two were a piece of cake,but last two were just horrible!!! all the nausea and cramps and dizziness!!! my red blood count was low so my onco.gave me an extra week off chemo,so my first Taxotere will be on the 30th nov. instead of 23rd.and something about my kidneys was low,didn't really understand what,and i was told i have to really drink a lot,like really a lot!! has anyone had anything like that? Im getting out of breath quickly,onco.said because im anemic. Don't have energy to lift my finger!! And i gained 8 poundsYell,i don't know how!!! i hate gaining weight,but my onco.seems happy about it! Though he reduced my sterroids from 10mg to 4mg,he said it was the reason i was having that burning feeling in my head.and all those terrible headaches,said some ppl can't tolerate it.

    Hope everyone is doing just fine.

    kk11,i really hope your pain gets better soon my dear.it'll be over b4 u know it sweety.

    Take good care of urselves girls and keep smilingLaughing

    HUGS HUGS HUGS

    xoxoxoxo

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  • rabbit
    rabbit Member Posts: 613
    edited November 2011

    hi jenn :) no fair on not being able to enjoy a legal high! LOL 

    kk11, I hope you start to feel better soon. At least it's proof you are getting closer to the end of this journey!

    PhillyBird, almost at the halfway point with rads, we are all moving along to the finish line!

    misswim, I miss you too!!! I am either too tired to focus for any length of time or when  do get online I have work that must be done and then I'm done with the computer, so I'm not on near as much lately.

    lulujune17, I'm so glad you are done with FEC, that was a nightmare for me, the first one was the worse but none of them were easy, I gained 14 pounds since the say I started chemo, but this morning got on the scale and actually lost 3-4 pounds in the last few weeks. I think for me it was mostly the massive steroids. I did the steroid taper with taxol and last night was the first night I didn't have to take any steroids orally. I will still get them IV every Wed. with the taxol, but it's a huge drop in them, so maybe I'll start to drop the weight.

    When I did the talk at my BIL's school a few weeks ago, they put a few pics in the paper and did a little article, I will scan and post it soon, very cool. Tuesday the 15th I  do my training with Hosparus for the volunteer work with children, I can't wait!!! I should be getting a date for my final MRI before sx soon. I can't wait to see how much it's shrunk and if it's gone from the few lymph nodes it was possibly in. 

    I have my 5th taxol in a few hours, 4 more to go after today, can't wait to get this chapter of my life closed!

    xoxoxoxoxo 

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  • dexxy
    dexxy Member Posts: 229
    edited November 2011
    Hi Ladies-how are all of you?? 4 more Rads then I'm done Smile  can't wait, just want to have some peace.  try to get back to full health and do everything I can do stop this from happening ever again.  I think of you all and hope that you're lives are full of 0 SE's and lots of Love
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  • misswim
    misswim Member Posts: 931
    edited November 2011

    J-bug, thinking of you today as you have surgery

    . In all of our thoughts I am sure!

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  • shinypop
    shinypop Member Posts: 107
    edited November 2011

    Hey all, how are you doing? I'm psyched. One more Taxol and soon I start rads. I'm buying myself a treadmill to get rid of all this weight. I also learned from the rad onc that exercise will help to relieve the fatigue. I love walking on a treadmill since some bits of my area are rather iffy. Now I just to need to magically create more space to store the treadmill.

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  • Ralsper
    Ralsper Member Posts: 352
    edited November 2011

    Me too... 3 more Taxol and then rads... 20 plus pounds later.... grrrr... Hate it!!!! On top of everything...

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  • kk11
    kk11 Member Posts: 210
    edited November 2011

    J-Bug - Hope your surgery went well today!

    Rabbit -You wil be done before you know it! I can't wait to celebrate once you cross the chemo finish line!

     Dexxy - Congrats on being nearly done with rads! Yeah!

    Phillybird - Almost halfway done with rads. I hope your skin isn't suffering too much!

    Shinypop - You're almost done with chemo. Yeah! And yay for the treadmill! I think it's awesome, especially during the winter!

     Ralston - You'll be done with Taxol before you know it!

    Anyone else still getting chemo - Hang in there! 

    AFM - The pain from the exchange has subsided, the tight wrap has been changed out for a sports bra (so much better!) and now I'm just left dealing with carpal tunnel issues that flared up after surgery. My 29th birthday is coming up on Friday (11/11/11). My brother and sister in law are throwing me a party. I'm going to give myself a night off from following all of the dietary rules!

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  • misswim
    misswim Member Posts: 931
    edited November 2011

    My active treament is done. Had my first follow-up with the onc today, all is great, and I took my first tamoxifen pill today. I felt pretty good about life in general, and then I checked my phone messages....

    My husband's brother was just diagnosed with very rare gladular cancer that has spread to pancreas, liver and gall bladder. He went into the ER on Sunday with massive pain in his back and stomach. From where he was, they airlifted him to a major med center in Denver. He and my sister and mother in law fly from Denver straight to Dana Faber on Thursday morning. His liver has so many tumors it is barelt functioning. He is very, very sick.

    I can't stop crying. Cancer has robbed me of alot in my life, but my chances of a bright future are pretty good. This man has three children who need him. Our whole family is a wreck.

    He is only 33 years old.

    Cancer BLOWS!!!!

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  • lulujune17
    lulujune17 Member Posts: 47
    edited November 2011

    Misswim im so sorry to hear what happened to your brother in law sweety!Cry It is so sad, this disease is so evil, but i will be praying for him to get back to his children soon stronger than b4. I will tell my friends about him,we will all send positive energy and our blessings to him. Keep praying and don't lose hope. Anything is possible sweety,Anything.(HUG)

    Best wishes to everyone here,Love you all.

    xoxoxoxo

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  • bcisnofun
    bcisnofun Member Posts: 488
    edited November 2011

    misswim - praying for him with you. I'm sorry you are all going through this. 

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  • khs113
    khs113 Member Posts: 105
    edited November 2011

    Right behind you Dexxy. Five more to go. Done next Wednesday. How are you feeling? I've begun to feel like my old self lately. Other than a few odd looking fingernails and my hair just starting to grow back all the other effects of chemo seem to be gone. I'm sleeping much better and don't have that terrible chemo fatigue. Now I'm on a mission to lose the weight I gained and get my strength and stamina back.

    Misswim---That is such sad news about your brother-in-law. So young. My heart goes out to you and your family.

    Looks like we're all winding down on our treatments. I'd say we've all come a long way since last summer. What a trip! I've noticed our postings are less about side effects and more about the other things going on in our lives. Good luck to those of you who still have surgery in front of you and a speedy recovery to all of us.

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  • rabbit
    rabbit Member Posts: 613
    edited November 2011

    misswim,I will send good thoughts and prayers for your BIL and his family, cancer sucks, bottom line. Miracles do happen, like lulujune17 said, don't lose hope. 

    J-Bug, thinking of you today, can't wait to hear how you are doing! :)

    I am binging off the walls from steroids, I did the steroid taper and yesterday was the first day of no oral steroids..but the 20mg in the IV must of did me in, I couldn't fall asleep til 2am and woke up at 8am wide awake I feel like I could jog around the block, but a walk will have to suffice LOL

    xoxoxo to all! 

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  • ANA_424
    ANA_424 Member Posts: 109
    edited November 2011

    Hi everyone - sorry I've been MIA for so long. I just went and caught up with posts. More and more of you finishing chemo and/or moving on to radiation. I've been thinking of all of you and wishing you the best.

    I had my exchange surgery on 10/28, with a lift/implant to the good side at the same time. Physically, it was much easier than the MX. But emotionally, I had a really hard time. I'm sure part of that was the meds, but part of it was how different the "good" side looks. It was the first time I looked in the mirror and thought that I don't recognize myself. I'm feeling much, much better this week and getting used to the new "girls." My boyfriend tells me I'm going to have great breasts when all is said and done, which makes me feel better :-)

    My hair is growing back - everywhere! My eyelashes fell out 6 weeks PFC, but I can already see where they are growing back. My eyebrows have thinned more, but, again, I can see the regrowth so I'm probably the only one who would notice. The hair on my head is fuzzy and soft and there is a lot more gray than I would like!

    My energy is coming back. I've been sleeping a lot since surgery - during the nights only though. I don't need naps anymore. For a while there, I was taking a nap every afternoon. Taste buds are all working right now, as is my digestive system.

    J-bug - Thinking of you and hoping your recovery goes well.

    misswim - so sorry to hear about your brother-in-law. You will be in my thoughts.

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  • kk11
    kk11 Member Posts: 210
    edited November 2011

    Misswim - So sorry to hear about your BIL. It's so much harder to read about other young people with cancer, especially with cancer that has progressed. Like others said, don't give up hope. Nothing is ever 100% hopeless.Your family is in my prayers.

    J-Bug - Thinking of you today!

     Rabbit and others still going through chemo - You're another day closer to the chemo finish line!

     Khs - Yay for almost being done with radiation!

    Ana - I had my exchange on 11/4! But I am waiting to do the lift to my "good side" until after I have children. How is that part? Where did they cut and how do they do the lift exactly? I haven't even bothered to ask my PS about those details yet, since it's so far away.....Meanwhile, I will have one pointing a bit more south than the other. Wink

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Misswim - I am so sorry to hear about your brother-in-law.  I know what you are going through - my mother-in-law is dying from ovarian cancer and is very close to the end.  My husband went to go be with his parents.  I can't go - have my rads to finish.  I'll be thinking of you and your family.

     Congratulations to Ana and KK11 on getting through more surgery.  You guys are troopers!

    Rabbit - are you feeling any better? 

    Well - I am 17 down, 13 more to go.  Boob is a little painful from time to time - the radiation energizes the area where my nerves continue to recover from my surgery (even though it was more than 4 months ago).  Skin looking pretty good.  Not anywhere near as red as it might be.  I keep using the cream I was given by the nurse - has lots of aloe and vitamin E.

    Wishing all a weekend without SEs!

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  • misswim
    misswim Member Posts: 931
    edited November 2011

    Thanks ladies for all the good wishes! They won't be flying him in until tomorrow, due to f*&%ing insurance issues! He needs to start chemo YESTERDAY. I am glad I have been through it and hope I can be some sort of support in that regard............. but he is so sick and in so much pain already- I can't imagine what the chemo will do. It's so unfair and sad.........

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  • dexxy
    dexxy Member Posts: 229
    edited November 2011

    so sorry Misswim, I'm thinking good thoughts and I know you be a sense of strength and guidance for him on his journey.  You are a very strong woman and can handle just about anything, look at what you have already survived in just the past 6 months, sending hugs

    khs113-I've actually felt great for awhile now, I feel spoiled.  I'm still having lingering foot pain and have no idea when that will go away.  Thinking about seeing a podiatrist,  Its mostly swelling pain I believe but it still is hard to walk.

    has anyone started tamoxifen?  I know misswim mentioned just starting.  I will be finishing Rads on Monday at 30 of them.  I had an appt with my MO for Tuesday but she canceled and said she doesn't need to see me till Dec 15th.  I'm wondering if I should get a prescription for the tamoxifen ahead since that will be a whole month without any treatment.  Don't get me wrong, I'd love to have my body free of chemicals but......

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  • shinypop
    shinypop Member Posts: 107
    edited November 2011

    I had a bizarre experience. For a few weeks now I've had a numb area through my left foot. I didn't really think anything of it, just assumed that it was from wearing frightfully high heels one night. Well I think it was more to do with a muscle smasm. All of a sudden I started to get tinglies and then the feeling came back. Don't know whether I should blame Taxol or the heels. Ah well, just funny I guess. Now if only I could convince my pets to stop getting sick and needing the vet everything would be hunky dory. 

    I didn't mention this before cuz it's been bothering me a bit. I just lost an uncle to cancer. I didn't know him very well, so I'm not going to be sad. All the same, dang. And my aunt's family lost a brother to cancer as well. Not a fun month for me. 

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