3 Years finished but still not "over it"
This is my first time to write anything on a blog. I am mostly finished with everything (the only thing left is to correct my messed up reconstruction.) But I still feel like my life is out of control. The fact that it has been so long only adds to my anxiety. I just can't have fun anymore. I can't complete tasks, my memory loss is still there, I could go on and on. I don't know anyone personally who has been through this. I'm 45, married with a14 yr old girl and an 11 year old son. I feel such guilt that I am not the competent, "I can do anything" mom I used to be. I have been faking it for so long, but that wears me out even more. My husband doesn't understand me. I used to have a huge group of friends and I was the planner for spontaneous fun activities. Now I have a hard time even answering their phone calls. I feel like people are thinking I should be over it by now. Maybe they are right. Can anyone relate?
Comments
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I've only just begun my journey, but yes I can relate.
I feel like my friends aren't really there anymore. they don't call. etc etc. well thats not entirely true.
its just such a tramatic thing to go through.
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I am only a year into this but I can relate...only because I see myself becoming quieter and quieter and craving that. Maybe we need to look at this as a traumatic event that just keeps looping over and over. Who wouldn't be changed?
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Julie I totaly understand how you feel.My whole life has changed too.I am sure my memory problems are permanent.I am constantly checking my surgery scars for new lumps.I don't socialize much anymore uless I am dragged out.Others do think we should be over it by now but unless you have been through it they can't understand.((hugs))
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Wondering if you are on Tamoxifen or other anti hormonal since you were ER+? If so, that could surely be a contributing reason as to why you haven't climbed out yet. It does sound as though you could use some help moving on. Have you considered therapy? Antidepressants?
Had you posted this a year ago, I would have identified strongly. My initial surgery (bmx) was 3 yrs ago next week- my last for a 2nd implant exchange a year ago this month. I still have to decide whether I want another surgery or the 3D tattoo nips I am leaning toward. But during the last year, I became aware of the fact that bc lost it's #1 place in my mind and I have seemingly entered my "new normal" of living life changed, but without that heavy darkness. I feel like it did take a really long time but when it happened, I hardly knew it. It's only on reflecting back did this become clear.
The process could be taking you a little longer. But if that cloud doesn't lift in the near future, I would consider getting some kind of help. Sometimes, that's just the nudge you need to see things from a different perspective.
Wishing you much luck and a future where the word "happy" can exist.
Ellenxo
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I hope I can post here because I just had DCIS, but I was interested to see what people are saying about being "over it." BC definitely changed me, and that's a hard adjustment for me as well as for those around me. They just don't know what to expect anymore, and I can't help them, because I don't know what to expect, either!
I am concerned that you are showing some very classic signs of depression. I've been through this (some with the BC, but more with other things), and have also worked with people with these symptoms. It is a very treatable condition, and not at all uncommon after breast cancer. While the last thing anyone wants is another doctor's appointment, your primary care physician can do an assessment that would rule out other health conditions that have similar symptoms, and suggest lifestyle changes, counseling, and/or medication that can help you feel better.
I don't personally think that you can put a definite time frame on being "over it." It's not something that can be rushed. Yet time alone is not always sufficient to bring about healing. Sometimes help is needed in order to arrive at a "new normal" that you can live with and eventually enjoy.
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I don't think we are ever going to be over it. Hearing the words you have cancer is enough to change everyone's life forever. Being over it, to me, is something that will never happen. Even though cancer is not in the forefront of my mind everyday, it is still there. I will be 3 years out in January and I know women who are 10+ years out and still feel the same way.
Maybe it would be a good idea for you to talk to someone professionally. I did and I'm not ashamed of it either. It really did help as I had a lot of issues with anxiety and trying to figure out how do I live the rest of my life after hearing the word cancer.
It takes time, and you will get over the hump when your mind is ready too. It is a healing process and all of us heal in a different way. Will you ever get over it? No, but you will learn to live your "new normal" life and once you get there, it is a really good life to live.
(((Hugs)))
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Julie,
I want to encourage you to reach out to your primary care physician and/or a counselor. I was feeling exactly the way you are for well over six months - either angry or crying, never wanting to do anything social, feeling like a bad mother, overwhelmed, resentful, guilt-ridden.... DEPRESSION. Maybe, PTSD. Either way, there is help available. Zoloft has helped me. Doesn't mean it will necessarily be your answer, but you try until you find one that works. Talk therapy in conjunction with medical intervention is ideal. Please. Ask for help. You only know how heavy your load is once you have put it down. Namaste. Tammy
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Ladies, sisters, you have no idea how much your replies saved me. I am on effexor and wellbutrin but I am still a mess. I am also in marriage counseling but the bc keeps coming up. I am realizing that I need counseling to help me to move on. Looking back, I really felt nothing while I was going through all of the surgeries, chemo, surgeries, invasive procedures, etc. It's probably all coming up now and I am lashing out at my loved ones. Plus, my personality before bc was super woman. I was JULIE HOWELL. I handled everything and looked great while doing it. Now I am reticent to even take lunch to my kids.
I am making my appt today. Thank you sisters from the bottom of my heart. You were an answer to my middle of the night and can't sleep prayers.
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Oh, also I was on tamoxafen(sp) for a year and was so miserable I stopped. Talked it over with my doctor she gave me the ok.
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Julie, it sounds like you are suffering from post-traumatic stress. Which, can happen after breast-cancer, especially since you admitted you didn't deal with it at the time. When you know, in the back of your mind, a disease can come back and strike you, it can be hard to deal with emotionally, so please make sure you get help with somebody who specializes in PTSD.
Good luck to you. You don't have to be JULIE HOWELL! You just have to be you.
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I think one of the hardest things for me to deal with is realizing human understanding has its limits. If you aren't in these shoes, the common response seems to be, "Are you okay now?" So I understand you completely in terms of folks making you feel like it's time to "get over it". For me, the journey is so much more than the cancer itself. It's the menopause, the resulting osteoporosis, and knowing I'm at risk for a whole lot more other things now that I've been diagnosed. Trips to the PT for my sleeve, going to the gym constantly to deal with osteoporosis, living with the psychological trauma of being thrown into menopause at age 40. You can't just get over it, it's a complete life adjustment. It is sadness, fear, anger, abandonment, loneliness and shock, among a ton of other emotions. People just don't want to hear about it, sorry to report.
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I am almost 4 years out. I still have memory problems. I am tired all the time. I just can't do the things I did before. So you are not alone in how you feel. I had reconstruction, bilateral DIEP, just 2 1/2 months ago. Had some minor complications, but it wears on you. I just want to be done. I know my life will never be the same. It has been hard, I am still angry at times but I am starting to put it in the past. It had been a long hard fought journey & I am still fighting. Hang in there my friend. NJ
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So many of you have mentioned memory problems, I am interested to know if this is common just in those who have undergone chemo? I have terrible memory problems, but did not have chemo. I am, however, on an aromatase inhibitor (Aromasin) and tend to think this causes the problem with the memory. Anyone have this issue with an aromatase inhibitor?
As for the depression and being "over it", I am just one year out and I see a therapist weekly which helps somewhat. She's encouraging me to take an antidepressant, but I'm reluctant to add another drug to my regimen.
Hang in there Julie, someday you will wake up from this nightmare and be able to enjoy life again. You'll be in my prayers.
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Oh thank you, LaughterHelps. I will take all the prayers and encouragement I can get.
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Hi Julie,
I am glad you posted. I am new to BC, but it has turned my otherwise lovely life upside down. I have good days, bad days, but each day I try to do something, SOMETHING small, big, long or short, that will make me happy. Could be eating peanut m & m's, listening to a song I like, taking a bath, or just being alone with my thoughts. I find that small steps like these help. Breast cancer is enough to give any woman pause, and it has really made me take stock of my life, relationships, etc. Can you do some rituals that either celebrate or mourn a particular part of your cancer journey?
VickyB
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Julie,
Just keep posting on here. Unless you've "been there", no one really understands the forever fears and anxieties. I got a clean mammogram report today--I posted it on here cause my friends and family feel that I should be " over" the worrying now after almost 5 yrs. We here will always listen.
Hugs!
Sandi
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I have not experienced memory issues. In fact, I was at Whole Foods this spring, and forgot to put numbers on my bulk items. I went up the register, and could remember all of them. The gal's jaw dropped.
There are also things you can do to preserve and enhance memory. Studies show that certain types of brain activity seems to be helpful.
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Julie, I wanted to add a couple of thoughts, maybe even a slightly different take on your situation. First, after what you (and all of us) have been through, it may not be possible to revert to being the same woman you were before, which is not necessarily a bad thing. You've experienced first-hand a side of life (serious illness, pain, fear) you may not have had an intimate knowledge of prior to bc, and that changes us. Maybe what you need to strive for is a new Julie that isn't necessarily the spontaneous party planner, but maybe a Julie with other wonderful strengths that feel more appropriate to who you are today.
I also went through a period last holiday season when I turned down several invitations that really made my DH question what was wrong with me. But I trusted my gut instinct, and each time I would try to figure out if my negativity (like not answering the phone or not wanting to go to lunch with a friend) was coming from my head or my heart. If it was my head, then I knew it was just kind of a fear thing after being in bc patient mode for so long, and in those cases, I made myself say "yes" to invitations and go places when I really didn't want to. And I usually had a good time. But if the negativity really felt like it was coming from my heart, then I turned down the invitation and stopped trying to justify it to myself or my DH, because I realized, I've changed. I'm not the same woman I was pre-bc, and in some cases the people I spent time with pre-bc no longer made me feel good or happy -- and I felt stronger, more true to myself, when I followed my heart.
Perhaps if you try that little test -- ask yourself where your negativity is coming from -- you will have a better idea if you're holding back for fear reasons that you should try to make an effort to overcome, or if maybe you've changed and need to stop wanting to go back to the person you were and the activities you did, when, in fact, deep down inside, you're truly much stronger for what you've been through and maybe would be more comfortable with a slightly different role now.
Just some thoughts... (((Hugs))) Deanna
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Deanna, That makes so much sense. I have actually "cut" a lot of people out of my life that I realized after bc that were not friends as much as aquiantances. That part is true. I also have turned down soooo many invitations. I just have this overwhelming social anxiety. I struggle back and forth with whether this is the "new" me or I am having ptsd. I really just dont enjoy much of anything. Tonight I am actually meeting Diane von Furstenburg! It's a private cocktail party for 25 people. I should be showering right now, but I'm online. I really don't want to go. And if you knew me, she is my fashion icon!!!! So is this always going to be me? If so, the real me sucks!
But thank you, just talking about it helps soooo much!
love, julie
btw: what does DH stand for? I know it's husband but what is the D?
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Oh, Julie ~ please go and ENJOY it! Diane von Furstenburg was one of my earliest career woman role models/heros! I've always admired her great sense of style, and I'm thrilled for you getting to meet her! I hope you can relax and enjoy the evening! Deanna
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Ok, I'm going! I will even send you a picture. I know I will enjoy it when I get there, it's just the GETTING THERE.
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I don't know if you ever feel "over it." One thing I l feel is that you can't understand the impact of BC until you have personally gone through it. I have friends that think they know what this has been like, but until you have gone through this, it's all theory. It's not their fault, When I would hear of someone that had BC I thought I knew how it must feel. The one positive is being able to encourage or listen to someone that has been diagnosed because I "have been there." Though everyone's bc and treatment is different, at least I can share what I know from going through mine and pass on some hope.
As time has gone on, I feel better about it in some ways, but my life will never be the same. .And you're right...nobody gets that. I also think much of how we feel about our BC journey depends on how well the rest of our life is going. There have been other losses such as the stress of finding work and needing income, changes within my church and many relationship changes within my family. It all plays a part.
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Julie, talking about DVF reminded me of a wonderful book I read not too long ago. It's called, Back To Life, by Alicia Salzer, M.D. The subtitle is, Getting Past Your Past with Resilience, Strength, and Optimism, and it was a HUGE help to me when I was where it sounds like you are now -- just needing some help refreshing my outlook and getting out of the PTSD rut I felt was holding me back from enjoying life. I highly recommend it! (((Hugs)))
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It will be 3 years for me in March. I think CoolBreeze is right about the PTSD. You just don't have time to deal with everything in the middle of treatment. I know for me there are things that will never be "normal" again (aside from the 25" scar across my chest)...or at least what use to be normal. But there are some changes that, while they are painful, I know are a good thing. This experience has clarified my life. Shed light on what was real and worth keeping and what wasn't. I've lost several people who I really thought were my friends, but what they really were, were people I was holding up, supporting, etc. and when I couldn't do that for them anymore they were gone. I have a new appreciation for what real friendship looks like...what's healthy and what isn't...I also know that I'm not as willing to put up with much crap any more. I'm not sure that's completely good (because all relationships have some crap to deal with).
I've had a hard time coping for the last year...a hard time finding purpose......I've been feeling very "Ho-hum" about life and I don't like it....so I decided that counseling was a good idea. It has been very helpful for me. I am hoping that along with that clarity I can find some motivation and maybe some new pathways as well.
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Julie, you are definitely not alone. You will never know how much I needed reading these posts today. I am 2 years post chemo, did tamox for two years and I am now on Aromasin. Somedays I feel stuck and other days are good. I think some of it is residual effects of what we've been through, some of it is the Aromasin and on top of that menopause.
I have talked to a few of my friends that are menoapausal and they certainly do have some of the same symptoms I have such as memory issues, lower energy, aches from lack of estrogen. I think these symptoms are quite normal for any woman that is peri or post menopausal but we have had the fear and uncertainity of cancer on top of it.
Also, as women, we are especially hard on ourselves. Trying to be Super Spouse, Supermom, Super best friend, super sister, daughter etc....Jeesh that's a lot of balls to juggle and a lot of trying to live up to what we percieve society says we should be. In reality, we put so much pressure on ourselves to be everything to everybody that we don't take time for ourselves. I have always been the social organizer for family and friends but now I just don't have the energy to do it all. Therefore I am learning to let go. Maybe that's the wisdom of aging and the wisdom of what we've been dealt.
I saw a therapist and one thing that she said that I really needed to work on was letting go of control. I didn't realize that I was a bit of a control freak but looking back now, I was. She said I have to stop expecting A's from myself and others all the time and that B's are perfectly ok. As an example, I told her it drives me crazy if I send my hubby to the grocery store for a few things. He would always call me from the store to ask a question about something on the list. Drove me Nuts and stressed me out that he couldn't just use his head and figure it out. One day there was peanut butter on the list. He calls and says "What kind should I get". I've lived with him for 28 years..shouldn't he know that? My therapist said the solution was to not answer the phone when he goes to the store. If he comes home with the wrong kind..so what. Not the end of the world. Accept the "B" peanut butter. I still catch myself expecting A's sometimes but I pause and remind myself to let go of control. It's amazing how much more carefree I am becoming.
I am trying to embrace the "new" me and in some ways it has made me stronger, more assertive and better at making decisions about who I spend time with. I now realize that grieving for my old life and trying to get back to that place is fruitless and frankly there are some things that I like better about the new me.
Deanna made some excellent points and it was wonderful to hear her perspective. Asking whether it is from the head or heart is a great idea. One more tool for my toolbox..Thanks Deanna.
Hugs
Beth
PS:Your kids don't want you to be SuperMom, they just want you to be you.
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Julie. DVF at a private cocktail reception. Only 25 people..what a terrific opportunity. Enjoy and defintely post a pic.
Cheers
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Deanna, so elegantly put! Thank you!
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Love the peanut butter story, Beth! So true!
You know, the control issue you raise made me remember something a very wise friend shared with me as I was struggling with getting back into life. She suggested that perhaps illness and accidents come into our lives to teach us something we need to know. I know that may sound "out there" to some; it did to me, at first. But it's actually been a very thought-provoking idea to me. Obviously, something has been out of balance in our lives, whether it's stress or hormones or nutrition or genes, to allow bc to come into our lives. And it makes me wonder if the stress of being overly controlling or overly perfectionistic might even play a role for some of us in getting bc, so that letting go of control or perfectionism is something we can learn from the experience, to be more in balance and healthier.
I don't know... just a thought... Deanna
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hi, I have been lurking here. dlb823: Your thoughts about socializing are very comforting for some reason. I finished mx, chemo, rads in August and am working on reconstruction now. I have been a complete social hermet since I was diagnosed and find it so difficult to get myself back out there. It is so good to hear that I am normal. I am not even a year out, but I find that I think about BC all the time. I'm sure others must be sick of listening to my stuff, so I don't want to share too much with people. I am finding that most people just don't get it.
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