nicole0513,

I have not been on in awhile, but decided to tonight because I am also having leg pain same as you, the worst is when I get up from sitting it takes me awhile to walk right.  I am not to happy with it because my last chemo was Aug1st and just finished rads.

Lots of hugs  Pam 

Laureen I had my planning session today and got my two dot tattoos. They are going to start my rads in the next week to 10 days. 

plils- I still have the pain- still hoping to wake up and that it will be gone but its worse in the morning and when I've been sitting for too long. It can be pretty severe... trying to be patient somedays its hard... 

I have been thinking of acupunture and massage. Is massage ok during chemo? I know I did it 8 years ago with chemo as I was in a car accidient and it was the only relief I could find, but my cancer was an earlier stage back then. I think I may call the cancer massage place...

Hi ladies! I apologize for not checking in for some time. I have been running around like a nut assembling a surgical team (BS and PS from 2 hospitals). Unfortunately, I learned 2 weeks after my last chemo that, although my tumor is about 70% smaller, I still have scattered DCIS in more than one whole quadrant of my breast. So, I am not a good candidate for a lumpectomy. It took some time to come to terms with this, but I have surgery tomorrow (uni, NSM). Then onto rads. This journey is not for the faint of heart.



I have been thinking about all of you and wishing you all peace with your decisions, congrats for finishing chemo, rads, surgery, etc. For those nearing the end of the chemo road, hang in there. I am thankful that I bounced back pretty quickly from feeling like dog $hit. It's amazing what we can do. I am so happy to be off those pre-meds, particularly the steroids. The after-effects of those were making me a basket-case.



Big hug for everyone.



Kelly

I hope those of you having leg pain get relief soon! I have more of the numbness, wierd feelings in fingers and toes and it seems to be expanding up further.

Patriotic, I will be thinking of you tomorrow. I hope your surgery goes very smoothly. Sorry to hear that you can not do the lumpectomy. Are you doing immediate reconstruction? I am having bmx nov. 30, no immediate reconstruction for me:(.

Plils, I will be having complete hysterectomy after my bmx and rads, so sometime next year. Please let us know how your surgery goes. It is alot to go through and seems like it will take time to recover from all the chemo, rads and surgery, but we will recover!

I have 2 more abraxane to go! My nurse told me that normal dose is 80 and I am getting 110 weekly, no wonder I am such a mess! She said we could lower it, but I declined, I want to do what I can to fight this crap, although I am really not feeling well today. I am getting a massage a week from Monday! The place I am going is affiliated with my cancer center.

Where is our long lost friend blondelawyer? We miss you! Hope all is well.

Praying for quick recovery for Patriotic!

Hi Ladies,

Sorry to sound uninformed, but what are PFR and PFC?

Laureen

my surgery is set for thursday yep this thursday .Oct.20 is my date . I am scrared  and excited just everything .

Sorry I've been MIA--I've just been overwhelmed with grief and frustration with all of this.  Honestly, I wish that I could just curl up in bed and stay there forever.  It has been a rough few weeks.  My husband died last year on Nov. 2, so I think that the approaching anniversary is part of what is going on.  

As for an update:  I started rads last week and so far that has been fine.  I've had 6 treatments, 29 more to go.  I am also taking Xeloda and having some nausea with it.  I even vomitted yesterday.  I'll see my oncologist tomorrow, so I'll make sure to bring that up and see what we can do about it (I've been taking ativan to help).

Bak:  Congrats on getting approved for SSDI.  I have been considering applying myself since I haven't been working.  Out of curiosity, what date did they determine your disability "started" (the day you were dx or the date you applied, or some other time)?  

blondelawyer-this must be a very difficult time for you. Too much to go through for a year, well, actually more than a year as you have dealt with so much caring for someone so special to you. My heart goes out to you. I am not going through half as much as you and I certainly understand wanting to curl up in a bed and stay there. Chemo and rads has got to be tough. I do remember feeling sick just from rads when I had it 8 years ago. Rads wore me out, although my skin held up pretty good.

I think you should apply asap for ssdi. I did everything online, then they sent me a packet to fill out. I put the date down that I got the phone call that I had cancer and that is the date they used, April 5th. There is a thread in the financial forum that Steven gives advice, a SS lawyer. He had mentioned to put the 1rst day of the month that you became disabled, or diagnosed, so I could have put April 1rst, and that way I would actually got paid starting september instead of october. My payment for October starts at the end of November, which is a big relief for me as my surgery is Nov. 30 and now I don't have to worry  about working right after surgery. If you apply now you should actually start getting payments as soon as they approve you and maybe even some back payments. I can not believe how easy it was for me to get ssdi. I spoke with them once, after they called me to tell me they received my application, they got all my records from my doctors, which I had signed a release for. Do anything you can for yourself to ease the stress of this crap, you do not need to be working right now and you don't need to be worried about finances.

Thread for ssdi info

http://community.breastcancer.org/forum/113/topic/770569?page=1

Sorry, can't get the link to work. Just copy and paste into your browser.

no way Justme1! that is outrages - so sorry to hear that sweet lady. sending cyber hugs and positive thoughts that they pull their heads out of their @sses.