statistics on getting DCIS again??

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jmb5
jmb5 Member Posts: 532

Does anyone know the statistics on getting a second DCIS diagnosis, this time in the other breast? I am trying not to worry about my diagnostic mammogram results, but not knowing is difficult. I may or may not have DCIS again, and I wonder, could lightening really strike twice? If it's not DCIS again, where did these calcifications come from? What caused them to show up? They weren't there last year when I had my mammogram. Are there any statistics on getting DCIS in the opposite breast?

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  • xtine
    xtine Member Posts: 131
    edited October 2011

    I was given statistics, but I think they were personalized based on my own diagnosis and age. So you might ask your surgeon or oncologist for an opinion.

    Basically what I was told was that once I had a breast cancer diagnosis, I was automatically much more at risk for a new breast cancer diagnosis (DCIS or invasive) later on in life. So I will definitely continue to get frequent monitoring (6 months) of the unaffected breast. I was told I could reduce that risk by up to half by choosing to take Tamoxifen for 5 years. For me, the numbers made this sound like a good decision.

    As for calcifications, they are very common and don't necessarily mean cancer. Most calcifications are benign. Try not to freak out :).

  • PLJ
    PLJ Member Posts: 373
    edited October 2011

    My BS told me 50% risk. I am premeno...almost 41. I opted for BMX partly because of this stat.

  • Beesie
    Beesie Member Posts: 12,240
    edited October 2011

    My oncologist told me that once a woman has been diagnosed one time with BC, whether it's DCIS or invasive, she has about double the risk (of someone her age) to be diagnosed again.  In being diagnosed again, it could be either DCIS or invasive (DCIS is after all just invasive cancer that's been caught before it became invasive) and it could be in either breast.

    I was 49 when I was diagnosed and the average 49 year old has about an 11% chance of being diagnosed with BC at some point during her remaining lifetime (to age 90).  That meant that my risk was approx. 22%.  Someone who is younger will have a somewhat higher risk, simply because she has more years left to live until she hits 90.  Someone older will have a somewhat lower risk, for the same reason (fewer years left in a "normal" lifespan). While my risk was approx. 22% at the time I was diagnosed, today at the age of 55 my risk is closer to 19%.  This is because I have lived for 6 more years without being diagnosed and now I have fewer years left in which I could be diagnosed (only 35 years till I'm 90 rather than 41 years back when I was diagnosed).  

    In addition to age, personal and family health history and other individual risk factors can increase or decrease your risk.  That's important to remember. But my oncologist said that the "double the average risk" is a good rule to go by as a starting point.  

  • jmb5
    jmb5 Member Posts: 532
    edited October 2011

    Thanks for the info. I knew my risk was higher, but I just feel somewhat shocked that it can just show up in the other breast already. I mean, I knew it was possible, I guess I just like to live in denial. Is there anyway to know why calcification would show up if it's not cancer? I read a list of things that can cause calcification, but none seemed to apply to me, and I'm only 42. Seems to be more common in women in their 50's. I think I'm even more upset about this than earlier today. A friend of mine got her biopsy results today, and it was not good news. She was so overwhelmed, she wasn't able to give me many details. She just said chemo and then surgery. Frown

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