Hair Hair Hair - Another question

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  • sweetbean
    sweetbean Member Posts: 1,931
    edited October 2011

    amen, bdavis.  Oh, i see you are doing the Avon Walk.  Me, too!  How's training going?  You ready? :)

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  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited October 2011

    just "lurking" with the hypothyroid, i've lost almost everything i gained in the front. they still don't know if i'll get it beck.. luckily, itds getting cooler in so. fla, so i celebrated, and got a shocking (coppercolor) wig..hahaha i hope all your hair dreams come true, ladies!!!!....3jays

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  • PSU222
    PSU222 Member Posts: 127
    edited October 2011

    pejkug3** Congrats to you!!

    It seems like forever till I will be able to trash the wig.  My hair is growing very slowly.  The back of my head is growing thick while the front and sides seem to be fine and thin. Is this normal?? 

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  • Kay_G
    Kay_G Member Posts: 3,345
    edited October 2011

    PSU, I am the same.  My daughter told me to use volumizing shampoo.  LOL  My hair isn't even half an inch long.

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  • PSU222
    PSU222 Member Posts: 127
    edited October 2011

    kay1963,  I have about the same length as you.  I have been using Nioxin and prayers!!  It looks as though we started at the same time.

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  • Kay_G
    Kay_G Member Posts: 3,345
    edited October 2011

    Yes, but I had neoadjuvant chemo, so I may have finished first.  I finished chemo at the end of July.  I am on Herceptin which may be slowing growth.  Doing rads now,so don't want to do anything but prayers for now.

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited October 2011

    I am 3 months pfc and i noticed yesterday my scalp was really sore and this morning there were about 10 hairs on my pillow!  Oh no why?

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  • patti13
    patti13 Member Posts: 89
    edited October 2011

    bdavis..you wouldn't believe the stuff i've heard people say...without thinking...soon as they open you up it spreads like wild fire....3 months off treatment it has spread throughout body...jeeze..get a clue people...i can't even respond when i hear these things...i secretly already have these worries w/o people throwing it out there expecting me to respond.  wth

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  • EmmaC
    EmmaC Member Posts: 141
    edited October 2011

    My husband said yesterday that I could keep my head covered and look like I am fighting cancer, or I could go topless and look like I kicked cancer's ass.

    Tonight I went without a headcover to class. No one screaming for the hills!

    I looked at pictures from the beginning of Sept. and there is a big difference!

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  • sweetbean
    sweetbean Member Posts: 1,931
    edited October 2011

    I did neoadjuvant and am now on Herceptin and Tamox.  It took forever for my hair to grow in, but it finally did.  I totally had the male pattern baldness thing going to, but that filled in.  I am 6.5 months PFC.  I really should get a trim, but I am very attached to my hair. 

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  • sara1970
    sara1970 Member Posts: 127
    edited October 2011

    Guys - Nioxin products have methylparaben in them - a new study out of a California hospital (forget which one) proved that methylparaben diluted the effects of breast cancer treatments - I think they named tamoxifen specifically. I for one have tossed everything in my cabinet that has any paraben in it. 

    kathylyon wrote:

    ks mathews - 

    What Nioxin porducts? Is your hair thin in any areas or the whole head is covered? thanks
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  • Kay_G
    Kay_G Member Posts: 3,345
    edited October 2011

    sweetbean, thanks that gives me hope. 

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  • MamaV
    MamaV Member Posts: 907
    edited October 2011

    ksmatthews - maybe making room for new healthy hair about to sprout?

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  • Kay_G
    Kay_G Member Posts: 3,345
    edited October 2011

    Good thought MamaV.  Maybe those hairs were leftover from chemo and not new ones?  Not sure, but I really don't think you'll be losing your hair again.  I don't think that happens.

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  • sweetbean
    sweetbean Member Posts: 1,931
    edited October 2011

    Thank you, sara1970!!!  I have been sounding the alarm since I read that study, but I feel like nobody is listening.  One person actually wrote, "You can't believe everything you read on the internet, " implying that I was a total moron who would believe anything.  Nevermind that it was a well-qualified study picked up by major news outlets.  Sheesh.  I hate to see us go through all of this treatment, only to reintroduce something to our bodies that leaves us at high-risk for recurrence.

    Anyway,  John Masters has a hair growth serum and so does Jason.  Neither have parabens.   

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  • sweetcorn
    sweetcorn Member Posts: 188
    edited October 2011

    has anyone tried "Nutratint" hair coloring kit?  It is in the health food store, as "natural". 

    Thanks, Jane

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  • marial
    marial Member Posts: 255
    edited October 2011

    Has anyone been told the cause of chemo curls? I am just curious what in chemo causes your hair to curl..

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited October 2011

    Sorry if I had offended anyone with anything I have said in the past.

    I just refuse to let cancer control my life by reading every little label, not eating foods I enjoy and eating foods that I hate. 

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  • bdavis
    bdavis Member Posts: 6,201
    edited October 2011

    Sweetbean... training?? I wish... I had my bilat MX this past July with hip flaps, had a complication and had a DIEP flap August 23 and chemo all spring... so I am winging it... I actually did an alzheimr's walk this past weekend, 3 miles, and my plantar fascia was killing me.. so I got a shot yesterday... I will do what i can do. What is your team called? Mine is Team Agappi.

    So.. hair.. mine is growing pretty well... Oddly I have had many people tell me they love my short hair... it is so curly... I have natural wave/curl, but this is over the top.... last cehmo was May 10, so its been 5 months... I have not used any special pills or shampoos... but I do use a john Frieda root wakening shampoo... just cause it makes me feel like I am doing something.

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  • lifelover
    lifelover Member Posts: 553
    edited October 2011
    Hi ksmattews!  We are similair.  I don't read labels.  I eat healthily but I eat cake when I want to.  I also have a drink when I want to.  I've worked hard to be true to myself and express my opinions (as long as I'm not out to hurt someone or being cruel) and not worry about what other people think - my clever boyfriend says it's called "taking responsibility for your own feelings".  Whatever works for you or me or anyone else though.  Go girl.
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  • Kay_G
    Kay_G Member Posts: 3,345
    edited October 2011

    KSMatthews, everyone needs to do what they think is right.  My docs only warn me against over doing things (and that's only when I push them).  I think you have to feel right about what you're doing.  For some, that is eliminating all things with paba in it, for others not.  I am doing things differently than I've done before, but I'm not going to go to as much extremes as some others because that is just too hard for me.  No need to apologize.  We can all co-exist with our different philosophies.  Lots of women here are using the Nioxin, you're not alone.

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  • missy_111
    missy_111 Member Posts: 141
    edited October 2011

    What kind of hair dyes are you ladies using?

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  • sweetcorn
    sweetcorn Member Posts: 188
    edited October 2011

    KsMatthews,  I have been using the Nioxin also.  I believe the amount of parabens is rather small.  In fact, I was reading the label on the facial exfoliator that I use, and one of the last ingredients is parabens!  If it is the last of many ingredients, the amount is negligible. 

     Jane

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  • sweetbean
    sweetbean Member Posts: 1,931
    edited October 2011

    bdavis, we are the You Can Thrive team.  (You Can Thrive is a non-profit in NYC that provides free and low cost CAM therapies to breast cancer survivors.)  I have been training for months, but the most miles I have walked at once is 16.  So we will see how it goes.  I got new sneakers, so I am working on breaking them in.  

    It's totally cool that everyone has different philosophies and ways to get through this.  It makes me feel better to completely alter my diet and lifestyle choices, but for some, it would feel like cancer took over everything.  I get that.  But I had a BMX because, as I said to my sister, "I would rather cut off a perfectly healthy part of my body than put Mom & Dad through this again."   So for me, it's not a big stretch to read every label or drink a kale smoothie every day of my life, even if it isn't exactly tasty.  

    I spend a LOT of time reading studies and information and feel obliged to share what I read with the women on this site, because I want to help everybody.  Knowledge is power.  

     Now, I just have to figure out how to post a picture.... 

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  • sweetbean
    sweetbean Member Posts: 1,931
    edited October 2011
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  • sweetbean
    sweetbean Member Posts: 1,931
    edited October 2011
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  • sweetbean
    sweetbean Member Posts: 1,931
    edited October 2011

    AAARRRRGH!  Why can't I do this?

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  • lago
    lago Member Posts: 17,186
    edited October 2011
    sweetbean how are you trying to post the picture? I find that if I click on the tree all I have to do is put the link in the fields. If the size doesn't automatically show up in the fields then your picture won't post. This could mean you don't have permissions to repost or a password is required.
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  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited October 2011

    Sweetbean - is your picture somewhere on the internet?  If it is, all you need to do is use the mouse copy and paste function...click inside your picture, then right click the mouse and select copy.  Then click inside the text box here, right click and select paste.  It will ask you a couple times if you want to allow the program to access your clipboard.  Just answer yes. 

    If your picture is on your pc's hard drive, you will need to upload it to a picture hosting site like Flickr, Picasaweb or Shutterfly. 

    IMAG0087

    2 weeks PFC - the hair is already coming, but it's mostly white.

    Michelle

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited October 2011

    Michelle, I'm so jealous!  I'm 2 weeks PFC but was on a different cocktail.  All I have is what never fell out.  I don't know how to post pics on here either.  I don't have any pics of bald me on the internet. 

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