Chemo May 2011

3 more to go!!!! Well, I was just told that I will be doing avastin for a whole year! Started in auguust so will go until august of 1012:(

I had my last chemo October 6th, 2011. They blew bubbles at me... a bubble party. Took my picture. I had on my brilliant blue wig. It was great!

Surgeon appt is Monday. 

2 1/2 weeks out from last chemo and i have  no energy . I didnt expect to feel so weak for this long .

Hi all. This is my first post. I am about a week and a half out from my last taxol. My legs are so sore that I feel like I just ran a marathon. Did anyone else have this type of leg soreness post chemo?

Lifelover - again thanks for the smiles!

Nicole - I did the exact same thing.  I developed leg soreness and neuropathy after the taxol (12 weekly) was over.  Lasted about 4 weeks total, but lessened starting in week 2.  Hang in there sister!

Hang in there bak.  You do have a long road - but take it one day at a time.  Hugs!

Hi Bak! 

I am one week PFC- I have been trying to call in a refill for my pain meds since last thursday only two days after my last treatment. finally got ahold of my docs nurse today and they took care of it today. I have been in pain- lots of bone pain as I have had for most of taxol. I just checked my vmails and my dr. left me a voicemail saying something like I shouldn't be in so much pain by now... blah blah blah. really? I usually am all the way up to my next treatment. Its wierd - like they think that my body is going to just know that I'm not going to have tx tomorrow therefore I shouldn't been in pain this last week.

frustrated. this is why I had never called for more pain meds- they make you feel like a junkie. I rather just take what I have until they're gone and then bite down on a leather strap. >:(

Other than that- I am actually doing fine! I am fatigued but can't wait to meet with my RO this friday and hear the plan for my radiation tx. I want to get the show on the road and get this over with.

(((hugs )))

L 

my doctors are "you sould not have pain, if you do we need to put you on more pain meds" When I was on the chemo I was taking 9 pills twice a day. now that I am past chemo I take 2 pills in the morning (both pain meds) and 4 at night.

You should not have pain higher then a level 3 most of the time

I just started a NOV mastectomy group on here. Come find me if you're doing surgery in Nov.

I got my date... Nov 3. Modified radical. Overnight in hospital. 2 drains.

Gonna enjoy the living hell out of the 3 weeks between now and then, that's for sure.

If any cancer remains alive, I will have to do simultaneous rads and Xeloda. Keeping fingers crossed for total tumor death (TTD).

TS 

I have pain and numbness in my hands and feet that are getting worse, I don't take anything other than the l carnitine and it seems not to work as well as it did in the beginning. My nails are downright ugly and sore. I am worn out!

Congrats Laureen!

Twisted, I am sure I am on the same plan as you, if cancer is found at surgery I will probably do more chemo with the avastin, ut after rads. I don't think I can do avastin and rads at the same time. I have surgery in November, but not until Nov. 30th, but I will join the group!

38, I like that your doc keeps your pain under control! I have more numbness and soreness than pain, except when I was doing those nuepogen shots, then I had pain! Moslty just exhausted, anybody else just tired? So tired I don't even want to go to the store, let alone work. I think I have to take the day off today. Putting a wig on might just put me over the edge!

bak94,

i don't know what to say other than, yup... been there. i know what you mean. i know how you feel. i know the love/hate of chemo. the fear that any minute spent not battling will give the damn tumor a chance to take hold again. i know how much it sucks to touch anyone or anything with the fingertips always aching and tender. i know what it is to be so f*%#ing sick of being sick. I know what it is to have no nose hairs, be bald and paint on eyebrows. I know what it is to feel crazy.

 So I wait out the crazy moments. Sleep as much time away as I can. Cry when it overcomes me. Smile when it overcomes me. Laugh when that overcomes me.

Cancer sucks!!!!

TS 

Bak,

we were a healthy young family living the american dream in 2008 when my husband had one of those freak cardiac arrests that happen to 1 in300,000 ppl and passed away at 42. I went to my chiropractor because i got a very bad headache and was about to drive from Denver to Missouri for the funeral and thought if he could help then my ordeal would at least be pain free. He adjusted my neck and started a process that I could never have known would change my life forever

He damaged my carotid artery so when the kids and I got to the visitation I walked up with our 4 yr old and collapsed. Ultimately my massive stroke would happen after returned to Denver.

fast forward 3 years later and much much heartache from that medical crisis- I got a letter awarding me ssdi a month before chemo.

I don't know which one of those events flattened my spirit more- because while while becoming disabled is helpful financially its also a huge loss. I cried for days. Just kept looking up at the skies and begging no more please!

But we find our resilience in the people and furry ones that surround us- the things in our lives that make us happy.  You can do this sweet lady you are stronger that you feel this day. check out the hits on this thread alone... there are thousands following the few of us that are strong enough to share. (((((hugs)))))

L 

About the sore legs:  I had my last infusion August 9 and was still incredibly weak after a month.  Then the weakness in my arms and legs was replaced by incredible soreness.  I am now 2 months out from that treatment and I am just now able to start walking regularly every day even though the last soreness has not yet disappeared from my thighs.  But:  two months ago I barely had the strength to get to the bathroom.  Now I can walk four miles.

ruthil- that makes me feel much less like a freak case or junkie or whatever. its normal as normal gets with cancer in your life. doc shouldn't have questioned my pain although now that days have gone by maybe he was just worried. I am so hypersensitive these days. ugghh. 

i will keep trying to shine up my social skills (the in person ones) I feel like I was put in solitary confinement 6 months ago and I am a little cooko for coco puffs now.

L