Is there a July 2011 group?

LOL Khs113 & Dexxy I am with you on the muscle tightness and aches..when i climb the stairs OMG i feel like an old old lady coz when i get up i have to stand for a sec to catch my breath and feel the "burn" before i can move!!! I met with my RO yday and mentioned this to him, he sadi it may be the after effects of chemo, to try and take Aleve/Advil/Motrin, took some Aleve last nite, didnt do much relief. I will be meeting with my MO next weds, will keep you posted. Planning to try and get much rest this weekend, will see.

Take care lovely ladies.

Hi, I'm back, trying to catch up. But forgive me for not getting to everyone. Rabbit, thanks for putting all our names on your walk shirt! Awesome!

Allenan hope you had a happy birthday lunch!

JBug congrats on your last Taxol!  Best wishes and good luck with your surgery.

I'm waiting for my Cancierge friend Kathy to pick me up for my day at La Spa.  This is #10 of 13.  The last two weeks I was plagued with the runs.  I think that knocks me out more than anything else and the Immodium was only of limited help.  Have to discuss with the Onc today to see what other options I have for gluing my  insides together.   I had to take off an extra day from work because I  had been up running the entire night before.  

Trying to juggle  too many things right now -- flood damage and still no repair -- negotiations going on between adjuster and insurane company. Yuck.  My son is supposed to go into a program but is dragging his feet so that adds some stress to my stress free life. LOL.  I think he'll go, but at his own pace -- paleolithic glacier speed (wrong era probably, but you get the idea). Younger son is off to Canada with his girlfriend to celebrate his 25th birthday. I want to know how he is 25 and I'm not any older.  Strange... Having to start thinking about applying for another job in the DOE for next year since my current position ends in June.  Another  huge Yuck!  And then there's the BC stuff on the side.  Too much stuff.  It will work out in the end I think.  I hope. LOL

Having trouble keeping up with this busy busy board but it seems like most of us are doing better than we were a few weeks back, which is a good thing.  Rabbit I'm a believer in slower infusions even if they take longer.  I  don't have any more reactions since we slowed things up. Except for the runs. LOL.  Can't have everything I guess.

Gotta run and pack my "go" bag for the day. Catch you all later. Have a good one!

Jbug-// Congrats!!!!!!!

Allenan, I got the idea from the March chemo group, one of the ladies there did the walk and got a huge poster with everyones name on it, including mine because I was popping in there once in a while asking questions...so use the idea, it wasn't mine LOLOL I'm sure it's been around here a long time And good luck with  your walk!

mavinbook, I will let you all know for sure how I go on my first taxol Wednesday, I hope it's slight SEs for sure!

kk11, you are 18 yrs younger than me, I would think that has something to do with it, I am now 46 and even though I would like to think I was quite healthy and fairly fit before dx, the chemo is probably hitting me much harder than it would most your age, I can't imagine doing a dose dense!! The sound of those words "dose dense" makes me shudder LOLOLOL. 

misswim, I wish I could help, that's one of the things I actually have not gotten LOL I've had every other problem it seems! Ask your onc if you can take echinacea, I know it does a great job at keeping you from getting colds/flus...or sambucol, I've taken than many times when the first hint of a cold or flu seems to be lurking and almost always have avoided it.

ellenquilt, I will let you know if I am a believe in the slower infusions too, I think and hope you may be right hope you get rid of the big D, it sucks, I get it for days after infusion and then a small episode off and on but have been pretty lucky with it not lasting too long.

yooper, you just reminded me I need to look into the Livestrong program here too! My PA told me about it, very much interested!

dexxy and snoopy, I hope you all get rid of those aches and pains, I had them severely for several days and am praying I don't get them long term at all, the several days I had them was enough for me!

luvmy2kids, have fun with the lock in! LOL I don't envy you :)

J-Bug, congrats that is AWESOME, celebrate when you're feeling up to it!

Cathy_C glad your SEs are over on the taxatore, I find that one horrible chemo!!

khs113, I hear ya on the exercising and stretching, my body is not only in shock from the chemo crap but from not getting the normal exercising in, hopefully the taxol will allow me to do more.

I am having a tooth pulled Monday, the same tooth they took the crown off of (root canal tooth) is now loose! Apparently it's fractured and not salvagable, so off to the oral surgeon Mon. I have to stop my lovenox injections Sunday and Monday, this will be the 2nd tooth I've ever had pulled, besides my wisdom teeth, wish me luck.

Then Tuesday I have an upper GI scan, I got to see the GI dr. today, she said chemo will flare up these things 10x more than usual, she's seen it many times. But she wants to take a better look at my esophagus.  She also took me off omeprazole and put me on dexilant, said that is stronger and should help a bit more, she also gave me a script for some liquid stuff. hopefully the lower dose of taxol weekly will keep me from having such horrible upper GI problems.

I am going to put a pic of me in my gypsy outfit at the survivors dinner Tuesday night, wearing my wig for the first time EVER in public and possibly the last, I just don't think it's comfortable. The dinner was a Halloween theme, kickoff to the walk tomorrow, there were around 800 survivors there, it was awesome.

xoxoxo to all, picture coming up.  

Thanks J-Bug and Rabbit- I took some echinacea and Robitussin- feeling a bit better now, mostly about ready to collapse. Hoping I feel better in the a.m.

J-Bug- Congrats! Your surgery is coming up and I think for me, knowing the cancer was out of me was the best feeling- I felt I could breathe a little more. I have had a bilateral with reconstruction and if you ever have questions, fire away or PM me.

Rabbit- You look beautiful! Thank you again for walking for us!

shinypop: I get the swooshy sound in my ears when my hgb is low. Of course, sometimes the energy level is very high at the same time because of steroids with the heart racing and sleeplessness. 

Rabbit---Have fun on the walk today and thanks for taking us all with you. Love the gypsy look.

J-Bug- I was trying to figure that out!!! Congrats!

PhillyBird, it's a whole wig, it's cute as could be I'm just not a wig person. 

lulujune17, of course you can join us, there are no strict guidelines here with time frames We are very similar, we both are ER+ and HER2-, grade 3 and the tx plan is the same, although we just changed mine from taxatore to weekly taxol. And I get my surgery after chemo.

Welcome ;);)

Rabbit- you are awesome, love ya girl!!!! I thought of you as I have been knocked out on the couch with a cold all weekend and am so thankful that you had the energy to walk, you are amazing!

The taxol side effects have been easy to manage. Alot of muscle/joint pain, no real bone pain, but virtually no GI or mouth sore issues. Nueropathy has only been noticeable this round for me, and it is mild. I bet you'll find it much easier than docetaxel.

Lulujune17, welcome!

misswim, I hope you are feeling better, colds last so long especially with what we are going through....

cshell, I have tons of pics of me bald, with scarves, bandanas...every which way I just told my sister yesterday at the walk, I want her to help me put together a scrap book, she used to do that as a hobby and is very good at it!

I am a bit sore today, not bad at all, just a tad, now on to getting my tooth pulled tomorrow LOL ugh!!! 

hey beautiful ladies,

Hope you had a wonderful weekened,mine was not sadly:( did any one notice that hausbands acts like assholes and jerks since u were diagnosed? or is it just mine? Is this men's way of saying they feel bad for u? so they become big time jerks?! i don't know what to think!:) He thinks im super woman!(its good and not good actually):)

Anyways,i'm going for my blood test now,my 3rd session is after tomorrow,hope it is as good as my last one,i dont want anything to postpone my treatment.

rabbit,u looked amazing,i only know u for few days but i can tell u r an amazing woman.

keep it up girls we will all beat it

Hugs to all