MIDDLE-AGED WOMEN 40-60ish
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Claire.....can I move in with you? Blueberry for me please, with real butter only. No syrup! I am weird. Just lots of melting butter. I can feel my cholesterol go up already! I am an early riser. I have a lot on my mind right now so that doesn't help either. Brain clutter.
Thanks Annette! I am doing well through this last part. Once the burns are done peeling and my skin recovers I know it will be easy. Just some bumpy times now as it hurts quite a bit. I am good though!
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mmmm I do declare...gobs of melted butter on most things is a very good thing
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Ok heres a hit on the mystery pic. Its not a tatoo on Annettes Arse, lol. Just teasing ya. Its good to see ya Annette! You all are so very good at guessing so at tonites unvieling there will be a winner!
Claire I will take blueberry on mine please, yummy!!!
Have a fun filled day all. I was hoping for a date with the hubs for a steak dinner but he has to pull a 12 hr shift today, dangit! It was gonna be our only chance for the next 3 weeks because he will be working straight thru for the next 3 weeks and wont have a day off. Looks like I will be going to an auction today instead. It will be fun but not as much fun as a date and a steak dinner!
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pumpkin somethings pumpkin material.....checking butt...nope, no pumpkins there, although the lumps could be construed as looking a bit pumpkiny)
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Shayes37 I spoke with my DR she said everyone is different I spoke with some there's came back in 3 months. Some much longer I hope on the shorter side.
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CareBear-Sorry to hear of your problems. Your story with the low blood counts reminds me of mine. Do gaurd against infections. Are you still working? I worked through mine but I let everyone else deal with the public. I really missed the fresh veggies and celebrated by eating everfy kind of salad I could get my hands on once I was through. My AC went really slow as I did get an inflamation in my BC breast and they had to do an I&D to clean it out. The taxol wasn't as hard on my WBC and was much easier for me. What you want to watch out for on that is the neuropathy. Some people recommend keeping your fingertips cool during chemo. I didn't do this so I don't know if it would have helped.
Lyniea and Shayes- Did your MO give you anything to help with the neuropathy? I finished my Taxol June 23rd and still have some. My RO said to take 50mg of Vit B6 and I have been doing this for 2mos naw and my fingers are imptoved but I still have alot of numbness in my fingers and toes. We tralked about it and the Chemobrain at my visit last Thus and he thinks I should see improvement for the next 6 mos but he says anything remaining after this time could be permanant. From what I have been reading about 1 to 2 years is about the time it takes for the Chemo Fog to lift.
Paula-Rail against the insurance companies all you can. My favorite game my BC plays is saying I have a patient co-insurance on something I know they are supposed to cover in full. It is usually not that large of an amount so I'm sure alot of people go ahaed and pay it and the Inurance has saived themselves quite a bit over time. I know my benefits and call and have them repay the claim correctly but how many people don't?
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This is a great group and I am happy I found you!
Thanks so much for the info on PT and massage, Elimar and Kittygirl. I was putting on lotion (vit E one recommended by RO) but stopped because I was afraid it was causing the redness. I will call MO (or BS?) and ask for PT referral because I really want to learn to do that and decrease scar tissue and fluid. Other than that, I will try to cultivate patience!
The funny thing is that while the healing part of the incision gets redder, the healed-up line keeps getting longer and that part has no redness at all. It's now about half of the incision. Patience! Stop obsessing over 2 square inches of my body! Boy, bc has made me more of a worrier. Does that SE gradually go away?
Today is Day 1 of Femara. (I'm on a special schedule: got diagnosis Aug. 2, finished rads Sept. 2, started AI Oct. 2. Pure coincidence but I like numbers to have patterns.) Tempted to start a log sheet for SE notes, but don't want to get paranoid and start imaging SEs that are just my normal middle-aged occasional aches and pains. Anyone else do that?
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"...don't want to get paranoid and start imaging SEs that are just my normal middle-aged occasional aches and pains. Anyone else do that?"
treeskier, Only every woman this thread! A great many things get back to the way they were, but that paranoia about something small signaling a recurrence, or further spread, is just one of the many ways B/C is a gift that keeps on giving.
The ladies here really seem to like either Fruit of The Earth 100% aloe lotion or Emu oil for use during and after rads to keep skin supple and help healing. (Note: Anyone that has open weepy blisters, use the prescription ointment from your doc.)
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Been a vusy weekend and I'll try to go back and read and catch up but wanted to share some pics of this weekend.
Jo, Gina, Annette, Chrissy, Timothea, Jana, Sherry and Timothea's kids
Chrissy signing the traveling pants. The emotions I felt were so powerful and I just feel blessed to have spent time with everyone this weekend. I love my BCO sistas
Sherry--lump left breast 9/30/10. No chemo, oncotype score 23 with 14% recurrence rate. 34 rads. No family history, BRCA neg
Diagnosis: 9/27/2010, IDC, 1cm, Stage Ia, Grade 1, 0/3 nodes, ER+/PR+, HER2- -
I am soooooo far behind...18 pages...good grief....can't catch up with it all so will simply start again:) new day....
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Eli I am at the weepy open blister stage. Not bleeding thank goodness and hope I can avoid it. I am using prescription lidocaine mixed with Aquaphor for my burn. It is soothing but really greasy.
treeskier, happy to see you found a new home with this group. Such a great bunch of fun and helpful women here. I do expect you will have that "worry wart" side effect for some time! It kind of goes with the territory unfortunately. The good news is, you worry less about other things!
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janis, I realize the weekend is almost over, but spend the rest of it with your top off if you can. The air and no garment up against you will help.
BTW, all you ladies finishing up your rads...Your treatment side will have dryer skin for a long, long time. I don't mean flakey dry, but the skin's natural glands that moisturize and keep it supple have been zapped into oblivion, or at least put into a coma for many months to come. Just like the ladies who can't grow hair in their treatment armpit, things will be out-of-order on that side for some time. I still use the lotions on my treatment side, now two years later.
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Eli.....thanks hon! I am not real comfortable with the topless thing, but I am wearing a very loose all cotton tank top. Plenty of circulation around my breast. Not a lot of drying out will happen though. I have slathered the whole breast and underarm with the lidocaine/Aquaphor. The constant peeling keeps my skin pretty raw and that helps.
I had a total hysterectomy 15 years ago and did not ever take HRT. Funny how the hair on my legs and pits thinned so much. I used to have thick dark hair in my underarm. Gradualy it became so thin I rarely had to shave. Then I would just find a few odd long stray hairs. Same with my legs. I rarely have to shave them either. Guessing now the right armpit will be bald for some time to come!
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Sherry I am just now seeing the pictures! Thank you so much for sharing. I am so happy to see the faces of the women I have come to admire and love!
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Yes, thanks Sherryc for the pic of your San Antonio group. Looks like a happy bunch!
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Wonderful pics! Thanks for sharing.
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Oh, and Hauntie, I would love another meeting some time.
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sherryc, the pics are fabulous! so glad to see the faces of some of the women on this forum.
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Hi kay! Nice to see you here. I love your Eleanor Roosevelt quote! You met Hauntie? How great anyone here can meet....anyone! I have not seen her post recently, hope she is okay!
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Good grief! I am 4 pages behind and will never catch up. The trip to San Antonio was absolutely fabulous - some very emotional moments. I will try and get my pictures off my camera in the next day or two. i will post all of them on FB so watch for them.
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Janis - here I am. I'm fine. I hope your skin heals quickly.You've been through more than enough pain during your radiation. Now that I'm boobless, I have no problem going topless (at least at home). I get too hot and whoosh the top comes off and gets tossed.
I had a really fun afternoon with some BCO gals at Pickety Place in NH. Check it out online. It was once a private home and the model for the house in the Little Red Riding Hood book. I too had a chance to see and touch the Treveling Pants. All of the women who have signed them are stage IV. Most of them under 40. It was very moving to be able to read the messages and signatures and touch all the courage contained in those pants. You can get a pin replica of the pants at Stage4travelingpants. com
Lynda
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Janis hate to hear how your rads are going. Mine were bad at the end and i ended up going topless around my house. My husband was traveling so I was home alone. I called my mother and told her no unanouced visits untill further notice. It really does help. I used regenecare which is prescription lidocaine. Once that was on and I was numb feeling then I could take a bath or put my creams on. Otherwise it was way too painful. But the good news is it will be over soon.
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You gals are all really close to the mystery pic! But Trish was the first to answer with pumpkins. Here is the real picture!
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Love the pics Jo and Sherry!!! thanks for posting
Been nuts around here.. My daughter just turned 16 Sat and managed to turn it into a week long event.. I think I must of heard " But mom its my bday week a hundred times lol... but she said it was her best bday ever, so that did my heart good!
janis I am so sorry that your biopsy went the way it did , You have been through so much, gentle hugs to you!!!
Going back in 2 weeks for a nipple tatoo touch up then I am hoping to be all finished... fingers crossed
Good night ladies
Maria
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Thanks for the pics Jo and Sherry. Wish I could have been there! Best wishes and ((Hugs)) for all those doing treatments this week. Janis, hang in there it will soon be done. Keep the boob and underarm greased well, it will heal. Kitty
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I still apply Fruit of the Earth 100% Aloe Vera clear lotion on the Rads side. I know for me it has helped with the healing & continues to help. IMHO anyway.
I have my 6-mo MO check-up tomorrow morning, will see the NP instead of the Onc. I prefer her anyway, so when they called last week to change the appt time by 15 minutes & to see NP instead, I was pleased. Hoping bloodwork is good........
Since I had to have a repeat PAP last year, that puts me later for my annual ob-gyn appt & that is when I schedule my mamm, soooo, I will have the Onc's office do that for me. Not that I'm in any rush to have that done !!
As I said on another thread, LOVE the pictures!
Hugs!
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Seeing the PS for follow up this afternoon and then simulation for rads. Rads to start tomorrow unless PS tells me no. I might as well get started and get it over with.
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Uggh....more teen trouble. Yesterday my daughter, husband and son all helped to shave my head. My 15 yr old did most of the cutting and evidently it upset her more than I thought. I guess. My son couldn't sleep and woke me at 3:30 all worked up and anxious because he was still awake. After trying to help him calm down, I finally decided we should just both go down and turn on the tv. Well, over an hour later, at 5:15, my daughter walks in the house saying, "I know I'm in trouble." She proceeds to tell me that she couldn't sleep, was upset about shaving my head and getting hot in her room so she decided to go for a walk in our neighborhood...at 3 AM!! Then sat in the backyard for awhile and then the basement hoping I would just go back to bed. I am soooo hating this cancer and what it is doing to our family. My kids should feel safe and secure, not stressed and alone. I know it wasn't her fault that her boyfriend had lied last week about his age, and she did come to me as soon as she found out the truth, but it still clouds last night and makes me wonder if there is more going on than I think. She has never given me reason to question her but still...this just scares me. Bothers me too that neither could sleep after yesterday. I don't really care what I have to go through to beat this cancer, but I guess I just naively thought that I could keep it from affecting my kids like this. SOOOO MAD!!!
M
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Do love the pictures of the get together!! So nice to see the smiles on your faces! Valjean good luck on your check-up today!! Funny how we live in 3 or 6 month increments .. . Janis, I remeber the last two weeks of rads were not very fun, and then just like a good steak, I kept cooking for a good week after it was all over. It helped to keep it lubed OFTEN, drink lots of liquids. I would put a wet washcloth in the frig and then lay on my bed topless with the cloth on my chest. Actually, put another one in there so you can rotate out the cold cloth. i never got the prescription, but I did get the itchy red rash that hurt like a MF. I used miaderm,calendula and aquafor and just rotated as often as I could.
I am so excited--I just realized that I have not ONE doctors appt or test this month! The first month I have been doctor free since last May when this whole thing started. What a great way to celebrate Pinktober!!!
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way to go claire! right now i have a clear calender too, its strange whats makes us smile these days!
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