Sept 2011 Rads

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  • neecee
    neecee Member Posts: 663
    edited October 2011

    Stormy - the debt collector call story is so funny!

  • ginger_mea
    ginger_mea Member Posts: 264
    edited October 2011

    Hi everyone, I just finished 10 rads so far, my skin is pink, starting to itch and a little sensitive, the bra is bothering me.  I am using the Rx cream from my Rad. Onc. 3 times a day.  It is also tight in the scar area in my arm pit.

    I don't know if anyone else is feeling this, but when I get in bed at night I feel like I was baking in the sun on the beach all day, and got sunburned.  You know that feeling, where you are under the covers freezing?  I have no fever but its kind of like that.  Just wondering if anyone else is having that.  I am enjoying the weekends off it is a nice break.  Monday back to the light beam, also have Herceptin on Thurs. and ecco cardio on Tues. so its a fun filled dr. week ahead.

    Blessings to you all and enjoy whats left of the weekend  Ginger :)

  • ashleere
    ashleere Member Posts: 19
    edited October 2011

    Hi ladies`

     Ginger, I just finished 13 of 30 and I am so red and feel sunburned as well. I have a really severe rash and some blistering in th fold under my breast.  The bra is bothering me but, my breast feels better in a bra than out of one. 

    So glad to have the weekend. Hope everyone is doing well.

    Clelia

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2011

    Ginger, yes I feel like that all the time not just at night. But, its just the radiated breast, not my whole body. There is a temp. difference to the touch as well, its weird!  Hang in there, I just keep telling myself that this will all go away, I will be normal again! ...well, as normal as I can be, I've never been called normal, except from my RO.  Everything to him is normal, lol

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2011

    I really think I need bifocals...can I blame that on Rad treatment? Its not my age, right?

  • MostlySew
    MostlySew Member Posts: 1,418
    edited October 2011

    Ashleere and Ginger,

    I'm sure sorry you're already getting side effects. Hopefully they'll have a chance to heal this weekend.



    Ashleere, I've got big breasts and have heard that blistering underneath is frequently a problem. The two tricks I've heard or was told is to use cornstarch as a powder underneath to help keep the area dry, and my RO nurse said lots of women cut up pieces of soft t-shirt material and put it inder the breast inside the bra. I also am really careful to let the aloe Vera I'm using dry underneath (usually lie down with arm over my head reading till it's dry). I don't know if any of this would help, but maybe. Of course, I've only finished 12 sessions (system was down yesterday so no rads) but other than the inflammation I've had since the first day, I'm fine.



    Hope everyone has a great day off tomorrow

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited October 2011

    ginger, I get the chills also and sometimes will get them a couple times every evening.  I bundle up under a blanket or two.  Then at some point I will get a hot flash to counteract the chills.  Just a wonderful flip-flopping back and forth from one extreme to another.  (lol).  Btw, my hot flashes were brought on by the chemo which put me in to menopause as I'm 53 yrs old.

  • justmejanis
    justmejanis Member Posts: 1,847
    edited October 2011

    Ginger, I have a pretty good burn that is peeling, so I do get those weird chills.  It has been hot here and the other night DH thought I was strange lying on the couch with a blanket on me!  I do not wear a bra at all unless I go out in public.  It just rubs that underarm burn too much.  Mostlysew had some good advice about the cornstarch and the material.  I cut up pieces of an old flour sack towel.  I have lidocaine for the burns and it is thick and greasy.  I wear an old shirt, slather that burn stuff on thick and then put the pieces of fabric on top to hold that onitment in place.  I lie down for awhile just to make sure it stays on.  The lidocaine helps numb the surface and feels great.  I also got samples of these wet gel packs.  They are moist, you refrigerate them and they feel good when your skin feels hot.  Very soothing.

    Coundown begins for me this week.  Three boosts left is all.  I am finished with rads Wednesday! :)

  • stephN
    stephN Member Posts: 284
    edited October 2011

    Hey y'all,

    Finished 15 of 36 Friday.  I've been really tired, but have taken some time off work so that I can sleep when I need to (since sleeping at night is sketchy) and that seems to help a little.   I'm looking sunburned and am itchy, too.  The RO gave me a prescription hydrocortison-type cream and it seems to help.  

    Janis, you're almost done!  Hugs for the painful blistering and peeling.

    I don't wear a bra at all.  I'm wearing tank tops under clothes when I have to go out and big T-shirts when I'm home. (Yes, it's awkward, but I'm daring someone to ask me!)   I really don't want anything touching me, though!

    Gearing up for a new week!  Get 'er done! 

  • katehudson25
    katehudson25 Member Posts: 2,467
    edited October 2011

    I am 11 days post rads and I still have a rash, and I am still extremely red in the boost area. How long will it take for this to go away?

  • tamcathtech
    tamcathtech Member Posts: 42
    edited October 2011

    Hi Everyone!! I have been with you all since Aug 29, just came upon this forum about two weeks ago and wanted to join, You can read my bio to get updated with me. I have had 24 radiation treatments so far, 1 more to entire breast tomorrow am then on Tuesday I start 11 boosts. I am being treated in left breast my lumpectomy scar is left upper outer near armpit. After week 3 started with the fatigue and cut back on work to 2 days a week with "on call" 2 nights per week. I am a cardiac cath tech and wear lead vest and apron and scrub in with cardiologists during angiograms, etc, In radiation, fluoro every day. Redness and peeling started a week ago, been using Aquaphor, then some radiaderm and xclair samples from ro, this past week switched to aloe gel with lidocaine, due to constant burning and feeling like a "hole" is being burned in my armpit, even though it isnt. I do have peeling inframmmary and RO recommended Dombero soaks last week also, I just feel like this weekend has been the worst for pain, cant get comfortable, found some vicodin i still had from a surgery last year....using that today until see RO tomorrow. As you can see by profie pic my hairdresser gave me hot pink highlights for free for this month.All my coworkers (girls) are getting pink feathers in their hair this week. I do have a great support system there. Look forward to responding to you all instead of just "lurking"

  • llm005
    llm005 Member Posts: 25
    edited October 2011

    Hi everyone

    I've done 9 of 23.  Has anyone had a patch of pinkness in the OTHER breast?  I pointed it out to the techs and spent the next hour immobile on my tummy while they redid my prone setup and checked and rechecked and x-rayed.  So now in addition to 7 tattoos (4 from supine set up, 3 from second setup in prone position) I also have a few sharpie marks too!  Not happy about potential zapping of other breast as it got radiated 18 years ago the first time I had BC.  But, at least they took it very seriously and didn't blow off my concerns.    Would like to hear if this has happened to anyone else?

  • justmejanis
    justmejanis Member Posts: 1,847
    edited October 2011

    hi tamthetech!  Lurking is allowed, but we love it when you chime in and join the fun.  I sure hear you on the burn thing.  Yikes, kind of uncomfortable.  Sleeping is the most difficult for me.  I only wear a bra in public.  I did not have a lot of fatigue.  I seem to have a lot of energy.  I have a very hard time just sitting still and relaxing!  Make sure you get more pain meds from your RO.  I got some from mine.  The burning is bad enough, we should not have to suffer any more.  He should prescribe them for you.  Good luck, you are almost finished!

    Steph, LOL on the bra.  It is nobody's business and you have to be comfortable!  You are almost halfway through hon.  I'll be here with you all the way!

    Kate I really don't know how long the rash and redness will last.  I think you should start seeing improvement every day.

    llm005, I have no redness in the other breast and have not heard of that.  I am glad your techs are listening to you but make sure your RO knows as well.  Gotta love all those Sharpie marks! 

    Hugs to all my brave friends here! 

  • bev1116
    bev1116 Member Posts: 7
    edited October 2011

    Hello, Ladies! I just finished my 33 rads on Thursday, Sept 29th. I have to say even though I'm fair-skinned, I didn't burn or suffer too much with it. I had more deep tissue discomfort from surgery than skin discomfort. I had a lumpectomy, both sides breast reduction (from a DD to a C-cup) and cosmetic lift for symmetry (because of the location of my tumor), so I was/am dealing with about 36" of incisions. I still had steri-strips on at my first RO consult. That made wearing a bra that didn't "touch anything" kind of dicey, but it hurt worse for them to be moving free with that many incisions.

    I did find, and I wanted to share with you all, some el cheapo sports bras at Walmart that worked perfectly for me, even all through radiation. They are Fruit of the Loom stretchy T-shirt type material, they have 8 eye-hooks up the front, a racer back, and the fabric under the armit comes up high enough to cover the axillary node incision without resting on it. They are 2 on a hanger for $9.97. The best trick is to wear them inside out - with the hooks and seams away from your skin, and all the smooth side next to you. I'm still wearing them and will probably continue, but for that price, it's no big loss if they get cream or mark-up ink on them.

    I took my radiation treatments on my lunch hour at work, and I would get the chill in the afternoon, too. I kept a sweater handy. I did follow the advice of my plastic surgeon on the skin care thing. He said whatever they tell you to do at radiology as far as applying cream, double it. I started out with Aquaphor for the first ten days. I used it even though I wasn't even pink yet. I started with the very first treatment. After 2 weeks I started to get pink so they switched me to Radiaguard, and I added hydrocortisone10 to the regimen. Radiaguard morning, noon, evening and bedtime, hydrocortisone cream twice per day (morning and bedtime) I put the radiaguard right over it. I had a tiny bit of itchyness, but no skin soreness whatsoever. By the time my rads were done, my pink had turned into a Cancun tan, and the only bright pink I have now is the 3" circle where they did the last 5 as boosters. I did not scrub myself. I never blistered, and the really tan places are just starting to peel away painlessly.

    As far as deodorant goes, I used an old trick from my warehouse working days - when no deodorant/antiperspirant seemed to do the job. Alcohol swabs. They come foil wrapped so they are very transportable. Odor comes from bacteria, so if you kill the bacteria, no odor. I just swabbed my armpits a couple of times per day and it worked for me.

    I hope some of these tips help as you go along. Blessings to all.

  • katehudson25
    katehudson25 Member Posts: 2,467
    edited October 2011

    Janis, post rads you will not see improvements every day. My RO told me it will get worse before it gets better. I was hoping somebody post rads would tell me how long it took to fade.

  • justmejanis
    justmejanis Member Posts: 1,847
    edited October 2011

    bev...welcome aboard!  So glad you have finsihed and are on the mend.  You have lots of good advice to share.  I think I got those exact same bras at Wal-Mart when I had my surgery.  They were great.  Now with my burns braless is best! 

    Kate...my tech told me Friday that my boosts are still hitting my underarm.  She also said that it will get worse before it gets better.  I have no information obviously on how long it takes to fade.  Wish I could be more helpful!

  • MostlySew
    MostlySew Member Posts: 1,418
    edited October 2011

    Hi everyone,



    I've got a strange SE to ask about. Two of the gals getting radiation at my clinic noticed that they're loosing their eyelashes. One had Chemo and she noticed that the middle of her eyelashes on her non-radiation side are now half as long. She's just about done with her regular treatments. This started only recently and didn't happen during her chemo. The other gal didn't have chemo and she's noticed that the eyelashes on her radiated side are disappearing. Anyone heard of this? They asked the RO Friday but she hadn't heard of it before.



    Bev116, great tips. Thanks. And congrats on finishing.....hip hip hurrah!



    Janis... You are so close just 3 days. Oooh I can feel the celebration coming on. What happened with your thyroid biopsy? Overactive thyroid could explain your energy level which might. Ot be such a bad thing. You better continue checking in with us even after you graduate or we'll miss you



    Llm, what a scary thing. I'm glad they listened to you. Odd though. That's what made me remember the girls who were loosing their eyelashes.



    Tamcathtech. You've really had a time of it. Glad you've joined us. Your pink hair is perfect. I'll have to give that some thought.



    Rest up tonight everyone

  • katehudson25
    katehudson25 Member Posts: 2,467
    edited October 2011

    Hi mostlysew. I have had problems with hair shedding in the past. I had no problems with hair shedding or eyelash shedding with radiation. Are these gals at your radiation taking hormonal therapy? Arimidex and Tamoxifen etc. have side effects which include hair shedding.

  • ginger_mea
    ginger_mea Member Posts: 264
    edited October 2011
    I do not want to hear about loosing eyelashes or hair Frown I'm finally seeing some specks on my eyelids and have some hair, white, but still hair....
  • bev1116
    bev1116 Member Posts: 7
    edited October 2011

    Thanks for the welcome! MostlySew & ginger_mea, I didn't have any hair shedding from radiation. I think katehudson25 may be on to something with the adjuvant drugs. I find it odd how some women are instructed to start them before or during radiation, and some are not. I was told to wait for a couple of weeks after radiation to start the Arimidex...which I've decided I'm not going to take, (but that's in a different thread).

    katehudson25, I know I'm fairly fresh out of rads, but as far as "my" timeline is going, they stopped radiating my whole breast on September 22nd, and that area has now turned into a suntan. The circle where the last 5 boosters were given is the only thing still reddish in color, but then it's only been 3 days since the last treatment. I'm thinking it will turn brown/tan in 10 days as well. Nobody has told me anything for sure, but I just assumed the color would return to normal about the same time it takes to lose a summer tan. (???)

  • MostlySew
    MostlySew Member Posts: 1,418
    edited October 2011

    Kate, good thought, I'll ask. They have the same RO I have though and he took me off arimidex for the duration of radiation.



    Ginger....I don't blame you, but it seems head hair isn't involved fortunately. It would be a cruel joke to have the hair come back just to leave again! I think this is a very strange reaction theyre having. I know the techs told me that my radiation would remove the hair from my underarms, which it has, at least on half my underarm anyway, lol.

  • katehudson25
    katehudson25 Member Posts: 2,467
    edited October 2011

    Hi Bev1116, thank you for letting me know. Also, I am very interested about your decision not to do Arimidex. I have been so troubled about the decision to do Tamoxifen. As mentioned before I don't ever even take a pain med because I despise side effects. I would rather feel the pain than have the side effects from the pill. My MO said it would only be a 2.5% reduction in my chances of getting a different breast cancer.  He said my chance of getting a different breast cancer is 8.9%, and if I do Tamoxifen it would drop to a 6.4% chance. My Mo said the chances of the sme breast cancer recurring for me is only 1%. Which thread do you use to discuss this? Janis, ifradiation therapy threads needed a patient as a moderator, it would be a good job for you.

  • neecee
    neecee Member Posts: 663
    edited October 2011

    MostlySew - I am losing my eyelashes and eyebrows, but am highly certain it is from my chemo, not rads.  Some of my chemo buddies are losing their eyelashes and brows right now, too.

    Bev - welcome!

  • justmejanis
    justmejanis Member Posts: 1,847
    edited October 2011

    Is there an October 2011 Rads thread going?  Just curious.  I will be finished Wednesday!  Cannot wait.  Three more boosts and then I am finished with this phase of treatment.  I see my MO on the 13th and assume then I will start Arimidex. 

    Cheering you all on!  I hope everyone is doing well.

  • MostlySew
    MostlySew Member Posts: 1,418
    edited October 2011

    Hi Janis,

    You go girl! The magic 3 left, perhaps only 2 by now! Yippee!



    I'm having a second bout of this pleurisy thing...ugh! Have called to make Dr appt as the RO can't treat this. I sure hope I don't have to do the full battery of tests you had to do. Just some pain meds would be good.......am I self treating? Nah!



    #13 for me today after 3 days off due to broken machine last Friday.

  • Elizabeth1889
    Elizabeth1889 Member Posts: 1,036
    edited October 2011

    My eyebrows and eyelashes started falling out during the fourth week of rads.  For me, I am sure it was the result of chemo since my fourth week of rads was also my eighth week since my last chemo treatment.  The good news was that they grew back quickly.  I hope everyone here with that problem has quick regrowth, too.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited October 2011

    Hi everone, not so good at keeping up, i get confused - still have cheno SE and fuzzy brain. My eyelashes and eyebrows went with chemo, now on 6 of 30 rads and eyelashes that were growing have fallen out again.

    Warm wishes to you all 

  • dawmson
    dawmson Member Posts: 75
    edited October 2011
    I'm an October rads person who has been lurking here. Did anyone here start using their creams and gels and lotions before rads started? I bought aloe vera gel over the weekend and started putting it on. I also have Miaderm but haven't opened it yet. I moisturize the heck out of my breast twice a day. Not sure if it's really doing anything but maybe if my skin is really in good shape at the start it will help during the process? Any truth to that?  
  • tamcathtech
    tamcathtech Member Posts: 42
    edited October 2011

    Thanks for the welcome!

     Justmejanis, went to my RO today, he did prescribe Norco for pain, had my last full breast treatment today, however I told him my pain and burning underarm is 12/10 so he is giving me the rest of the week off and I will hopefully start my boosts next Monday, have 11 of them then I am done!!!

    Unfortunately this adds another week to my treatment, but I am learning patience with this "cancer thing" , need to take care of myself and my skin!! I took the norco this am when I got home and had a dream my boob was turning black.....uuugh!!

    Mostlysew sorry to hear about the pleurisy thing again, hope you can get some relief.

    After everyone has been talking about losing eyelashes I need to go look in the mirror, never had chemo, but will check to see if it is happening with rads???

    Justmejanis, I did see an Oct rads thread going on, wonder if I should jump over there since i am expanding longer into Oct, however will stay here if you all keep posting on here.

    Bev 116, I had one of those great hook front bras from Walmart after my surgery, however need to get a new one since my surgery breast is now about three times the size it was. I was always bigger but now keep getting "inflammation", been too sore to go see my lymphedema therapist! Trying to wait until done with rads.

     Hope everyone has a good week, it will be weird to sleep in this week since rads is on hold, been getting up and driving 30 min to my txs at 700am every morning, dont have to set the alarm!!

  • katehudson25
    katehudson25 Member Posts: 2,467
    edited October 2011

    Hi Dawnson. I moisturized my breast at least 4 times a day. I used mostly Udderly smooth body cream, and Miaderm when I went out( because it is lighter). I am post rads now, and I never had pain, blistering or peeling, although I did get red and had a rash.

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