November 2009-Starting Chemo

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited August 2011

    Good to hear from you Pam - love your hair - my curls are being more stubborn unfortunately.

    Sue

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited August 2011

    I love it too! Looking good, Ladies!

  • feistybluegecko
    feistybluegecko Member Posts: 133
    edited August 2011

    Great to hear alla the updates.  My curls have long gone (always had flat hair) but the grey has been replaced with a nice warm brown.  Thanks to a decent colourist while I was on leave!!

    Susie I am so happy to hear you are enjoying Scotland - I grew up in the Trossachs and it is one of the most beautiful places in the world I think :)  

    Big hugs to all

    Philippa

    xx

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited September 2011

    I am back...  after an earthquake, a fire in the hospital I was in (thankfully we didn't have to evacuate) and then a hurricane.  WE just got power back on last night after 5 days.  I was going crazy.  I had a 3 hr surgery on my leg that I broke and am in a cast: 

    I know those of you on FB know, but those that are not. I am hopping on one foot. I broke my leg, well more like shattered my tibia in a fall down my porch steps. (fell onto hard bluestone) I was watering the flowers at about 8:30 at night on my porch and missed a step I guess and came a tumbling down. I needed to have surgery to put a plate in and several pins. I am now in a cast for 6 weeks. (well it comes off for a few mins in 2 weeks to take stiches out from surgery). Then goes back on. I cannot bear weight on my foot for 6 weeks. And it is my driving foot. So I am stuck home. And with the upper body not good from double mast, and several lymph nodes on each side removed I am not so steady on crutches either. So this is a very trying time for me. I can do basically nothing around the house and it is killing me. I watch tv most of the day and then get myself to the porch and read a bit. At least I have the kids home for a few more days then they start school next Wednesday. I will really be doomed home alone. I am thinking it of a diet plan because I can't get up and get to food !! OH MY gotta laugh or I will cry. (which I do almost daily)

    Pam Happy Cancerversary !!!!

    Sounds like everyone is doing well.  Hoping you are all going to have a wonderful Labor Day weekend ...  it is so sad to see the summer go. 

    HUGS,

    Alicia

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited September 2011

    Alicia - bummer dude - heal fast.

    We are in Edinburgh and leave for Loch Ness tomorrow. We are done with the awful bus trip thank goodness. I love Edinburgh - I can hear a piper outside - it wafts up from a lower street. Our hotel is right in the best spot just down from the castle - I did good on this one!!

    Sue

  • doronet
    doronet Member Posts: 342
    edited September 2011

    OMGosh!!!  Alicia!  Boy, when you do it up, you do it good!  What horrible luck!  I hope everything heals properly and very quickly!

     I totally forgot that you are on the island.  Remind me of where?  My DH's family in Aquebogue, Jamesport, and Mattituck (all past Riverhead) made it through fine except for losing power, and then only for a couple of days, not 5.

     Good to hear from you, Phillipa and Pam.  I'm trying not to dwell on the bad "anniversary," the one of being diagnosed, but I guess it will take me a few years to get past that awful time.

    Keep those travel updates coming, Sue!  I love to read them! 

    School starts here on Tuesday and I've already been called for my first substitute job.  Kids will only have been in school 8 days when I go in, but it's with kindergarteners and that means there's an aide in the room.  I do look forward to working with kids after the summer.  Is hard to realize I have a senior in high school again!  Ya just can't blink!

    Happy Saturday and Labor Day weekend to everyone!! 

  • doronet
    doronet Member Posts: 342
    edited September 2011
    HAPPY BIRTHDAY, LINDA!!!!   Laughing
  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2011

    Sue, Love hearing your travel reports...glad you are having a great time.

    Morning everyone...hope you are all having a great Labour Day.  I can't remember, do they celebrate any other place than Canada...It's back to school tomorrow. When the kids were young it meant a break for me.  But now it is just back to making lunches, bluck.

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited September 2011

    Happy Birthday Linda.

    Nettie, I am about a 1/2 hour from Riverhead.  Middle of the Island.  St. James is the town on the North Shore.

    Michele ~ yes today is Labor day here too.  Our last day of summer and it is going to rain.  My kids start school on Wednesday so I will cherish them tomorrow for sure.  I have a love hate relationship with the start of school.  My son starts 7th grade, and my daughter 12th grade a senior.  We are trying to pick out her college now and it is very stressful and I need to visit campuses and can not get around with this broken leg nor drive.  I guess a few weeks won't kill us. 

    Wishing everyone a wonderful day.  Live Life my friends ~

    xo

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited September 2011

    Alicia, Holy Shiz! (((Gentle Hugs))) coming your way. My grandmother always said when it rains, it pours.

    Thank you for the birthday wishes. I'm trying to enjoy the day because I have a fill tomorrow. PS thinks I need two more, but I've had to take a week off in between. This has been a pretty good week! Stupid things are so sore, and I've had a pain between the breast and the rib. It feels like it's gonna split in half!

    It's supposed to rain all week, but at least Katia isn't supposed to make landfall anywhere.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2011

    Alicia, my kids are the same ages.  Son is starting 12 and daughter is starting 7.  I am a bit nervous about the whole university thing.  Neither my DH or I went to university so we are newbies to the whole thing...We think our son will stay here and live at home.  There are  three good universities here in Ottawa, plus some other good post secondary schools as well.  That should keep the costs down too.  He has been working hard and saving his money.  He is not the type of kid to waste his money on stuff.  He is not sure what he wants to do after high school.  He is amazing in science and has the highest science/math grades in his school. Didn't get that science/math gene from me.

    Linda....woohoo to another birthday.  I don't know about you, but I am greatful for every one of them now...no complaining about getting older for sure.

  • doronet
    doronet Member Posts: 342
    edited September 2011

    Michele, for some reason, I didn't remember you, too, have a 12th grader.  I spent hours yesterday on collegeboard.com registering for another SAT and for the ACT for my son, after having guilted him into taking both of them.  (2nd time for the SAT.)  He doesn't know if he wants to go to college, stay home and go to a community college, or not go anywhere (though this one is not really a choice, in my book).  I told him to try hard to pull up his GPA this year, take those two tests, and then he hasn't burned any bridges behind him:  he'll at least have the option of a 4 yr. college.

    Anyway, then I spent lots of time scoping out colleges that would be a possibility financially.  That web site is awesome for comparing schools and finding out costs, rankings, population, basically everything you could possibly want to know about a college.  My head was spinning by the time I finished, but it was time well spent.  I probably have an advantage over you and Alicia since DD in already in college, but she knew exactly where she wanted to go, what she wanted to major in, and applied early to only the one college, and my DH sat down with her and helped her fill out the application.  Won't be so with DS.

    First day of school for us.  I agree with Alicia: that's it's a "love/hate" relationship. At least, I have breakfast to look forward to:  every first day of school, a bunch of us, moms, meet at IHOP to get caught up on everyone's summer, etc.  I started this 13 years ago and only missed the one year, 2 years ago, when I was diagnosed and had my 1st appt. with the breast surgeon that day.

    So, gotta go and finish getting ready.  Happy rainy Tuesday!!!  Nette  :)

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited September 2011

    Where's everybody at? Hope all is well! Miss you guys!!

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited September 2011

    Nettie ~ same here, signed my daughter up for the SAT (3rd time!!) and the ACT.  After that once her scores are back we will figure things out.  She really wants to go away so I am hoping we can make that happen.  Hope you enjoyed your back to school breakfast.

    Linda ~ Hoping you had a very nice birthday !  Birthdays sure are grand now.  I used to hate them.  Now I cherish each and every one that comes my way.

    PINKTOBER is upon us, and so many of us were starting our journeys with surgeries and chemo.  Here we ALL are 2 years later.  Thanks be to god. 

    Hope everyone is doing well.  I am hoping to be at the 1/2 way point with this darn cast.  I am so depressed.  Thankfully for my sectional couch on my front porch.  I hop out there and read for hours each day.  Rain or shine !  Hubby is going to Atlantic city for golf this weekend, thankfully my daughter drives if we need anything.  I of course would never go and leave him like this.  But that's men for you.  I had a SCARE thought I had a recurrance over the weekend.  Felt a small bb type lump about the size of a pencil tip in my newly grafted nipple area on the cancer breast.  They took me in as soon as I called yesterday and are 99.9 it is a stitch trying to come out or under the skin.  They are not worried at all and said to just keep an eye on it.  So I am doing just that not worrying about it ! 

    PINKTOBER is almost upon us.  Oye !

    :)

    Hugs

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited September 2011

    Hi Girls - We're in Swansea Wales. Paris was fantastic. We catch the train back to London on Friday and have 3 days there before heading home. I love travelling but it has been too long.

    Alicia - hope the lump is nothing. I have my checks when I get back.

    Sue 

  • Melinda41
    Melinda41 Member Posts: 672
    edited September 2011

    Hope everyone is OkieDokie. Nothing much going on here. I am trying to work more hours, both kids need braces! My lungs are acting up but I think it is just the crunchy shit left over from radiation. It is not consistent, so I don't believe it is anything bad.

    The kids and I have been taking a Taekwondo class as the Gilda's Club. It has been so much fun. I can break a board now with a punch or a kick! The Beau is fine. My 1 1/2 boobs are fine. I may get the expander put back in come November. Right now, I have the top half of a boob, but no bottom half, it is pretty freaky looking!

    So boring is good, nothing bad happening!

  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2011

    Hello Ladies, it has been a while since I last posted here.  I read every post though.  I am now heading nose first into the final stage of this race.  I have been to a seminar with one of the cosmetic surgeons.  I have an appointment with one next week as well as one in November.  I am leaning towards having a free tram recon with a lift on the other side.  I was wondering if anyone else has had this, and how did it go.  I can't remember which surgeries everyone has had...I am starting to get a little freaked out with the whole idea.  I want to have recon, but am a big scardy pants when it comes to the surgery and recovery.  It feels so good to be done with everything that I kinda want to stay on the slow track for a while.  But at the same time I want to get this done.  Any info would be awesome.

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited September 2011

    I wish I could help! I did the LD Flap, and recovery was harder than I thought. You will pull through this. Look at everything you've been through already! Good luck!!!

    I had my yearly woman's physical. They want me to consider having an oopherectomy. They don't like the thought of me being on ovary suppressants (sp?) for 10+ years. I am sick and tired of being sick and tired...LOL Oh, what's a girl to do??? This does not sound fun.

    Love to all!

  • Melinda41
    Melinda41 Member Posts: 672
    edited October 2011

    Checking in, hope everyone is well. It is Pinktober again, maybe I will be less bitter this time around. I hope

    Michelle, have you made a decision? I had the lat flap like Linda. Hope you found some good info to help you decide.

    My flap is doing well. I have a good top half of a boob, so when I look down, I see cleavage. That is nice. The bottom half is non-existent, looks like I have had a chunk taken out of me by a shark. I can get the expander put back in after November.

    Things don't suck... Big hugs!

  • micheleboots
    micheleboots Member Posts: 1,993
    edited October 2011

    Thanks girls.  I still have one more appointment to go to.  The PS I saw last week suggested either TE with implants.  I have had radiation so I was under the impression that was out...but she says no, I can.  Or option two is the Free Tram.  Which she doesn't do.  She suggested I talk to the other surgeon.  I have my appt. with him in a few weeks.  I guess I wait until then to make up my mind. 

    How is everyone doing?  Sue, where are ya....it has been two weeks.  Not like you.  I hope you are still on your trip and having a hell of a great time.

    A call out to Nette and Alicia.Kiss

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited October 2011

    Hi Girls - we've been home for a week or so. Went back to work last week but had Wed and Thurs off - Zometa infusion - had to go home early on Friday due to chest pains from the Zometa - all good now.

    The trip was great - I fell in love with the little guy and cry every time I think of him - wish we were close by so I could cuddle him all the time. He gave us big smiles and gurgles. I think he was recognising us by the time we left. Here he is - liitle cutie.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited October 2011

    Susie, wow he is such a cutie pie.  You look great.  Love your hair. 

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited October 2011

    My hair went crazy over there, the water was much softer - I kept telling the baby I was his woolly coo Nana. I got it cut as soon as we got home. I must say I absolutely loved the trip in spite of us both getting sick and my back/knee playing up. I cried a lot - just standing there in front of some of the most beautiful paintings I had only seen in books had me overcome with emotion. Every where we went, we went to any art galleries that had impressionists. Musee D'Orsay in Paris was my favourite. Didn't do the Louvre - too big and I couldn't walk very well but I took a pic of the outside. We did do the Eiffel Tower but had to stand in line for hours to get a ticket - too many tourists for my liking :)

    Here's another pic of Alexander with DH

    PS - our DD is just pregnant, but I'm cross with her for doing a test only 1 day overdue. She thought she was a few months ago but had a really heavy period a week or so late, now I'm worrying the same will happen.

    Sue

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited October 2011

    He looks absolutely yummy!!!

    Well, I've got some news. Just had my regular scans, AND I AM STILL NED!!!! Woo Hoo!

    Love you all!

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited October 2011

    Linda - that is just the best news!!!! 

    Sue

  • micheleboots
    micheleboots Member Posts: 1,993
    edited October 2011

    I love Ned...Do you get ct scans?  How often?  Here in Canada, they only give a scan it they think there is a problem.

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited October 2011

    I get CT/PET/chest x-rays/brain MRIs once a year, I get bi-annual MRIs on my abdomen to check my liver. Because my tissue expanders have metal in them, I couldn't do the MRI, so I had an abdominal ultrasound.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited October 2011
  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited October 2011

    Yes :) I practically glow in the dark! The big question come January, since I've been NED since May 2010, is whether to take me of Herceptin and see how I do with Tamoxifen only (I don't know if he'll leave me on Zometa or not). Decisions, decisions!

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited October 2011

    Linda ~ Congratulations on your NED ! woo HOO ~~~ 

    Michele ~ good luck with your PS decision.  I don't know anything about those surgeries.  I had just tissue expanders.  I will say I am always aware of my implants.  :( 

    Sue ~ glad you had such a nice trip.  What a cutie your little guy is!!  And Congrats on your DD news as well.

    I am still laid up with this cast on.  9 MORE DAYS and I go to some walker bootie and can slowly start to weight bear on that leg again after 8 weeks !!  It has been a long trying few weeks to say the least.  But the end is near.  All is good here otherwise, don't see my dr's for any tests till February except maybe a gyno appt. 

    Melinda ~ sorry about your lower boobie, your beautiful no matter what ! 

    Nettie ~ hope you are doing good.

    BRENDA where are you??

    Hugs to ALL ! 

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