April 2011 chemo

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  • artiecat
    artiecat Member Posts: 257
    edited September 2011

    Sarah, my surgery was 8/29 on the left side.  My left arm doesnt hurt, but the underarm area is for sure kind of numb - feels weird - and I do get some prickly feelings.  I have some neuropathy in my fingers and the left side is a little worse.  Did you have the axillary dissection?  I did.  Also, I feel that the left breast is a little swollen, too.  I am more worried about radiation encouraging lymphedema!

    Do talk with your docs!!!!

    BTW, I have realized that the docs are guessing about all this and not everyone agrees!  Thank heaven my three docs talk to each other!

  • scc218
    scc218 Member Posts: 163
    edited September 2011

    Profbee -- glad to hear you're not having any nausea -- keep up the good work!  Follow the advice from Windlass about the compromised immune system and try to avoid germ-infested places.  I got a little lackadaisical when I was feeling good (grocery shopping, going out to dinner) and ended up in the hospital with a bad infection.

    Carla -- thanks so much for doing the contact list -- beautiful job.

    I had Taxotere #11 on Weds with Neupogen yesterday.  Today was a rough day.  Did some errands this morning -- Walmart and grocery store.  Came home and slept for 2 hours.  Ready for bed now (at 7:20 p.m.).  Have just felt like total crap all afternoon -- fingernails VERY sore (but still intact), eyes extremely watery (so life is a big huge blur), sore throat, nose filled with bloody yuck, mild nausea, no energy, etc.

    Sending healing, loving, positive thoughts to everyone.  I'm going to bed and hope tomorrow is a better day.  Sometimes this just all really sucks.

  • KiwiMum
    KiwiMum Member Posts: 704
    edited September 2011

    Windlass - yes I've had 4 x AC and 12 x Taxol. Is this what you are getting too? Yes our stats are similar, except in your case Herceptin. Are you done with the chemo part? Thanks for the support.



    Profbee - yes they are angry horrible zits. Today the right side of my face is quite swollen, especially under my eye. I look like I've been punched. I was going to wait to see my onc on Tuesday, but maybe I'll call Monday. Maybe I need some antibiotics. Glad to hear you are coping with AC.

  • KiwiMum
    KiwiMum Member Posts: 704
    edited September 2011

    Suzy - I hope you wake up and tomorrow is a better day. Yes this sucks. Are you down to the last Taxotere next week?



    Everything you've listed, plus zits I have too. It's been a long chemo road and we will drag ourselves over the chemo finish line. I wonder how many days/weeks it takes for the SEs to disappear? Sleep well :)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011

    Kiwimum: I got 4 ACs a few months back, and I get 4 Taxoteres now (instead of the weekly Taxols). I wanted Taxol, but the TDM1 trial specified I had to get Taxotere. Taxotere has not agreed with me at all, but I am going to perservere and try #2 on Wednesday again anyway. 

    Who else did Taxotere here?

    Suzy, GeocacheLinda, Kiwimum, Artiecat - we are all in the scary IIIc club. I don't know about you gals, but I am glad we have chemo available at all. Despite all the horrors, if we can kiss cancer goodbye and kick it to the curb it will have been worth every single side effect.

  • artiecat
    artiecat Member Posts: 257
    edited September 2011

    Amen,windlass.

  • YaYa5
    YaYa5 Member Posts: 667
    edited September 2011
    windlass, i'm doing taxotere.  will have my 4th tx a week from monday.
  • scc218
    scc218 Member Posts: 163
    edited September 2011

    Thanks, KiwiMum.  Woke up feeling better this morning....so far...   So sorry about the zits.  I've been spared that so far.  I hope the SEs disappear SOOOOOON after the last chemo.  My last Taxotere is Weds. (9/28), and I'm SO looking forward to being doing with it.

    You're so right, Windlass.  If we can kiss cancer goodbye and kick it all to the curb, the SEs will have been worth it. 

  • KiwiMum
    KiwiMum Member Posts: 704
    edited September 2011

    Blah. Woke up this morning and face is swollen on the side I have the red lumps. My eye is also swollen shut. I have just come home from the doctor. It seems they weren't zits, I have shingles.



    I am totally p*ssed off. It's the never ending bad news health year. Roll on 2012 and renewed health!



    Sorry for the moan. I hope you are all well and coping.

  • KiwiMum
    KiwiMum Member Posts: 704
    edited September 2011

    My very last chemo won't go ahead tomorrow now. Very disappointed about that. Fingers crossed I can be done next week.



    How's everyone else today?

  • pawprintgirl24
    pawprintgirl24 Member Posts: 173
    edited September 2011

    heres to a better 2012!! can't wait til new year!!we all need to celebrate!! my journey started in jan so yeah every month this years and into next year will have something to do with cancer. although it is easier what part i am dealing with it is still there, a big pain in all of our sides

    i am on # 11 rads out of 32 so for me this is almost over but i already have my next mammagram appt and i am already gearing up for that in feb. trying not to worry about the future though but how can we not.... it is going to be a great monday warriors!!

  • scc218
    scc218 Member Posts: 163
    edited September 2011

    KiwiMum -- I am SO sorry about your news.  What a huge bummer.  Shingles on top of everything else.  Oh man.  And to not be able to do your last chemo.  Fingers crossed with you that you can do it next week.  I'm just so sorry for what you're going through. 

    Yes, it has been a rough 2011 for all of us.  Looking forward to 2012 and hoping it's a better year.

  • Merilee
    Merilee Member Posts: 3,047
    edited September 2011

    Just ordered a new computer so I should be back on by the week end, I miss you gals.

  • artiecat
    artiecat Member Posts: 257
    edited September 2011

    Great to hear your voice, Merilee!  We miss you too!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011

    One of the gals on the triple positive thread got shingles recently, too. Kiwimum - let me know if you want me to figure out who if you want some company/advice/etc. She said it was hell.

    Yaya - how are you handling Taxotere? Did you lose your hair from it? Did you have serious brain lapses? Anybody else besides Yaya and myself getting Taxotere?

    I'm getting it again in just two days and a bit nervous.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011

    It's been a whole week since Rangermom's posted on BCO. I hope she's okay. Maybe she's just taking a break from all us sob sisters.

    It got me thinking -- If anyone decides to drop off these boards permanently, or take an extended break, maybe we should post a short "I'm taking a break" message on here so our fellow April Chemo sisters don't worry. You've all become very dear to me (I talk to my husband about you all the time) and I will want to stay in touch even when this crisis is past.

  • scc218
    scc218 Member Posts: 163
    edited September 2011

    Miss you, too, Merilee!  Bummer you had to order a new computer, though.  But we'll look forward to you being back on here.

    Windlass -- I'm doing Taxotere, too.  It has NOT been the "cake walk" that my onco promised, but it hasn't been really terrible either.  I just generally feel like crap most of the time.  I can still function; just don't feel too great.  My hair is coming back....ever so slowly.  I have #12 of 12 this coming Weds., and I am SO looking forward to being done with it.  Then it's on to rads after a month break. 

  • profbee
    profbee Member Posts: 858
    edited September 2011

    Shingles?!  Nooooo!!!!  Oh man...I hear that's totally painful!  I'm so sorry!!!!!  Here, I thought the zits were bad enough!  Take care!

    Stay well, sisters! 

  • Sarah246
    Sarah246 Member Posts: 53
    edited September 2011

    Hi Profbee

    Thanks so much for your concern, I feel better just talking about it. I go tomorrow for my first radation appointment, I plan on talking to them a great deal about my fears of damage being done to the heart.  They have been giving me muga scans to check my heart during chemo. So far so good occording to them. I am just worried about the radation coming and if its worth it to my heart.

    Artiecat

    My surgery was Feb 1, 2011. Yes I had it. I had 4 lodes taken out and they were cancer free. Can't understand why that breast would be twice the size of the other one. The last time I said something about it back in July they said it was nothing. Just still healing. Now it's even bigger and the arm on that side is bigger than the other.

     Scc218  Glad you are feeling better.

    Kiwimum So sorry  about the shingles. That's all you need. Sending healing lights your way.

    Windlass  I agree about being glad we have chemo avalible, since they are saying there's a shortage of some of the cancer  medicine.

    Pawprintgirl24  Here's to a better 2012. Same for me this year. Oct is breast cancer month. Every month had to do with cancer. Maybe next year will be better.

    Merilee  Hurry Back.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011

    Suzy: Taxotere doesn't make you bald?

  • profbee
    profbee Member Posts: 858
    edited September 2011

    Sarah, I'm glad they're on it--you keep reminding them!  :)  Could the bigger size on that side be lymphodema?  

    Windlass, leave it to you to be so concerned for Rangermom.  You're so thoughtful.   

  • artiecat
    artiecat Member Posts: 257
    edited September 2011

    Question:  has anyone refused a treatment their docs recommended?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011

    Artie: I refused to go through with my taxotere infusion that first week. (But went on to do it the week after that, and paid for it will the horrible brain side effects.) Other than that, no ... though I would refuse like crazy if I needed to.

    Why? Are you thinking of saying no to something?

  • scc218
    scc218 Member Posts: 163
    edited September 2011

    Windlass -- My onco said that Taxotere was so mild compared to the A/C regimen that my hair would start growing back.  He was right on the hair part but not on the "so mild" part.  My hair is still quite "patchy," but it's definitely coming back.....and has slowly been doing so during the Taxotere regimen.  And, as Profbee said, you ARE so thoughtful -- to be concerned about Rangermom.  And to suggest leaving a post for those who might "take a break" for awhile, so we don't have to worry too much.

    Sarah246 -- I'm worried about the heart issue with rads, too, since my cancer was on the left side.  Of course, they have assured me "not to worry."  Easy for THEM to say......  (I'll be starting rads on 11/7)

  • profbee
    profbee Member Posts: 858
    edited September 2011

    Artie, no not me, but then I think as a stage 2er, I have it easier.  I'm sure there are women on the stage 4 boards that have.  Is there anything you want to talk about?  

  • artiecat
    artiecat Member Posts: 257
    edited September 2011

    You guys are awesome.  Yes, I do have things to talk about - not quite ready.  Thank you thank you!  A friend sent me a card today wioth this quote from Walt Whitman on the front" 

           Be who you are, and go the whole way!

     I love that!

  • profbee
    profbee Member Posts: 858
    edited September 2011

    When you're ready, we're here.  Thinking of you tonight.

    The WHOLE WAY!  I'm bringing it, Walt!

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited September 2011

    Hi everyone, i started rads yesteday.  They run a bus to the clinic, an hour away.  Just three older men and me.  One of them said to me - did you go to the Galway Races (huge event here), i said no but i've heard it's good - he replied don't know i've never been i hate horses.  Then no one spoke again for the entire journeys.

  • KiwiMum
    KiwiMum Member Posts: 704
    edited September 2011

    BernieEllen - I'm sure that's not the company you were hoping for. Fingers crossed it's not those same 3 every day. Perhaps a good book and iPod will be needed.



    Artie - I tired to tell my onc I didn't want my last chemo next week. I figured that as I was missing this week maybe I could finish on #11. Definitely not he said. When youve got lots of nodes like me he wants every drop in me.



    Me, my face is sore and more blistered and swollen today. It's just time now for it to go away. In a few days hopefully I'll have some improvement.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited September 2011

    Hi kiwimum, better today we talked about farming. LOL

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