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debbiegirlhere
debbiegirlhere Member Posts: 7

Hello, I am new here.  Go back for my fourth Chemo treatment today stage III lobular R breast cancer.  After the chemo, then a total R mastomy will be scheduleed with a skin extender inserted under the muscle,  then of course radiation,  Be so glad when this is all over, but then I wonder at times, will it ever be all over?....Its been a long journey so far, but yet so far to go.  How do you do it??

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  • cmbear
    cmbear Member Posts: 1,086
    edited September 2011

    One day at a time Debbie, one day at a time. I had similar dx and also neo adj chemo. Followed by rads and now tamoxifen. Last year was a definite blur--but this year is getting better--still have se's I never thought about over a year ago. My sister--a 3 year survivor--told me on the onset that her MO told her that she would feel like crap for about a year. And then it slowly gets  a little unfoggy. There is a lot of advice on this site search for threads that fit your DX, its not the place you would come to willingly but once here, you're welcomed with open arms!!! (((HUGS)))

  • jennyboog
    jennyboog Member Posts: 1,322
    edited September 2011

    Hey Deb, welcome to the "I don't want to be here club".  I was a year out in July and like Claire said, one day at a time.  I wish I could give you more reassurance on the will this ever be over because I've said the same thing many times and from my experience I don't think it does.  It won't ever be over but it will get better.  Its a long process that takes time to process and there are many stages of healing I've learned.  In my journey I tried to stay away from stats & Dr. Google.  I tried to stay as busy as I could so my mind didn't have time to wonder into that dark area.  I would read the +5 years topic if I felt blue and came to this site often for support.  I tried to think of others who had it worse than me and I prayed a lot.  And if I needed to cry I would allow myself 10 mins and that was it....any longer and I'd be on the couch feeling sorry for myself.  Try to stay strong and give yourself time to heal and absorb it all.  Come here often we get it and understand.  Hugs going your way sweetie and good luck finishing chemo.

  • Outfield
    Outfield Member Posts: 1,109
    edited September 2011

    Deb, I'm so sorry you're in this middle of this cruddy stuff.  Like Jennyboog, I try to stay away from stats.  I just posted on another thread about that.  Just try to live my life.  My diagnosis was a year ago in June.  I'm gradually getting back to a regular life.  I hate, hate, hate the term "new normal," but I don't know what else to call it.  I can't imagine my breast cancer experience will ever "be over."  Even if I live a long healthy lifei without recurrence, what has happened to me will be with me the whole way.  Which sounds more negative than I mean it, because I am getting back to a life, and it's a good life.  I think it would be really hard to be making a plan about how to do that in the middle of chemo - what an awful time that was for me - but physically things do get better after treatment is done.  Then you start moving foward with all the life stuff that goes on hold for a while during treatment.  I'm planning, seeking, but also trying to enjoy the moment, if that makes sense.

  • bak94
    bak94 Member Posts: 1,846
    edited September 2011

    I ditto what the other gals have said! My doc also said he was gonna make my year h*ll but he would help me get through it and said we will get through it. Of course there are the down days, waiting for scan results, not feeling good, but there have been days I have felt pretty good. Just need to focus on those!

  • debbiegirlhere
    debbiegirlhere Member Posts: 7
    edited September 2011

    Thanks for your comforting advice Claire and "Hugs".  Yes, I totally agree, this is a welcomed site to come to.  It's amazing how fast your life can change with this DX.  Thanks so much for your insight and advice.  I needed it, and appreciate it so very much. 

  • debbiegirlhere
    debbiegirlhere Member Posts: 7
    edited September 2011

    Thanks for your input Jeniffer.  It is hard, some days more than others.  I started back to work four days a week if I feel like it, and honestly I think it helps me.  Keeps my mind off me, and I feel more normal, because of that.  I have found that reading the stats do make me feel more depressed.  I am not looking forward to surgery, and the results of what I might look like afterwards, but I know I don't have any choice..  I am strong, and will get through it.  Thanks so much for your input, "tears coming in my eyes at this time".  It really means so much.  Thanks again!!      "Hugs"  

  • debbiegirlhere
    debbiegirlhere Member Posts: 7
    edited September 2011
    Thanks outfield, what you state does make sinse.  Thanks for your awesome advice.  Enjoying the life we have is what it is all about.  Basically this has opened my eyes, and am taking time to smell the roses, as they say.  Spending more time with family, instead of working so much.  Those are the inportant things of life.  "Hugs Outfield".
  • debbiegirlhere
    debbiegirlhere Member Posts: 7
    edited September 2011

    Thanks for your advice Bak94.  Hope you are doing good.  Am trying to keep my head up, during this.  Down time from Chemo is hard, but I will make it through it.  This web site shows alot of strong women.  This is awesome.  Thanks again.   "Hugs"

  • NancyD
    NancyD Member Posts: 3,562
    edited September 2011

    Three and half years out...chemo, surgery, rads and recon DONE! I'm only on an AI now, and that's just a little pill a day, very much in size like the synthroid I took for several years.



    What happens is you fall into a routine and you get your life back a little at a time. The dr appts become more spaced out to suddenly you find yourself seeing your onc every six months instead of every week. Your energy level might not pick up for a while, but one day you'll get most of it back and that walk around the block feels good. You'll find yourself going from thinking about your cancer every day to not thinking about it for several days...or a blessed week! You have "bad hair days" again because your hair is back. Life goes on and the people around you help to drag you back into it.

  • jennyboog
    jennyboog Member Posts: 1,322
    edited September 2011

    For me surgery was easy, I thought I would have been more sore than I was.  I was ready to get this "alien" cut off of me, if that makes sense.  It is a shock when you first see yourself, I remember my first shower and I saw myself without the bandages.  I got in the shower and cried my eyes out, with each step there is something else to mourn it seems.  I'm glad to hear your able to work some, I'm sure that will help out physically and mentally.

  • solange49
    solange49 Member Posts: 102
    edited September 2011

    Hi Debbie, and welcome. It's a journey and I try to take it one step at a time. I just finished my chemo on Monday. That's one step! I was so glad to get that one over with. I also see a bit of hair trying to make it's way back. :) My next step is surgery. You'll get there. Yes, it certainly does change the way you view things. it's hard to describe to someone that hasn't been in our shoes.



    Hugs,



    Diana

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited September 2011

    Hi Deb,

    So glad you found us.  Part of how I do it is THIS place!  These ladies have helped me keep my sanity when I thought I was losing it.  It's hard but over time things do get a bit easier.  I just passed my 2 year dx mark and don't constantly obsess over BC.  

    Come here, ask any and all questions.  Trust me, nothing is off limits and I can pretty much guarantee you that someone here has experienced it before.

    (((Hugs)))

    Sharon

  • Bugs
    Bugs Member Posts: 1,719
    edited September 2011

    Hi Deb...sorry you had to join our little club, but glad you found us.  How do you do it?  Exactly what these ladies have said.  

    One day at a time..and if that is too hard..one minute at a time.

     Come here often...we get it.  We get it and understand everything you are feeling.  Sometimes I would vent to my "non cancer" friends about hair loss, etc. and they would get that 'deer in the headlight' look.  

    You can do this...and we are here with you.  Life comes back a little at a time.  But that is what it takes....time. 

  • maryannecb
    maryannecb Member Posts: 1,453
    edited September 2011

     Hi DGH,

    sorry to hear of your diagnosis. I can well remeber how raw it felt.

    Do all you can to treat your cancer, stay well, keep thinking the best will happen. If it does..you will be right. If it doesn't you will have had the advantage of thinking positively with less distress.

     Use the boards to gather support, vent and support others.

    Breathe..

    Fists up!

    Mary-Anne

  • JFV
    JFV Member Posts: 795
    edited September 2011

    Hi DGH- I struggled emotionally and physically a great deal since my diagnosis.  I am not a naturally positive person.  But, things are much better.  I "recognize" the woman I see in the mirror, I work, I laugh, I exercise, I even paint bathrooms (that's this weekend's job).  Let the feelings flow and keep as busy as your body can handle.  I don't think anyone ever stops thinking about BC.  But, after awhile it is no longer the center of your universe.  Hang in there !

  • SharonMH
    SharonMH Member Posts: 353
    edited September 2011

    Hi  Deb,  I am two years out. Things really do get better. I thought that I would never get over treatment. It has now been over a year. I am NED. Yes I do think about BC, but it does not take over my life. I have found such good support with everyone on this site.  SharonH

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