Lets get the vaccine. SOON!

I'd participate in a clinical trial to prevent recurrence in a heart beat.  However, so far the research is taking a long time. There will be a vaccine trial starting in a few months at Mayo Clinic but my assumption is you have to travel to Rochester, MN to participate and it involves 6 monthly injections. Wish there was something in the Eastern states.....

I already got a VACCINE in a clinical trial at Penn Medicine in Philadelphia. Mine was for DCIS/Her2/neu+ and they are extending the trial for Er receptor positive soon as well as for invasive breast cancer. There are 35 vaccine trials RIGHT NOW for breast cancer. Visit BCTrials.org and you can see them or visit govtrials.org and it may be hard to find one if you don't know terminiology. Oncolink.org is another great source. They will actually assign a navigator person to help you and they even check back with you to see how you are doing! Yes, I absolutely believe that vaccines are the way to go. My friend Michele Salvo died last Thursday and she has been conversing with Dr. Vince Tuohy and he wrote the nicest most sincerest note, he said he actually had tears in his eyes to think of all the needless deaths from breast cancer. Dr. Brian Czerniecki (the one who made my vaccine) also has used the words needless deaths many times too. So big Pharma doesn't want to pay for the research, they will step in and want to market it when it is proven and profitable. NIH is getting funds for trials so that  is why I am involved with Pennies In Action 501c3. We directly FUND DR BRIAN CZERNIECKI. All volunteer, no expenses for us, we just take donations and the money goes right up to the trial. Check out my website www.shelleydodt.com and penniesinaction.org for more info. And any one wants to contact me in confidence sdodt@me.com. I am a breast cancer vaccine advocate 24/7 because I am so grateful I was able to get one and it WORKED!!!!

It's exciting to hear of these vaccine trials going on. It was a major breakthrough when the HPV vaccine was developed as most (not all) cervical cancers are caused by the HPV virus. I was dx at age 29 with cervical cancer (early stage) and required a hysterectomy ( kept my ovaries and no further tx was required.) Perhaps if there had been a vaccine, I never would have gotten Cerv cancer. There is still a reluctance (stigma)  in the public to get their daughters vaccinated against HPV. I wonder if the same people would be reluctant to give  a vaccine that is proven to prevent BC. My daughter is 25 and was vaccinated with HPV when it first became available. I would have gotten it for her at the earliest possible age if it was available back then. I would definitely recommend a BC vaccine as soon as it is readliy available no matter how early an age. 

Edited for sp...hope I corrected it all. 

cp418,

Did you try clinicaltrails,gov.

Keep in mind that most vaccines are for loccal advance and stage IV disease. The PANVAC vaccine I am on got approved for early stage as part of neoadjunctive/adjunctive in June. I do not know when it starts. I founf the one I am on on the clinicaltrails.gov. They have all of the FDA approved trails. Try tpying in PANVAC vaccine. Then try breast cancer vaccine. For the PANVAC you have to have cea or MUC-1 tumor markers as that what is they try to convert your cwells to kill.

Good luck.

It's nice seeing an interest in vaccines. I feel that vaccines and biologicals is the cure for the future. I think that genetic testing is the prevention. Even though there has been 2 deaths in my family from breast cancer, my genetics were negative. More research is needed in that area also.

I like what Dallas is doing. There are taking tumor cells and custom making vaccines. That would work for any type of cancer, not just breast.

 What I like about the vaccines, is that they also provide functional life. Even though the one I am on is with low dose chemo, I manage to make it to work 3-4 times a week. I still have hair and sometimes still manage to mow my own yard.

There have been some vaccine trails canceled due to lake of funding, so it is also nice to see support for that. Maybe by the time other people are advance there will be even better vaccines out there. Lobbying to congress would help. There is a group of stage IV volunteers that advocate for research in the metastatic setting. They are the ones that got congress to recognize one day in october for metastatic breast cancer http://mbcn.org/.

This is the site for clinical trails, http://www.cancer.gov/clinicaltrials/search/results?protocolsearchid=9319238. The first one listed is the one I am on. You can contact them directly with questions. Most onc work about 12-14 hours a day and just cannot keep up with everything out there. So, I also think we need to educate ourselves about what is out there for us and our daughters and sisters. One of my younger  sisters is having a biopsy this wednesday.

You might try BCTrials.org or check with Oncolink.org. I personally set Google Alerts for "cancer vaccine"" Breast Cancer Vaccine", "breast cancer vaccine trials" ect and get everything published on the web, blogs or news sent right to my email every day. Dr. Czerniecki is going to be expanding our trial, to invasive and ER+ and I know he is anxious to tackle triple negative. I will be attending the San Antonio Breast Cancer Symposium this Dec. and I heard there was going to be some presentations on vaccines and triple neg. BC. I am really excited about the progress being made in ALL cancer vaccines. There are many types, DNA, Dendritic cell, Tumor DNA. Google cancer vaccines and you will get a plethora of info. The vaccines are wonderful because they don't just attack rapidly dividing cells like chemo and rad, they actually can program your immune system to look for cells exhibiting the biomarkers anywhere in the body.  could go on for days, but for everyone suffering from this beast, there has never been a more hopeful time in history to turn cancer into a chronic disease and a good chance to be able to prevent it. 

Shelly,

Not all trials are free. John Hopkins, your insurance has to approve. The clinicaltrials.gov covers all the trials.

However, I do like the idea of having stuff e-mailed to me, but your site does not cover all of them. The gov site ones are also FDA approved.