Not sure what this means.

Options
cphealing
cphealing Member Posts: 8
edited June 2014 in DCIS (Ductal Carcinoma In Situ)

Just got results from lumpectomy today.  Good news:  Did not find additional DCIS in large tissue sample that was removed (I guess that means they got it all out in the two stereotactic biopsies that were done about a month ago?)  and then no signs of invasive cells.   I was SERIOUSLY happy until the surgeon said,  "however,  there is a large amount of both ductal and lobular atypical hyperplasia tissue in your breast and likely the other one as well".   Does that mean I am just one big mess of additional DCIS waiting to happen?   Not sure how to take this.  Didn't get much of a feel from him on this.   He just said we need to practice close survelliance but then said don't have a mammogram for a year to give your tissues a good amount of time to heal.   That doesn't sound like close survelliance,  that sounds like do what the general population is supposed to be doing.  I am confused.

· Share on FacebookShare on Twitter

Comments

  • meme31
    meme31 Member Posts: 403
    edited September 2011

    bump for more info.

    · Share on FacebookShare on Twitter
  • Beesie
    Beesie Member Posts: 12,240
    edited September 2011

    Yes, good news that there was no more DCIS and no invasion.  But I'd be confused and concerned too. 

    Here's what I know:  

    A. Having a diagnosis of breast cancer, whether DCIS or invasive, means that you are higher risk (than the average woman) to be diagnosed with BC again.

    B. The presence of ADH and ALH means that you are higher risk (than the average woman) to be diagnosed with BC.

    Here's what I don't know:

    - Are "A" and "B" additive?  Is it 1+1 =2?  Is your risk higher because you've had DCIS and still have ADH and ALH?  Or does the extra risk that you now have after the diagnosis of BC cover off / incorporate the risk from the other two conditions?   

    - Since you've had some ADH that has evolved to become DCIS, does it make it more likely that the remaining ADH and/or ALH will also evolve to become DCIS (or something worse)?  Does this increase your risk vs. the average woman with ADH or ALH?

    I assume that you had the conversation yesterday with your surgeon?  I would recommend that you talk to an oncologist.  Given what's in your pathology report, ask specifically about what he thinks your risk is to be diagnosed with BC, either DCIS or invasive.  And ask what he would recommend from a screening standpoint.  I would think that with your history, annual MRIs might be advisable.  I would not feel comfortable not being checked for a year.  So see what the oncologist says about that.

    Wish I could offer more.....    

    · Share on FacebookShare on Twitter
  • Moderators
    Moderators Member Posts: 25,912
    edited September 2011

    Cp - there may be some info here that you could find useful on the main Breastcancer.org site:


    Hope this helps!

    --The Mods

    · Share on FacebookShare on Twitter

Categories