Not sure what this means.

cphealing

Just got results from lumpectomy today.  Good news:  Did not find additional DCIS in large tissue sample that was removed (I guess that means they got it all out in the two stereotactic biopsies that were done about a month ago?)  and then no signs of invasive cells.   I was SERIOUSLY happy until the surgeon said,  "however,  there is a large amount of both ductal and lobular atypical hyperplasia tissue in your breast and likely the other one as well".   Does that mean I am just one big mess of additional DCIS waiting to happen?   Not sure how to take this.  Didn't get much of a feel from him on this.   He just said we need to practice close survelliance but then said don't have a mammogram for a year to give your tissues a good amount of time to heal.   That doesn't sound like close survelliance,  that sounds like do what the general population is supposed to be doing.  I am confused.

meme31

bump for more info.

Beesie

Yes, good news that there was no more DCIS and no invasion.  But I'd be confused and concerned too. 

Here's what I know:  

A. Having a diagnosis of breast cancer, whether DCIS or invasive, means that you are higher risk (than the average woman) to be diagnosed with BC again.

B. The presence of ADH and ALH means that you are higher risk (than the average woman) to be diagnosed with BC.

Here's what I don't know:

- Are "A" and "B" additive?  Is it 1+1 =2?  Is your risk higher because you've had DCIS and still have ADH and ALH?  Or does the extra risk that you now have after the diagnosis of BC cover off / incorporate the risk from the other two conditions?   

- Since you've had some ADH that has evolved to become DCIS, does it make it more likely that the remaining ADH and/or ALH will also evolve to become DCIS (or something worse)?  Does this increase your risk vs. the average woman with ADH or ALH?

I assume that you had the conversation yesterday with your surgeon?  I would recommend that you talk to an oncologist.  Given what's in your pathology report, ask specifically about what he thinks your risk is to be diagnosed with BC, either DCIS or invasive.  And ask what he would recommend from a screening standpoint.  I would think that with your history, annual MRIs might be advisable.  I would not feel comfortable not being checked for a year.  So see what the oncologist says about that.

Wish I could offer more.....    

Moderators

Cp - there may be some info here that you could find useful on the main Breastcancer.org site:

• DCIS - Symptoms, Diagnosis, Treatment, Follow-up Care
• Certain Breast Changes as a Risk Factor, including ADH and ALH

Hope this helps!

--The Mods