How do you answer "did they catch it early?"
Nothing makes me feel worse than the question "Did they catch it early?". I was recently diagnosed, so I've been getting that question a lot. Got it this morning when I was dropping my kids off at school - it ruined my morning. My answer this morning was "Unfortunately, not really." But what do people really mean by that question? Are they really just asking "did they catch it early enough to treat it?" The answer to that is yes, so maybe I should just interpret it and answer it that way. I guess I'm looking more for a way to make myself feel better about this question, rather than really caring what information I impart to people. I've had a hard time being positive through this journey, so encouragement and positive thoughts would be greatly appreciated!
Comments
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Anytime someone asks a question that seems intrusive, reply with "what do you mean?"
They may realize how rude their question was by just trying to explain it to you...
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i;'m sure they don't mean to be rude and hope for the best for you... I've been asked that so many times.. i just tell them no.. but i should be around to fight cancer for a while or whatever.. sometimes the conversation continues and sometimes it doesn't
good luck
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It took me a while. Hate the "sad face" The questions are awful and catch you off guard. Someone told me to treat your stage and lymphnodes like your weight. LIE.......most people don't understand and are not educated enough like we are.
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Some people are just tactless and possibly clueless but I don't think they intend to make you feel bad or uncomfortable. I never lie, although I may with hold. I am more than happy to help educate people although I don't feel obligated to. I am a teacher by profession so firmly believe that knowledge is power! cancer is a big boogey man for many so taking the monster out of the dark is a good thing. Caryn
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For people I didn't know well or work colleagues, I smile and say, 'Umm, well I hope so'. That shuts 'em up. I mean, we really don't know do we!
If it's someone close to me, they get the facts.
if it's someone I know well but not close too (SIL's parents whom I've known since childhood and we care about each other but we are not close, e.g.), I don't say yes, but I say that I'm feeeling good and hopefully I'm done.
annie
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I have been asked this several times.
I just tell the truth. I say no, even though I have regular mammograms, it had spread to my lymph nodes by the time I was diagnosed. (They asked, didn't they? If they didn't want to know the truth, they should have kept their mouth shut). I then tell them that as far as they can tell, it hasn't spread further, yet. I guess they'll think twice before asking that again.
The question I hate most is "what is your prognosis?" I want to say "well, they doctor says I'm going to die" just to see the look on their face. ( because it's true...I will...someday) I still haven't decided how I should answer that question tactfully.
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i say, well, kinda. not in my brain, bones, liver or lungs.

most people don't understand the stages of breast cancer or the treatments. i know i certainly did not prior to diagnosis. i decided i didn't want to spend a lot of time trying to educate the general friends; but my closest friends i did. people wannt to know if you are going to be ok; hense they ask that question. i am with sherri; i hate talking about it people who really don't get it...or want to understand.
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I usually get, "what is the prognosis". I then laugh. Then I say, good but who really knows....then I say I'm just hoping to out live the dog. The dog is 12.....Yes, this makes people uncomfortable but that is half the fun. The look on their faces.....well worth it....
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I usually get "Well at least they caught it early" I think they assume since I am so young that it couldnt possibly be advanced stage. I usually just roll my eyes and say "Well?" they usually apoligies right away.
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I LOVE this thread! I must admit that I take an evil delight in pulling the rug out from under people when they ask me that by answering with a blunt "No". How cruel I am, right?! I guess that must be my anger leaking out - I feel so betrayed by the medical system that let me get to IIIC in spite of annual mammos/exams. Of course I then elaborate & tell them that I'm not stage IV and feel lucky to be here - but I think it's OK not to sugar-coat my response (a lot of their questions are just reflecting their own fears).
My husband, on the other hand, just uses the words "locally advanced"....
Julie
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I hate this question. But in the nearly 15 months since I was diagnosed, I've come to think that a lot of people blurt it out as a form of wishful thinking. They ask it because they want it to be true and for you to say yes. I've always answered truthfully, sometimes just "no." I don't have anything pat after that - it's varied depending on the person. It's gotten easier with time. I think at first it made me angry because I was so angry in general. Angry to be sick with two kids under age 4, to be diagnosed with stage III disease despite having been seing physicians and getting mammograms and all that.
What bothers me even more than the question is when organizations focus on educating about how important early detection is. Just makes me think to myself, "Well, they must think I'm screwed."
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Yup, that's a hard one. At this point in my journey I now get the people coming up and asking with such concern on their faces "are you doing OK?", or "how are things going?" aka "I see it hasn't killed you yet", I thnk most of them mean well, but I'm sure to some it's morbid curiosity. I like what mebmarj said "What do you mean?" for your new dx ?'s, then if they persist go in to LENGTHY detail. They asked didn't they,and if it freaks them out---good---perhaps it might get them screened EARLIER or keep their mouths shut if they were just being intrusive.
(((Hugs)))
SHaron
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I absolutely hate that question. I think it taps in to my rage that I had a 16 cm, slow growing tumor despite regular mammograms. I think my prognosis is probably nobodies business since i don't have a crystal ball. I hope they "got it all" I hope i die at age 90 of old age. When someone asks that question I just worry about my future. ( or lack of one)
Elizabeth
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I must have had the best wig ever. I was the invisible cancer patient and I did get a few "what is your prog" and "did it go in your nodes" questions but mostly I have to decide how to respond to all the compliments on my short curly hair. I mostly stay quiet, although, my inner thoughts are with sugarplum. I resent all the the emphasis on early detection when my mammo 6 months before dx was clear! No one bothered to tell me that mammos were essentially worthless on my dense breasts.
Now when people ask how I am doing, I usually respond with "fine... as far as I know".
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istreett I remember when I was first diagnosed, I was so shocked and annoyed at the clueless, tactless and downright stupid comments I would get from well meaning people in my life. These were some of the pitiful comments:
"Oh don't worry about the surgery. At least you'll be getting a set of "new girls"
"just keep Positive"
"well, at least you got the "good kind of cancer"
"oh don't be so negative, of course you will not lose your hair, lots of people keep their hair"
Ugh!
People can really say pretty insensitive things while you're going thru your own private devastation of the mind and heart over this diagnosis.
Barb
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I used to say yes. Now I say no, but I have lots of hope. People don't know what to say. At least some know there can be an early and late. Some don't seem to understand that some of us die of this disease.
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I guess I fall into the 'education' side of this. I'm a pretty open person and have told most of my co-workers and several other acquaintances. I've gotten the 'Did they catch it early?' question, and while I really can't say, at least I can say I had a gyn appointment the week before I found the lump and both he and I did what I'd think was a pretty decent check. So hopefully finding it a week later suggests it was about as early as possible.
I will however start considering quirky responses to the prognosis question. Keep 'em on their toes.
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"Did they catch it early?"
"Not really, it was about 2 in the afternoon. See you soon, bye!"
Try that a couple times. Or, if you're feeling particularly strong, look them dead in the eye and say "Early enough for what? What are you asking? Why?" And enjoy watching them squirm.
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Yep, they caught mine early....was 34 years old early enough, that's what I say. What good is a mammo when you've never had one before because you're too young or have no family hx of BC....what about those of us who don't fit the BC profile. Sorry had to rant a bit, I'm done now

On a lighter note, I have used BC to ward off annoying people...I took my daughter to her appt last week and there was this other mom there, you know the type that has to talk to everyone in the waiting room. Well, first she asked, "how old is she", so we chat a bit and I go back to looking at my "O" magazine, then she says,"her shoes are a little big mom, hehehe" I say, "yep, plenty of growing room" back to my mag, "is she potty trained"....blah, blah, blah, you get the picture & my short answers are clearly not working. Finally she says, "you going to have any more", I say, "nope, I'm done"..."well, you must have a boy, a daddy needs a son" I say, "well I'm done so it aint going to happen" she says "but a boy just completes a family, you should really try for one" I had had it with this chatty cathy and said, "well, since BC took my boobs, my ovaries & my sex drive I don't guess my husband will be getting a boy so he'll have to get over it, we got bigger fish to fry" and she left me alone the rest of the time there. Just thought I'd share with a group who understand. Love ya'll!
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Istrett--great question for discussion. Like everybody here, I get asked this question frequently, and despite faithful mammograms every year, I finally felt a lump myself.
Your diagnosis is very similar to mine, and I have been pretty bad about taking aromatase inhibitors (many "vacations") not doing suppplements (then all of a sudden starting twenty) being debauched in general , bad about drinking Knock You Naked Margueritas, and just generally being a slouch;yet my recovery has been without scary moments. I notice your pathology is like mine, so perhaps I can give you hope and encourangement that if I am doing fine, you should too!
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I respond with "no not really", "mamograms don't always work", "my prognosis is good", "the odds are in my favor". I elaborate if I think the person is really sincere & would like to be educated. What bothers me more is "Did you get reconstruction?" especially since I make no effort to hide the fact that I didn't. My responses to that one could be considered rude. Fortunately I don't get ask that very often.
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I generally don't get any kicks out of making others squirm or feel uncomfortable with a snappy comeback. I figure that tactless, ignorant or rude behavior is their problem but if someone asked me flat out if I'd had reconstruction ,and they weren't someone with whom I had a relationship, I would be very mad. In that case they would receive some very sharp words from the not often used but razor sharp part of my tongue! Caryn
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Asking someone questions about stage, when it was caught, prognosis, etc is sometimes an awkward way of showing concern. In other words, the person doesn't know how to ask how you are or express support and does it wrong.
But asking if someone had recon? The only possible response would be, "Why in the world would you ask such a personal question?"
Leah
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I had lumpectomy and treatment with chemo and rads back in 2004. People who found out about my BC would ask, sometimes while looking at my chest, did they remove your breast?
Ugh, yes, I know they wonder and are concerned but really?
So now I'll get to tell them, yes, both cause they tried to kill me twice!
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Annie 62: I LOVED your reply -- so good.
Clariceak & any others?? I agree no one tells us that have dense breasts that mammo's are useless. And the times when I would point out a lump that the doctor and I could "feel", she would say it was just hormones and would go away by itself. Give me an "f'" in break!! What's bad is most of us actually trust their opinions.
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Just have to speak out on this -- there's my mother in law who was an LPN for 12 years, saying how come did I lose my hair to chemo when she didn't. Uhhhhh maybe its because she had colon cancer and that is a different cocktail of chemo drugs !! Honestly whose the nurse here? Also my anger is for the friend that every time she sees me, says, "You look so good". I finally asked her sternly, "what the heck am I supposed to look like?"
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I have come to realize people have no clue what they are saying and how it makes us feel. I know deep down they are trying to maybe understand out of concern for us or fear it might happen to them. I don't get into stages since most people don't get it. I do answer honestly... I am still here so all is well.
Why do people assume you are cured once your hair grows back and you are done with chemo and all the surgeries. I love when people say "it must be great to have that breast cancer thing behind you and you can move on with your life" did I miss the memo that said it was never coming back and I am done with cancer?
Anyway this is a good thread and for the most part we need to take everything with a grain of salt. Forgive them for they have no clue how bad they sound or invasive... we all got bigger things to get mad about. But I do like the shock jock approach of the "NO".
Take care.
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jennyboog- Im right there with you. I use mine when people start to go on about how horrible their life is, when its really not. I just say, "try getting separated from your husband, him trying to take your 3 kids away from you, then getting diagnosed with stage 3 bc, going through 4 surgeries, 6 months of chemo, rads, having your boobs and female parts, and gallblader taken away, along with becoming homeless becuase you dont have enough money to find a place to live and now your car dies on you all in 1 yr. They say, well at least you can wk now. Oh yea, you have no idea the pain I am in now and on Friday I get to have more test to see if it spread anywhere. They have now idea!!!!! Sorry so negitive!
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people are either #1caring or #2 scared. i prefer to give them the benefit of the doubt and choose #1. really, most people are well meaning, they just don't know. that being said, answer however you honestly want to. truth is ok. for me, it depended on who was asking and when. a shrug, sure, good enough, not really but i'll be fine, well a clean mammo and dr. visit and then i figured it out, 6 months of trying to get dx, whatever. no right answers.
by the way, my worst ? asked was, do you have health insurance? by someone close enough for me to smack and disown! (i didn't actullay do wither but geez).
take care all,
hattie
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Oh Hattie,
I just had a flashback of almost 2 years ago today of when my General Surgeon within 5 minutes of telling me I had breast cancer asked me if I had life insurance already? WTF????!!!!!!! I don't know if I'll ever forget that, and needless to say I have NEVER been back to him. I'm sure he meant it would be difficult to get it once we are dx, but DAMN it sure sounded like, "I hope you have life insurance, cause your'e gonna die." Of for God's sakes...........
Sharon
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