August 2011 chemo, anyone w/ me?!

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  • summergirl1
    summergirl1 Member Posts: 182
    edited September 2011

    OH  believe me Taylor I never have thought in a million yrs I would have the nerve to buzz mine either,LOL  but it does makes it a lot easier to cope with it falling out in clumps especially if you have had long hair like mine you will know when the time is right,and somehow u will get the courage , Good Luck and thinking of you !!!

    Vinade45 Good luck with the head shave today and thats lovely to have your daughter with you , you will be fine. 

    Im on day 3 past 2nd TX no SE's yet and sleeping great just feeling a little loopy from the steroids , I feel like my brain is fried and cant concentrate if someone is talking to me , (anyone else feel that way on the steroids)  just went picking blackberries and apples with my hubbie and his mom and he is gonna make Blackberry and apple Crumble tonight, 

    Hope everyone is well and to those of you having a hard time with SE's big hugs to you and I hope they subside soon,  

  • vtellen
    vtellen Member Posts: 345
    edited September 2011

    Summergirl- that sounds great! I want some! So glad for you that you seem to be SE free! Are you getting the neulesta shot?

  • capinva
    capinva Member Posts: 138
    edited September 2011

    I'm on day 10 after 2nd A/C and still feel like crap. I was able to work this past week but stomach felt horrible all week and don't want to eat or drink. Then woke up today and no energy. Slept 12 hours and laid back down and slept more. I have not bounced back from this treatment yet and suppose to have another one on Thursday. I have an appointment to see the doctor first. This second treatment has hit so hard I hate to think what the 3rd tx does.



    Hope everyone has a S/E free weekend!

  • summergirl1
    summergirl1 Member Posts: 182
    edited September 2011

    VT ellen: Sending some your way haha ,  I do get the nuelasta shot and last time I had it it was around day 7 before the back pain began but it only lasted a day and was fine once I took neourophen . how are you feeling I keep losing track of where everyone is at in their TX , but hope ur well . xx

  • jbagley
    jbagley Member Posts: 102
    edited September 2011

    Hi everyone, not feeling well today. Day 5, of #4 a/c tx. Hit me a little late, shthakey and guess what, I caught my daughter's cold. Got stuffy nose and phlegm. I hope and pray it doesn't turn into anything. Drrinking tea like there is no tomorrow. Just, really, really tired. Thank god my mom is here to help. She just took the kids for a ride to town. Sorry to whine, sometimes it feels bettee to just let it go!



    The neulasta shot se kicked in last night, pain in neck, shoulders, forehead, back. Should be gone by tomorrow. Hopefully.



    Sorry all.



    Hope everyone else is feeling ok. Hugs and love from jenn

  • theatercat
    theatercat Member Posts: 58
    edited September 2011

    CELINA2011- I have a port which I guess is like a picc line. I have had my first treatment on08/26 of adriamycin and cytoxin. Cried during the infusion  emotions were building up for so long. From 7:00 pm that night which was a thursday until sunday night I was so sick with nausea, vomiting,heartburn, stomach cramps, and a pounding headache. After that each day got better had to make myself move or I could of slept 24-7. Dr. told me they will change my anti-nausea meds and cut out the aloxi and change it to kytril. You may not get side effects if you have not got them already. I would like to know what meds they gave you so you did not get sick. Count your blessings for I was litterally a zombie for 3 days. Good luck to you, this is an excellent message board.AMY

  • Grimbol
    Grimbol Member Posts: 326
    edited September 2011

    Sorry Jenn that you are not feeling good. Sorry about the cold too, I am nervous about catching anything from my kids and grandkids.  It took me a good 8 days to start to feel anything like 'normal' again after each tx.  Even now on day 11 I am still having some nausea and am tired.  I did go in for more hydration yesterday which has helped too.  I get Taxol, and the pains I get from that and the Neulasta are all in my hips and legs, and will last about 3 days. 

    You will pick up again, it gets better just before you start again!!  Whine away on here that's what we're all here for.

  • jbagley
    jbagley Member Posts: 102
    edited September 2011

    Thanks Grimbol, I took some of my pain medication and it helps a little with the neck and shoulder pain. The only time I use pain meds, after neulasta shot. Hurts so bad. Thanks everyone for listening. My se were a day late cause of the holiday, tx was a day late.



    Just really shakey, jittery like. The cold isn't too bad, my daughter went back to school last week and came down with it mon. Hers lasted only about 5 days. So I am keeping my fingers crossed that this is a simple early fall cold.



    Hugs and love

    jenn

  • edyem
    edyem Member Posts: 38
    edited September 2011

    Hi Everyone!

    I'm day 3 post  3rd AC and I'm feeling okay, actually better than usual at this point.  I hate to speak too soon because I know that this can change at anytime and I can be achy and down in the dumps at any moment.  Just some aches from the Neulasta shot is all I can really complain about at this point.  

    Theatrecat - I would definitely make sure that your ONC gives you different meds for nausea. Mine has prescribed Emend ( a 3 pack that I take one hour before treatment, and the other 2 on the 2 following days), Dexamethasone ( for days 2, 3 and 4), Granisetron (daily as needed) and Phenergen (as needed, I carry this in my purse for any breakthrough nause I might incur).  I admit that I take something at the slightest twinge of nausea, but I have not thrown up once since I started chemo.  I think Emend is a godsend. 

    Koalakid - I hear you about the prosthetics.  I live in Austin, Texas where it has been way too hot to consider wearing one.  I haven't even pursued ordering one yet.  I have a little cheap form that I found, I call it the "equalizer", that I put in my camisole when I feel like it's important to look somewhat even.  Otherwise, I go without it.  Same with the headcoverings.  I've only worn a wig twice and just found a hat that I can tolerate. Definitely looking forward to the cooler weather.

    Robyn - We're in the same boat it seems regarding our DHs.  Mine is transitioning between jobs (he was recruited around the time I was diagnosed) and works every day until he drops at night. He does still manage to go to all of my appointments and makes sure I'm taken care of, but I do miss our normal interactions.  His mother has been around to pick up any slack.  I don't feel as though I can bother him with all of my whinings, etc. while he is so busy trying to make sure that he meets deadlines and keeps track of our finances.  Luckily, I have a friend who is 4 years post BC treatment and is also a counselor.  She tells me that this is a fairly common situation with couples in any sort of "crisis" situation.  While one is in crisis, the other one holds things together.  She told me that once she was deemed "cancer free", her DH finally broke down and let his emotions show.  I hope that you will soon regain the interaction with your husband that you are missing. 

    I have one more tx of AC on 9/29 and I can't wait to get that behind me.  Three weeks later I'll start 12 weekly TX of Taxol.  I spoke with my ONC about the shortage of Taxol and he did not think that it would effect my treatment. I'm happy to hear that as the infusion nurses keep referring to it as "chemo lite".  The NP also told me that I will find it much easier than the AC.  

    There are many other posts that I read that I could respond to, but I forget as I keep reading. I'll start taking notes as I read.  

    I hope you all are having a nice weekend free of SEs!

    BTW, is there anyone else from Texas here?

    edye 

  • konandkaismom
    konandkaismom Member Posts: 11
    edited September 2011

    I had not posted on the August forum, as everyone started so early in the month. I started chemo the same day as you. I, too, am triple negative. They have chosed to do chemo first, surgery, then radiation. I started losing my hair on Friday, so that night my hairdresser came to my house and shaved my head. We shaved a San Diego Charger bolt on one side (Just for my son, he is a Raiders fan). I am not very good with the jargin of the meds I am on. My anti-nausea meds seemed to work. My chemo meds are: Taxotere, Adriamycin, and Cyclophosphamide. For nausea I gave myself a shot everyotherday- I do not have the name of that one, then Decadron every other day, and zofran as needed. I was only sick just after the port was put in just prior to chemo that day. I had a few feelings of nausea. I did have one bad bout with diarrhea for a full day that was very painful... it felt like acid coming out (TMI). I have my second go round on Sept 16th. 

    I hope round two for you is better! 

    Off to work. 

  • michelleo13
    michelleo13 Member Posts: 342
    edited September 2011

    Jenn,, I'm experiencing some of the same symptoms as you this weekend. I had AC #3 on Tuesday and thought I was over the worst of it. This weekend, I've been really shaky and feeling very tired. Hope it improves soon! I hope your cold goes away. I've been really nervous about that now that the kids are back in school.



    Taylor, glad to know there's another fellow Canadian with me. There are a few of us Southern Ontario gals here. Hope you're enjoying this beautiful Sunday afternoon.

  • Flautalee
    Flautalee Member Posts: 118
    edited September 2011

    Hello again - Sincel we have been discussing pain as a SE of Neulasta, Neupogen, Taxotere, etc, I just thought I would share something that I learned yesterday.  First, let me mention that until a couple of weeks before my guided needle biopsy in early June, I had been taking double strength Aleve for neuropathy from left heel surgery.   I was told that Aleve, like other antiinflammatories, aftects bleeding -  so no Aleve in anticipation of the biopsy, surgery and finally the port insertion.  I had my first round of T/C August 26th with a port put in that day.  Well...I woke up yesterday morning with my knees aching and then the back of my hips aching.  The port incision appears healed and this was day 16. So I called the oncologist on call.   He told me that Aleve can reduce platelets, but since I had gone in the previous day for bloodwork and my platelets were normal, I could take the double strength aleve, which did help help the aching.   He also said that I should stop the Aleve 4 days before my next treatment.   I'm really glad that I asked to go in for labwork on day 15 because I was really tired on day 14.  My labwork was fine - I think it just was that I did to too much on day 13 that made me tired - I hope that I won't need Neulasta.  Best to all of you and no SE's!

  • Flautalee
    Flautalee Member Posts: 118
    edited September 2011

    Konandkalsmom - So sorry that you are having terrible diarrhea SE.  I have found using vaseline liberally and also Preparation H suppositories helpful.  Also Walgreen's flushable wipes (most aren't flushable).  Toilet paper is too rough in times like this. When I have that much diarrhea, I take some Immodium to slow every down for a while. Best - I hope you are feeling better.

  • konandkaismom
    konandkaismom Member Posts: 11
    edited September 2011

    Thank goodness, it was only one day.... I tried all you mentioned, except the Immodium. I didn't want to cause the opposite effect. Thanks:)

  • YaYa5
    YaYa5 Member Posts: 667
    edited September 2011
    konandkaismom, i had really, really awful diarrhea for two weeks because of a strong antibiotic. one thing that helped me a lot was a water bottle filled with warm water that i squirted/sprayed before patting dry with a flushable wipes. I spent a lot of time in the shower too!  i'm glad you're better now.  
  • jbagley
    jbagley Member Posts: 102
    edited September 2011

    Flautalee--i would check with your oncologist about the suppositories. I was told before I started chemo, no suppositories, no enemas, even no tampons for menses. As a nurse we are taught if someone is on chemo, no rectal thermometers. Something about how the chemo changes skin and it is more easily torn. (Skiin tearing in the rectal vault) sorry if it is graphic.

    Anything with witch hazel, or I have tucks pads for when the burning is really bad. Another we use here in Maine is Bag Balm (the stuff they use on the cows!) I use it on me and the kids.



    Just double check with your oncologist. He or she might be ok with it.



    I am feeling a little better than yesterday, not so shakey. Still tired but fatigue isn't as bad either. Appetite better. Ate big supper, (though it has been my only meal) except garden cucmbers!



    Love u all, tx for just listening to me yesterday.

    Hugs.....

    jenn

  • IslandGirl50
    IslandGirl50 Member Posts: 50
    edited September 2011

    My oncologist said the same thing about suppositories - do not use them while on chemo. 

  • Kasi
    Kasi Member Posts: 216
    edited September 2011

    What? No tampons? No one told me that. I used them when I had my period after Round 1. I would have done it anyway even if they told me not to; I don't do pads. Yup, I am a rebel. 

    I'm so sorry for all of you going through shitty side effects right now. I am back on the upswing but that won't last long with AC #4 on Thursday. 

  • jbagley
    jbagley Member Posts: 102
    edited September 2011

    Kasi, ya, my onc told me before I started chemo, no tampons. I hate pads too but since I have started chemo, I have hardly had any menses.



    Islandgirl, we have to be careful because you can perforate your rectum with suppositories or enemas........thank you.



    I had this "wall" after supper, I was so weak and heart was racing. Fell asleep for an hour. Guess I ate too much! If felt good to sleep though, had some shivers but temp was only 99.



    Hopeeveryone does ok this week. Kasi, will bethinking of you Thursday.



    Hugs,

    jenn

  • Taylor777
    Taylor777 Member Posts: 141
    edited September 2011

    Lucky you Kasi that your going on #4 , I go Tues. for tx #2. Your half way done!!!Smile

    Hugs to everyone!!!

  • konandkaismom
    konandkaismom Member Posts: 11
    edited September 2011

    Thanks.... I thought of that after the fact.... but hopefully I'll be prepared next time.

  • Flautalee
    Flautalee Member Posts: 118
    edited September 2011

    jbagley - Thank you for your concern about the suppositories.  I do have a prescription from my oncologist (that I filled) for Compazine suppositories so I thought  Prep H would be OK.  (TMI allert):   Since I know that I have internal hemorrhoids, I have used Prep H suppositories in the past and found them helpful.  I will check with my oncologist about them as you suggest.

    konandkalsmom - I am glad that you are feeling better. 

    I will have my #2 round of T/C  on September 16.  Please keep me in your thoughts.

    Best to everyone and no SE's! 

  • vtellen
    vtellen Member Posts: 345
    edited September 2011

    I was told no suppositories because I am neutropenic, and they want to avoid any possible cuts or irritation. Sitz baths are ok, though, and helpful! I wil be just behind you, but ahead of you , flautalee! I have 3rd dose on 9/19.

  • summergirl1
    summergirl1 Member Posts: 182
    edited September 2011

    Morning all , had a rough day yesterday no major SE's just the horrible shakey drugged up feeling  which I cant stand. I would much rather the bone pain anytime , I feel so out of control when my brain is not functioning properly , speaking of bone pain does anyone else experience a lot of Jaw pain after the nuelasta shot this has happened both times for me it feels like someone is stretching my jaw with a vice grips, (strange feeling) I am hoping to get up and about today and get out for some walking today, the only problem is we are having gail force winds here not a great time to go walking with my wig on LOL. 

    well have a great day everyone,  (HUGS) to  all :) 

  • MaryjRN
    MaryjRN Member Posts: 130
    edited September 2011

    My onc prescribed Anusol HC (cortisone) supps for me with no hesitation.  He told me I could use 1 every night.  He gave me the scientific reason the hemorrhoids flare up big time during chemo.  It is because of the huge decrease in white blood cells. 

    It's amazing how all of our oncs aren't on the same page as far as treatment goes.

    I am leaving soon for AC #4.  And then in 2 weeks I start Taxol x12 weeks.  My 85 year old mother reminds me that , "this too shall pass".. She is an 18 year bc survivor herself.  And she did the same route as me; chemo, rads, tomoxifen.

    Have great days my bc surviving friends!!

  • konandkaismom
    konandkaismom Member Posts: 11
    edited September 2011

    My second round is on the same day. Thanks for your thoughts and I will keep you in mine.

  • Kasi
    Kasi Member Posts: 216
    edited September 2011

    Mary - Good luck today!!! Is this 4th one your last?

  • MaryjRN
    MaryjRN Member Posts: 130
    edited September 2011

    Kasi, yes it's my last AC; and then I go on 12 weeks of Taxol.  Then radiation/tamoxifen starts

    Will you start tamoxifen after the chemo?

  • missey29
    missey29 Member Posts: 48
    edited September 2011

    First time to post on this board. Thanks to Special K and dlb823 and others for responding to my initital post. This is where I need to be from now on.

    I've finally started losing lots of hair beginning this past Saturdary night. 

    I know it is going to be fine. Have been wearing my wig for about 2weeks now. That helped a lot. Still feels weird. Going to have the big chop this week. No turning back now.

    Hope everyone is having a minimal SE day.

    My next chemo treatment is this Thursday.  I hope and pray it goes well. My chemo is Taxotere/Cytoxan x4. One treatment every 3 weeks. Then radiation and 5 year hormone treatment.

    Until next time. Thanks for reading.

    Missey29 

  • vtellen
    vtellen Member Posts: 345
    edited September 2011

    Hi Missy29. Yes, the hair loss is bizarre and hard for all of us. I chose to cut mine short ( 3-4") and let nature take its course. It was doing ok, but 2nd T/C dose thinned it pretty heavily. Still, I like that I have a couple little wisps to poke out of my hats and scarves. I am on the same regimen as you. I will have #3 on mon. the 19th, assuming wbc are back up. Everyone seems to handle it differently, but I did find that #2 was more of a punch than #1. Fatigue and the big C were the worst for me. But, now I am in my 3rd week and feeling ok, again! Yea for that!

    Mary- congrats on last A/C! Milestone in your treatment! Your mother gives me hope, so glad that she has done so well. I have a song that I listen to a lot by a band no one else has probably heard of - Grace Potter and the Nocturals. The song is called "Falling or Flying" and "my friend this too shall pass" is the last line( or close to anyway.) It was the first song that I heard after my diagnosis. Very importants words for all of us at a time like this!!!

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