Ceullulitis Question

Options
hope1
hope1 Member Posts: 9
edited June 2014 in Lymphedema

I haven't been on the boards for a good number of years now (i am 10 years our from stage 3, triple negative idc), but knew if I ever had any questions, this would be the place to come.  And it appears i am now having an issue with cellulitis.  I have had mild lymphedema in left arm for 9 years and wear compression sleeve, no glove.  In August went on week long camping/hiking trip, and shortly thereafter my arm started to swell and hurt - if felt like it was black and blue.  Went to my lymphedema therapist who did massage twice and gave me new, stronger sleeve.  Then over Labor Day i noticed a red area on the top of my arm, about 5 inches long and 3-4 inches wide between elbow and shoulder.  And it was very warm to touch and felt bruised.  Called onc, whose on vacation, so her colleague ordered Levaquin 750 mg oral (did not feel it necessary to see me - although my lymphedema therapist had also contacted her and gave her a report as she had seen me the Tues. after Labor Day).  So I've taken the antibiotic for 4 days and it is making me nauseous, headaches, sleeplessness, bleh.  Arm still red/warm but I have no fever (never did).  I called doc yesterday and they said to continue the 10-day course and to call Monday if worse.  Has anyone else taken Levaquin for cellulitis?  I don't see that anywhere on the boards.  I read the side effects of the Levaquin and they are scary.  (i know, they all are).  Also, no-one told me not to wear my sleeve, so I have been wearing it, and I can tell the swelling has gone down considerably. 

Sorry this is so long.  Just wanted to get a few thoughts from those that have, unfortunately, gone before me.  All this reading about cellullitis is quite sobering.  Frown 

Comments

  • kira66715
    kira66715 Member Posts: 4,681
    edited September 2011

    Hope, It would be nice if the doctor would check you. It sure sounds like cellulits and the usual recommendation is no compression until the infection is clearing up.

       I think the antibiotic is a good idea, and the compression hypothetically would have been omitted the first few days, but you can cautiously try it now.

       I used to take Levaquin a lot for sinus infections and I was miserable when I took it: insomnia was horrible. But, it's a very powerful drug for infections. 

        Sounds like you need it, and I used to find the side effects got better, but you really should be checked by a doctor and your therapist.

        Sure sounds like cellulitis and you want to treat it aggressively as it can become very bad very quickly and the infection can damage lymphatics.

        Drink a lot of fluids, elevate the arm, and do the deep breathing, and let us know how you're doing.

    Kira

  • Katiejane
    Katiejane Member Posts: 789
    edited September 2011

      Hope,  I am still treating my 1st case of cellulitis which started on Sunday of Labor Day weekend.I woke that morning with a low grade fever and general aches. There was no redness anywhere on my arm. By 2 pm my arm(under compression sleeve) began to ache like like a bad bruise. When I removed the sleeve it was a bright reddish pink with spots that pretty much covered my entire arm. So I headed to the ER and they stared me on IV Ancef. I was allowed to go home but had a saline lock so that I could administer my own IV meds every 8 hours for 5 days. When the IV meds were done, I started on oral Keflex for another 5 days.

    You definitely need to be checked by a doctor and see your Le therapist. Do not treat this lightly as it can spread very quickly.  Hugs!  Katiejane

  • LindaLou53
    LindaLou53 Member Posts: 929
    edited September 2011

    Hope,

    Levaquin is indeed a very powerful antibiotic with some uncomfortable side effects.  I don't believe it would be considered the drug of choice for cellulitis though.  During my one hospitaliztion for cellulitis I was given IV Ancef for 2 days and then sent home on 10 days of oral Keflex, very similar to katiejane.  I now always carry a filled prescription for 10 days of oral Keflex 500 mg QID (4x daily) just in the event that a cellulitis might start developing while out of town or not close to medical services.  My primary MD renews the prescription every year when I see him for my physical.

    I will tell you in retrospect I realized that for almost a week before I developed a red, hot spot on my LE arm I had been feeling "tired" and headachy and just "off" which was very unusual for me. I did not associate it with the cellulitis at all until after the fact. Sometimes it takes several days or weeks for a low grade infection to "brew" before it turns into more acute symptoms of redness, heat, pain, fever and chills etc.  Once it reaches that state however, it is a true medical emergency.  Having antibiotics on hand when you first start to recognize the symptoms can often shorten the length and severity of the infection.

    I was not allowed to wear my sleeve and glove while my arm was still red and hot to touch, but by 48 hours after being on antibiotics that had improved enough I could start wearing compression again.  Hope, I would continue your course of antibiotics until completed and then be sure to have a discussion with your regular onc or whichever doctor you would like to order your prophylactic antibiotics to keep on hand.  Keflex seems to be the most common choice.

    If your redness and warmth are still present on Monday,  then Levaquin may not be totally effective against whatever bacteria is causing your infection.  Definitely check in with your doctor if not improved.

    Wishing you a speedy recovery!

    Linda

  • jinky
    jinky Member Posts: 746
    edited September 2011

    Kira what does this mean please?....infection can damage lymphatics.....le hugs jinkyns

  • kira66715
    kira66715 Member Posts: 4,681
    edited September 2011

    Jinky, unfortunately, a cellulitis can cause some damage to the lymphatics, which is another reason why you want to treat it early and aggressively.

    Drugs for cellulitis vary, Levaquin is a quinolone (like Cipro)--but unllike cipro it  covers" gram positives" (bacteria, usually staph or strep)  that tend to cause cellulitis. It's kind of "big guns". Some people need to use it due to allergies. It just went generic. The thing about quinolones is that they have very high blood levels--oral is as good as IV, but they have a lot of side effects as well. 

    Personally, as I'm allergic to keflex, I keep augmentin on hand.

    Bottom line for hope1 is that IMO you don't treat cellulitis over the phone--except maybe to get started, and it needs careful monitoring.

    Jinky, I think I heard about the link between infection and lymphatic damage at the NLN conference, I'll try and find references.

    Kira

  • hope1
    hope1 Member Posts: 9
    edited September 2011

    Thank you all so much for you speedy info. My arm looks the same this morning-red and warm, although it almost looks like there are some little white spots and maybe a bit of blotchiness. It doesn't hurt anymore. I am definitely calling in the morning. I feel miserable. Headache, dizzy, terrible taste/dry mouth. Still no fever so am assuming these are side effects of levaquin. I don't know why the doc put me on this one, but will ask tomorrow. curses!

  • AnnetteS
    AnnetteS Member Posts: 180
    edited September 2011

    My PS also put me on Levaquin over the phone when I had cellulitis on the breast, but when I went in to see her the next day, she wanted me to go to the hospital.  We settled on seeing the infectious disease doctor who got me set up with an IV at home for ten days. But, I also had a bit of a fever.

  • hope1
    hope1 Member Posts: 9
    edited September 2011

    Good morning all. It's a beautiful day! However I am still battling the cellulitis. An update - finally got the PA to look at my arm after 5days of levaquin that totally kicked my butt. Put me on keflex 500mg 3 x day. Finally got referred to infectious disease doc after 10 days and no improvement. In fact there was slight enlargement of the affected area. He upped reflex to 1000mg 4 x day. Am now on second day of that. Still no fever ever that I know of. Crp is elevated to 31 (not terrible high). I suppose I should be glad the pain is gone, but doesnt this seem like it's taking a long time?

  • kira66715
    kira66715 Member Posts: 4,681
    edited September 2011

    Hope, it does seem to be taking a long time. One of the women on these boards, Cookiegal, was treated for almost a year, and there was huge debate if it was or wasn't cellulitis.

    Hopefully the higher dose of keflex will kick in soon. Give it a couple of days.

    What a royal pain for you.

    Kira

  • kira66715
    kira66715 Member Posts: 4,681
    edited October 2011

    bump for Trinity

Categories