Anyone starting chemo in June 08
Comments
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I'm trying to convince myself that hair is over rated.....My hair sucks since chemo.
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Kelly, quick question are the skin nodules on top of the skin or under the skin on your chest and back?. Hopefully they are not under the skin as that was part of what my daughter had and when I would rub her back for her it would just feel like bubble paper under the skin.
Glad to hear that you are learning to crotchet, you can always use your green square to set your coffee cup on. I am not good at crocheting and I would rather knit or better still I love to make quilts.
LeggJ I always get really uptight about my hair and then think back when I had none and I am not so discouraged.
Well girls have to go now and you 2 take good care of yourself.
Bonnie
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Just wanted to pop in and say hi to all of you. I have been missing in action for a bit. No time to talk much. I am on Navelbine now and this is a chemo week. This chemo has given me severe leg/calf pain. Don't know how it's working on my cancer yet. Kelly, I hope your hair starts coming in where you had the trt. Take care all of you! HunkyD
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Hi girls,
This is a little tip for leg cramps at night, it's been recommended to put a bar of soap in your bed....Goggle it and you'll see lots of articles, but I read it in the newspaper, by Dr. Gott, and have tried it and it works. Hope this helps HunkyD.
Nothing new here, it's been so hot, but we cool off at night, and the mornings have been foggy. Todays not bad at all, we're supposed to have a cooling trend, thank goodness. I really don't care for the heat.
Love you all!
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Glad to hear from everyone. HunkyD..hope your treatments aren't too hard on you. Kelly, is your daughter ready for school, I cant beleive that summer is almost over.
My cousin is flying in from Scotland on Saturday and can't wait to see her and her hubby. Hope we still get some good days before the weather changes. Take care.
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How are you all? Hope your all having a nice weekend. I'm just staying in the house, where it's cool. Next week, is my visit with the Onc. I don't get worked up over it anymore, they just ask all the same questions. The neuropathy in my feet has become more painful, and the Lyrica, that was said might help, doesn't, so I quit taking it. At night I can barely walk, but I'll get by. At least I can still walk Wolfie in the morning.
Take care
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I went to the Onc. yesterday and it was uneventful, which is a good thing.
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That is good Leggy. You want it that way. When I saw my onc, he didn't let me get a word in edgewise. He walked in and said, you still taking that arimidex crap and walked out. when he came back in I asked him what he meant and he changed the subject. When I asked him what happens after the 5 years. he said, you have two to go, then we will discuss it. I guess if you look fine to them, they try to get you in and out. Anyway, I am not complaining, it was just frustrating.
How are all the other girls doing... thinking about all of you. Enjoy the weekend.
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Hi everyone, my onc. appointment was just about the same really felt like he didn't want to see me which is a good thing I guess and said we will see you in 2 years. Just keep taking what you are taking. So that is the way it is I guess when things are going good, at least they believe they are. I would just like to get back to feeling normal always seems to be something bothering me - maybe it is in my head but if it is I need to stop because it hurts lol.
Not much happening around here so will talk to you guys later when there is something good to say bye for now
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One thing my Onc. said was that I'm on Tamoxifen for two more years, and I that I have my choice to see her in 4mo. or 6, and I told her 6mo....I''d rather not go in at all, unless there's a problem. Seems like every time I go to the doctors I get sick. Today I got a DMV form to fill out, signed by me Onc. for a Handicap placard. It seems really strange to think of myself that way.
gotta go, my butt hurts from setting to long in this chair.
Love ya'll
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Well, I am still on the same chemo. I haven't had any scans yet but will in a month to see if it's doing any good at all. I can barely walk. I know what you mean Leggy by feeling wierd about applying for handicap placards. I haven't done that yet. My DH doesn't want me driving with the amount of meds I am pumping into my body. I guess he is right. We have a large corp. chain store here that I wouldn't mind saddling up in one of their handicap carts and running some people over. I don't know why they don't get out of the way, ie, center of the isle. Oh well, just thankful I have such a good DH to take me places. We have been on some trips on my off week from chemo. It is nice to get out of the house. Kelly, how are you doing. You seem so strong to me! That's a good thing. Bonnie, if you feel pain, don't always just ignore it and think it is in your head. That's how I found I had moved up a stage. I wanted to ignore it but finally ended up in ER. KK, hope the arimidex is doing ok for you. I went off that when I started chemo. Well, not much more to gab about. I still think about all of you dear women. It is starting to feel like fall here. Still very pleasant temps but the days are shorter. I sleep alot after trts. There is no way I could work now. I am happy to have workmans disability retirement. Well, off to think about dinner. Sandy, thinking about you also. Hope you are doing well. Later all....HD
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I'm so glad to hear from you HD, and happy your not having to work through treatment.
I bought a 3 wheel bike to get some exercise and today was my first real outing and I made all around town, avoiding most of main street. It was fun, and it didn't hurt my feet, so I think it will work out OK. I was tempted to get an electric bike, but there expensive and it's been a long time since I rode a bike and wanted to make sure I'd like it. I could buy a lot of gas for my car with the price of an e bike. Wolfie is a wee bit scared to go on the bike so we'll take it in baby steps. I'll have to post a picture....
Later gators!
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Hi everyone! Is anyone still out there.....well there's nothing new going on here either, but I sure hope your all enjoying fall.
Later,
Leggy
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Hey leggy. glad you are doing okay.
We are thinking of moving about 40 minutes north of here. where we live is very congested, so we are hoping for that.
How are all the junies doing?? I think about you all.... lets keep in touch...
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Hello,
Our little group is getting quieter and quieter... Let's each try post something to catch everyone up. My plan to combat chemobrain with knitting has so far resulted in my learning no knitting but crocheting a very ugly thumb warmer. I am not sure what other use there could be from camo green yarn in a small tube shape!
Next exciting adventure... taking my Junior Girl Scouts camping this weekend in the snow. Thankfully in cabins!
I feel tired but okay. I switched to Iexempra and herceptin and am still sorting out the good and bad days. I think I have discovered treatment week is okay, the following week I am too tired for anything and the third week is okay again. My tumor markers are going down so I'll keep my fingers crossed.
Come on Junies... tell us what is going on in your life. Kelly
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HEY LADIES.
I started my th round last week. saw my onc today an my tumor markers one went down a few points adn the other one rose about7 points.I do ne session of avastin and taxol nest week and pet scan on 11/7. onc says she is not especially fond of the rise even though it is a small rise, she will be following this rise to see if it is tpering off or will rise again. the onc uped my amytritolyne for the neourapathy (SP) and i noticed when the tinglin is better. Tried to crochet a simple potholder the other day and I had to put it away. i think i may teach myself to type with my knuckles soon or else hold a pencil.
good luck, good times
love ya
sandy
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Hi all, I've been doing a lot of reading. I'm working on all the Lee Child, and Robert Crais books, checking them off as I go.... I love the character who are on going in the books.
Friday night, I'm meeting a former co-worker for Happy Hour at a nice restaurant in town, we go for the app's...
Love to all,
Leggy
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Here is my check in. Sounds like everyone is doing well. I am on a chemo called Navelbine. I don't like it much but don't think there is any to like. Kelly, I can only knit the most simple of things, dishclothes, afghans, etc. Knit or Pearl stitch is about all I can do. Had to laugh about your little finger puppet knitting. You could knit one for the middle finger in the winter and call it "Big Bird" for you know what finger. I know that wasn't funny but it just came out.
My husband shot his moose this year and let me say those are big animals. The meat is great and I usually hate wild game. Anyway, I was able to go with him on my off week off chemo and stay in a nice little motel. His hunt was about 5 miles from this motel. It was cozy warm and clean and I am glad I felt good enough to go. It snowed the first few days. He kept very good care of me however. My son also went.
Sandy, sounds like you have the dreaded neuropathy too. I don't know what they consider a good drop for the markers, or a bad rise, but I am due for some scans soon. Karen, hope you get through your move ok. I would hate to move at our age. Good luck on that. Sorry I can't offer to help. Bonnie, Hi! Glad to hear you were sent on your way from the onc. That's always good news. Leggy, glad you are enjoying some good reading. I don't have the attention span to read anymore. I do have the time. I spend my time when I feel good cooking or just doing something around the house. It is definately fall weather here, so we sit around our fire pit a lot and visit. Ok, time to sign out. Enjoy everyone. May your yarn stay untangled. HunkyD
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Hi everyone, it has been awhile since I have been on here to see what everyone is doing, no excuses though. I haven't been doing to much lately, since last Christmas I was running back and forth to Edmonton to see how my daughter Deb was doing. I think I told you all that she went in for a hysterectomy which turned out to be a nightmare. She has a colostomy bag for a few years now but the doctor she had screwed up the operation and just about killed her, another doctor that was called in during the operation said he could fix it all, so number 2 operation which went just as bad as the other ones. Finally my oldest daughter Karen that works in Edmonton told her to go see a specialist that she knew of - during all this time she remained in hospital. Deb asked to be transfered to Edmonton University Hos. and got the specialist she wanted. He just about had a fit and ended up having to operate 2 more times because of what the previous Drs. had done. Finally after 6 month in hospital she is home and feeling much better although she only has 5 ft. of her bowel left and so she has to keep trying to eat a lot to keep some weight on. I mean she was eating junk food like it was going out of style. She has to set her alarm every night to empty her bag every 3 hrs. which will continue the rest of her life on lots of meds and she is a nervous wreck and seeing someone once a week to help with that. She was supposed to start work at a bank as soon as she recovered from her hysterectomy and of course now she will never be able to work. She did see a lawyer about this and looks like they will be doing something about these other 2 doctors. I t is really unbelievable I felt so sorry for her and not much you can do. Her husband took a lot of time off to be with her so that hasn't helped financially.
Now I have my youngest daughter Sandy has just found out after years and years of complaining about the pain in her leg that they are going to try and fix it and if it is not possible she may have to have her leg amputated - which I sure hope does not happen, I don't think they will unless for a real good reason and the 2 drs. she has are the best.
Ok now for me, well I am doing ok except for the extreme pain in my fingers and 1 knee but I guess it could just be old age catching up or arthritis but I do know it is getting worse so we will see what happens.
Hope you all have a good weekend.
Bonnie
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Hi Ladies
So great to hear from everyone. So sorry to hear about all that your daughter went through Bonnie.
We are looking at another house tomorrow night. We live in Brampton and it is so busy. Over the years they have built a six lane highway behind our house. We have had enough and are looking to move further north. I think it would be good for all our health and sanity. Will let you know the outcome.
So glad to that we are all keeping in touch with each other.
Hugs
Karen xo
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Hi,
Bonnie, so sorry to hear about your girls, how horrible. You hear about things like that and say to yourself, well life may suck right now for you, but someone always has it worse off. Good luck on the house hunting KKing, I just can't imagine living in a big town or city, after living so long here in Calistoga. The weather has been lovely, we had some rain, but it was at night, so it wasn't bad at all, but I just took a nice little drive in the vineyards, and our fall color looks like its done already.
Friday I went to see a new neurologist, just to see if there was something else, I can do for the neuropathy, and he put me on higher dose of Lyrica, which I gradually take more pills until the pain fells better, and I think it's helping. I have been able to take fewer pain pills, during the day. So I have hope, that things will get better.
Time fore lunch so I'll check in later,
Bye
l
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I feel like a manic depressive sort. I was feeling good because my tumor markers are lower and then I read on the boards about only 1 in 5 mets patients living 5 years. Ugh Sometimes I would like to not read the boards.
Kelly
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Kelly, don't read the boards, you realize lots of changes are taking place all the time and you have to believe that you will beat the odds or perhaps it will go away completely. You take care of you.
Bonnie
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I second that, don't give up Kelly, and don't believe everything you read on the board. They don't know you, and your will to get better for your family, but most of all, your sweet self.
I had all but given up on anything new for the pain in my feet and hands, from neuropathy, but I asked my GP if she would let me see another Neurologist. Within two days, I was in his office and asked if there was anything new for my pain. He put me on Lyrica again, with a higher dose, and it's amazing, how much better I feel.
Love to all, and our Veterans as well, God Bless,
Leggy
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Kelly, you have done so great all along. Like the other junies said, I think you should keep doing what you are doing,
Bonnie, how is everything now. You have to handle so much as a mom.
Leggy, we did put an offer in on a house, now we have to sell ours. The house we want to buy is in a little town, I have never lived in a little town but it seems so serene from where I am now. Should be great.
HunkyD...thinking about you.
Sandy... how are you??
To all the Junies, I am so grateful you are all here. Hugs.. Karen
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Hi everyone, things are much the same except my youngest daughter has to now see a different specialist because their is a blood clot in the area they are trying to fix and I guess somehow he will try and drain it out. We will see how it goes.
For myself I guess I do not have much to complain about or to be happy about - oh what am I saying of course I am happy that so far cancer is fine. Meanwhile I have had 2 friends come down with cancer, one has breast cancer and the other has colon cancer. What is it with this crappy disease that it is popping out all over the place I believe their has to be a main reason somewhere and it has no age limits.
Well if anyone thinks they know the answer please let me know.
You all take good care of yourselves
Bonnie
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Bonnie
I truly believe that it is a combinatin of the air we breathe, the food we eat and a bit of genetics.
Just my opinion. Hope your daughter is better soon.
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I hate winter. I hate being cold all the time. And I really hate that my brain mets are back and I was told there are no radiation treatment options available for them.
I also hate that I am not feeling brave enough to tell my family and I have to go visit with my oncologist tomorrow to come up with a plan. It probably wouldn't make a bit of difference but why can't I learn about this while watching the ocean and walking along a warm shoreline?
Kelly
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Oh Kelly, I'm so sorry.
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Just started my new chemo tonight. A 28 day cycle of herceptin, xeloda, and temodar. Hope I keep feeling good. Cross your fingers. Kelly
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