Superaclavicular node

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many
many Member Posts: 254
edited June 2014 in Stage III Breast Cancer

My wife had a pet prior to surgery which shows superaclavicular noses at a fdg (suv) of 2.8 ,she then had mx and alnd . She completed chemo#2 out of FEC-4 + TAXOTERE 4 can this chemo clear superaclavacular nodes? Is this value of 2.8 significant pl reply

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited August 2011

    Hi Many...I didn't have superaclavicle + nodes but I did have intermammary + nodes at a suv of 2. something (can't remember exactly).   Chemo and rads did clear mine up and I hope it works for your wife as well.  The way my onc explained it to me, is that a 2.something were considered "hot spots"  (some cancerous cells got there and there is some inflammation).  Keep us informed on how you're doing.

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  • bevin
    bevin Member Posts: 1,902
    edited August 2011

    Hello, I had an SUVof 3.7 and benign. Hopefully this helps.  I woudl definately talk to the Onco though as anything over 2.0 is something they check.

    Good luck, many prayers coming your way.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

    Hi many, you mentioned 2.8 in the supraclavicular node.  That is significant enough for the onc to throw everything but the kitchen sink at the cancer.  Talk to your Onc.  When I was beginning treatment my DH always came in with me.  We had questions written down to ask our onc.  I still throw so many questions at him.  Among his answers are "it's my job to keep your cancer" away"  We do trust him.  I don''t know what I would have done without my rock of a husband to deal with all of this.  Just keep doing what you're doing and come back here for support.  We're always here for you.

    imageBarb
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  • mom2twins34
    mom2twins34 Member Posts: 185
    edited September 2011

    Hi Many,

    Not sure if this will help since I had different chemo (A & C and Taxol), but I thought I would post anyway.  I had supraclavicular nodes with an SUV of 9.  After chemo, I had radiation (x36) to the breast and neck which seems to have done the trick in combination with the chemo.  Even after the bilat. mastectomy and all the chemo, I was most scared of the radiation because I remembered how terrible it was for my grandmother (brain cancer) years ago--but it really wasn't what I was expecting, much easier--not the radiation of years past!  Not sure if this is what they will decide to do for your wife, but just wanted to let you know my experience just in case.  I know for me the supraclavicular nodes were a very scary finding, as I'm sure is true for you, by my oncologists seem pretty confident in the treatments available and don't appear to be too concerned about a recurrence in that area--so I take that as a good sign.

    Wishing you and your wife all the best--I'm sure she is grateful to have a husband who is not afraid to ask questions and who is by her side through all of this...

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  • Denise2730
    Denise2730 Member Posts: 648
    edited September 2011

    I woke up Wednesday with a swelling in my clavicle area. I had to be at my BS office with my son and she looked at it and said she didn't think it was anything (I had a BMX 8/11/11). My PS said he didn't think it was lymphdema.

    Is this something I need to worry about?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011

    chiluvr1228  I had the exact symptoms in my clavicle area for months after finishing chemo and rads. Along with the swelling and bone pain, and concerned about possible bone mets, I was told the same thing you were  by my PS and Rad Onc.  But at the time my Onco had scheduled me for scans and the clavicla area showed up and was mentioned as bone marrow edema and that it should be watched  regularly.  It's bothered me to this day that they were watching it for possible mets down the line.  When I asked my Onc about it he said Oh thats "Bull sh*t dont' worry.  I know if it was something to worry about he'd be on top of it right away he's so agressively proactive.  Info below:

    What is Bone Marrow Edema? Bone Marrow Edema, also known as Bone Marrow Edema Syndrome, or BMES, is a disorder that causes the marrow of the bones to swell up and take on fluid. This is extremely painful, as it puts pressure against the interior of the bones and is found to reduce the marrow's ability to produce new blood cells. It quite literally doesn't have the room that it needs to fulfill its function, though the initial onset of the excess fluid serves to help blood cells that were already created in circulation. Thankfully, BMES is a self-limiting disorder which fades an average of three weeks after the initial onset. Diagnosis is performed with MRI technology.

    Read more: What are the Causes of Bone Marrow Edema? | eHow.com http://www.ehow.com/how-does_5505377_causes-bone-marrow-edema.html#ixzz1XW6OzlKQ

    image

    Barb

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