Anyone with a bladder issue??

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AnacortesGirl
AnacortesGirl Member Posts: 1,758

I just don't know what to think about this one.   For the last two weeks I've had the sensation of having a blader infection.  That pressure feeling.  Not the pain on urination, though.  And today I got the results of the UA - negative for any infection.  So is it something worse?  My next visit with the onc is on Tues. and he told me last Tues that if it comes out clear that he would send me to a urologist.  Just what I need, another doc!

 Any thoughts??

Comments

  • pumela115
    pumela115 Member Posts: 231
    edited September 2011

    Hi Anacortes Girl, Funny you mention this. I have had 3 Bladder infections since i started Arimidex. I don't know if that has anything to do with it, but i've never had them before. Oh by the way i've only been taking them for three months. My regular doctor says if i get one more off to the urologist for me too. Are you on AL'S? I know what you mean by feeling pressure, when i don't have one i still feel the pressure. I also tested neg for one of them, but the doc did a culture to see if the infection was behind the bladder i think, or something like that, but that also was neg at the time.Maybe you can ask about having a culture done also.

    I'm sending you good thoughts that it will be no big deal. Pls keep me posted as maybe i can figure out what is causing my pressure too!

  • carcharm
    carcharm Member Posts: 486
    edited September 2011

    If you are 40 or older and have had kids-even if you have not- your pelvic wall muscles weaken and can fall onto your bladder. It can be fixed surgicaly by suspensions. I have had increased problems since chemo and also because I am obese. It can make a burning sensation you can see blood if the bladder tissues rub together and a whole host of other wonderful signs and symptoms. Good luck and keep us posted.

  • jennyboog
    jennyboog Member Posts: 1,322
    edited September 2011

    I've not had any infections at all but since chemo my bladder hasn't been the same.  It's hard to describe but it feels like it's having spasms or a pressure sensation that comes and goes, might not do it all week then the next week it might happen 3 times.  I've never mentioned it to the dr because I just assumed it was from all I went through.  I hope you get some answers soon even if you have to go to another dr to get them.  Let us know how it goes.

  • Leah_S
    Leah_S Member Posts: 8,458
    edited September 2011

    Anacortesgirl, google "interstitial cystitis". It will give you some info on what to ask the urologist.

    Best of luck.

    Leah

  • Outfield
    Outfield Member Posts: 1,109
    edited September 2011

    I've had a change in my bladder function since chemo (which also meant menopause), which ended nearly a year ago.   I just don't feel as strongly when I have to go anymore, until it's really, really full.  Then I have to go desperately.  It just feels totally different.

  • jancie
    jancie Member Posts: 2,631
    edited September 2011

    What Leah said.....

    I have this issue from chemo.  I had a procedure 4 weeks ago where they filled up my bladder with saline, scoped it, took pictures, etc.  Ends up I have pinpoint bleeding on my bladder wall - glomurulations is what they call it.  I was prescribed a med that I need to pick up at Target - my urologist first had me get CystoProtek from Amazon - it is a supplement type medication.

    That didn't work so I am going to start this new med that she generally does not prescribe because it is $1,075 for 3 months but luckily I have good insurance.

    The only SE I had was sex was extremely painful and I do mean like a knife sticking inside of me and so my gyno sent me to the urologist.  I had been complaining about this issue ever since I finished up with chemo.

    I would definately go see a urologist if you can.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011

    Hi Christy,  my bladder has not been the same since chemo. When I have to go I really have to go immediately.  I also felt that while I was taking Arimidex I had a lot of pain in the uretha, especially during sex.  I no longer am on Arimidex, and the uretha pain is gone, but I do feel pressure in my bladder as if it spasms when I have to go.  Maybe my bladder always did this but now that I'm postmenopausal and estrogen starved, the bladder is more sensitive as it fills up.

    image

    Barb

  • weesa
    weesa Member Posts: 707
    edited September 2011

    I wish everybody here would learn about interstitial cystitis, which is common after chemo. Especially if you have repeated bouts of something you think is a bladder infection and your urine does not culture for bacteria. This is a classic symptom of interstitial cystitis. And IC can be controlled and cured but it takes a lot of dedication. You must be careful to avoid acidic foods, and for goodness sake, don't drink cranberry juice thinking it will make you feel better.There are good medications which coat the lining of your bladder so it can heal. And Barb, interstitial cystitis can affect the urethra too. Another price we pay for chemo!  So thanks, Leah, for mentioning IC.

    There is a great over the counter supplement called Prelief available in most drug stores, that when taken with meals neutralizes your urine so it is gentler on a raw sore bladder. That is how I finally diagnosed myself--after taking repeated antibiotics for so-called bladder infections and not getting better, I tried Prelief  and avoided acidic foods like tomatoes, soft drinks and started seeing improvement after a couple of weeks. Then I went to a urologist. Don't expect to turn your bladder around quickly--they heal slowly, but they do heal.

    Most chemos are excreted thru urine. I remember getting up during an infusion of Adriamycin to pee and my bladder was already full of the stuff.  Not peeing enough during chemo and not drinking enough water just burns the crap out of the mucosa lining in your bladder, just like it does your mouth and your intestines.

  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited September 2011

    This makes me feel better. Well, kinda.  IC doesn't sound like much fun but it's better than bladder cancer.  And what I just read from Dr. Google seems to describe exactly what is going on.  Sometimes it hurts -- sometimes it doesn't.  It can last for days then be OK.

    Thanks ladies!  Now I'm OK with going off to see the urologist and rule out the nasties.  Another specialist to add to my list of docs...  Gee, how exciting, NOT!Yell

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited September 2011

    I didn't get chemo and I have IC. I take Vesicare and it is HORRIBLY expensive so I'm sure it's the one mentioned above. I don't know why such a little pill can cost so much?? I'm buying someone elses BMW and summer home!

  • mar2960
    mar2960 Member Posts: 2
    edited August 2012

    I also have interstial cystitis for 6 years now.. and breastcancer since dec 2011.

    What made my bladder painfree is low dose Naltrexone:   http://www.ic-network.com/forum/showthread.php?47685-New-incredibly-effective-treatment-for-Autoimmune-related-diseases/page4

    It can also help fight the cancer:http://www.lowdosenaltrexone.org/ldn_and_cancer.htm

  • 116
    116 Member Posts: 108
    edited December 2012

    I had the same feeling that I had an infection all the time, and was having some trouble with leakage at times after I finished treatment. I saw the urologist after about a year and they went in and looked at my bladder, I thought for sure going in the I had all the symptoms of interstitial cystitis. Turned out my bladder was just beautiful inside, probably the only part left on me that is :). The urologist said that it was most likely the hormonal changes due to aging and all the havoc that treatments created. I was slammed into menopause with chemo at age 45 and stayed that way a year, then I came back out of it like a teenager again, then went back into menopause pause for awhile and then back out again. After a while my body seemed to adjust, and as long as I can get my key in the door fast enough, and don't do any cartwheels :) I am doing much better now and that infection feeling went away for the most part. (I must of had 4 different UAs before I finally gave up being convinced that I had infections at the time). The doctor said it will continue to fluctuate with my hormone levels, and I am assuming that when I go back into menopause for real, I am 50 now, that it will come back again to some extent. The doctor said there was some meds or creams of something that could help, but I decided to wait on that. Hope that you find some relief from what ever is the problem for you too!

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