Anyone with a bladder issue??
I just don't know what to think about this one. For the last two weeks I've had the sensation of having a blader infection. That pressure feeling. Not the pain on urination, though. And today I got the results of the UA - negative for any infection. So is it something worse? My next visit with the onc is on Tues. and he told me last Tues that if it comes out clear that he would send me to a urologist. Just what I need, another doc!
Any thoughts??
Comments
-
Hi Anacortes Girl, Funny you mention this. I have had 3 Bladder infections since i started Arimidex. I don't know if that has anything to do with it, but i've never had them before. Oh by the way i've only been taking them for three months. My regular doctor says if i get one more off to the urologist for me too. Are you on AL'S? I know what you mean by feeling pressure, when i don't have one i still feel the pressure. I also tested neg for one of them, but the doc did a culture to see if the infection was behind the bladder i think, or something like that, but that also was neg at the time.Maybe you can ask about having a culture done also.
I'm sending you good thoughts that it will be no big deal. Pls keep me posted as maybe i can figure out what is causing my pressure too!
-
If you are 40 or older and have had kids-even if you have not- your pelvic wall muscles weaken and can fall onto your bladder. It can be fixed surgicaly by suspensions. I have had increased problems since chemo and also because I am obese. It can make a burning sensation you can see blood if the bladder tissues rub together and a whole host of other wonderful signs and symptoms. Good luck and keep us posted.
-
I've not had any infections at all but since chemo my bladder hasn't been the same. It's hard to describe but it feels like it's having spasms or a pressure sensation that comes and goes, might not do it all week then the next week it might happen 3 times. I've never mentioned it to the dr because I just assumed it was from all I went through. I hope you get some answers soon even if you have to go to another dr to get them. Let us know how it goes.
-
Anacortesgirl, google "interstitial cystitis". It will give you some info on what to ask the urologist.
Best of luck.
Leah
-
I've had a change in my bladder function since chemo (which also meant menopause), which ended nearly a year ago. I just don't feel as strongly when I have to go anymore, until it's really, really full. Then I have to go desperately. It just feels totally different.
-
What Leah said.....
I have this issue from chemo. I had a procedure 4 weeks ago where they filled up my bladder with saline, scoped it, took pictures, etc. Ends up I have pinpoint bleeding on my bladder wall - glomurulations is what they call it. I was prescribed a med that I need to pick up at Target - my urologist first had me get CystoProtek from Amazon - it is a supplement type medication.
That didn't work so I am going to start this new med that she generally does not prescribe because it is $1,075 for 3 months but luckily I have good insurance.
The only SE I had was sex was extremely painful and I do mean like a knife sticking inside of me and so my gyno sent me to the urologist. I had been complaining about this issue ever since I finished up with chemo.
I would definately go see a urologist if you can.
-
Hi Christy, my bladder has not been the same since chemo. When I have to go I really have to go immediately. I also felt that while I was taking Arimidex I had a lot of pain in the uretha, especially during sex. I no longer am on Arimidex, and the uretha pain is gone, but I do feel pressure in my bladder as if it spasms when I have to go. Maybe my bladder always did this but now that I'm postmenopausal and estrogen starved, the bladder is more sensitive as it fills up.
Barb
-
I wish everybody here would learn about interstitial cystitis, which is common after chemo. Especially if you have repeated bouts of something you think is a bladder infection and your urine does not culture for bacteria. This is a classic symptom of interstitial cystitis. And IC can be controlled and cured but it takes a lot of dedication. You must be careful to avoid acidic foods, and for goodness sake, don't drink cranberry juice thinking it will make you feel better.There are good medications which coat the lining of your bladder so it can heal. And Barb, interstitial cystitis can affect the urethra too. Another price we pay for chemo! So thanks, Leah, for mentioning IC.
There is a great over the counter supplement called Prelief available in most drug stores, that when taken with meals neutralizes your urine so it is gentler on a raw sore bladder. That is how I finally diagnosed myself--after taking repeated antibiotics for so-called bladder infections and not getting better, I tried Prelief and avoided acidic foods like tomatoes, soft drinks and started seeing improvement after a couple of weeks. Then I went to a urologist. Don't expect to turn your bladder around quickly--they heal slowly, but they do heal.
Most chemos are excreted thru urine. I remember getting up during an infusion of Adriamycin to pee and my bladder was already full of the stuff. Not peeing enough during chemo and not drinking enough water just burns the crap out of the mucosa lining in your bladder, just like it does your mouth and your intestines.
-
This makes me feel better. Well, kinda. IC doesn't sound like much fun but it's better than bladder cancer. And what I just read from Dr. Google seems to describe exactly what is going on. Sometimes it hurts -- sometimes it doesn't. It can last for days then be OK.
Thanks ladies! Now I'm OK with going off to see the urologist and rule out the nasties. Another specialist to add to my list of docs... Gee, how exciting, NOT!
-
I didn't get chemo and I have IC. I take Vesicare and it is HORRIBLY expensive so I'm sure it's the one mentioned above. I don't know why such a little pill can cost so much?? I'm buying someone elses BMW and summer home!
-
I also have interstial cystitis for 6 years now.. and breastcancer since dec 2011.
What made my bladder painfree is low dose Naltrexone: http://www.ic-network.com/forum/showthread.php?47685-New-incredibly-effective-treatment-for-Autoimmune-related-diseases/page4
It can also help fight the cancer:http://www.lowdosenaltrexone.org/ldn_and_cancer.htm
-
I had the same feeling that I had an infection all the time, and was having some trouble with leakage at times after I finished treatment. I saw the urologist after about a year and they went in and looked at my bladder, I thought for sure going in the I had all the symptoms of interstitial cystitis. Turned out my bladder was just beautiful inside, probably the only part left on me that is
. The urologist said that it was most likely the hormonal changes due to aging and all the havoc that treatments created. I was slammed into menopause with chemo at age 45 and stayed that way a year, then I came back out of it like a teenager again, then went back into menopause pause for awhile and then back out again. After a while my body seemed to adjust, and as long as I can get my key in the door fast enough, and don't do any cartwheels
I am doing much better now and that infection feeling went away for the most part. (I must of had 4 different UAs before I finally gave up being convinced that I had infections at the time). The doctor said it will continue to fluctuate with my hormone levels, and I am assuming that when I go back into menopause for real, I am 50 now, that it will come back again to some extent. The doctor said there was some meds or creams of something that could help, but I decided to wait on that. Hope that you find some relief from what ever is the problem for you too!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team