What did you do?

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Andrea65
Andrea65 Member Posts: 8

I got IBC in june and I try to change my life now.



I buy just organic food, I did not do it before.



I read a lot of different books from cancer survivors and follow their advise about food.



I don't drink alcohol anymore. Before ibc i had a glass of wine for dinner 2- 3 times in a week.



I had an app.with doctor C. in Pa and he changed my treatment to A+C + 5 fluo. I started from A + C with my local doctor, than changed to ACF.



I need to loose weight but I am not good with exercises but it' s my plan.



Girls, what treatment did you do when you got ibc, how long? What do you do to stay away from ibc.



Thank you.

Comments

  • leisaparis
    leisaparis Member Posts: 587
    edited August 2011

    This is just my personal views on the matter. I have but one life to live, and I'm gonna live it how I want. I eat what I want (although I have added a few more fruits & veggies to the mix). I drink what I want (have a glass of wine or wine cooler every now & again). I'm not now nor have I ever been a big exercise nut nor do I plan on becoming one. I took all my medicine like a good girl, now I'm gonna live.

    I did chemo, chemo-2, surgery, radiation, surgery, drug trial for HER2+ (currently on).

  • sflow
    sflow Member Posts: 297
    edited August 2011

    I am not an IBC but an IDC survivor.  My attitude is somewhat like yours leisaparis except  I do exercise moderately--probably not enough, but I do at least 15 minutes daily.  I will you both the best!

  • mrsnjband
    mrsnjband Member Posts: 1,409
    edited August 2011

    Inititially I did what I had to in order to get through treatment.  Then I did what ever I needed to survive the treatment. Now I'm going to do what ever I need to get past it all.  I eat & do what I like.  If changing your diet & exercise works for you: go for it!  

    I just had DIEP reconstruction after 3 years with no breast.  So far I'm doing really well but I never thought I would get to this point.  I just have another year or so to make it to my 5 years.  I am Praising God for that!

    Hang in there.

    Sending love & support. NJ 

  • ibcmets
    ibcmets Member Posts: 4,286
    edited August 2011

    I have ibc with bone mets from 6/09.  We waited a year after being stable to do mastectomy with reconstruction.  I'm on my last surgery for silicone implants.  When I was first diagnosed, I made some changes eating more organic foods at least meat & milk not injected with hormones and more fresh juices & fruits & vegetables.  I also read about vitamin D3 being good for cancer patients.  I stopped caffiene except for ice tea, but I found that decaf coffee beans are treated chemically to get the caffiene out.

    I'm not extreme either way, but try to be informed and eat a healthier diet.  I'm not a believer that complete nutrition will get rid of cancer but will definitely help fight cancer and keep you healthier.  I felt better knowing that chemo got me stable and surgery eliminated the microscopic cancer found in my breast.  I get scanned every 6 months and like to have a status check to see where I'm at and what else I can do to keep cancer at bay.  I'm also on Femara daily & monthly zometa for bone mets.

    I'm glad to have this online forum with bc.org to keep in touch with those who are on the same journey.

    Best Health & happiness to all of you.

    Terri

  • HollyinMich
    HollyinMich Member Posts: 210
    edited August 2011

    I am like most of the ladies above in that I have always tried to live a relatively healthy lifestyle before being diagnosed with IBC, but I have not gone to any extreams in changing my lifestyle after my diagnosis.  You do only have one life given to you and I plan on living my life to the fullest and enjoying it to the end.  With that, I am not putting myself in a bubble and constantly worrying that if I don't eat this or do that it will come back.  It's just not worth the headache to me.  Do what you have to do to get yourself through treatment.  Eat the foods that you want because with chemo you'll find it's hard to keep your appetite.  Foods just don't taste right, so eat what sounds good.  It's super important to keep your weight up through chemo, so now's not the time to stress over your diet.  Once you finish treatment is the time to work on loosing weight and changing dietary habits.  Also, be careful about any supplements because they can interfere with the effectiveness of the chemo.  Make sure you ask your oncologist before starting any.  That's the best bit of advice I can offer you at this point.  There are women from all walks of life with all kinds of dietary habits that get cancer so don't beat yourself up and think that eating a certain way did this to you.  Best of luck to you and lots prayers!

  • dogeyed
    dogeyed Member Posts: 884
    edited August 2011

    I'm with this same group, I live as i want to.  Only thing is, about ten years ago, I was a very active person, endless energy, two jobs, martial arts two nights a week, exercise daily including long walks 3x weekly, weekend hikes, ate pretty good, lots of water.  Then my injured back disabled me and I slowed waaay down.  I have NO IDEA how come I wound up with three cancers in one boob, two of them rather deadly.  It is such a puzzle to me.  And this is the nature of disease, it strikes people in all shapes and sizes, smokers and nonsmokers, drinkers and nondrinkers, people who are thin, fat, fit or frail.  It does not make any difference.  That's not to say it is of no benefit to improve one's health if it's lacking somehow.  Matter of fact, I think staying STRONG is THE most important thing you can do for yourself at any point in your life.  But I just think, like the others here, that to be happy, I'm going to live exactly the way I want to now, as soon as they say there is no evidene of disease in me, I'm going to be so grateful and not look back, not fear the future, for the Good Shepherd has helped me through this and I shall not disrespect his efforts my making myself miserable over a chocolate chip cookie.  GG

  • Claudia413
    Claudia413 Member Posts: 114
    edited August 2011

    If you're seeing Dr. C in Philly, get his advice. He's one of the leading experts on IBC. 

  • anonymice
    anonymice Member Posts: 532
    edited August 2011

    I was diagnosed last September and just finished up rads - had 3 months AC, 4 months Taxol and Herceptin, BMX, then 28 rads + 5 boosts - I'll take Herceptin until February.  By the time I had my mastectomy in May, they couldn't find any  cancer cells.

    During chemo, I absolutely ate far, far less healthy than before - more meat and dairy, less fruit and veggies.  My oncological dietitian said get your protein every day to help recover your body, and don't do any kind of super juicing or megavitamins because cancer cells are human cells and they need those nutrients too, and they can suck up the nutrients before your body sometimes.  

    I did do two things that are correlated with successful chemo treatment - walk for exercise, an drink a whole lot of coffee and other caffeinated beverages (same as pre-cancer).  Definitely not suggesting you pick up a coffee habit if you don't have one, but just sharing my experience, and some studies have said caffeine might help chemotherapy work better. 

    You didn't get your cancer from a few glasses of wine a week, and IMO a few glasses of wine a week won't hurt you (unless you're taking other meds that interact with it).  Many times, we IBCers are ER/PR negative - the research has shown that alcohol increases risk for women with ER/PR sensitive cancer, as far as I know (someone please correct me if I'm wrong).   

    IMO, enjoy food, drink, and life as much as you can!  Exercise is an awesome idea, as is a moderate, healthy diet with occasional sinful treats just for fun.  A healthy weight is a great goal but right now, just get through the treatment.  Be good to yourself!

    Marathon runners, children, personal trainers, bikers - we all get cancer.  I was a mountain biker and jogger with a healthy diet when diagnosed.  You can't cure or prevent it by diet alone - that's the job of your meds.  

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