What is your onc like?
I'm just wondering if anyone else is dealing with the same thing I am. I'm done with tx and doing the 3 month visits to the onc. I was told to watch for any symptoms, that we wouldn't be doing regular scans. So, why when I call the nurse and describe any symptoms (i.e. burning/numbing sensation side of neck & sore throat for three weeks) I'm told you're done with tx so it's not chemo related you need to go to your PCM and if they feel like it's beyond them they can refer you back to the us or you can go to the ER. By the way...I did go to my PCM a week ago and was told it was allergies/sinuses and I don't really feel like this is an emergency. I understand the whole concept & know they can't be at my every "whem". But does anyone else have a relationship with their onc where they can run some symptoms by them and they say yeah come on in or it's nothing. Maybe it's the "bc baby" in me....am I asking too much? Is this what everyone has to do or is this just my dr?
Comments
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Jennyboog: I know where you're coming from for sure. I've had several things I wanted checked out and have been referred to my 'family doctor' and if they felt I needed more attention, they would recommend it. I also had a sore throat for a month and still have ear pain but had a head CT and also throat scan which showed nothing suspicious. But then my PET and MRI prior to mastectomy, showed no positive nodes either, and I had four. We would all feel better I think if testing were better and more precise.
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Jenny, my onc is wonderful. I had a bad cough and went to a primary MD and he brushed off everything, said I would be fine. I eneded up with pneumonia. I called my onc AFTER I was discharged just to give an FYI and immediately she asked me if I want to come in. She ordered a CT scan to rule out a lung clot and ordered additional antibiotics for me.
She has made it clear to me that I can and should call her office anytime. Her mantra to me is just "Just call and we'll take care of it."
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I'm starting rads soon. I pretty much try to stay away from everyone because I acted like such a lunatic (and not a nice one) after being diagnosed that I'm waiting for them to forget about that part. But I think that if you're concerned you should be able to make an appt. The oncs are certainly trained to diagnose simple things and refer you if that's all they think it is. Especially in the beginning, I think they should give more reassurance and be there for you.
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My onc is very attentive (I went to my primary doc and she told me that he is very possessive about his patient's), so I feel like I could call him with any concerns. Keep in mind that sometimes office staff put up barriers (not the doc). Have you tried communicating through his nurse? I think our complaints and concerns should be taken seriously, you are not being a baby.
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My onc is older and rather traditional. He never brushes me off and calls me back during his off hours if I have a concern. When I started Arimidex, I had horrible back pains. They kept me awake at night. When I called him, he said, "we will send you for an x-ray--maybe we missed something". Turned out to be combo of arthritis and side effects of the AI, but I felt better knowing it was nothing serious.
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i asked my onc if she could be my primary doc too; she said yes. i really didn't have a primary doc prior to diagnosis and once i found myself seeing the onc every 3...6...months i figured why have a different doc. she does the blood work; orders the mammo/breast mri...and anything else i may need. if i have a problem like sore throat...or other problem; i just take myself over to walkint clinic that are in my area. you can just walk in and a doc will see you.
you are never being a baby. you had cancer. always get things checked out. you are the patient; you pay for their expertise. advocate for your self. this is YOUR life.....no one elses.
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I called my onc about a pain in my armpit area (same as bc side) that started unexpectedly...though I couldn't feel a lump. Spoke with the nurse who said my onc was out for the week ~ then she asked some questions, then said it was probably due to my fat grafting (I had one month prior) or I pulled something exercising. She said to watch it, know my body..see if anything changes and call back if it does. I guess I was expecting her to say , "OMG..come in NOW"... so I suppose I was a little relieved when she didn't. Sure enough it went away on its own.
I can't imagine how many calls they get per day like that.
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My onc is wonderful and very approachable. However, I do try to contact her only when I have a question/concern that is cancer or cancer-treatment related. I know she has a lot of patients who are in far, far worse shape than me who need her attention more than I. Mostly, we correspond through email, and she and her nurse screen email throughout the day. When I've contacted her regarding something routine like "Have you ordered my labs yet?" sometimes I hear from her nurse instead of her. That's fine. But when my port became infected and my blood work came back that I had a staph infection, she called me from home on Thanksgiving. I wish she was my primary doctor as well. I've never felt like she's brushed aside any concern I had.
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Jenny,
I think the reason the onc. want us to go see the family doc. is just simply the fact that they have so many active cancer patients. I called my onc. about bone pain, finally he did order a bone scan. Also when I had stomach probs, He referred me to a GI. I think they know the red flags such as cancer related pains. I don't think they want us to come running for every cough or sneeze, but I am sure if something is persistant longer then 3 weeks and they feel it could be bc related, they would get you in. Remmember, we see them every 3 months, so hang in there, we had aches and pains before bc, we are going to have them after right? They just take on a whole new meaning!! your doning great sweeti, that first year after finishing treatment is a bit hard, no one really tells us about this part. i think I kn ow why, we got through treatment, huge accomplishment!! It's after that the adjustment period begins. I know i am going to finish that first year post treatment in sept. Lets all just keep believing, praying and perservering!!!!!!!!!!!!!!!
Love and really long live's!!!!!!!!!!!!!!!!!!!!!
Steph
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I LOVE my oncologists!! One is very staight forward and sort of clinical and most of the time. I am good with that. She is research driven and incredibly dynamic. Sometimes I don't like that she is so straigh forward but I understand her now that I know her better. I rarely call her. She is really busy so unless I think she needs to see me I will call my primary care doc.
I also LOVE my rad. oncologist. He has gotten me through more than a few scared appointments. He ALWAYS says the right thing and spends as much time as I want with me. I think because he is a rad. onc. he has more flexibility in his schedule than me med. onc. I would be lost without him.
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Thanks everyone...maybe I'm expecting too much from her. This is my 3rd onc. since dx., we're military so I had my initial dr at dx. I did ACx4, we moved and I finished chemo with another onc. (who I loved by the way), she was military and was moved right after my BMX, so here I am on my 3rd doc who I've met only twice and I think I just don't have that personal relationship you develop over time with the one who dx's & treats you....if that makes sense. I honestly had no issues before BC and I feel like I'm falling apart since dx. I swear I don't call her for every little thing but the last 3 weeks something has been going on with my neck and I needed her this morning....this whole thing is so frustrating. Thanks again.
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