Is there a July 2011 group?

The chair was not kind to me today ;-(. Shortly before the end of my tx, started feeling really nauseous. Tried crackers and ginger ale to no avail. They gave me Ativan and that seemed to help. Just as I got over that hurdle, diarrhea reared it's ugly head. I felt defeated and just cried & cried! I was so proud of myself for not crying with my needles today....thanks to the numbing cream! Home now...still nauseous, just took Zofran....hope it kicks in soon. Sorry if I'm whining today, was just so disappointed that it didn't go just like last time :-( Praying the rest of you kicked chemo butt today and have minimal SEs

snoopy- how funny is it that you and I are so much alike! Same day infusions, same hair dilemmas, and now the same aches' and pains?  what are you the sister someone forgot to tell me about?  I'm still in denial that I'm even doing chemo, so I forget when I don't feel good that its probably the meds!  just thought it was weird that it happened yesterday, after feeling great all week.  I just worked on cleaning out my storage space all day so we will see how I feel in the am.  I've got some foot pain as well, feels like heel spurs if anyone knows what those are.  Feel better Snoopy

Rabbit Paintingmywathrough Jamie Catron sorry for you all having bad S/e Hope tommorow is a better day.5kidsmom I am so sorry about your daughter hope she is doing much better.everyone else I hope you are having a better Day,Jugs

Hi, I just finished catching up on everyones post. Thanks kk11 for responding to everyone the way that you did. I actually was not able to get chemo this week because my blood count was too low. I met with the nurse practioner because my doctor was out of town and told them about having nausea and they are going to put me on emend through iv and give me kytril to take during the week. I hope it helps. I went and had my blood rechecked today and my levels are coming back up. I will actually see the doctor when I go for chemo on Monday.  I was told that I most likely will be given neupogen shots. Guess we will see what happens with that.

My hair is also coming out horribly. I am planning on shaving my head when my best friend comes into town on Saturday if I still have any left. I am really thin around the edges and I am coming out handfuls at a time. I try not to touch it much as it falls right out.  I have wigs and scarves and I knew that it would happen but, knowing its going to happen and it actually happening are two completely different things. I am kinda on the fence with the whole being bald thing. At one point I feel like I am ready and prepared but on the other hand, I don't want to have to wear the thigs that I have.

I don't really get a metallic taste in my mouth at all. I do feel like I have kindof a film across my tongue though. Things don't taste right. I can't explain what it taste like but I don't think it metallic.

Sorry, Ive been MIA lately coming on once a week.  I am going to do a lot better. I really like and enjoy coming on here and hearing everyones stories. It is comforting to have people whom actually understand exactly what I am going through.

Well I am about to go to bed now. I hope everyone has a great weekend

Misswim - Glad you are feeling good after chemo, hope the SE are minimal

Ybroker- you poor thing I am sorry it did not go as smooth for you, sending you well wishes and hoping you feel better with minimal SEs.

Dexxy - you are my long lost sister LOL....and if i tell you that I go through the denials as well you will laugh haahahaa... Last nite i kinda scolded my DH because I act so normal he sometimes forgets and behaves as if I am well and normal(i.e slacking and letting me handle most of the stuff like before e.g cooking, cleaning, kids etc )and then when i start complaining that i feel tired, headache he's like aaahh what is it? should we go to the hos? and I am like Helloooo I am going thru chemo!! these are some of the side effects! LOL.... Men are really like kids sometimes LOL....Anyway, still feeling good apart from the legs and back aches:-( went to a yoga class last nite, very nice. The Cancer Center that i go to have a Wellness program that offers FREE yoga classes (6 weeks per session) for pple going thru chemo & rads, you can even continue with the class 6 months post chemo I like it, very relaxing!!

5KidsMom - I am sorry for whats going your daughter, you are in my prayers.Try and drink lots of fluids, it really helps. I was not really a water drinker before, but now i try and drink atleast 50 ounces a day, i mix sprite with water or i drink the flavored carbonated water, much better:-)

Rabbit, BlessOMel, Lubbesgurl - Hope you feel better soon, hang in there, Sending you positive vides.

I am just dog tired! Feeling good otherwise but exhausted! Worked from home for a few hours but just shot.

Guess I should enjoy the opportunity to nap while I have it!

ana_424 - Yes, it was I who indulges in a shot or two of Cuervo after my chemo and I think I posted to another thread about that.  I do the 'chair' on Monday, and by Weds I am down with the SE's, so I don't even think about Jose for about a week.  Well, that was after the 1st 3 chemos, now (after my 4th) it's taking about 10 days to overcome the SE's.  Mostly nausea, sore and achy all over, sleeplessness, and general, "I feel like crap" feeling.  Onco says it will get increasingly worse until I'm all finished...Great huh!  I feel the best the week before my next round.  My mouth feels better, food has more taste, etc. and even Jose C tastes better.  Hang in there...there is light at the end of the tunnel!

Amethyst...this 'gets worse' is for you too and anyone else out there wondering.  I too let everything go until that 'better' week, then I play 'catch up' and clean like a mad woman!

Good positive thoughts to all!!

well after third treatment 1 1/2 days of being queezy now the bone pains have kicked in had them after treatment 2 also have been told its from the nuelasta shot to boost white blood cell counts. so if youve got pain in your bones and your getting the shot to boost your white cell count I figure if im hurting in my bones its working! sounds like most everyone is on the same schedule and I hope that being in this forum helps everyone I dont visit all the time but its nice to know the forum is here and informative and im not the only one sorry to say that is having trouble. its comforting in a way. thankyou all for being here.

EEek. Sounds like a lot of us had lousy sessions this week! I hope the curve starts moving up going forward.

Went in for my 4/12 Taxol+herceptin and attendant premeds.  8 minutes into the Taxol and I had a realy awful allergic reaction.  Nausea (first time), palpitations (and I have A Fib), bad flushing, and excrutiating pain in my lower and mid back. I had all three nurses and the doctor all over me for a while.  Stopped the Taxol, got extra dose of Benedryl and steroid.  We've been cutting back a little on the premeds to see if we could, and I guess missing the Taxol last time and having it this time with the reduced premeds was not a good idea. 

The extra steroids, some tylenol and the benedryl stopped the reaction after about 15 minutes.  I swear the back pain reminded me of being labor -- I had back labor with both kids. Yuck!

We started the Taxol again on a very slow drip with constant monitoring -- I love the nurses there--they are good company -- and my doctor came in to check on me every 15 minutes. We gradually increased the drip, but when we go it to 150, I started to feel the beginnings of something being "not right" again, so we discontinued for now.  My doctor is contacting the allergist on Monday morning and I'll call him then and arrange to see the allergist about adjusting the premeds for me.

So the whole procedure today took about 5 hours instead of my usual 3.  

Then I went from there to pick up the new wig -- it's fun, but I think I'll have him thin it out and cut it more -- they put too much hair on those things.He did cut it some, and will do more if I want him to, but he reminded me that he didn't want to overdo the cutting first time out, since it won't grow back, Duh! LOL.

I wish all of you who had a less than great session a quick bounce back and a better week.  I can't always remember who posted what, so I know you guys will understand (4honey, I relate completely).

Be well. 

Good morning world! After a decent night of sleep (only got on ONCE! That's major!) I feel pretty good today.  Of course, Day 2 is usually a good day. So to take advantage of my morning energy,I showered and walked the dog extra long (plus for her), cleaned up the debris my midnight chefs leave in their wake in the kitchen and went to the supermarket before it gets too hot to go  (My auto A.C is still not fixed.  On my list for next week to get the estimate. Repair the week after. I'll probably have it working in time for the first frost). Breakfast, now the internet and then feet up, TV and knitting and napping for a while

Later I'm hoping to get to a movie and dinner with my friend who is amazingly without any of her kids today. So that should be a nice "girls' day out"

Tomorrow is crash day.  Good timing for my "ex" to come by and go over some paperwork we need to handle jointly. I'll make him do most of the work LOL Still married (22 years together, 9 apart -- we celebrate "un-iversaries" now. , great friends but happily separated for nine years.  It works for us, what can I say?

I hope everyone who had lousy sessions is bouncing back too!

Rabbit, I best if you picked up the top five hits for breast cancer organizations, you could just hit their contact or PR buttons and get them to donate free stuff like mad.  Let us know how you do with that.  We could try and replicate it around the country.  You can never get too much information. Well, at least not about this. LOL

 Happy Day all! 

Tina, I hope you get to take your mountain day trip. 

This BC knocked all of my ambitious summer plans off track as well.  No travel since I'm on weekly visits. No yard work since I lack the ambition and energy.  No home improvement since I could care less right now, LOL.  

But there will be books, movies, knitting and dog walks. And BBQs that my son will plan and do all the work for.

Gotta make lemonade from those lemons.  Even if they make you pucker up! 

Dexy: for the heel pain, look back about a week ago and you'll see a posting or two from me about foot pain. Mine started with feeling like heel spurs or like the callous on my heel were splitting open. I have been using Eurcerin a lot. It got a lot worse with what looked like blisters all over the bottom of both feet. I have found that when it gets bad, walking makes it worse.

I also have been getting foot and ankle swelling for the first time in my life. So every night I am sleeping with a stack of pillows to get my feet above my heart. This seems to be the best thing for the swelling and usually is down significantly by morning.

MemaSue56: Did you doctor say why not to use petroleum-based products? I have been using Vaseline and it's working very well.

I did my last AC treatment yesterday! I was so excited to get that done. Then I was asked to come to work to finish up a project which ended up taking from 1:45-10:30 at night. Then he gave me more work to take home and get done by noon. With changes and phone calls going back and forth it took me from 8am-2:30pm. I still have more to do. This is a temporary rush I believe, because I am answering to a director for about two weeks instead of the manager that I was working with who is now on vacation. It will get me plenty of overtime to stock up for when surgery comes or paying off debts to make that time easier.

The trick I am finding to fighting the tiredness is to not take anything that makes me sleepy. The jet lag that I get from Ambien just makes me feel like I need a nap or two a day! So, now I am experimenting with not taking anything for sleep now. It actually worked last night on a night after treatment with all those steroids, I slept five hours in a row. I will get a nap after I go get my Neulasta shot in a few minutes. 

Hi where is Everyone Today hope you are spending it with your families and having a S/E free Day.I am .Getting ready for

Chemo # 2 tommorow not going to fret about it untill I wake up hope Everyone is having a good Day.

msswim I was so wrong on that I was thinking that when I went int he hospital for neutropenia they said I had a count of 134 but it was not what you were talknig about. So sorry to confuse you.

Hope everyone is well. I am very tired. Got IV fluids Friday that helped but had an opening Saturday and a busy weekend. Wish I could sleep now.

good sleeps to all of you.

Jen, so very sorry that you have to go through all of this. It sucks to battle BC, worse to do alone and worse yet with a broken heart. Take care and know this forum offers great outlet and support.