Best Friend Just diagnosed w/ breast ca what can I do to help.
My bf was just diagnosed w breast ca. I'm 7mths pregnant, have 13 mth old twin girls and a two yr old son. Normally I would be the type to run to her rescue and be by her side but I feel so helpless that all I could do is talk to her on the phone. We went wig shopping yesterday & today that my husbands home I'm going to make her a folder so she can keep all her medical records. I've read a lot & probably know more about her dx than her, but I don't know if I should start talking about things that haven't started to happen yet. Yesterday before going to look for wigs I txt'd her asking her what kind of eye lashes and eyebrows she wanted. She called me crying saying she didn't know she would loose that hair also. I thought the Dr. would of explained this. I don't want this to happen again. What can I say or do that will help her cope better? And what should I keep to myself about the stuff I've read on the site. Thank U!
Comments
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Jmira, it is great that you care so much for your friend. My suggestion is to try not to bring up details if you are not sure she knows yet. I am sure it startled her about the eyebrows. I am not even sure if everyone does loose them. Be there, the book is an awesomely good thing to do for her.
There will be many appts when she may want someone to go with her, perhaps you will be able then to go. Just be there and ask "What can I do for you?" You may be surprised what she comes up with...
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Is she for sure doing chemo? She'll lose all her body hair if so but she can draw on brows. It's not like you get fake eyebrows and eyelashes - you can, I suppose but they are hard to tolerate. I couldn't even stand to wear a wig.
Your friend will need support as chemo progresses. She'll get tireder and it'll be harder to do normal things. Help her by making a casserole and bringing it over, or cleaning her bathroom for her or something. Let her talk to you.
You sound like you have your hands full with your family though!
Everybody has different coping (or not) mechanisms. Some women ask lots of questions and seek out information and some just hide. You have to figure out what kind your friend is and support her from there. If she doesn't want to know stuff, then don't tell her anything, just be there for her when she finds out.
It's really important for you to NOT give medical advice. I am stage IV and I still have people telling me what they think they know about cancer. Trust me, after two years of treatment I know more than they ever will, and everybody is different - unless they are a doctor, should not be giving me any medical advice. So, try to be a supportive ear rather than an advisor.
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Thank You for the advice! Good luck to you!
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She is foresure doing chemo and starts next Monday. She will get 6 cycles, one every 3 weeks.
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jmira...
You are a very sweet friend and it's clear that you want to help! Coolbreeze has given you excellent advice. Your friend is certainly overwhelmed and she is trying to figure out how she is going to cope with this herself. So I would take all of the cues from her and don't offer info. unless she directly asks. Just be there to listen, listen, listen. Your presence alone is such a comfort, believe me! Especially as she starts her treatment...
Wishing you and your friend the best. And happy baby too!
xoxo
Rose.
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One thing you can do is make sure she is supplied with movies and books and music.I was too sick to shop for those kind of things,even online.Sleep and lounge wear is great to have,you can't have too many.My best friend bought me the most beautiful strawberry red blanket,very light but so warm...I mentioned I was cold at my first chemo.I took it with me to every treatment and still sleep with it on my bed.I agree about the listening,it is an overwhelming time.I am going to hope she is one of the lucky ones who breezes right through chemo.
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Steelrose...
Thank you, for the wonderful advice! I will do just that. Good luck to u too!
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Pandazankar...
What a great idea. I will get her a soft blanket she will love that because it will be a part of me with her if I can't go with her. I gave her a pink bear that sings and she tells me she listens to it everyday and it brings a smile to her for that little bit. Thank you again!!!! I really appreciate everyones advice. Good luck to you!! Positive energy to all!!
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Proudtospin.....
Thank you. I will just ask and try to be there for some appts. Positive energy to you!
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I wasn't as sick as most people during chemo, and still remember the people who did things with me. So if you can get her out of the house if she is up to it. Even if for a nice drive, or a bit of shopping. Or perhaps for a walk.
I am a bath taker, so really appreciated having nice bath oils around as soothing on delicate, dry skin. Of course, that meant I had to clean the tub, but that was OK.
You might want to plan a big celebration when this is all over. I did that for myself, and it gave me something to look forward to.
She may get very depressed and grumpy, but that is part of the deal. She will remember who was there for her.....and who wasn't. - Claire
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jmira - Just a note - I had 6 tx of TCH and did not lose my eyebrows. My lashes thinned but nobody can really tell if I wear eyeliner and mascara. I am a couple of months past the last chemo. I did not lose enough of my hair to buzz it until after the 2nd chemo. To add insult to injury - I had to shave my legs all through chemo, just not as often! Everyone reacts differently to chemo so your friend may or may not have all of the side effects people discuss on these threads.
My best friend lives on the other side of the country from me. We have been best friends for 30 years and I know she felt like she didn't do enough for me - but she called me often, supported me 100%. I am one of those fortunate people that never had anybody turn away from me, or say silly things to me. Most people have a few that do - just be ready to support her in any way that you can, and she will appreciate it so much. My friends, in-laws, and co-workers stayed in close touch and I found that skype was a great way to keep in touch with those not local. I am a military spouse and I have friends all over the world - they texted me during each chemo. I never told them when those appointments were, just that I was having chemo every three weeks. They took it upon themselves to calendar those dates and as I was in the chemo chair the texts just started rolling in. It was a wonderful and heart-warming distraction. A lot of times it is the little things, done consistently throughout treatment, that mean the most.
One thing I can say is that the beginning is the worst part - she will be the most anxious at this time. The first chemo, the first surgery, etc. Take your cues from her, provide information as she is able to absorb it. Don't forget to take care of yourself too!
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jmira -
A dear friend of mine was diagnosed with BC earlier this year. Though my friend is a bit farther along in the treatment process (Chemo treatment 6 of 8), I understand your feelings completely. When I found out her dx, I did the same thing you did. I started reading the forums and collecting as much info as possible since I can't stand to feel uninformed.
It is SO hard to know what to do and say, but what has worked best for me is to just let her lead the conversations (as many of the lovely ladies of BCO have already said). If she brings up her treatment or side effects, just go with it. If, on the other hand, she seems like she wants to talk about what her kids are doing that week, go with that as well. As for chiming in with your own knowledge, I've found asking questions is sometimes the best way to go. Before my friend started chemo, we were discussing her treatment plan, and I asked her about what side effects she was expecting. Targeted questions helped me to find out what she already knew and what I shouldn't bring up yet. I've tried to be really careful with any of the negative stuff (like lymphedema and neuropathy) that she isn't dealing with yet (and hopefully, won't have to deal with at all). I think just being there for your friend will probably help a lot. Visiting often, just to talk (or just to listen), seems to be helpful as well, though during treatment weeks, I always try to call first to make sure she's okay with having visitors. I know my friend has told me before that she really appreciates visitors since she's supposed to avoid large crowds and has been pretty much house bound (because of a low white cell count caused by the chemo).
Finally, I'd say use the boards to your best advantage. I've learned a ton from these forums about what not to say (like avoiding the sad eyes and the meaningful "How ARE you?"). You're a wonderful friend for being so concerned and proactive, and I'm sure she knows that. So just go with your gut. When things like this happen, I don't think anyone really knows how to handle it.
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But KTJ, if your friend could lower her risk of lymphedema by learning more about it, might that not be worth bringing up the "negative stuff"? Well, she can!
Lymphedema risk reduction information here:
http://www.stepup-speakout.org/riskreduction_for_lymphedema.htmAnd here:
http://www.lymphnet.org (see their Position Papers onRisk Reduction, Exercise, and Air Travel, near the bottom on the right-hand side of the page)And here's their Position Paper on the protocol for managing breast cancer-related lymphedema risk right from the start of breast cancer treatment, to give your friend (and all of us) the best chance of avoiding this stupid side effect, and of dealing with it effectively if we end up with it:
http://www.lymphnet.org/pdfDocs/nlnBCLE.pdfUnfortunately, where lymphedema is concerned, ignorance is NOT bliss!
If I can help, please let me know. I really wish someone had told me about it.
Don't swell!
Binney -
Dearest Binney,
Hmmm, that's a really good point. It couldn't hurt to at least forward the info, right? Thanks for the input! Just out of curiousity, is lymphedema something you always have to watch out for? My friend is about 3 months out of surgery, and she's had no problems with it. But I'm wondering if she'll have to worry about preventing it forever?
(((HUGS)))
-KT
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Actually, my question probably wasn't appropriate for this forum topic. Sorry about that. My apologies to jmira!
-KT
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KT, it's entirely appropriate, because it's all about helping your friend.
The risk is forever, and we have women here who develop it 5, 15, even 20+ years out (of course it's still very neat to be 20+ years out from bc treatment
).
Please do feel free to PM me with questions, or stop by the "Lymphedema" forum here and "talk" to all the supportive women there.
Hug to you and your friend. She's so lucky to have you.
Binney -
Binney, thank you again for your help! I find it a little frustrating to discover that it's a "forever risk," and I'm sure it's even more frustrating for the people who have to deal with it directly. Ick. I'll absolutely message you if I have other questions.
-KT
P.S. 20+ years out sounds pretty peachy to me...
Shoot, right now 5 years out would be awesome.
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