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  • keno41
    keno41 Member Posts: 91
    edited June 2011

    actually that would be fine with me..I'm leaving the next day for a week in York! I can meet whereever!

  • deborye
    deborye Member Posts: 7,002
    edited July 2011

    I'm from Chelmsford MA

  • mrsb45
    mrsb45 Member Posts: 122
    edited July 2011

    Sorry,

    Can't make the 16th either as I'm starting a weeks vacation down the cape..But if it works for everyone else I'll maybe make another one !!

  • kerri72
    kerri72 Member Posts: 69
    edited July 2011

    Hi everyone, My name is Kerri and I currently live in NY (diagnosed here a year ago) but my husband and I plan to move to our place in Midcoast Maine ASAP. I'm worried about changing doctors, but my heart is in Maine and that's where we'll be happiest living for the (hopefully) long haul. Can any of you who live/have lived in Maine give me any tips about what doctors you use and insurance you have? Will I have to come to Boston to find a good oncologist and screening facilities?

    Any insights about the cancer care situation in Maine would be appreciated. Thanks - and I hope to join with your get togethers before too long!

    Kerri

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited July 2011

    Kerri--Stay away from Eastern Maine Medical Center's Center for Cancer and Blood Disorders.  Also stay away from MaineGeneral in Waterville and Augusta.  I drive 90 miles to see Dr. Nicolette Erikson in Lewison at Central Maine Medical Center's Hematology and Oncology Clinic.  I have been through 3 insurances during my journey (Maine General's self insured system, Anthem and now Harvard Pilgrim)  If you are looking for insurance in Maine the only choices are Anthem BC/BS or Harvard Pilgrim.  No other companies write health insurance in Maine now.  If you have insurance from out of state you would be wise to look into keeping it if you possibly can.  Maine has some of the worst health insurance in the country. 

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited July 2011

    Did you Boston gals have a get-together yet?  I have been trying to put one together for next Monday, July 25, at 6:00.  I live on a lake in Salem, NH (just 35 minutes north of Boston) and I have a very large lakefront patio that could hold a pretty good-sized group.  So far, there are 4 of us who will get together.  If anyone here is able to make it, just PM me and I'll send the details. 

    Michelle

  • kerri72
    kerri72 Member Posts: 69
    edited July 2011

    NativeMainer, THANK YOU for your honest input - it's exactly what I was looking for. I knew it was slim pickings for insurance in Maine, but I didn't realize it was THAT slim. I'll see if I can retain an out-of-state BC/BS policy that will be accepted in Maine. Again, I really appreciate your response.

  • haltsaluteatx
    haltsaluteatx Member Posts: 97
    edited July 2011

    Kerri72- I live about 30 mi north of Portland. Feel free to PM me if you would like info on the Portland area. 

  • glostagirl
    glostagirl Member Posts: 388
    edited July 2011

    Hi Kerri72,

    Welcome to our group.  

    I live in Utah for part of the year and get a lot of my health care done out there, but my primary residence is in Massachusetts. Regulations require insurance to be purchased in the state of your primary residence, so you'll have to work around the residency issue to keep your current insurance. This is because there are such variants in health insurance reg's from state to state. Also, If you get insurance thru your job this could help or hinder depending on your status, after the move, with this employer.  The residency issue gets complicated for many reasons; voting, income & estate taxes, other insurance, just to name a few.

    I'm self-employed and have a Massachusetts BCBS PPO policy which allows me to have network coverage out of state, it's more expensive than other policies, but even in MA I can go for health care where ever I want, no PCP referrals required.  

    The state of MA has very liberal insurance coverage regulations, including coverage for pre-existing conditions, this is not so in many other states although will be when the federal health care reg's fully go into effect. I don't know what the current ME policy is, it may be that if you've consistently had creditable coverage they cannot deny coverage for a p-ec.  This is an important consideration.  I'm sure you could find more info thru the Maine.gov web site and/or a reputable insurance agent.  

    Hope this helps, good luck. 

  • kerri72
    kerri72 Member Posts: 69
    edited July 2011

    Nicole, thanks so much for your offer - I just sent a PM.

    Glostagirl - thanks for sharing your experience of splitting time between two states. It's good to hear a fellow BC patient who does that. Somehow it seems scary to not stay in one place all year, but I don't want to let that kind of fear stop me from living the life I want. I'm self-employed too and may be able to keep a NY BCBC PPO policy for the time being. I'll run this all by my insurance agent, and check out the state's website as you suggested. Thanks again for your input!

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited July 2011

    In Maine if you can show you were insured ( a certificate of insurance I think it's called, comes from the insurance company you are leaving) getting insurance is no problem.  I have changed insurances twice since getting bc and have not had a pre-existing condition problem yet.  I pay more for a PPO plan through Harvard Pilgrim but I get network benes in any state.  Since I go to Boston for some of my care that is important.  Since my employer is going to a self-insured system next year I am currently trying to find an HSA plan to get into, but so far every one I've found has not written policies in Maine.  I'm going to have to find an insurance agent for help, I guess.  Maine's rules and regs for insurance companies are very complex and require insurance companies to pay into the the state sponsered program (Dirigo Health) so most have left.  The very best way to go in Maine is to have enough money to be able to pay directly, then you can negotioate prices with docs, hospitals, and health centers. 

  • GirlFriday
    GirlFriday Member Posts: 461
    edited July 2011

    NativeMainer/kerri72:   I got referred by my BC center social worker to Consumers for Affordable Health Care... http://www.mainecahc.org/  800/965-7476  In Maine you can not be excluded from coverage unless you have a 90 day lapse in insurance. 

    I've had excellent care from the Breast Care Center, at Maine Med in Portland/Scarborough.  Mercy in Portland is also advertising their BC center now too.  I met one woman during rads that was a patient at Mercy, but had her rads done at MMC (I don't think Mercy has a radiation center).  She seemed to be very satisified with her care at Mercy too. I don't think I've ever heard very positive feed back about Eastern Maine Med...

  • Daydreamernh
    Daydreamernh Member Posts: 45
    edited July 2011

    NEW ENGLAND BREAST CANCER SISTERS IN HOPE   New   Facebook group

    The message boards are great, but having sisters locally to chat, exchange referrals, vent if we have to and just support each other from our local communities can be a big plus in our lives. Make new friends, exchange info on local trials, doctors, hospitals and all other community events . Chat about BC, kids, communities, events etc.

    Please join us!

  • grammytotheboys
    grammytotheboys Member Posts: 23
    edited August 2011

    Does anybody know what happened to Dr. Krag from MGH? Will she be returning?

  • Leighsa
    Leighsa Member Posts: 63
    edited August 2011

    Grammytotheboys



    I see Younger (MO) and Smith (SO) from MGH and both are amazing.

  • grammytotheboys
    grammytotheboys Member Posts: 23
    edited August 2011

    Right now I am seeing Dr Moy and Dr Davis. Davis runs the survivorship program. Miss Dr. Krag though...kind of weird.

  • deborye
    deborye Member Posts: 7,002
    edited August 2011

    LuvRVing,

    the last get together was almost a year ago in Gloucester.  We have to do it again.

    I had my rads done at the Winchester Hospital Radiology Oncology Center in 2007.  I just learned that my RO was dx with ALS and retired in 2009.  I go to the Breast Care Center at Baldwin Park

    in Woburn, MA. 

    www.winchesterhospital.org

  • deborye
    deborye Member Posts: 7,002
    edited August 2011

    daydreamernh,

    My DD used to live in Merrimack, The Birch's, she now lives in Bermuda and rents her place in Merrimack. 

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited August 2011

    Deborye - I am getting treatment at the Dana Farber clinic in Londonderry.  I will need to find a Radiation Oncologist, a really good one because I already had Mammosite (brachytherapy) last July.  I was told my rads will be "complicated." 

    We just moved back to NH in May/June after 17 years in the Kansas City area.  We are leasing a place in Salem and leasing out our house in Missouri.  I have 4 kids, they all live in the area. 

    Michelle

  • grammytotheboys
    grammytotheboys Member Posts: 23
    edited August 2011

    I had my radiation in fall of 2010 at MGH Danvers with Dr. Chism. He is terrifc and so is the staff there. Mine was "complicated" too..had to do it prone. Highly recommend them.

  • deborye
    deborye Member Posts: 7,002
    edited August 2011

    They should refer you to a Rad Onc.  All my doctors are on the same page when it comes to communication.  It's a network, all my reports and records can be accessed by any doctor in the network of the Winchester Hospital. It is so easy, you don't have to keep filling out form after form.  I travel 20 to 30 minutes for my appointments.  I am all done my treatments except for 1 more year of Arimidex. Then I am done!!!  I did not need chemo but my onc is seeing me every 6 months to monitor my CA27-29 which is slightly elevated.  I had a CT scan and Uterine US last week and the CT scan was negative and the US showed uterine fibroids which is probably why the test is elevated.  It can be off even for B9 reasons.  Which makes me feel a whole lot better.  I was really scared, my Mom lost her battle with BC 15 yrs ago.

  • Daydreamernh
    Daydreamernh Member Posts: 45
    edited August 2011

    LuvRVing   I use the Regional Cancer Center in Nashua. They did my first rad's 5/6 years ago. I was very happy with them at the time. Loved the people who worked there, very caring and friendly.  Just had a new consult for my mets and  satisfied. My Doc there seems to be always on the ball and always thinking ahead. This time around he had my questions answered like he was reading my mind, never had to ask any of my initial questions.

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited August 2011

    I am quite sure that Dana Farber will refer me to an RO.  But I also like to do my own homework.  When I was being treated in the Kansas City area, my breast surgeon and her nurse were the "project managers" for my treatment.  I've been here not quite 3 months and I haven't had much of a chance to worry about rads, there have been a dozen other things on my plate including my mom who has Alzheimer's and my chemo. 

    Thanks for the tips!  Nashua is doable for me, along with Elliot Hospital in Manchester and probably Lowell.  I really want to keep the treatment site no more than 30 minutes away if that is at all possible.  I think there is a group from Elliot that has an office in the same building with DF in Londonderry.  That location is ideal.

    Michelle

  • deborye
    deborye Member Posts: 7,002
    edited August 2011

    I lived in North Reading and owned a small Variety/Country Store so my doctors were local around there.  I moved to Chelmsford and never bothered to change.  I could change so I can go to Lowell General which has a lot of doctors in my town but I just love and trust my doctors.  My husband even travels that far, we have the same onc.  He sees her because he has low platlets so my onc is a Hematologist Oncologist.

  • deborye
    deborye Member Posts: 7,002
    edited August 2011
  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited August 2011
  • deborye
    deborye Member Posts: 7,002
    edited August 2011
  • deborye
    deborye Member Posts: 7,002
    edited September 2011

    Bumping again, any plans of a get together??????????????????????????????????

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited September 2011

    I'm in Deborye!  Let's pick a time and place that seems right, and see who else can join.  I'm sure we can get JoyceK to do it if we pick a time when she's back in the area. 

    Michelle

  • Snoopy73
    Snoopy73 Member Posts: 287
    edited September 2011

    Hi ladies, this get together is long overdue:-( I live in the north shore (Salem, MA) let me know the date & time and i will plan on being there....

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