Recovery Time After Chemo
Hi! I'm new to this board and have enjoyed reading all the posts. I'm starting chemo on Aug. 5 (A/C every 2 weeks x 4, then Taxol every week x 12). I'm still planning to work full time when I can and have heard different perspectives on how I'll feel after chemo. I know some people that have slept for 2 straight days afterwards and others who were ok a few days, then it hit them hard the third day. I know everyone is different, but would love to hear about other people's experience. Thanks so much!
Comments
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I'm a year out of dx tomorrow. You're in the worse place right now...the beginning, chemo was hard but doable. My first round of AC was the worst but each round afterwards got better and better. I used a motion sickness patch behind my ear with AC. It gave me really bad vertigo, I couldn't even watch TV so the patch helped a lot, be sure to take the meds they give you they help. Day 3 was my worse too, I was so tired. Eating becomes a problem, I could taste salty some days and sweets others so I ate a lot of ramen noodles and soups. About the time you get to feeling better it will be time for your next round it seems so, take it one day at a time and pace your self. I hope all goes well and let us know how it goes. Come here often, this website got me through.
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Hi Ellas Mom.
Of course Chemo is a little like childbirth, you forget all about the pain after it is all over, except that you do not get the cute little bundle of joy out of the deal
I worked full time at a stressful job through all of my chemo, only taking a few days off when the neuropathy in my legs got bad, but they ended up taking me off the taxol and gave me taxotere which helped take care of that problem. Otherwise I did OK other than falling into someone's cubical one day and nearly taking the wall down
But I was just lucky I think. I ate mashed potatoes, sprouted grain bread, carrot juice, and homemade vegetarian split pea soup everyday and little else the entire time, which for me kept my digestion working in all the right directions, but had a few days here and there that were less than pleasant stomach wise. I never could eat meat again. Honestly like most say, its doable. I drove myself to chemo and back 70 miles and I was fine for two days, third day was harder, and was getting back on my horse by the 5th day. I know everyone is different, so maybe I was extra lucky, but I never did get to where I could not work. I did come home though and that was it for me for the night. Actually when I was taking the steroids, I got a ton done around the house and had more energy than normal, sometimes I would like to slip down a few steroids just to get some house work done now
I did give myself those shot in my stomach which kept my blood cells from crashing too which I think made a big difference. I did get shingles once, but I was lucky I was on a 4 day holiday for Christmas so I did not have to miss work, but otherwise I really can not complain about how everything went for me. I hope everything goes as well for you too. Keep us posted on how you are doing!
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Ellasmom: I worked full-time through chemo and have 2 young kids at home. The A/C was hard on me mentally, lots of chemo brain, so try to schedule mindless tasks (if you can) in the days right after treatment. I had chemo on Thursdays, so I would work from home Friday, and by Monday, I was off steroids/antinausea and able to go in for work. I wasn't one of those who needed to sleep for two days; I would nap Friday and Saturday but then I was fine. I think I only took one day off during the whole thing (other than infusion days), and that was more a "mental health" day.
Once I switched to taxol, it was WAY easier for me. Rest on weekends and don't push yourself too hard. This is so doable!
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I'm on a similar treatment protocol...did AC every 3 weeks X4 and have had 10 of 12 Taxol. The AC is definitely more difficult...I also had Thursday treatments and didn't feel I came out of the fog until the following Tuesday. Fluids were the biggest problem for me so for cycles 2,3 and 4, I went back to the ONC for a liter of saline on Fridays...definitely helped as my taste buds were really affected by the chemo....even water tasted BAD. Food wise, I lived on mashed potatoes, cereal and turkey subs !!! Be sure to take the oral antinausea meds on a scheduled basis even though you don't think you'll need them. It is true that everyone has a different experience with this....I hope it is easy for you...just remember how many of us have been through it and survived !!! Take care and good luck !!!
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Hi EllasMom,
Just wanted to send you good thoughts for this week as you begin treatments. I really do think all of us are so different in the way we feel during treatment. I hope you will find them very doable also. There were just a couple of things I wish I had known. One of them- Popsicles are great to have on hand as you go through treatment. The cold is great for your mouth. Also, I don't know if the other girls feel this way...but I wish someone had told me about not taking your favorite food with you on treatment day. I never ever got sick,but on my first treatment day I took peanut butter and jelly which is my favorite for lunch and for many months I did not care for the smell of peanut butter, again I didn't get sick though. Some of the girls I knew did not experience this. Also you may want to take ice water with you. Again ..I think the cold may help your mouth. The steroids may keep you awake. I always had a few days of feeling like I was wound to tight. I think the most important of all is it really is not as bad as you may think. Not at all like I think we used to hear. Please feel free to PM me anytime if you should have questions . You will get through it.
Take care and I will be thinking of you,
Kim
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The biggest thing for me was how much protein I needed. A lot more than I usually eat. Also, you won't have energy reserves, so I carried Larabars with me. They were a godsend.
I felt like I was connected to a garden hose, but I didn't have any trouble with fluids. Get yourself a water bottle with a screw top as I drowned a cell phone.
I did my consulting work throughout, but did have to manage energy. Sometimes naps in the afternoon, but no days in bed.
I also exercised throughout.....in a saddle, but a bicycle as opposed to on a horse. I did weights/crunches and walked a minimum of one mile each day. Sometimes w/o a lot of enthusiasm, but I did it.
Taxol was definitely easier, and I was able to do/train for cycling events.
On the PB&J, Kmur......your taste for it will come back. Mine was oatmeal and chicken. I am fine eating both now. - Claire
ps. I did SIX of each as was in a treatment study, and that was the protocol. I am just fine.
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I didn't need any anti nausea meds BTW. I did drink some ginger tea, but mostly drank water whenever I felt queasy. It always worked just fine.
So just the steroids, and I cut those back to two as opposed to three days. I felt a lot better afterwards. (Asked my medical team if OK, and they said yes.)
I made sure I got stuff done on Day 2 (including a 3 mile walk) prior to giving myself the Neulasta shot. Fortunately, my brain worked just fine as I do data analysis for a living.
Taxol was a once every two weeks thing too. Was much livelier as my red cell counts came back up. - Claire
The first one was scariest as didn't know what to expect. But was much easier than I had imagined.
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AC can be tough. My first round knocked me out and my onc threatened to lower my dosage. Subsequent rounds were easier, but I didn't have to work full-time. My sister worked full time through her AC treatment - as you said, everyone is different.
It does help to try and stay as active as possible. Taxol was easy for me and I have heard the weekly dose is gentler on the body.
Steroids are evil. I was literally crawling the walls and it made me moody and despondent. I was able to convince my onc to lower the dose somewhat and confession time... I did not take the full amount.
Another tip for chemo. Check the chemo bags to make sure you are receving the correct chemo! I was almost given the wrong one, after ignoring advice from a Stage IV patient to always check the bags.
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I had similar treatments except my Taxol was every other week X 4. The AC was harder because of the nausea but my onc doc worked to give me things to keep that under control. Fatigue seemed worse than with the Taxol. Fluids are so important but I had such trouble with water tasting like dirt or chemicals! Slices of lemon or lime in the water helped. I also drank decaf iced tea with lemonade mixed in. Popsicles were a lifesaver for the days when I had a bad taste in my mouth. Also used sugarfree gum A LOT. Sucking on hard candy was recommended but never really did much for me.
I worked fulltime. My infusions were on Thursdays. Neulasta shot on Fridays (which gave me a lot of upper body achiness). I worked from home on Fridays because Fri, Sat and Sun were my "bad" days. Usually by Mon and definitely by Tues I was doing much better. Was pretty tired in the evenings and had trouble staying up past 9:30!
I suffered leg pain at night from the Taxol, requiring Percocet to get me through the night. That usually hit Sat night and was gone by Wed. Didn't keep me from working, though.
Take things one day at a time. Come to this board often but get out if you come across a discussion that is too far ahead of where you are or gives you anxiety. And remember - everyone is different both in their diagnosis and their reaction to the drugs. As one tech who is a survivor told me - you CAN do this and a year from now you'll be smiling and not thinking of cancer every day.
Good luck.
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