April 2011 chemo

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  • profbee
    profbee Member Posts: 858
    edited July 2011

    It's the Taxol.  But I did 16 weekly treatments of it, and it only started to happen in the final month or so I'd say.  It started with red splotches (blood) under the nail--like how it looks when you bang a fingernail hard.  It only started to lift and ooze in the last 2 weeks or so.  

  • determined3
    determined3 Member Posts: 128
    edited July 2011

    thanks ladies...mine nails have the darkness from ac. i put nail hardener on to try to prevent the drama...we shall see. anyways, thanks for writing....btw.we were dx'ed at the same time....i was march first like you profbee and paw was march 2nd...not something to celebrate, but i just noticed that.

    thanks again:)

  • pawprintgirl24
    pawprintgirl24 Member Posts: 173
    edited July 2011

    i have 1 nail with red spotches but it hasn't lifted ..yet...more so on my right hand.i have heard that they can lift after chemo.i guess in that cycle???i went back and cut more off,doesn't look as bad but the white going down your nail just looks painfull but actually its not.just feels weird!

    hey did you go see harry potter?? i watched about 4 in a row to get caught up so now i am waiting on my duaghter to watch the last one so we can go see it.i am reading the book series game of thornes that is running on HBO. it is different but i went and got the 2nd book.thefirst book has 807 pages and i got the next one and it has more and the 3rd has even more. not an easy read!!

  • profbee
    profbee Member Posts: 858
    edited July 2011

    I ADORE Harry Potter.  I'm rereading it as my comfort books going to bed at night.  :)  I haven't seen the movie yet though--no opportunity with sitters, but hoping to soon.  Hubby and I are watching Game of Thrones on HBO--so good.  I hate reading books along with a show that wrecks it--I picked up the first True Blood book and I felt like I was reading the tv show and then it would ruin it.  But I have heard the GOT books are really good.  

    Determined--ah, early March!  Hard to believe it's been nearly 5 months of this!  CRAZY.  Are y'all feeling a bit over this lately?  Like, I know it takes a while to get through all this, but shouldn't SIX months be enough?!  Oh well...can't rush the curing cancer I guess.  :) 

  • Merilee
    Merilee Member Posts: 3,047
    edited July 2011

    Over it? I think I can answer for everyone YES! I am so sick of thinking about it and doing for it and going to appointments and telling people I run into who don't recognise me etc etc...

    I Just want this behind me in the worst way. Far behind me, like 10 years LOL

  • pawprintgirl24
    pawprintgirl24 Member Posts: 173
    edited July 2011

    yes! yes! YES!!!! i am so over this! i normally feel pretty human this week, my 3rd week before i get chemo again but not this one! i am so greatful that my daughter was here to help with grocerys yesterday because it took everything i had to just put them up since she brought them in.so tired and my friend doesn't listen she just says one more!! only one more! ....i want to slap her everytime she says it!!! one more cycle of feeling like total crap!!!...sorry just had to get that out!!

    yes harry potter!!! i want to see the movie and then maybe read the books! my husband watched the game of thrones but i missed it. some of my co workes are reading the book and that is nice so we will have something to talk about.i watch true blood but i haven't read the books.i'll have to check out the GOT books.

    and yes, march 2nd.....sigh.....the day our life changed for ever....

  • geocachelinda
    geocachelinda Member Posts: 223
    edited July 2011

    Ladies, this description of the fingernail problem is freaking me out!  I have 3 more Taxol to go.  #2 down tomorrow.  I have my pain meds ready to go. I want this damn port out too, it is driving me crazy with a sticking in the neck feeling constantly!

    Pawprintgirl24, I have the problem with hot flashes too.  I was on an anti depressant that was supposed to help but it didn't work for me.  citalopram, (Celexa)  now I am on clonodine which is supposed to help and is for my blood pressure too.  The jury is still out on that for hot flashes however!  I still get em.  can feel it coming on when it is going to happen too.  I am ripping off and pulling on a blanket all night long!  I hate running the air conditioner on high because I'm a tight wad with the electricity!  

    Profbee and Merilee, good luck with your upcoming surgery and radiation!  

    Windlass, a get together would be great, I don't know if I could afford to go tho.  :(  

    We will keep this thread open however and we can start a new one for radiation when we get there if there isn't one started already.  I'll probably start in September.  Just in time for back to school!  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    I'm just getting started, so I can't say I am over it. *laugh*

    I am however, growing a lot from this experience, and I think I may even be improving as a human being. What a concept - that something good could rise from these ashes. I got a guitar today and plan to start lessons this week. I have always wanted to be able to accompany my voice on the guitar. And our family refocus has done wonders for my house, which has never been so organized.

    And I have a huge bit of good news! I get tested for heart function once a month as part of my clinical trial. TDM1 can wreak havok on the heart, but I am allowed to stay on the trial even if my heart function drops. When I got my echo on Wednesday, my jaw hit the floor. My heart function had IMPROVED 10% since I started chemo. I was stunned.

    God is good!

  • RangerMom
    RangerMom Member Posts: 604
    edited July 2011

    I just discovered this funny forum on here. Here's the link: http://community.breastcancer.org/forum/67/topic/755825

    You know the comedian that does the "You know you're a redneck when...". Well this site is called You know you are a cancer patient when..... and it has some really funny jokes. Made me laugh out loud. Please go visit it and get a laugh.  

  • seeay
    seeay Member Posts: 56
    edited July 2011

    ok - so...last night was the first time I had to dress up for an event. At first, when I found I had NOTHING that fit in my closet, I was sad...but then, I became determined not to let cancer win! So I went shopping for inexpensive dresses, found two (and boy! Was that a struggle - to find ones that fit over my foobs and completely differently shaped body (I had TRAM and chemo has added on the lbs!) but felt so accomplished to be out and dressed. I felt like I had won yet another voctory over BC!!

  • shoema
    shoema Member Posts: 27
    edited July 2011

    I have my last T/C, #6 on Wednesday. I can't believe how tired I am.

    Pawprint, I am completely in line with you. I usually feel good the third week but not this time. People keep saying "the last one" but I know I still have weeks to get over it. I have gained 10 pounds and I am puffy every where. I am tired of complaining and am ready to get to the greatful it's over stage.

    Windlass, if you still have the metalic taste - my onc told me to take zinc and it completely went away. hope that helps. 

    My sister is throwing me a "No mo chemo" party for me in phoenix 2 weeks after my last chemo. I am a little worried about how I will feel. I hope my greatfulness at being done will over-ride the tiredness and crappy stomache.

    Have a great week everyone! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Merilee: Good luck tomorrow at your first radiation treatment!

    We'll be thinking of you.

    Report back and let us know how it goes.

  • Merilee
    Merilee Member Posts: 3,047
    edited July 2011

    Will do, please imagine healing light for me starting today and the next 6 weeks.

    Hugs

  • scc218
    scc218 Member Posts: 163
    edited July 2011

    RangerMom -- thanks for sharing that hilarious link (you know you're a cancer patient when.....).  It's great to start the day with a good laugh! 

    Thinking of you Merilee.  Good luck today and let us know how things go.

    Windlass -- great news on the heart news!

    So far I have my fingernails and toenails, but I'm getting really terrified of losing them.  It sounds so gross and horrible.  When does it start happening?  I've completed #3 of Taxotere with #4 this week. 

    Thinking of you all as we begin a new week.  I think I will go out for a walk now.....while I have the energy.

  • Sudzinvermont
    Sudzinvermont Member Posts: 70
    edited July 2011

    Merilee...

    sending you light today....and a warm hug.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Suzy: I am doing four Taxoteres starting at the end of August. Can you tell me what to expect? I've already been through four AC's (adriamycin/cytoxan) so if you've also done that and can compare it, that would be helpful.

    I think all our poor friends losing fingernails are on 8-16 doses of Taxol, right? Anyone losing fingernails or getting nail problems on 4 doses of Taxotere?

  • determined3
    determined3 Member Posts: 128
    edited July 2011

    on that same note, is there anyone who had weekly taxols w/out losing nails? thx!

  • scc218
    scc218 Member Posts: 163
    edited July 2011

    Windlass -- My onco said that the Taxotere would be much easier/milder than the A/C.  However, I'm having a tougher time with the Taxotere.  I really didn't have too much trouble with the first 3 A/C -- some nausea and fatigue but nothing unbearable.  On the 4th A/C, the Neulasta didn't do its job, my white count botttomed out, and I picked up a nasty infection and ended up in the hospital for 2 days.  Then I had to take a little break to recover before they would start the Taxotere.  The first Taxotere was okay -- a little bit of mild nausea a couple of days later.  The second Taxotere was brutal.  I had it on a Weds. afternoon.  By Friday evening, I was having excruciating abdominal pain -- doubled over in pain -- and spent most of the weekend in bed in agony.  At my third Taxotere visit, they gave me a prescription for Bentyl, which I took this past weekend and only had very minimal, tolerable abdominal pain.  I go for #4 Taxotere (of 12) this Weds.  I think I will continue with the Bentyl because I don't want to experience that excruciating pain again.  I'm feeling pretty nauseous today, too.  Had so many things I wanted to get done today, but I think I'm going to go for a nap instead.  My onco did warn me that I might lose my nails on the Taxotere; I hope he's wrong.  I don't want to go through that.  Don't we have enough crap to deal with??!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Thanks, Suzy. It sounds like you went through the mill, but I am glad you found a solution - and that you are almost done. Is this your last chemo drug? Are you doing rads after this?

  • Merilee
    Merilee Member Posts: 3,047
    edited July 2011

    Rads was a breeze today, first day.Thanks for the light :)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Yay! I'm so glad, Merilee that things went so well. Nice to get some good news for a change.

  • artiecat
    artiecat Member Posts: 257
    edited July 2011

    Windlass- I have done 5x taxotere along with the A/C and have one more to go.  I can see a change in my nail beds and my nails are growing like crazy - but not the icky stuff the others have described.

     Congrats Merilee!  You are on the road! One more step!!!!

  • Merilee
    Merilee Member Posts: 3,047
    edited July 2011

    It does feel good to be moving forward. That 4 week rest went by so fast! Man, I saw a tree with a small tinge of color while driving the other day.

  • scc218
    scc218 Member Posts: 163
    edited July 2011

    Yup, this is my last chemo drug, Windlass.  Will be so happy when it's over.  9 more weeks of Taxotere.  Then a month "break" and then 6 weeks of rads.  Keeping my fingers crossed that you breeze right through Taxotere without any side effects. 

    Yay, Merilee!  Glad you're moving forward and that #1 rad was a breeze!  Hang in there and keep us posted.....

  • pawprintgirl24
    pawprintgirl24 Member Posts: 173
    edited July 2011
    glad to hear it merilee!! i hope its a breeze!! i should start soon!Smile
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    So I got a guitar and started lessons today! It is really fun!

    Something new to keep my mind off of cancer.

  • scc218
    scc218 Member Posts: 163
    edited July 2011

    You go, Windlass!  Guitar lessons sound like fun.....and a really nice diversion.  I think that's a great idea.  We bought a small boat a couple of weeks ago -- I'm thinking it will be a really nice diversion for my husband -- something to think about other than when is the next doctor's appointment or the next chemo drip or do I feel good enough to get out and do something.  I'll enjoy going out on the boat, too, but this will be a project for him -- it needs a little fixing up, cleaning, etc.  Anyway, I think the guitar lessons will help you focus on something else, too.

  • Merilee
    Merilee Member Posts: 3,047
    edited July 2011

    Windlass, that is funny you say that as I have been thinking it is time for me to get a used piano and  learn to play it. Something I have always wanted to do.

    I am also starting a yoga class, that will happen directly before  my radiation treatments 3 days a week. And yes, it feels good to be thinking of something besides cancer.

  • pawprintgirl24
    pawprintgirl24 Member Posts: 173
    edited July 2011

    thats sounds like fun windlass and merilee! i always wanted to lean to play piano.but i think i am going to focus on getting whatever i lost back! the abilty to just do what i could before!

    going for#6 of 6 today!!! now just to get through the next 3 weeks!!i have a list of questions for them so i hope they blocked off some time!

    {{{{HUGS}}}} to all! Cool

  • artiecat
    artiecat Member Posts: 257
    edited July 2011

    Yay pawprintgirl!  What kind of questions are on your list?

    I go for #6 tomorrow! 

    IT is nice to hear people talking about fun things.

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