Taxotere/Cytoxan starting July 2011
Hi ladies, I deceided to follow suit from the june 2011 Taxotere/Cytoxan group/thread. I started chemo last week on thursday; 6 cycles of TC. Today is day 6 and I am doing good. My side effects have been bearable so far, and i am hoping and praying for the rest of the cycles to be the same. Anyone out there on the same regimen?
Hugs to you.
Comments
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I'm sure you'll have others respond who are right along with you on the TC. Otherwise, feel free to pop back over and visit us June people! Nice to hear you are doing well.
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Snoopy - thanks for starting the T/C July 2011 group. I will be starting 4 cycles of T/C on July 19. It will be very helpful to be a part of a team to share the experience.
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Hi Snoopy73 - I will jump right in! Today is Day 5 for me. Whole day of tummy aches and runs.
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Hello ladies; today is day 9 after my first TC; i am doing alright, just noticed a few stuff:
my legs get tired so fast; my days are good but by the end of the day my body is just worn out and all i want to do is sleep!!; i have palpitations every now and then; Other than that all is well i guess:-)
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Hi Day 8 and am getting energy back. Sleep is still a problem. I am tired and sleepy but can't fully fall into deep sleep and wake up a few times at night for the bathroom. Seems to be hungry all the time too. I so long for a good sleep.
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Took my dexamethasone with breakfast. Will take more with dinner tonight. Tomorrow morning is my infusion for the first TC cycle. Then, I will take more steroids on Wednesday. Planning to keep on going to the gym, and I am learning to meditate. My hairdresser and I are going to look at wigs today.
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Hi PhillyBird - how did your first chemo go? Pray you have minimal or no SEs.
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Hi ladies; hope all is well. I am feeling more like ME this week; my 2nd TC treatment is next week and i am dreading it already:-( so far no SE this week apart from sever headaches.
Phillybird - hope your treatment went well.
Frances - like you, i feel like i am always hungry:-( trying to exercise (walk, treadmill, or even do sit ups) and craving for some food like choc chip muffins LOL.. anyway
Hugs to you ladies; we will get through this and this too shall pass.
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Snoopy73 - I am also feeling ME today. No more SEs. Still greedy:) Dreading Monday too.
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Snoopy, Francis - I am fine. I am so glad you are feeling like yourselves. I am keeping very busy and trying not to think about this too much. Chemo day was pretty easy and afterward, I did a lot of cooking. Got the Neulasta shot yesterday. I always drink a lot of water, so the staying hydrated part is easy too. I have lots of appointments so get quite a bit of walking done. Going to ride my stationary bike today, since I do not have time to make it to the gym. The dexamethasone has made me peppy, and I have been told that as it wears off, I may tire toward the weekend. There was a bit of a snafu at the wig shop - I needed an appointment and it was too busy - must be a run on breast cancer!!! So I will go for my wig fitting next Monday. Another friend will go with me. My hairdresser and I went through the wig books so I have an idea of what I am looking for. So far, so good.
Regarding mindfulness thinking (the meditation I am learning), I am now working on living in the moment - no need to stress over what might happen tomorrow or next week.
Sending hugs and happy thoughts to all. Have a great weekend!
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Chemo #2 tomorrow. Dreading but at least I can say 2 down 4 more to go.
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Hi Ladies, Got room for one more? 35 years old. Started TC treatment on July 18th. 1 of 4. So far so good except for being a total space cadet on Day 4. My 3 year old just woke up so I will write more later. Love to all.
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Sure StayHuman, welcome! Let's share experience
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Hi StayHuman! Welcome to the club. You are one day ahead of me. This was a pretty good weekend, even though it was so hot here in Philadelphia (and the rest of the east coast). Only SE I seem to have is a rough/burned feeling in my mouth and tongue. I am just brushing after every meal and using Biotene rinse to keep my mouth moist. I was a bit tired Friday when the steroids began to wane, but it could also have been the heat and excitement. Keeping up with the gym and lifting weights; staying super hydrated; still eating my oatmeal for breakfast and lots of fresh cooked vegetables, quinoa, and fish. It is amazing how well I have recovered from my surgery - 4 1/2 weeks out from lumpectomy and sentinel node biopsy. Going to a wig fitting today! Hugs to everyone!!
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Phillybird u r doing the right thung by brushing after every meal and rinsing. The worst SE is mouth ulcers because once they set in they don't go away and eating will be a huge problem and without nutrients, our bodies will weaken greatly.
I just got back from TC #2. It was better today as port access was made easier with a local anesthetic. It has been slightly more than 2 weeks since port was inserted but the sore is still evident. Just had a big dinner as the steroids make me hungry and whilst I can eat I will eat more. I lost my appetite from days 3 to 5 the last time round. -
Hi ladies; StayHuman, welcome:-)
I am scheduled for my 2nd TC treatment on thurdays:-( dreading it but happy to say 2 down 4 more to go.. like Frances, my port area is abit sensitive and the scar is kinda sore. So far last week todate I ahve been feeling normal and been doing normal stuff. I am anxious and nervous for the 2nd TC not sure if the SE will be like the 1st one or not, uurrghhh anyway, am praying for minimal SEs. I also brush and rinse with Biotene, and chew on ice when doing the taxotere infusion. I also put my fingers and toes on ice (was told by past ladies that it helps the nails).
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Hi Ladies - I actually started in May, but thought I would pop into this forum and let you know how my experience went. I had my last TC on Thursday. Please do not take this as bragging, but want to let you know that for me the side effects were actually the worst after the first treatment. Maybe I am getting used to them, but I seem to have had less intense symptoms as I made my way though these, the most benign this last time. Everyone is different, but there is hope that it will be better, not worse, as you make your way through these treatments.
One of my biggest side effects was actually the withdrawal from the steroids. After having no issues after the first infusion, my doctor said I could cut back to 4mg/2x per day (instead of 8mg) and that really did seem to help alot. I also think that Prilosec (chemo nurse suggestion) helped me with the yucky tummy, and a daily probiotic helped to get my GI system back on track more quickly. I had crappy nails beforehand, but my integrative doc suggested I take a really good vitamin B complex, which I did, and have never had stronger nails - no splitting, coloration or the like. And, I am a believer in accupuncture for side effects.
You will be through this soon enough. Can't wait to see you on the "other side"!
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Hi TaniaK, thanks for relaying your experience. Your comments are inspiring, and they will definitely help me stay on track with not stressing over possible side effects or being too bogged down by the actual ones. I'll admit that I have been thinking too much about the hair loss thing, but I picked out a nice wig today, and if I need it, it will help me look like myself.
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I still have to make the decision but TC is the protocol that is being suggested. No neuropathy? I am going to have to go through everyone's comments and take notes on drugs, etc. I can't take steroids - does everyone take steroids?
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Hi Bobbi I took steroids dexamethasone -onco just cut the dosage since I don't receive it well. It is now down to 4 mg twice a day on the day before chemo and day of chemo itself. Previously I had to do one more day. It's been ok thus far but this is day 2. I get weak days 3 to 5 and will start the recovery day 6 onwards. I go for at least one 20 min walk everyday, if weather is not too hot twice and that helps.
Thanks Taniak for your encouragement. For us who have just started out or about to start, getting inspiring words from you help us to see light at the end of the tunnel! -
Hi Gals,
I had my first TC on Thursday, July 14th. As the line flowed in, the tears flowed out. I thought the day after, ok, not feeling too bad. I went to get measured for my wig... I wanted a filoment and natural looking one, something I won't be ripping off the top of my head, but didn't realize it was gonna be $1400
. He gave me a break and charged me $1000. Not sure how much my insurance will cover. I know they'll cover some since doc wrote it as a prosthesis. Went to my sister in laws beach house on Sat (2 days later). Now that night I began to feel awful. By Sunday the pain was horrible, not sure if it was from then Neulasta. Lost 10 Lbs the first week, but I think I've gained about 3 or 4 back. My face seems a little swollen. Is anybody experiencing this or is it my imagination? Not looking forward to round 2
. I have to do TC x 4. I know it's not too much, but if I have to feel that way again, it'll be torture
. Stomach seems to hurt.
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Fightn4fam first time is the roughest. I screamed my guts out when they were accessing my port because it felt like I was being stabbed. I was shivering so much they had to give me hot pack n 2 blankets. Tears flowed too. This 2nd TC wasn't so bad as I was more prepared. It's day 2 and other than having lots of gas, slight headache and tiredness I m ok. I m on neupogen which is given every alternative day. 5 to 6 of them= 1 neulasta but the side effect is negligible.it is much cheaper too. Each neupogen cost around us80 whilst one neulasta costs us$1600 here. All the best for the balance of treatments. Praying that they will be much easier.
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Good morning everyone, Sending lots of positive energy to everyone. I am on day 8 since my first treatment. I am experiencing the tingly mouth and tongue SE. I was a little tired on day 3 and on day 4 I was very foggy in my head all day. I just could not connect things in my head. Thankfully I woke up the next morning feeling like myself again. I go to the oncologist today for bloodwork. Treatment #2 is on August 9th. Feel like my hair is starting to loosen. My wig came Friday and is being straightened by my hair stylist person. My boys (3 and 8) don't know about my diagnosis. After the bilateral masectomy, I told my 8 year I had breast enhancement - which was none too easy to explain either. But I recently lost my mom to cancer (colon), and my 8 year old was there the whole time I took care of her. He knows what cancer and chemotherapy are. It will break my heart for him to carry this burden. An 8 year old just should not have to carry that. Bad enough he still struggles with losing Gramma. So.. I am hoping that he may not notice that it is a wig and that I can be diligent enough to not let him see me without it. To me, the reward will be worth the effort but I realize this may be unrealistic to accomplish. Right now, he is away with grandparents. 3 weeks! We did time it so that I could get through the first part of treatment and losing my hair without him here. So when he comes back I will have the wig on. If he says my hair looks different, I will say I got it "done" while he was gone. And see how long I can keep it up from there. I am sorry to ramble. It is weighing so heavy on me. It is comforting to know I am not going through this alone.
Can anyone say something good / positive has come out of this journey thus far? I can say that it has allowed me to deepen my relationship with my in-laws. When this all went down, they all were here for us. Flew in, stayed, everything. What about all of you?
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Hi StayHuman sorry to hear about your mum. I too have 2 young kids older than yours. 7 and 10 years. They were much younger when I was going through the first cancer 5 years back but now, they understand and I have explained to them that I will have to get through chemotherapy to get better and also told them that it will be tough but all will be ok soon. They are helping out by looking after me, fetching water and my medicines etc. What has come out of my illness - many good friends who stood by me, help me with errands, drive me to hospital, research cancer etc. So many angels sent by God! My relationship with my parents, husband have also improved and I don't feel bitter with them anymore. I used to be bitter having to work, run the household, shoulder all the responsibilities at home. With this illness I have learned to let go and tell myself I am not the superwoman I think myself to be.
We will all get through this. Pray your son is not affected by this. -
Today was Day 8 since first treatment. I went for labs and check-up. My white count was very low. I was was wondering why I had not gotten the Neulasta shot some of you mentioned. When they saw my counts, they gave me the shot. They explained that because of my age and otherwise good health, they wanted to see if could maintain my blood counts on my own without the injection. Now I will get it every time. But can't go to work for rest of week - need to be very cautious until my counts go back up. Stressful to have to miss more time when I just came back from a 6 week leave of absence. And frustrated that I thought I handled first treatment well. I had no idea my counts were low. Hope to not to experience too many SE's from the injection. Hope everyone is doing really well.
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Hi everyone,
Here are my tips so far: 1) Stay hydrated - never be without a bottle of water, and make sure to keep on peeing. 2) Exercise (to the best of your ability) and eat well (a good balance of fruits and vegetables with fiber and good sources of protein and fat (fish, lean meats and nuts) everyday, 2) Keep busy so you will think of other things besides BC, 3) Keep clean - brush teeth after every meal and rinse with Biotene or baking soda/water, wash hands constantly, and apply moisturizer all over. I am using Udderly Smooth, Vaseline Intensive care, Lubriderm, Neutrogena. More specifically, I am using Neutrogena facial moisturizer without alcohol at night after I wash my face, and the version with SPF 15 for the day), 4) Take time to sit down and breath deeply and relax, 5) Do one fun thing every day, 6) Let go and don't be a control freak for once! Let people help you and don't stress that they don't do it (whatever the task is) exactly the way you would do it.
For me, the exercising is really important - since I work out regularly and lift weights, I think that any minor bone pain from the Neulasta stimulating my bone marrow to produce new neutrophils is masked by the good muscle pain. I also think that by being active, I avoid sleep problems, because I am more likely to be tired by the end of the day. By rinsing my mouth with Biotene before I hop into bed, I find that the decreased saliva and scratching mouth/tongue does not bother me and I fall asleep more easily too. I have had some heartburn and mild headaches, which were adequately treated by liquid Maalox and Tylenol, respectively. Also, I am taking really good care of my feet; I apply lots of moisturizer and wear socks or nylons/peds with good shoes for running around town - not flip flops. Regarding altered tastebuds - I have discovered that I really like cooking with fresh ginger and tarragon - have been putting these two in everything!
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My wig came in today, so I went to pick it up, and also got a wig stand, shampoo and a conditioner spray. I also got a little cotton sleep cap. No ichy feeling on my head yet. It has only been eight days though. I like being prepared. I do have a mild headache, but that is probably because I have been running around in this blasted heat all day. How is everyone else doing?
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Hi Philly bird. Thanks for the tip on this thread. I never noticed it. The huge numbers of postings is so overwhelming.
Exactly one week since my first cycle. I was hoping to feel more normal by now and have two weeks of a life before cycle 2, but maybe that was too optimistic. I should be thankful that I can still function well enough to take care of myself and go to work. Still I can't imagine being able to work out like you. I put my health club membership on hold. -
Hi Ladies day 4 of 2nd cycle. Funny in the stomach and food is tasting funny too. Thanks Phillybird for your tips. I am also keeping to a low fat diet and I try to drink as much as I can. I am also a little weak but nothing unbearable. I try to walk about 2 km a day too, some days it's just too difficult. A least I know I am coming out of the pit and will be normal again in 1-2 days time:)
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Hi Frances,
Ive got funny in the stomach too. I love to eat and it's such a disappointment when I have one of my favorite foods and it tastes awful. Even water tastes bad which makes it hard to keep hydrated. Glad to see that your 2nd time was better than the first.
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