Chemo May 2011

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  • oandtolivo
    oandtolivo Member Posts: 83
    edited July 2011
    I'm so happy. I had my last FEC yesterday and moving on to T.  I also got good news I can start herceptin early with the T and the clinic has cold packs, Yay.Smile  The last 24 hrs have been hell, but I'm feeling much better now.  I wouldn't wish FEC on anyone, it's the pits.  I hope everyone feels better soon, take care  ***Tracy
  • bak94
    bak94 Member Posts: 1,846
    edited July 2011

    Congrats Tracy on being done with the FEC! I just finished 6 AC. What is the F in the FEC? The same thing in cmf?

    MamaV, that is a perfect quote from your DD, how sweet she is!

    Cyborg-hope you had a great time in Vegas!

    I had a really low day yesterday, but much better today. Still a bit nauseous, oh I better go take my zofran...

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

      I  haven't been on her for awhile, but several of you have let me know that I am in your thoughts and prayers on other threads and I appreciate that.  I was actually waiting to see if the halaven I started on May 4, was working or not before posting because in truth my SEs were very minimal and I didn't have much to report.   I still have hair although very thin with lots of pink scalp showing through....still run around that way and figure what the heck, I just look like an elderly women with thin hair.  And some of the SEs I was having just sort of resolved themselves....like the neurpathy started going away maybe a month ago and I could feel individual toes again and for the past two weeks I have not need laxatives as the constipation went away.....so I am thinking it's no longer working IF it even did.  I had a very slight drop in my CA 27.29, less than 100 points, then last week it jumped up 500 and I am now at 3,173.9, although by now it is probably higher.  My bone scan was unchanged and they said no evidence of new mets so that gave me a little hope, BUT today I picked up my CAT scan report and all of the tumors in my liver have increased in size and the largest is now 7.2 X 6.6 cm.....I am not sure how large a liver is, but know that is a pretty big tumor...there is another one that is 6 something and then some smaller ones.  Soooo, I think I am safe is saying this chemo did not work for me, but I will have to wait until next Tues when I see the onco to see where we go from here.  I also am going to talk to a different onco since it never hurts to get another opinion. Whatever the treatment, I hope it doesn't involve neulasta....the claritin did seem to help, but it just doesn't make me feel good at all.....like now I am feeling almost like I have a cold and it didn't start til after this last shot.

    I sure do hope all of you are doing well and please keep in mind my cancer was more advanced than any of you just starting out so I think remission and NED is in store for many of you and soon treatment will be behind you. Hang in there. Marybe

  • blondelawyer
    blondelawyer Member Posts: 327
    edited July 2011

    I am having horrible headaches this time around (I've had them with the past rounds, but not nearly this bad).  They seem to get progressively worse as the day goes on.  I'm having acupuncture today and hopefully that will be able to help because I am miserable!  I'm also pretty nauseous.

    I saw my MRI report and the outside dimensions of my tumor have actually gotten bigger--it's now 9.8 cm!  The inside appears liquid, so it's hard to tell if how much shrinkage or growth has happened.  I meet with the surgeon on Thursday--wish me luck, I'm overly nervous for some reason!  

  • 40-years-old-now
    40-years-old-now Member Posts: 309
    edited July 2011

    Marybe and blondlawer, sorry about your growth, I will keep you in my thoughts.

    Bkj66- I am on TC, I have 6 doses of it. Currently I am 1/2 way threw.

    Today is less pain, so that is good, I still have this alwful taste in my mouth. But I am hoping that it will be better after chemo, if not I will defently loose weight (Bright side). Because I wont be eating much.

    But really I would like food to taste good.

    Candice

  • bak94
    bak94 Member Posts: 1,846
    edited July 2011

    Marybe-glad to see you here, and glad to hear that your se's are not too bad. I hope the next plan works for your liver tumors. Do you have liver pain or nausea? I hope not, I hope you are feeling well. Glad to hear your bone mets are stable. It sounds like you are staying more active than me! Chemo kicked my butt this time. Sending big hugs to you!

    Blondelawyer, I feel for you, headaches suck big time! Strange about the tumor growth and liquid, maybe the liquid pushed the outside dimensions out more? I will be at swedish thursday for follow up appointment also, wonder if we have crossed paths before! :) I wish you luck with your surgeon appointment.

    Candice-glad you are having less pain today. Yeah, food tastes pretty yucky to me right now and my mouth is sore, but no sores thank goodness. I have been doing my saltwater rinses, so hopefully that will prevent anything.

    Since I have 4 weeks off before my next chemo I want to try to be as healthy as possible. Exercising and eating good to build up my stamina for my next cycle of chemo, although this week is pretty much shot so that leaves 3 weeks of good behavior.

  • bak94
    bak94 Member Posts: 1,846
    edited July 2011

    Everything taste bad until...I made cheese nachos with mild salsa. OMG-it was so good! Anybody else try nachos when everything else taste bad?

  • neecee
    neecee Member Posts: 663
    edited July 2011

    bkj66 - I live on them!

  • MamaV
    MamaV Member Posts: 907
    edited July 2011

    DD sent this one today - if the world didn't suck we'd all fall off! Ha ha! Hope that lifts everyones spirits just a little! :)

  • 40-years-old-now
    40-years-old-now Member Posts: 309
    edited July 2011

    MamaV. LOVE IT!! 

    BKJ66- nothing with cheese even sounds good. But I did go to basket robbins ice cream and got some mint chocolate chip (had taste first to see if it had taste) and that was good. Better then the steak I had earlier (steak was good, but tasted like paper to me :(  )

    I am not sure if it is nap time or time to read, but either way it it time to get off the computer.

    Take care everyone

    Candice

  • Cyborg
    Cyborg Member Posts: 848
    edited July 2011

    2 weeks out from last chemo and I am so nauseated with a horrible taste in my mouth but I can eat. It's weird. Saw the RO today and got the tattoos to prove it.maybe this fatigue and stomach upset is a result from going to Vegas and overdoing it. Didn't drink but stayed up late and walked around.

  • Patriotic
    Patriotic Member Posts: 281
    edited July 2011

    Hi Marybe. Sorry about your new tumors. That just plain sucks. I read a post from a member who went to UCLA and had a lung biopsy done to verify breast cancer but also for the purpose of conducting chemo sensitivity testing. It's an interesting concept, as this person claimed that several chemo's were deemed ineffective and several were effective. Thus, they opted for an effective regimen. I know that petri dish testing is probably not factoring in all of the things that go on inside the body's metabolic process but I just thought I'd pass this on. It just seems so much more logical to me than the crapshoot that is chemo regimen selection. I personally went and got 3 opinions, which were all different. That is a bit dizzying. It just seems that we generally, wind up with the drugs the cancer center prefers, unless there are pre-existing cardio problems that preclude certain drugs for some.



    Bjk66, enjoy your time off of chemo. It's a good time to get everything done that you need to
    and maybe, have a little get-away.

    Blondelawyer, WTF (sorry if expletive offends anyone)?? 2 chemo's and the POS is growing? Ugh. You must be so disappointed. What next? Do you think they will change your regimen again? Also, if the headaches were anything like mine, my heart goes out to you. I tried
    the OTC drugs and none of them cracked it. So, the Onc's office prescribed Vicodin, which worked
    like a charm. Wishing you relief soon. Good luck with the surgeon.



    I had an MRI yesterday to verify tumor shrinkage. I should have the results in a few days.
    Getting in that tube is horrible. I took half an Ativan before and it seemed to help. :)



    I start AC Tuesday and got the Emend and Neulasta in the mail today. Yippee. NOT!! I am
    not worried about administering myself the shot. But, can anyone tell me if Emend was enough to
    stop the nausea and vomiting? Or, did you also need to add Zofran and Ativan?



    Two ladies told me today that they actually preferred the AC over the Taxol (due to aches and

    neuropathy). They said AC only caused them fatigue. I hope it's true for me. Ugh.


  • blondelawyer
    blondelawyer Member Posts: 327
    edited July 2011

    Patriotic:  The oncologist hopes that there has been overall tumor shrinkage--just from the inside.  I've read that sometimes chemo can have a swiss cheese effect on tumors, and I'm hoping that is what is going on.  The plan is to finish out the AC--one more dose this coming Monday and then surgery.  I figure it is time for Gertrude (my tumor) to face the knife!  I don't know what will come next and my oncologist said that he won't know until they go in and see what is actually going on.  So...we'll see.

    Good luck with starting AC!

  • oandtolivo
    oandtolivo Member Posts: 83
    edited July 2011

    bkj66  The F in FEC is Fluorouracil (5FU), I'm so glad i'm done with that. Major chemo brian!

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited July 2011

    Patriotic, I had all three for the nausea. I felt link junk most of time on AC. And while taxol has been better than that it's still leaves me drained, sores in mouth and the pain I have to vicudin for. And strangely dizzy at times



    But can function. With AC I was out for a week. I hope that AC is more manageable for you. I seemed to be on the highest part of the SE scale with it.



    Wishing you SE days ahead!

  • bak94
    bak94 Member Posts: 1,846
    edited July 2011

    My little doggie is snoring! He just makes me happy! I still feel like crap from my last ac on fri/sat, so 4 days post treatment. I hope the abraxane/carbo is easier, but for some reason I have my doubts. I was having a vivid dream last night that I had to pee so bad and couldn't find a bathroom. Just when I found a bucket to go in I woke up thank goodness! Have any of you had those dreams, and then wake up just in time to run to the bathroom? Went back to sleep after only to dream about losing my car in a snowy parking lot, it was so cold and I couldn't find it, plus I had my little doggie with me who was freezing. I haven't had vivid dreams in a long time, i must have been cold!

    Patriotic, was it a breast mri or just mri? My doc did a ct scan on me, which I hear isn't as good at detecting shrinkage so I wonder why he picked ct scan. I am getting another pet/ct scan in a week or so to see if there is shrinkage and to make sure no new things have popped up. Trying not to think about that! Hope you find out you have shrinkage, is it your first scan since chemo?

  • linda614
    linda614 Member Posts: 17
    edited July 2011

    Haven't been on for a while and spent a little time tonight catching up.  All of your posts have been super helpful in letting me know that what I'm going through is "normal".  I had to ban myself from this site for a while because I was in the chat room and it was not comfortable.  Some of the discussion made me more depressed.  But I think I will stick to the discussion board from now on, as it has made me feel better tonight. 

    I wish this weather would cool off.  I try to ride my bike on my "good" days, and this damn weather is screwing me up.  Just when they predict the weather will be tolerable I will be back in for Taxol #3.  Yuck. 

    Patriotic:  Emend is the bomb (in a good way).  I took that and I had very little nausea.

  • Cyborg
    Cyborg Member Posts: 848
    edited July 2011

    I have been so out of it. I have a cold.

  • ---
    --- Member Posts: 197
    edited July 2011

    beaglesgirl,

    how are you doing after #2 Taxol?  i hope the body pains are controllable with meds.  keep me posted.

    laureen

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited July 2011

    Laureen,

    Pain from taxol is controllable through vicodin, I try to take as little as possible because it does a number on my belly ... Well you you the drill. I have more energy but then I can't seem to follow through. Seems I just think I do because I don't feel so bad. It's going be awhile before I have real stamina.



    Had my eye dr appt yesterday and she found my eyes to be fine although my Rx has changed significantly. I could have told ya that! I can't see! she thinks it's due to the meds I'm on and can not say if it will adjust back or stay this bad.



    I don't know whether to fork out the cash for glasses for 10 more weeks of treatment, which my eyes could get worse or stay the same or go back to normal.



    Getting depressed..

  • Patriotic
    Patriotic Member Posts: 281
    edited July 2011

    Thanks, everyone. Feeling remarkably good on the last Taxol this week, so far.



    Bjk66, it was a breast MRI done between Taxol and the start of AC. It seemed to go pretty quickly but I hate being in the tube. the On claims my tumor is down by about 60-75%. I have trouble feeling it and so does she. That makes the MRI palatable, I guess. They claim the AC should "melt" it right away. I hope they're right. However, they did say that because my tumor is highly ER + and that means "slower growing" there might be disease left. I don't really understand this since my tumor is grade 3 but my proliferation rate is on the lower side (10-15%). Does this make sense to anyone?



    Thanks, beaglesgirl. That helps.



    Linda614, I agree. Breaks from BCO are sometimes good. Somedays, all of this is just too overwhelming. One day at a time.



    Wishing you all a SE-free week!

  • Patriotic
    Patriotic Member Posts: 281
    edited July 2011

    Blonde lawyer, I am thinking of you. You must be really nervous. Good luck with last AC and surgery consult.

  • blondelawyer
    blondelawyer Member Posts: 327
    edited July 2011

    I had my surgery consult today and it went well.  I am having a bilateral mastectomy on August 16th--3 weeks after I finish chemo.  I'll have my Hawaii trip squeezed in there too.  I'm glad to have a date and will be anxious to move forward.  We don't know if I will need radiation or more chemo yet, so I'll have to wait until after surgery to know more.  The surgeon did say that it will probably be about a year before I am ready for reconstruction, which seems like a long time, but I am okay with that--especially since we are doing the prophylactic removal of the left breast.  It would be weird to be lopsided with DDs :)

  • ---
    --- Member Posts: 197
    edited July 2011

    beaglesgirlm

    thanks for the update.  i took Norco for my pain from Taxol last week.  Must have taken more Norco this time than when I had mastectomy and axillary dissection!  The body pains were just so really bad.

    I didn't have vision problems.  Do you have neuropathy?  My finger and toes are now numb and tingling, since last week.  It is tolerable and I hope it remains minimal sicne I have 3 more Taxols to go. 

    I go back to the chair next Monday.  I'm on every 2 weeks regimen.  Will keep you posted.

    Laureen

  • oandtolivo
    oandtolivo Member Posts: 83
    edited July 2011

    blondelawyer

    I had my rt mx in May.  It took a while to get use to being a DD on one side and AA on the other, but I've healed well and I know a year will go fast.  Plus, the mx bras and prosthesis are pretty comfy and no one can tell I'm missing anythingSmile.  I must admit it would have been nice to drop both DD for a while.  You'll do great and hang in there.

    I'm having the worst week yet.  That last FEC really kicked me hard.  I'm so grateful for all my friends and family.  I feel like the worst mom this week I can't even play cars or finish a board game.

  • Patriotic
    Patriotic Member Posts: 281
    edited July 2011

    For anyone interested in learning about chemotherapy sensitivity testing:



    http://breastcancer.about.com/od/newlydiagnosed/a/chemosensitive.htm

  • Robyn_S
    Robyn_S Member Posts: 197
    edited July 2011

    Hello May ladies! The 3 weeks come around quickly and I am back in for another taxotere early next week. Still so much better than FEC though the fatigue keeps me flat.

    Laureen  - are you taking anything for the neuropathy? I am taking daily 3 x 1 gram dose of L-Acetyl -Carnitine which is a natural amino acid-  it is in clinical trials for prevention and treatment of chemotherapy induced neuropathy. So far I have had nothing at all after taxotere # 1-which may be lucky but I have heard enough stories about long term problems with taxanes to not  want to take the risk. There is research out there about the problem.

    I hope everyone is having a peaceful weekend! ;) Robyn

  • neecee
    neecee Member Posts: 663
    edited July 2011

    Beaglesgirl - I am having the same debate about vision.  I know my eyes have changed, am due for an exam, and on my last set of contacts.  Can't get more without an eye exam.  I am debating whether to go in now, or wait until my chemo has ended.  My vision changes during the first two weeks of a chemo treatment. 

    Fortunately, my last treatment is next week.  I hope my contacts hold up for a little while longer.  LOL.

  • Cyborg
    Cyborg Member Posts: 848
    edited July 2011

    Blondelawyer- so excited about your trip to Hawaii . What island(s) are u visiting?

  • bak94
    bak94 Member Posts: 1,846
    edited July 2011

    blondelawyer, glad you have a plan now for surgery, do you feel a bit relieved? It seems like it is moving so fast for you. Not so fast for me! I still have 3 months of chemo starting on Aug. 12th, so with the 4 week break, a chemo total of 7 months! Yuck! My mo also said no reconstruction for 1 year, I about flipped! Surgeon had oringinally said about 6 months, but mo doesn't want me to do it that soon. So with finishing chemo, then waiting a few weeks, that puts me out to Nov/December for surgery.

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