The Budwig FOCC

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Leia, u are so right about stress, found the lump 6 months after being laid off a major, major shock for me. It had been there but it was nastily fueled by the event, I,m sure. Sunlight is critical. Now, if only i can get a darn doctor to measure my level, before i hit rickets status :(( Taking 2,000 a day but i,m sure it,s not enough

  • apple
    apple Member Posts: 7,799
    edited July 2011

    I am fortunate to have a friend (of a friend) who raises cattle on his farm.. I split a cut up a cow or steer with another family and it totally fills our freezer for a while.  pretty affordable actually.. so that is one way of buying organic beef.. THe only thing is that some of the 'cuts' are huge and I have to thaw and cut them.. or precut them which i never have time to do at the time. This year I will plan the time.. great soup fixins.

    Chickens I am not so lucky.. I could pay a premium for them at the grocers.. sometimes I do.  Target sells some pretty healthy food in the meats department.. I was surprised.  Actually I could raise chickens but I'm thinking the deer that eat our veggie garden or my dog would would eat them first.

    I am in a bit of a quandery at home because everyone is on a different diet.  The Gaspacho I made (omg delish) was a huge hit last nite and we eat a lot of hummus and tabouli.  Betw/ my husband's prediabetic diet and my son's no carbs/hi protein diet and my craving for anything rich and satisfying because I can hardly eat anything.. it's a challenge to cook (and I used to be a chef).

    I want to buy a lobster or four... but our income does not permit that.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Thank you much Susan, can,t keep up these days :(

  • kira1234
    kira1234 Member Posts: 3,091
    edited July 2011

    Luan, Talking about vitamin d. I've been trying to get some sun daily per my Dr's suggestion. I find it feels so good. I don't know why I've avoided it the last few years.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Kira, most likely that the dermatologists scared you out of your wits....

  • Jane05
    Jane05 Member Posts: 2
    edited July 2011

    I found this forum yesterday when I was Googling about Budwig. This is an interesting discussion and some comments made me want to respond, especially since I've been a member of the Yahoo FlaxSeedOil2 group for a while and have found everyone there to be very supportive, including the moderator. The first time I had a breast tumor, I knew nothing about alternatives and had surgery and chemo which made me sick. When the tumor came back, I did Budwig and got well...the tumor disappeared. I appreciate the support I found in FlaxSeedOil2 and I'm bothered by some of the statements here about that group.

    chillipadi, you wrote that you followed the Budwig plan for 14 months and got worse while being a member of FlaxSeedOil2.  I was curious about your messages there. I copied your words, 'bled profusely,' and used the search box in FlaxseedOil2 to find your messages. I saw that your username there was similar to here. You wrote the following in one of your last FlaxSeedOil2 posts:

     "At the same time, I was drinking fresh grapefruit juice almost daily. This went on for around six months. Then, about two weeks ago, I stumbled upon a study which found that a certain compound in grapefruit inhibits an enzyme in your bodies which breaks down and metabolises estrogen. With this enzyme being blocked, estrogen levels in the body go up. You can get more details here:
    http://healingpastures.com/2009/08/24/grapefruit-breast-cancer-risk/
    >
    > I stopped both flaxseed and grapefruit consumption completely., and reported my suspicions to my oncologist. He said that the grapefruit compound had rendered Tamoxifen ineffective."

    This is good information to know, so I thought I would post it here. Budwig NEVER recommended drinking grapefruit juice, so your statement tells me that you didn't know or understand the Budwig plan very well.This could be the reason it didn't work for you or maybe you're in the 10% that Budwig said she couldn't help. In the FlaxSeedOil2 group, they make it clear that it won't help everyone, especially people who aren't following it correctly.This might be one of the reasons that some members there seem to have a "religious fanaticism" as you called it, maybe they're trying to save lives by trying to explain the plan so people don't have the misunderstandings that you had. 

    I also saw that after you posted that info to the group, Sandra Olson, the moderator,  wrote an answer to you that was very supportive and you replied by thanking her for not "shooting you down" which you say here that everyone did.  However, she did not encourage you to continue the Budwig plan.

    You say the FlaxseedOil2 group is biased.The purpose of the group is to discuss the Budwig plan but I see that they allow many different opinions on many topics to be posted. I find the group to be as open as possible within the confines of its purpose.The fact that you posted your criticism of the Budwig plan over and over in that group tells me that they are quite lenient in what they post. It seems that it became clear that you hadn't really been following the Budwig plan very well, yet you wanted to keep telling new members that it doesn't work. 

    I'm glad to see that you have found treatment that helps you. No one should stay with a treatment for 14 months while they're getting worse. From what I've read about the Budwig plan, people who are going to have success get well within 3 to 5 months. The group has hundreds of testimonials. What any of us do is our own choice and responsibility. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011
    Wow, am on Tamoxifen, HOW COME NOBODY EVER WARNED ABOUT THE INTERACTION WITH GRAPEFRUITS, am really upset with the onco now Yell
  • kira1234
    kira1234 Member Posts: 3,091
    edited July 2011

    Luan, I just found out i shouldn't eat them as well. It was on one of the threads here about 2 weeks ago or so. It is so frustrating what our Dr's don't know. If you google it you will see why. And to think I planted a tree last year thinking they would be good for me.

  • apple
    apple Member Posts: 7,799
    edited July 2011

    i love grapefruit and the first thing I ask... is 'can I eat grapefruit?"  the answer is usually no.

    Jane - thanks for publically scolding Chilipadi and posting her posts written on the other forum here.  I really like and have learned from your condension.  Her grief in her progression will certainly be compounded by your compassion..

    not!

    Since this is your first post, and you don't have a diagnosis or any profile anyone who would be mad would probably forgive you or assume you are one of the sockpuppets... so don't worry about my tongue in cheek post.

    Here's a poem for you:

    what we wish we could controll

    reveals a window to our soul.

    we smile and say that it doesn't matter

    inside we cry and we are sadder.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Wow ! sorry Jane you,re getting a whiff of the ambient air around here :(

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited July 2011

    There are many, many medications that interact badly with grapefruit.  If I am taking any prescription, I won't eat grapefruit.  Its too bad because I do love it.

  • Leia
    Leia Member Posts: 265
    edited July 2011

    Jane05, thanks for your thoughtful and enlightening comment. You really contributed to the discussion. Food for thought. And maybe some readers, here will read what you wrote and question what they have been doing. And do something else. Something in line, with being healthy. 

    My breast cancer was five years, ago. My Leio cancer, seven years ago.  Neither of those cancers with any additional Medical Industrial Complex "treatment." Yet I'm doing great. With the FOCC and the D3.

    I should leave this place. This board.  It is in some ways, toxic to me. 

    Yet, I can't forget MarieS. Who led the way, for me to refuse that Whole Breast Radiation. If she hadn't posted, I might have done it. And I would be so worse off, today.

    So, I come back.

    Because I know that I did the right thing, for me. Again, my breast cancer diagnosis, 6/29/06. IDC 2cm Stage 1, Grade 1 0/2 Nodes, ER+PR+HER- 

    Those "treatments" were overkill. The whole breast radiation and the Tamoxifen. I'm glad I didn't do them.

    I believe the Budwig is a cure for cancer. And Jane05, many testimonials on the Yahoo board prove it. As you have said. 

  • elmcity69
    elmcity69 Member Posts: 998
    edited July 2011

    hmm, a sudden poster, no profile, no personal info, leaps right into the hot debate....time to get out the brooms.

    and even if you're not a sock puppet, troll, or one of our zealots posting under another identity, "jane", your attitude towards chillipadi is rude. it really is almost laughable - the arrogance and cold meanness toward a woman discussing her pain and trauma.

    in the end, i'm sure you're a troll or sock puppet, hopefully you'll just go away. and for the usual crowd who will try to shout me down: treat others as you would like to be treated. the lot of you whine constantly about your threads, your opinions, your research - how about a little compassion for others, period.

  • chillipadi
    chillipadi Member Posts: 151
    edited July 2011

    2tzus, apple, elmcity and sweetbean, thank you for your kind words and support for me. I know I have made silly mistakes in the past, but no one deserves to be treated with such condescension and heartlessness as I have been on this thread by some other posters here. It takes a lot for me to share so openly about my experience, as I know I will face criticism by die-hard alternative fans. But I do it nevertheless, in the hope that it will save someone from making what could be a fatal mistake.

    From what I know, many people don't follow the Budwig protocol (BP) strictly. I probably followed it closer than most. Yes, Budwig never said to drink grapefruit juice, but she never said to avoid it either. Nobody does, as many of you have found out. In my post from the other forum, which Jane freely posted here without my permission, I said I drank grapefruit juice for some 6 months. To put this in the correct context, I did this AFTER my 14-month BP trial, which I did pretty strictly. Why is Jane crucifying me for drinking grapefruit juice, when lots of people don't know that it interferes with medications like Tamoxifen? What does that have to do with the fact that BP failed me? Saying that BP doesn't work for only 10% of people is just plucking numbers from the air. Where's the documented proof that it works for 90% of those who try it? 

    The BP forum moderator started turning hostile towards me when I started posting my negative experience with BP after my 14 month trial. My posts began to disappear, same as for others who had disappointing outcomes with BP. Some of them are members of the BCO board, and they PMd me to tell me as much. So whatever you read there on the BP board, take it with a HUGE pinch of salt.

    We must be careful of all extremists, whether religious, political, or health-based. People have a right to hear all sides of the story, especially if they are making what could be life-or-death decisions.

    I've noticed that the alternative-only posters tend to be rather defiant, combative and even nasty. They are quick to thumb their noses at others. Too many threads have been ruined by their toxic comments and schoolyard antics. This should stop. BCO is meant to be a place where people dealing with a horrifying and painful disease can come and seek information, support and comfort. If women like me cannot come here to share openly. no matter how painful and embarrassing it may be, where else can we go?

    Do you wonder now why I rarely post? 

  • Ang7
    Ang7 Member Posts: 1,261
    edited July 2011

    chillipadi~

    I think this is very sad.  Too many women are leaving this board due to nasty comments.

    I appreciate all that you have said.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2011

    chillipadi - thankyou for your post. I'm so sorry you were sucked in by the BP. I think the alternative only posters are scared which is why they react so strongly. You are proof that alternative only doesn't work and once again I thank you for sharing your story.

    ((((((((((((((((((HUGS))))))))))))))))

    Sue

  • Jane05
    Jane05 Member Posts: 2
    edited July 2011

    I apologize for offending anyone and for jumping in without completing a profile. I worked as a detective for years and still have a compulsion to solve a mystery, find the facts involved and write a report. That's no excuse for not being more supportive of chillepadi who has gone through a very difficult time. I'm sorry for sounding mean or cold. Yes, being more compassionate is a goal I'm working toward. I wish everyone here the best.

  • alamik
    alamik Member Posts: 113
    edited July 2011

    Jane~~~~ I reported your post to the mods because she came here for comfort. It's supposed to be a safe place with no judgement. She is a new member looking for support and you took her thoughts and posts from another forum and posted them here for all to see. IMO, I'm not even sure if that's legal.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Jane, i, for one am very grateful for your post as i would not have found out about the Tamox and grapefruit interaction. Thank you :) Now, I,ll go take an antacid

  • Melizzard
    Melizzard Member Posts: 121
    edited July 2011

    Susieq58 sez:

    " I think the alternative only posters are scared which is why they react so strongly. You are proof that alternative only doesn't work and once again I thank you for sharing your story."

    We're all scared, Sue.  I did alternative only for 4 years.  Didn't cure the cancer, but then, I'm stage IV and there is no cure.  What it DID do was save my life.  My prognosis was a year, TOPS, and that's if I was lucky.  Next March will be 5 years and I just had to start conventional therapy this past April.  So I would say that your sweeping judgement of alternative only isn't totally correct.  Even my oncologist said I was doing a better job than he could ever do.  ;)  If I can extend my Stage IV life with alternative-only, why can't an early-stage cancer be cured with it?

    xxoo

    Melissa

  • sweetbean
    sweetbean Member Posts: 1,931
    edited July 2011

    You know, i just think you need every single item in your bag of tricks to beat cancer.  You have to hit it from every angle. (I realize that there are exceptions - people who do conv treatment and nothing else and go on to smoke and drink and whatever and never get cancer again.  Then there are people (fewer in number but they are there) who do successfully cure their cancer with alternative methods only.  I know that they are out there  because I have met them and i am impressed.  The thing is, I think both groups are taking a more risky method, i really do.  If chemo, surgery, rads is really recommended, then i think it is wise to do.  I also believe that it is wise to look at how you live, what you eat, your stress levels, Vit D levels, etc as well.  Meditate.  Exercise.  The whole nine yards.  I can say I have honestly felt super healthy during my treatment and i did DD ACT followed by a BMX and ALND and 6 weeks of rads.  I'm now on Herceptin and Tamoxifen with very minimal SE's.  I was interested in the BP initially, but became disenchanted because it appeared to exclude too many things that I viewed as valuable.  But if it makes you feel good, go for it.

     Melizzard, you are going to live for a long, long, long  time.  Good for you!  Chillipadi, we all make mistakes.  I think that you are brave to tell your story and I pray and believe that you can beat this.  

  • chillipadi
    chillipadi Member Posts: 151
    edited July 2011

    Luan, you're missing the wood for the trees. Jane spied on me and posted something I had written on another forum without my permission. And you thank her? This kind of behavior should NEVER be condoned. Just amazing. Apple, I'm sure you can relate to how I feel, as Nanay did something similar to you recently.

    In any case, I posted on BCO some months ago about grapefruit interfering with Tamoxifen. Obviously, you missed that.

    Rather than harassing BC sufferers like myself, Jane's "detective" skills would be better put to use finding proof for Budwig Protocol enthusiasts' claims that it has worked for 90% of people. Let's see the evidence! Let's see a detailed, professional report! At least then Jane will be doing some good with her free time.

    By the way Luan, everytime I post about my experience with the alternative route - which is rarely - your reponse has always been impolite, to say the least. You're not alone though. Other people in the alternative-only camp have also been very hurtful towards me. It's as if all they care about is that I'm raining on their parade. Is it so hard to be kind and respectful, ladies?

    Let's remember that this is an open forum, so everyone has the right to share their experiences here, whether you like it or not. All sides of the story must be told, so that those seeking information will not be misled. 

  • Ang7
    Ang7 Member Posts: 1,261
    edited July 2011

    chillipadi~

    There are many hurtful things being said here lately...

    This site has changed since I joined.  Not for the better.

    Hugs to you.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Chillipadi, re grapefruit juice, my own welfare trumps your feelings of indignation at whatever. Re respect, maybe you should show some respect first to people,s sensitivity. Lastly, the Budwig protocol must have been a positive factor in your case, since it was so dire and you are still testifying to it

  • sweetbean
    sweetbean Member Posts: 1,931
    edited July 2011

    Luan, I am confused.  Why do you think that the BP was a "positive factor?"  It clearly didn't work for chillipadi and trying to adhere to it made her delay getting treatment that may have helped her.  And there have been several posts (if not threads) on grapefruit juice and Tamoxifen.  They are over in the hormone therapy board.  In fact, grapefruit interferes with many medications.

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited July 2011

    Luan, you said 'Re respect, maybe you should show some respect first to people,s sensitivity. '

    Chilipadi simply related her experience. If you were 'sensitive' to her experience, you should not have read it. So it is OK for you to be disrespectful and rude because you found her relating her experience to be 'insensitive'? I am astounded at the lack of logic displayed. It is NOT OK for you to be rude and disrepectful.

  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    Luan

    Nothing trumps respect and compassion. Nothing.If in a rare case you have to say shove someone aside to save a life, you apologize for the shoving after the life is saved. I'm sorry chilipadi's experience upsets you so much but you might try to figure out why because she has just related what she did and the consequences in her case and you are so prickly toward her, always. It is so unlike what you post on the holistic thread. It just puzzles me.

    edited for spelling

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    I am not disrespectful nor rude for thanking someone for her post. If you don,t like my comments, then don,t read them. Edited to add: i see now that she belongs to a "certain" alliance...WHICH I DO NOT CHOOSE

  • apple
    apple Member Posts: 7,799
    edited July 2011

    depends on your intent.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2011

    Luan - you said to Chillipadi : "my own welfare trumps your feelings of indignation at whatever"

    It would be nice if some kindness was shown towards women who are obviously suffering.

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