TN IBC + IDC and Questions about Dr. C

I was recently diagnosed with IBC and IDC, both are tripple negative stage 3c, with lymph node involvement in the axillary, subclavicular, mediastinal, and neck region. I stared chemo two weeks ago, and had my second dose yesterday. I am on Adriomycin and Cytoxin every two weeks.

Reading this topic, I made an appointment with Dr. C at Fox Chase, which I have next week.

I have many questions regarding treatment and the upcoming appointment.

1) Aside from usual side effects, the lymph nodes in my neck feel so swollen and hurt, that they make it uncomfortable to talk, breathe, eat.... after two doses of chemo, I see no improvement. When in the treatment process did your lymph nodes begin to decrease in size? Should I worry that my treatment is not working?

2) Which questions should I ask / did you ask Dr. C when you came to see him?

3) I have not had a PET scan - when I asked my primary oncologist about it, he said "you don't need it, we don't do it here." How did your first appt with Dr. C go? How long did it take? Did you have to have tests done at their facility? 

4) Did any of you have a situation where you had one treatment prescribed to you, came to Dr. C and had the treatment changed? How did your primary oncologist react? How willing were you to change it? How did you know it was the right thing to do? My oncologist is fairly well-known in the New York City area, and when I mentioned Dr. C, he said he has never heard of him.

 I am worrying about everything and still trying to come to terms with the diagnosis. Please help if you can answer any of the above questions!