3 weeks of radiation
Hi all. I will be starting rads in June. I wasn't going to do them at all. My surgeon convinced me I should. I told him I have been reading where 3 weeks of rads are just as good as 6 weeks. He told me that the James Care in Columbus, Ohio (which is where I go) is doing a study on the 3 weeks thing and he is all for it. I finally won one!!!!!! So girls talk to your doctor maybe it will be doable for you as well. We certainly will not have to suffer as long! I have said no to tam and als.
God Bless us all !!
Comments
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Hi all. I will be starting rads in June. I wasn't going to do them at all. My surgeon convinced me I should. I told him I have been reading where 3 weeks of rads are just as good as 6 weeks. He told me that the James Care in Columbus, Ohio (which is where I go) is doing a study on the 3 weeks thing and he is all for it. I finally won one
!!!!!! So girls talk to your doctor maybe it will be doable for you as well. We certainly will not have to suffer as long! I have said no to tam and als.
God Bless us all !!
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I have my simulation on June 1. I will be receiving 18 days of radiation, the last three will be boosts. If you search from the word shortened on this fourm you will find posts by those who have done the shortened plan. It is not available too many places.
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I did the full radiation treatments and boosters and am glad that I did. I would rather have had a few inconvenient side effects that go away quickly than to have a shortened version and miss those stray cancer cells. Why even bother at all I guess would be my question.
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My question is why bother with over kill. If they are doing studies on the three weeks of rads and it has shown great results in killing all cancer cells then why bother with just more poison going in our systems. All of this is just a crap shoot anyway. I have been told so many different things by different doctors. It just boils down to :CRAP SHOOT
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The shortened treatment plan is not less rads. It's the same amount of rads delivered in larger doses.
I asked my rad onc about it but the aamount of rads I need is too much for the shortened time - he said the side effects of the dosages they would need to give each time is too dangerous.
Sigh. Six weeks for me.
Leah
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Like you said, this is new and they are just now doing studies. Who knows what they will find. But, I would rather take the "normal" amount of rads and be sure then take a shortened treatment of rads and think I am safe. I would always be wondering..should I have taken more rads since nothing has been proven that the 3 weeks works? Sounds like a dangerous risk of your life and your body to me. But, good luck to you.
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Knowledgeforpower, I assume the reason you are only having 15 rads is because you are having chemo, which is normal. Almost every chemo bc patient has a shortened rad treatment plan, that I know. Cause with Stage 3 and postive nodes, chemo is always recommended. Best of luck to you!
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Hi there,
The shorter radiation protocol is commonly used in both Canada and Europe. There have been tests done on the treatment and in some cases they found the results better than the 25 day protocol
I had 15 rads and 4 boosts..the treatment is stronger but is given over a shorter period of time.
Hugs and Good Luck to you!
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The Canadian protocol has been fairly extensively researched, and isn't new. I had the one-week protocol, and that is still being studied.
My rad oncologist said that the primary reason that more places don't offer these protocols is that radiation centers are staffed and budgeted for 6 week treatments.
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I just wish any or all of you the best of luck if you take, have taken or are going to take the shortened version of rads. I have never heard of it in the United States yet being proven as an effective treatment. I have just read that they were doing trials of it. I would prefer not to be a guinea pig with my life. Good luck!
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My rad onc said, at our first consult, that he thinks I would be a good candidate for the 3-week treatment (IMRT). I haven't seen him again yet to schedule but I plan to ask a lot of questions; I have high hopes. From my reading, I gather that, in appropriate cases, IMRT is as, or more, effective than the standard longer period of treatments. This isn't clinical trial stuff; it's in use in some facilities.
https://www.virginiamason.org/home/body.cfm?id=1024
2005 DCIS left breast/2009 DCIS right breast, both Stage 0, Grade 3 with comedonecrosis, ER-/PR-, HER2? BRCA 1 & 2 NEG!
Dx 2009, DCIS, , Stage 0, Grade 3, / nodes, ER-/PR- -
Just want to wish you good luck tabbygirl if you do the 3 weeks. And yes, ask lots of questions and ask to see long term results with it. That is important! I read the article that you posted and it all indicates that the 3 week rad is still in the trial stage. So, there are no long term studies or patients to show whether it works or not. Or, is there something else there that I didn't see? Good luck hon!
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Jeanne, I don't know where you live, but studies on shortened radiation have been done in the United States and a three-week course has been proven just as effective (if not more effective, by 0.5%!) than six-week course. Check out the news... www.medicalnewstoday.com/articles/122616.php The study was done between 1993 and 1996 and then patiens were followed up after 10 years...as good of long-term as any other studies out there.
Some doctors just don't want to do it because three weeks is less expensive. plus many physicians, unfortunately, are still living and operating on old numbers. Talk to your doctor, challenge him or her, you'd be amazed what they tell you once you press them for more information. Good luck!
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I'm starting tomorrow (I'm in the UK) for 3 weeks... my schedules says each session will be 12 minutes, if that's any help
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ekf, the article you referenced is a report of the Canadian study on 3-week radiation even though the report was presented at a conference in the US. Of course, I don't think that the effect of radiation on cancer cells or breasts changes at the border but there is one possible issue that concerned my rad onc that may not be addressed by a Canadian study.
Both Herceptin and BC rads may interfere with heart function. Of course they do their best to choose angles to avoid exposing the heart to the radiation but they can't be sure it is getting none of the dose especially when radiating the left breast. Because I'm on Herceptin, my rads onc didn't want to give me the higher dose without studies that reported on the safety for women on Herceptin. The Canadian study didn't report whether the women were on Herceptin. I know that in Europe, Herceptin is usually give for 18 weeks so a women getting rads is done with it but in the US it is usually given for a year. I'm not sure which is usual in Canada. I hope that some of the trials of 3 week rads underway in the US will report on that for women going through this in the future. I felt that my rads onc was being over conservative particularly since Herceptin has so far had a negligible effect on my LVEF, but I understand his position.
There is another limitation of the Canadian study that applies to me. The Canadian study excluded women with large breasts due to concern that the higher dose would hurt the cosmetic results for those women. To be in the study, you had to have negative margins, negative lymph nodes and not have large breasts. Something has to be under 25 cm for that last one, but I'm not sure how the measurement is done. I was more concerned about this one than the Herceptin one but it didn't concern my rad onc.
BTW, my HMO owns its radiation facility and has doctors on salary. My rad onc had no financial incentive to do 5-week rather than 3-week. The HMO got a $10 co-pay for the rads consultation visit either way and there were no co-pays for my treatment including the rad onc visits during treatment. Any financial incentive is to treat as cheaply as possible as long as that doesn't produce a recurrence or side effect that they also have to treat (though I feel that they aren't driven solely by that and that I have received excellent treatment). They are participating in a clinical trial of various shorter duration treatments but not at the location where I was treated.
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My RO did her residency at MD Anderson and now is on the faculty of a teaching hospital and on the staff of its comprehensive bc center, and she has recommended the Canadian/European protocol to me. She says that the slightly higher dosage doesn't present significantly more SEs and in fact may do a better of job of zapping the cancer cells (I have a pesky mixed IDC and ILC tumor). I had my simulation today and will begin very soon. Anyone else out there having this protocol? I think the plan is that I'll be having 17 rads and 5 boosts.
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I met with RO today and will be screened for the Canadian protocol. Don't know yet if I qualify. I know the breast measurement will probably be the key. He told me that if I am 1 cm off, he will not do it. It has to be exactly within the guidelines. So we'll see. My RO also had a fellowship at MD Andersonin Houston. This isn't experimental.
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No, I know it's a well-established regimen, but it still doesn't seem to be done much in the U.S. (?) Just finished my first week of treatment (sort of. power outage on Tues., so had 4 rad sessions this week). When she examined me this week, my RO told her resident that they need to write up their findings in an article about the treatment. She seems to think there are less skin SEs with this regimen. We'll see. I'm the queen of skin rashes, etc. Good luck!
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I will be having doing the 3-1/2 week treatment option. My simulation is scheduled on 7/11.
So first week went ok? I'm really nervous about all of this, to say the least.
Lucy
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Glad the shorter treatment works for many women. FWIW, my RO recommended the 6 week treatment for me since I have a rare bone condition and was concerned about possible SEs with my bones. (I got the lowest effective dosage each day vs. higher dosage on fewer days; he was also able to avoid my sternum but said I was lucky to have "good anatomy."). So I think the shorter treatment cycles may work for some women but not everyone.
Good luck everyone starting rads. I was nervous on my first day but quickly fell into a routine, if you can believe it. The best advice I got was to walk 1/2 hr a day to keep my energy up, esp. when the fatigue set in halfway. Plan to take it easy the second half of treatment. Be good to yourself and your body. It's doing amazing things.
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Good luck to everyone, whether its the standard or shorter. As for me, I was given the option of the Canadian protocol but just felt that more treatments at a lower dosage per treatment was preferable both to my skin and also to blasting any stray bc cells. Nothing reported at the time I was treated about the shorter protocol being "better", but there were some concerns about it being more damaging due to the higher dosage per treatment and I did feel like a bit of a guinea pig if I'd gone that route at my place. It is a less expensive treatment plan, which in a socialized medicine environment unfortunately is a factor.
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Saw my RO yesterday and she said I'm looking good so far. Holding my breath.
I was a bit concerned about the hypofractionated dosage, but overall I am having slightly less total Grays of dosage (I'm having 42 Grays) than with the standard US protocol (which is about 50 Grays, I think). I do trust the studies in Canada and the U.S. that have been done in this area and also my RO.
My situation is strange anyway, since I'm having WBR-- the cancer wasn't in my breast proper, but smack dab in my armpit. So I'll be having 17 WB rads and then 5 boosts to my axilla.
Good luck, everyone.
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I am starting this protocol on Thursday, of this week. Nervous, but I've made my decision (finally). Got my tatoos yesterday. Ready to get this over with!!!
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Good luck LucyLane. This whole decision making process has it's own special stress. Congrats on making a decision and fingers crossed that is goes well and relatively uneventfully. Don't forget to pamper yourself.
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Well..I guess its woman's perogative to change her mind. Chickened out and switched to conventional path..5 weeks and possible boosts. Had complete emotional breakdown last 3 days (many contributing factors)..but feeling better now. Start rads on Mon. Yes..pampering in order. And time to focus energy on saving my skin..as best as I can
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LucyLane, sounds like you're happier with the new decision. Your new choice is the most conservative approach and has the longest track-record. (and it was my choice, so of course, I'm biased). Good luck with the rads.This may seem hard to believe, but after the first few days, I wasn't so nervous and fell into a routine. (I finished the week before Memorial Day and the memory of the whole experience is beginning to fade, hard to believe....) Can't remember where I posted this, but it's best to show up with completely *clean* and dry skin (I was putting aloe gel on about 1.5-2 hrs before my rads. Too close to Tx). So just-showered clean skin is best, 2++ hours dry (or more) if you can do it. You can put gel on immediately after rads. And even though part of my skin peeled, it healed quickly. Good luck. You can do this (and we're here to cheer you on!
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Thank you so much for the encouragement. Tomorrow is the 1st treatment. Time to get this over and done with!
Lucy
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Good luck!
Each person should feel comfortable with her own treatment plan. According to the studies that have been conducted, the Canadian protocol has good results--if you're a candidate for it.
http://www.breastcancer.org/treatment/radiation/new_research/20100210b.jsp
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Hope it goes well Lucy. Even my techs said the the first day is the most nerve wracking for patients.
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I am hoping to have the canadian in prone position. I go for the simulation tomorrow. My lumpectomy cavity is directly behind my nipple. This is a concern to my Rad Onco who feels that I will probably have alot of soreness or sensitivity to the nipple area. Has anyone else had this situation? Are there creams to help? How did you handle this? I am hoping I am a candidate because of all the things going on in my life I can not mentally deal with 6-7 weeks of whole breast rad.
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