Complementary and Integrative Approach to Healing
I am tired of trying to participate on BC,org, discussing Complementary and Integrative Healing when all efforts to have this discussion are turned by a poster into a Platform for her anti-chemotherapy posts.
I will not have my screen name associated with that kind of information. I do not want to facilitate the propaganda about "miracle cures." Please continue this thread as you wish, I want nothing more to do with it.
Comments
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Excellent new start. Thanks.
I am curious about acupuncture. Both for stress relief and anti inflammation. Can you share more personal info on your experiences?
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pip -- great minds think alike! I was about to ask the same question. Would really, really appreciate more info on acupuncture. As I've said before, if it's been used for eons, then it must work!
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Acupuncture. Oh, I could go on for hours. As specifically as I can. I had severe pain in the first 3 months of taking Arimidex, as well as weakness in my legs. After the first session, I nearly bounced down the steps from my acupuncturist's office. I can't remember how often I went, maybe 2 times a week for a month? Now go 1 time a month, and when I look down at my knees, I see 2 porcupines, and I have no more knee pain. It is plain ole age related osteo-arthritis, and I am grateful to be one of the people helped by acpuncture. More energy too. I checked with my concologist before going to an acupuncturist, they agreed many people are helped with SE's of the AI's.
I call my acupuncturist, and my massage therapist ( trained by Tracy Walton in Boston, MA) the "Bookends of My Well Being."
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Thank you for starting this thread. I also have done a lumpectomy, radiation, chemo, and now Femara.
I am trying to incorporate a healthy diet that includes 7-8 servings of and vegetables,fish,chicken, and the occasional red meat.
I am also trying to eat glutin free. I find it really does make a difference. My Onc. has upped my vitamin D3, I take a muti vitamin, fish oil, L-Glutimin for my neuropothy,
I've just started really trying to get some exercise. I have a rebounder will see how it goes.
I'm sure there is more I'm doing, but this is what I can remember at this moment.
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me again. I can't explain why acupuncture has made such a difference for me, I can only tell you I recommend it to any friend who has joint pain, especially age related osteo-arthritis. Hope some others will add their experiences.
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I have been doing yoga and accupuncture. I have found that the yoga has increased my flexability and strengthen my core. My body has actually changed since doing yoga. I have had 15 nodes removed from left arm and 5 on rt so I am aware of lymphadema. Yoga seems to get all the lymph juice flowing. I was getting accupuncture every 2 weeks for hot flashes. My hot flashes are now tolerable.
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I have done acupuncture (together with chinese remedies) on and off for years for various issues, and I truly believe it helped with each one of them. I however, did not follow through with changes to diet, exercise, etc... I just kept treating symptoms.
I have learned my lesson.
When I was dx with bc I called up my acupuncturist, who said he could not treat my cancer, but could help me have the best environment possible to be strong for conventional treatments, etc... I truly believe it has helped me with the stress of this journey and the SEs of chemo and Tamoxifen, (This time I am following through with and have changed my diet and am exercising, doing yoga, etc...)
Edited to correct spelling and grammer (hopefully I corrected them all).
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Hi Sunflowers.....
On exercise. There are several things I do. The first is to set goals, and then tell my friends, so I look really shabby if I don't meet them. You can start small. Almost anyone can walk a 5k. But you do have to train even to do that one.
The other thing is to do things you like. I love to cycle. It gets me out; I meet people; I see the sights; and it keeps me in touch with the changing seasons and associated sights and smells. I get sensory deprivation if I don't do this.
The weights/crunches I do are to maintain muscle mass and to keep me toned. They are boring, but effective. They take up minimal time during my day and get my brain revved.
If I can move at all, I get in a minimum of a one mile walk. Even when I was limping like you wouldn't believe three weeks ago.
I have been to Western MA, so you have NO EXCUSES in terms of wonderful places to explore on foot. You can go out in the morning before it gets hot. (Although if that hot, I go swimming in Lake Washington or Green Lake.)
Some women grab a friend and walk around the local track and chat, but I find that sort of thing boring.
I do errands on foot. So I walk up a considerable hill and look at gardens, see the sights, and then go to Trader Joe's. Then I drag the groceries one mile home. Stuff like that.
Forgot to mention that my mood is great when I get out too.
Hope these help. I would summarize exercise as three different things:
- Goals to work to
- Easy/fast things everyday to maintain fitness
- As many errands as possible on foot, or other activities that build exercise into your life
Thanks again for starting this thread. - Claire
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Very interesting and informative information. Thanks for starting it CS.
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Thanks, Claire! I was hoping it would be YOU to be the Exercise Guru for this thread!! SO inspiring for anyone with bc to read your words. THANK YOU.
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I almost want to bless this thread and wish it "Godspeed" - but then, for one, I'd have to be religious and, for two, I'd have to be a priest.
So CS, I just thank you.
So I have a question for everyone here and was curious to do a mini poll:
--What was the most difficult/heart wrenching/logistically challenging thing you do or have done (besides standard medical treatment) to try to reduce your risk of recurrence or, if you are Stage IV, to improve your quality of life?
My answer: quitting smoking!!!
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I'm trying to lose weight. It's not easy .. slowly but surely.
My only exercise is in my yard .. I'm sure an exercise routine would help, but I just can't get myself to do it.
Bren
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FABULOUS QUESTION, Athena
My answer, and believe me it's a work in progress that is not progressing well, WEIGHT! I stopped smoking about 35 years ago, cold turkey ( when ciggies were 50¢ a pack, so cost me about $1.50 a day) and until trying to lose weight at age 66, after chemo & on Arimidex, I thought stopping was the hardest thing I'd ever done in my life. SO, don't give up on the quitting. And thanks for inspiring me to start Yoga, again, again, again.
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1Athena 1 good question what has been the hardest part for me. I guess I would say having my glass of wine with dinner. Having ILC I felt it was important to cut down to only weekends now, but I must admit I miss that glass with dinner.
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Changing my thought process with eating. Food is now my medicine. Difficult at first...much easier now.
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Athena, me too, quitting smoking was the hardest thing I did. And it has been one year, one month, 12 days and 11 hours and 56 minutes.
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I'm right there with Bren.
Never, ever smoked, so that wasn't an issue. Drank a small glass of wine with dinner each night, but rarely drank socially; cutting out the regular intake of wine has been easier than I thought (now that dh understands I'm not trying to be anti-alcohol). But, trying to get myself to exercise regularly has been, and is, a hurdle I haven't overcome.
I used to live in one of those nice, cool, northern states where the weather is suitable for outdoor exercise most of the year (ahem... Claire?). Being a student, I was not allowed to park on campus; so I walked a lot. I was forced to walk a lot -- at least 3 or 4 miles a day, just to-and-from classes, usually a lot more.
Then I graduated, moved south where it's beastly hot much of the year, and got a job that permitted me to park less than 100 feet from the door of my building. Now I'm retired, so I have more time but still haven't figured out the climate thing.
Those are all excuses, of course. If I was really motivated, I'd figure out how to get plenty of exercise even though the temps are in the upper 90's and the heat index is above 110. Sure, I would. <sigh>
Apparently, my real problem is lack of motivation. Sometimes I think if my onco or PCP would just write me a prescription ordering 30+ minutes of moderate exercise every day, I could do it. I'm good with following orders.
otter
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otter, I sure understand the problem with exercise in the south. When it's in the upper 70's at 6 in the mornning with 90% humidity it makes it hard to do anything outside. To add to that every day this week it has rained by about 9 in the morning. UGH!
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Otter: I think it has to be partly vanity that makes me walk 15 minutes in the blazing sun to my club for exercise. Trying to move in the heat is awful - how I loathe hot weather! Did I mention how much I hate it? :-) So you have my sympathies. Sometimes, the only way I will get out to exercise is by waking up at 5 am. Won't be caught dead doing otudoor sports in anything above 55 degrees, I should think. And it has to be in the shade.
But all that effort is so worth it for me. It makes me feel more powerful generally. Strangely, exercise doesn't do anything for me moodwise one way or another.
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Great question, for me eating the right foods (my DH complains about the cost of organic fruit/veggies), not using that as an excuse, but it is an added element in trying to eat the right foods. So I struggle to find the balance.
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I have really had a hard time with the cost of organic fruit/vegetables as well. One solution for me has been using a rinse to clean anything I buy. For now I have made the decision to buy hormone free meats, and milk products, this is all I can afford to do at this time.
I am also planning to start gardening/ We have a very small yard, but a small garden is better than none.
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What a great thread, and lots of great inspiration! Definitely my hardest thing has been exercise, and it's just honestly so foreign to me! I'm in the process now of enrolling in the ENERGY trial (Exercise and Nutrition to Enhance Recovery and Good Health for You) through UC San Diego. I'm hoping that by committing myself to the study and being accountable, I'll somehow develop better habits.
If any of you happen to live near the four study sites, I'd highly recommend looking into it!
University of Colorado Denver
University of California San Diego and Los Angeles
Siteman Cancer Center - Washington University in St. Louis, MO
University of Alabama Birmingham
Edited to add links:
NIH Clinical Trial info: NCT01112839
USCD ENERGY Trial
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There's an excellent new post on the BCO blog about exercise. Click the link or go to Blog way at the top of any page. Your exercise comments are welcome there too!
Judith and the BCO team
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Moderators, Thanks for the link. There really is alot of good info there.
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Yey for you, Barbara. I used to have some really nice "Quit meters" - I can't be that specific at the mo' but it's been roughly 26 months and 20 days for me.
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So glad everyone is finding this thread useful.
I HAVE ANOTHER QUESTION: probably not as good as Athena's , but here goes:
If you have SE's from an AI ( aromatase inhibitor: Arimidex, Femara, Aromasin) what is the thing that you think made the most difference, improvement for you? I'm always looking for what else to try.
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Keep moving; exercise, exercise, exercise.....that and giving your body time to adjust.
As far for the hardest thing; I'm with pip on adjusting my attitude towards food. I will never totally get there (actually don't want to), but I am working on it....trying to eat a better diet during my daily life and saving the high calorie, fat ladden foods for special occasions.
Kira, I was just thinking about the high cost of trying to eat healthy yesterday. I had been out of town for a week so went to the store to stock up on the fruits & veggies. Wow! I couldn't believe the bill (I usually only buy a few items at a time). I thought, no wonder there is an obesity problem in the country. If you were a poor mom with several kids, you would have to buy the macaroni and cheese just to fill them up. You wouldn't be able to afford healthy choices. Very sad.
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Caerus, Bosweilla, which I just recently started taking, is helping with my joint pain. I'm not on an A/I, but I use I3C, a natural estrogen modulator which causes the same joint pain as the A/Is -- at least for me. Bosweilla (or Indian Frankencense) is an aruvyedic supplement. I have also been working on going gluten-free, and that's made a big difference, too. I'm not 100% there yet, and I really notice a difference when I occasionally eat something that contains wheat. I also walk an hour or more a day -- something like 4 to 6 miles, depending on the weather. Deanna
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Athena's question
-What was the most difficult/heart wrenching/logistically challenging thing you do or have done (besides standard medical treatment) to try to reduce your risk of recurrence or, if you are Stage IV, to improve your quality of life?
I think this is such an important question, I'd like Athena's permission to add it to the end of the original post I used to start this thread.
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On organic.....I buy local even more than organic. I have found a place that is about half of what the other places charge. But fortunate to live in a city where a wide variety of wonderful fresh foods.
The point I am making is that it's often worth shopping around.
I haven't had any SEs from anastrazole worth mentioning, but I will say that a good sports injury takes my mind off minor aches and pains. Right now, it's my ankle which is still swollen and sore (the STP didn't help here) and earlier this year, I pulled my lower pec really well x-country skiing.
Think the hardest has been maintaining the discipline to exercise. Weights/crunches are boring, but they make such a difference. In all sorts of ways:
- Enough muscle mass to burn off what I eat. Remember I can eat more that a lot of women and maintain my weight.
- The strength to do the things I want to do. (Or get invited to moving parties!)
- Support of my joints. This is important in terms of my back and knees.
- Looking fab.
One other comment I would make about exercise is that I think the norm is to come through chemo/radiation with a major loss in strength and muscle mass. Which is why I worked so hard to maintain mine, and exercised throughout. It did come a bit, but I kept my core strength.
I knew if I didn't do this, I was in for major weight gain, and other things I did not want to happen.
I still need to take off about 10 pounds, but have decided that not urgent. I am fit and healthy, and that is the important thing. - Claire
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