Medical Industrial Complex

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  • thenewme
    thenewme Member Posts: 1,611
    edited July 2011

    Hi Lynn18, it seems to me that the "socks" are here simply for their own entertainment (or financial reasons, as you refer to the constant linking to the same commercial sites. UGH!).  They claim to be trying to share information or discuss ideas, but in the end they refuse to discuss anything, instead just posting plagiarized nonsense, links, and cartoons and stirring the pot.  Apparently they think it's all a big joke.  Those of us who come here to legitimately participate in this breast cancer support forum can get really disgusted and disheartened. 

    Hi Britchik, you said, "Of course, the majority of the newly-diagnosed make careful decisions using critical thinking... most of the time, BUT.....anxiety is powerful. I hear misconceptions every day from very intelligent, reasoned people. Not just occasionally -- every day. That's a normal human reaction to an upsetting situation.

    It's grossly irresponsible to create a thread that promotes harmful, scare-mongering propaganda."

    I couldn't have said it better myself!  Thanks to you and other posters who challenge the propaganda and help to correct misinformation!  It's my bugaboo too, and I appreciate the fact-based logical and informational posts!

    ETA - Lynn18, edited to add to clarify that I agree wholeheartedly!

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited July 2011

    As usual, Britchick said it so well.  I really value her opinion as she is on the front lines.

    The whole tone of this thread (Medical Industrial Complex) smells strongly of "conspiracy theory".  Those who support this theory find it OK to trash those whose lives are dedicated to advancing medical science and saving patients from near-certain death.

    This can sound so plausible when twisted by some of the writers of the "conspriacy" posts.  Yes, much of this treatment is harsh, as it needs to be to kill cancer cells.  Not everyone does well, and some endure this treatment only to discover it didn't do its job.  Some have bad reactions.

    On top of this, no one whats to sign up for six months of major hammering when "gentle herbs", "relaxation", and "good thoughts" could potentially do the same thing.   Unfortunately, they do not replace conventional breast cancer therapy, or at least there is no EVIDENCE (other than anecdotal, which doesn't count) of their effectiveness.

    This is why I have the utmost respect for those like Britchick who devote their lives to making sure we get to live out a full life span.  Not just the medical portion (right therapies) but also educating us as to why so important to do what is recommended.

    Alternative" therapies can be used in conjunction with standard protocols, and that is called "integrative medicine".

    Which is what most of us do in some form or other.

    But what an education this thread has been!!  It should be required reading for anyone starting out in oncology.  Because this is the nonsense that Britchick and her colleagues face every day in treating frightened and vulnerable women.

    Britchick's work is cut out for her. 

    Not because she is a member of the "Medical Industrial Complex", but because every working day of her life IS DEVOTED TO SAVING LIVES. I have nothing but admiration for the work she does. - Claire

  • thenewme
    thenewme Member Posts: 1,611
    edited July 2011

    Wow, Claire - yes, yes, yes, and YES!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Thanks Claire, so sad that some people just won't listen, but keep posting, and when a post is questioned - refuses to answer.  Still like that Canadian link referring to the important and validity of chemotherapy.  Have shared it widely.

     In case you didn't follow the link Susan posted earlier in this thread, it led to this:

    Why have chemotherapy after you've just had surgery to remove the tumour?

    Cancers are made up of billions of cells that can travel from one part of the body to the other. Cancers that develop away from the original tumour are known as metastases. When only a few cancer cells have traveled away from the original tumour, doctors may be unable to detect them even with sophisticated scans and blood tests. These tiny metastatic deposits can grow and ultimately cause incurable disease.

    Because we cannot detect these tiny metastases we need to learn from the experience of other women over years of research, which patients may be at a high risk of recurrent disease at some time in the future and which patients may be cured with surgery alone.

    The goal of chemotherapy is to reduce the number of recurrences and to increase the number of women who are cured after a diagnosis of breast cancer. Research has shown that both premenopausal and postmenopausal women benefit from chemotherapy, and that chemotherapy given at the time of diagnosis can significantly reduce the risk of the cancer recurring.

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited July 2011

    I think we can all agree that there should be oversight of drugs for safety.

  • kira1234
    kira1234 Member Posts: 3,091
    edited July 2011

    Britchick,

    I am so very thankful for the many people who work at the medical centers. I have had great care at moffitt, which is of course a medical center.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Susan kept posting she wanted "proof" - and here is the answer from the ver site she took statistics out of, and yet hasn't commented on this part of the article.  I expect, given that it is a Canadian site, the research they cite would be available to anyone interested:

     In case you didn't follow the link Susan posted earlier in this thread, it led to this:

    Why have chemotherapy after you've just had surgery to remove the tumour?

    Cancers are made up of billions of cells that can travel from one part of the body to the other. Cancers that develop away from the original tumour are known as metastases. When only a few cancer cells have traveled away from the original tumour, doctors may be unable to detect them even with sophisticated scans and blood tests. These tiny metastatic deposits can grow and ultimately cause incurable disease.

    Because we cannot detect these tiny metastases we need to learn from the experience of other women over years of research, which patients may be at a high risk of recurrent disease at some time in the future and which patients may be cured with surgery alone.

    The goal of chemotherapy is to reduce the number of recurrences and to increase the number of women who are cured after a diagnosis of breast cancer. Research has shown that both premenopausal and postmenopausal women benefit from chemotherapy, and that chemotherapy given at the time of diagnosis can significantly reduce the risk of the cancer recurring.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2011

    MOC - can you edit your post above to say 'Susan' not 'Susie' - I'm not her and she's not me and I agree with you all as you know. BTW - I realise it's a typo but I don't want to be thought to be anti conventional at all.

    Apple - why the reference to Australian hours? The way I see it, is some people seem to have nothing better to do in the early hours of the morning over there.

    Sue

  • thats-life-
    thats-life- Member Posts: 1,075
    edited July 2011

    apple..i am curious and concerned at the reference to australia too...i have only been aware of one australian member who upset long time close members on the update thread. If you are implying that australians are in cohorts then you dont have an understanding of the vast distance and differences between us in this country. we come to this board because we can feel isolated. i, for one, know of only one woman at stage IV within 75 kilometers of me. and our boards are, sadly, very quiet and slow. I, and im sure many newbies, come here for information. thankyou maria malta for your input. we are not stupid. any possibility of gathering information other than the huge threads on symptoms and side effects of conventional treatment is thwarted. IM sure you all feel you are very successful in controling threads. but it is censorship and goes against freedom of speach. I am wondering if there is a place here for anyone who thinks outside the square. the bottom line is that it is fear of dying that drives most to chemotherapy and intense treatments that have not improved outcomes much at all in the last 30 years. It must be confrontational to see that there are people who are willing to confront THAT fear, and risk living by their beliefs, and approach treatment in a different way.

    I  have come to agree that the long term members with solid friendships and healed bodies dominate, ostrasize, control, and yes, enjoy it.

  • thats-life-
    thats-life- Member Posts: 1,075
    edited July 2011

    p.s susieq, there is another person posting as susieq with slightly different numbers after the name, she just posted on the stage IV forum, maybe that is why there is some confusion?...

    to others:  to spend time watching who's checked in/out??? boy, i wish thats all i had to worry about each day

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited July 2011

    Hey, that's-life,

    I think Apple was actually referring to the piano forum for which she is a volunteer moderator, and "Australian hours" is simply a reference to night owls!  I live in the U.S. and I keep "Australian hours" because I'm always up until 3 AM, and often until 4 or 5 AM!

    Peace!

  • thats-life-
    thats-life- Member Posts: 1,075
    edited July 2011

    no, i dont think so ann, apple has refered to an australian in the complaints forum..it is bordering on paranoia around here, everyone checking everyone out...it is THAT which is weird and stressful to see every day....it freaks me out. reading everyone's 'suspicions'..im so sorry leia, that your OPINION and thoughts have been overshadowed by yet another bombardment.

  • thats-life-
    thats-life- Member Posts: 1,075
    edited July 2011

    and for the record, australian hours are boring as hell, unless your into recipes. I use that time in the evening to read up on the vast body of information on this board. sorry if that has been interpreted as trolling or stirring up trouble..

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2011

    Thanks that's life I might change my name again and become my own sockpuppet :)

    I've only come across one very nasty aussie on here

    Sue

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2011

    MOC meant to type Susan (SusanK8) - I know she wasn't talking about me.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    I was sure that Apple's comment about Australian hours referred to the hours that the Australian moderators would be monitoring that Piano forum while Apple and the other American moderators are sleeping. 

    It seems like people need to take a couple of deep breaths. 

    Believe it or not, even on a thread as contentious as this one has been, not everything is a personal attack. 

  • thats-life-
    thats-life- Member Posts: 1,075
    edited July 2011

    i am aware of what is personal and what isnt, i am just tired of all this sh**t

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited July 2011

    Luan hasn't come back yet with news of her onc appointment today.  Please let us know if you are OK Luan.  It must be evening there and I'm stressing about your results.

  • thats-life-
    thats-life- Member Posts: 1,075
    edited July 2011

    yes luan, fingers crossed for you x

  • kira1234
    kira1234 Member Posts: 3,091
    edited July 2011

    Luan, Let us know how it went.

  • apple
    apple Member Posts: 7,799
    edited July 2011

    sorry If I've made anyone.. anyone feel bad.. that certainly is not what I am about.  I think we should be kind to everyone.   

    That's life.. I'll see you in the stage 4 forum.  I'm sorry if I made you feel bad.

    I'm out of here..

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2011

    Apple - I just wondered about your reference to Australian time - no one is having a go at you at all.

  • Ang7
    Ang7 Member Posts: 1,261
    edited July 2011

    Oh Apple~

    I have found your posts to be encouraging and informative.  Thanks.

  • Ang7
    Ang7 Member Posts: 1,261
    edited July 2011

    Sorry, maybe I took it wrong also...

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2011
    Apple - I love your posts!!!!!!!
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2011

    To add to my previous comment about people who have nothing better to do in the early hours of the morning - I was referring to the ones who seem to spend a lot of time finding pictures to post ad infinitum on here.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited July 2011

    Apple - I like you new apple - what does the 4 stand for?

  • kira1234
    kira1234 Member Posts: 3,091
    edited July 2011

    apple, as a music minor I totally understand what you are saying. There is no reason to apologise.  Please don't just just go to the stage 4 forum. you have so much to share.

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited July 2011

    Apple, please stay, I'm Australian and wondered what you meant, but of course, the expression makes perfect sense.  I look forward to your posts, you always come across as a lovely person and I feel a great fondness for you.

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited July 2011

    Rainbow Pony, this forum is for BC support over and above anything else.  I don't think our concern for Apple and Luan deserves to have a massive comic stuck in the middle. It's so disturbing.  I'm worried sick about Luan.  Have a heart.

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