Chemo May 2011

Options
1474850525377

Comments

  • 40-years-old-now
    40-years-old-now Member Posts: 309
    edited July 2011

    Ok I have been feeling like a burden.

    BUT I had this thought the other day.

    I know why I have cancer it is because we are all tooo productive!!  LOL

    explanation for when we have chemobrain- we are producing the cells too well thus the cancer.

  • Cyborg
    Cyborg Member Posts: 848
    edited July 2011

    Thank u everyone! I don't feel as craZy. Oh! And I am taking antidepressants and I will need to change what kind cause of the interactions with the pending tomaxifen. Make sure to check the interactions !!!

  • Patriotic
    Patriotic Member Posts: 281
    edited July 2011

    Beagles girl, MamaV and Cyborg, I hope this is not the new "normal," because, if so, it sucks. All of this is severely depressing. I have never been depressed before or felt the need to get a therapist but maybe, it's worth a try. There are also family resentments brewing. I understand most people have their own lives; jobs, families, kids, responsibilities, etc. But, you expect family to help or at least, offer to help, in a crisis, and when they dont, you really feel betrayal. This is not good for our overall health, either. In some ways, this psychological mess is worse than the damn cancer eradication!! :)



    Blonde lawyer, I get the crushing headaches, too. The Onc's office claims they are not "usual" on Taxol but, those who've experienced it say otherwise. With AC, I thought the Cytoxan is known to cause headaches. I also don't fear cancer spread because the headaches only seem to occur around days 3-5 after treatment. To me, this is the most debilitating of the SE's. Feeling your pain.

  • txladysara
    txladysara Member Posts: 52
    edited July 2011

    Is anyone having trouble w/ their sleeping schedule? I am, somtimes i go to bed at 10am and wake up 4pm even worse i have gone to bed till 2pm and gotten up at 630 or 7pm, its horrible. :(

  • blondelawyer
    blondelawyer Member Posts: 327
    edited July 2011

    txladysara:  Are you taking steroids?  Those can really throw your schedule off!  If you are routinely having sleep issues I would bring it up with my onocoligst and he/she may be able to help.  You need good sleep during all of this!

  • txladysara
    txladysara Member Posts: 52
    edited July 2011

    blondelawyer well they give me steroids through a drip at the drs, but thats about it. I will mention it during my next visit. I do have xanax for aniety but rarely take it and i know that will help me sleep but i just never take it :(

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited July 2011

    Morning ladies,

    I just wanted to say that I'm sorry everyone is dealing with family issues and feeling depressed.  I feel like a couple of friends have abandoned me, one I'm actually thankfull for, she cleans houses for a living and when I was having issues with my incision site and was told not to lift/move my arm I asked her to help my husband by coming over and doing a light cleaning in our main rooms and she was kind enough to only want to charge me 1/2 her normal price.  Now, I've been cutting and coloring her hair for FREE for about 10 years.  AND what's worse, she's so stuck on herself that the one time she came over to visit me all she could focus on was my hair loss and how she wouldn't be able to handle it.  I really need to move on but I get so annoyed thinking of her selfishness.  Stress is so bad for all of us and we all need to learn how to let it go, I keep thinking I'm going to try meditation but forget to look into it.  Has anyone else tried it?  Txladysara, what a good idea! 

    Hope everyone has a good week.

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited July 2011

    I'm here for my first taxol... Scared all over again. Damn I didnt think I would be :(

  • txladysara
    txladysara Member Posts: 52
    edited July 2011

    Hope it is going well w/ you beaglesgirl, sending prayers your way. :) Mccrimmon glad you liked the idea. Well my sleeping pattern is really really bad. Early this morning I was on my netbook sitting on my kitchen table when I got a bad dizzy spell, this freaked me out, I had to hold on to the table. Good thing is that it was over very quickly 15 seconds max. But I felt clammy afterwards and it did scare me so I went ahead and lied down on the sofa for a bit, saw some tv show then went to bed this must of been around 8am, fell asleep quickly which was great but was awake by 10am and couldnt go back to sleep grrrrr. Not feeling great, not feeling that bad either but have been having major tummy issues and now I think I have hemroid to top it off. Told the Dr. about it yesterday and told him i have been bleeding when I go and he said that I should do Colace first if that doesn't work to go ahead and try miralax, i did take a colace. Well while i was still in bed this morning I got tummy pains and chills. Ofcourse this scared me again but... they went away didnt last too long. Grrrr i hate that I get scared right away.   

    Beaglesgirl I got my first Docetaxel yesterday, I think Taxol is from the same family and it went well.... it was way shorter to aminister than FEC, so I was happy to be home earlier. I was feeling regular during the first part of the day and just not so great in the evening. I really think it's my sleeping schedule isn't helping at all. I am sure that you will be fine. :) I am 2/3 over have only two docetaxel left Yay!!!  So you have a blessed day.  

  • neecee
    neecee Member Posts: 663
    edited July 2011

    I have been reading with interest everyone's struggle with support during this time.  I thought I was the only one with dysfunctional family and friends.  I guess not - it is a cancer thing.  I don't understand it at all.  It is like everyone dropped off the face of the earth.  Some will respond if I post on Facebook or CaringBridge, but other than that, I don't hear from anyone.  What is with that?  What I have isn't contagious.  I am still me.  I am still working and living.  I am baffled.

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited July 2011

    neecee, my husband is pretty social with the people that he works with, he told me about a month ago that alot of people that used to come up and chat with him completely ignore him now.  I guess they don't know what to say so they can't even be nice enough to say hello.

  • neecee
    neecee Member Posts: 663
    edited July 2011

    mccrimmon - my husband has experienced the same thing.  Our phones have just stopped ringing. It is like we have the plague or something.  I truly do not understand.

  • MamaV
    MamaV Member Posts: 907
    edited July 2011

    Yup. Me too! Boss is a heartless SOB and coworkers are "complaining" that I'm getting special treatment. You want some of my special treatment????? People just suck.



    How's that for a bad attitude? Ha ha!

  • neecee
    neecee Member Posts: 663
    edited July 2011

    That is one place I can't complain - work.  My boss and co-workers have been wonderful.  I am very thankful for that.

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited July 2011

    I have to say that my work has been wonderful and very understanding.  It's just me and 4 guys, sometimes I think they let me do whatever I want so I don't cry.  My boss especially can't handle when girls cry so he's always very nice to me.  LOL. 

    MamaV-The next time someone accuses you of getting special treatment definitely offer some of yours!  I bet that would shut them up.  I just don't understand people.  They can be so self absorbed sometimes!

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited July 2011

    For years I called my home the island of misfit toys. It was the home where you might go for the holidays on that awkward year when you where goin though a divorce, if your parents were too involved in there own disasters. My home was open to the broken and misplaced and we always had great time no matter what was going with my life.



    Now I'm going to have to change it to the house of leperasy - since no one even comes near. My life is all consumed with the fight with the beast. But I can't help but think to the future when im better ---- and my life will not be so open to others... I will be sooooo much more deliberate in who I give my time and energy to, family or not.

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited July 2011

    MamaV - I was in upper management when Alan passed away and I had a stroke... As the weeks went on the care and "love" ended from my employer. I too became a burden. Luckily for them I was deemed unable to work, you can't very wellcompensate someone 6 figures when they have huge blanks in their memory.



    After three years I still need 20 or more alarms tomkeep me on task here at home. But I won't need to write this down about being let down by the ppl in my life. Something tells me that this is going to stick.

  • singlemom1
    singlemom1 Member Posts: 434
    edited July 2011

    Hi everyone, I hope you don't mind if I join. I started AC in June so I am on the June thread, but I just started reading yours and find I can really relate to what you are all saying. My Boss was orignally great, but I think she is overwhelmed by having to manage my work and assigning coworkers to do my work when they are already overwhelmed. I heard this on Friday and became very stressed myself and started to feel bad. I am having a very hard time with the chemo and am not in the office much at all.  After getting so upset on Friday and my blood pressure going very high, I decided that I needed to change my attitude. This is my life I am dealing with and work stuff is not what I need to worry about now. I do not have family to help very much but I do have friends. I can sense that some of them are getting tired, but there are a couple that are really amazing so I am very grateful. Hang in there everyone!

  • DebRox
    DebRox Member Posts: 437
    edited July 2011

    Well I can relate all too well in terms of being disappointed or feeling abandoned by various "friends". Our phone barely rings anymore. It's like most people think once you're out of surgery, you're better.



    This tx is a long process. And people just simply forget.



    Its amazing though who actually steps up and who fades away. Cancer is definitely a closet cleaner when it comes to friends.

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited July 2011

    Welcome singlemom1,

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Hi ladies,

    I've been off the board for a few days.  Just dealing with some serious fatigue.  I went to give blood today since I'll be in the chair tomorrow for my first Taxol, the nurse couldn't get my port to draw blood.  It was the first time this has happened and I'm scared.  She said it'll probably work tomorrow.  I hope so because I don't have good veins at all.  She drew blood from my one decent vein and could only get a vial and a third of a second vial.  That was really weird too.  I feel like I don't have anymore blood to give and I'm so tired.  I was anemic before all of this even started and on an Iron regimin, but that doesn't seem to be working anymore.  I'm frustrated.  But, I've got to get this cancer out and move on to the next stage of my life.  We all do and will. May God bless us all.

    {{{{{HUGS}}}}} untill next time.

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited July 2011

    Marcya, drink tons of water tonight even if you you have to get up to pee a lot. Being super hydrated makes a huge difference. Will have you in my mind and sending positive thoughts that it goes smoothly for you !

  • bak94
    bak94 Member Posts: 1,846
    edited July 2011

    Marcya, I had that problem with my port last week when they were trying to draw labs. They put some enzyme stuff in it and it still didn't work. They said it probably will work for my treatment on friday-well I sure hope so! I was scared to, thinking of all kinds of bad things that could be causing it. Hopefully it was just a fluke.

  • bak94
    bak94 Member Posts: 1,846
    edited July 2011

    Ok, here is another rant about coworkers/friends. I had 2 coworkers come up to me today and tell me that they have been so busy and have made more money than ever, well, could it be because I am not able to work as much and they are doing most of my clients? (We are hairstylist) Your welcome, because I am sick you benefited ! My last check was a whopping $95 for 2 weeks!(only worked half a day during that period) WHy would they brag to me how much money they are making? Wouldn't you think they would realize it is because they have some extra client refferals from me? I am glad my clients are sticking with the salon, because that way they will most likely come back to me when I can work more. Maybe I should charge a referal fee! Also, because we moved to a new space, there are not enough stations, so they want me to move from station to station to whoever has an opening! I think not! I am too tired to move my crap around all day, so they stuck me in a back pedicure room. Oh well, I don't have to move my stuff. I wish I could afford to quit! You have cancer, so lets make things more difficult for you! Not one person has asked if I needed help with anything.

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited July 2011

    Bkj66, it's this attitude of "ok, that's enough- get up and get back to work and stop milking it"



    ppl don't understand that we would gladly do ALL of the crap that we get out of doing. Good lord... One day in my shoes PLEASE,



    I agree shut them out, don't give them that energy... It is yours to heal with. (((hugs)))



  • MamaV
    MamaV Member Posts: 907
    edited July 2011

    Bkj - ug on the port and bigger ug on coworkers. People suck.

  • bak94
    bak94 Member Posts: 1,846
    edited July 2011

    I am very thankful for my husband, one of my brothers and one of my sisters! They have been mostly wonderful through all of this and I so appreciate them. They seem to get it, so I do feel lucky to have them in my life. Of course there have been quirks with my husband, but nobodies perfect, right?

  • 40-years-old-now
    40-years-old-now Member Posts: 309
    edited July 2011

    I am sitting here not tired but in bed next to hubby. I dont want to keep him up but dont want to move. I guess I should try to lay down and sleep. Tomarrow is going to be a long day hubby leaves at noon and doesnt get back until 9pm. I am not walking well, cant drive because bad leg is right leg. I think I might call my mom to have her come get daughter and me and then have her feed us. I guess I should pack a bag of snacks for me.

    Well I am going to try to go to sleep now.

    Nighty night all.

    Candice

  • Cyborg
    Cyborg Member Posts: 848
    edited July 2011

    Bkj66- some people are just thoughtless or just hurtful.

  • oandtolivo
    oandtolivo Member Posts: 83
    edited July 2011

    I have control over me, my actions and what I say. Everyone else can do and say whatever they want.  What goes around comes around. I often feel I'm paying a price for something in my passed and now I can make good of this or continue to pay a price.  I choose good for the sake of my children Smile It is hard to let things slid off your back, but after a while I'm glad I let it go.  I've had a few people realize how insensitive they been or rude and they've apologized.  They have to live with themselves not me! 

    Is everyone having their blood taken every week? or is it just a finger stick?  I'm just getting a finger stick for red/white and hemo.

Categories