Is there a July 2011 group?

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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited July 2011

    Trying to drink water but burping and bloated from first chemo today. Nurses encouraged me to drink juice, gatorade, other stuff with some normal nutirents in it like cramberry juide. She commentd that only water can sometimes throw off electrolytes so drink a bunch of different things even if only  a few sips. Found I had to eat a super small meal...weird..becasue my stomach feels liek I am overstuffed. Well will post tomorrow. Going for neulasta shot...many people comment they hate the side effects of that..any ideas...other than naproxen or motrin before?

  • FrancesC
    FrancesC Member Posts: 346
    edited July 2011

    Hi what is this neulasta shot so many are talking about and afraid of?

  • rabbit
    rabbit Member Posts: 613
    edited July 2011

    Penny thanks for popping in and encouraging us! Soon, we'll be popping in other threads telling them the same thing! 

  • PennyCookson
    PennyCookson Member Posts: 366
    edited July 2011

    Paintingmywaythrough is absolutely right - its best not just to have water - lots of different drinks are good - I drunk alot of soda water and berry tea, I aimed at 3ltrs a day, but just have a glass of something next to you all the time and take a sip regularly.

     I had Neulasta - it gave me a few bone aches but I think it was well worth it, it boosts your white cell count so you are less likely to get infections or to have to delay chemo.  My blood counts were very good for each cycle.

  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited July 2011

    Frnaces C   It is a shot to boost white blood count- a growth factor medication. It increases white blood count production as chemo decreases it and makes you prone to infection. But it stimulates the bone marrow to produce it I think and a lot of people get bone pain. I read on the triple negtive site some peole take claritan the night before. Althought here is no research on that, some people think it helps. I asked about it today and was told it wouldn't help but there was no reason not to take it if I had allergies which I don't so the nurses and oncologist don't want to give any credence to it. they do suggest some over the counter pain reliever 1 hour prior...ie. Naproxen, ibuprophen etc...to prevent any pain and suggest you may have to take it a few times.

     Rabbit thank you re: my work.

    Good luck everyone. We can do this!

    This was my first chemo so I am just 9 hours out from getting it.

    Was told the aloxi infusion would prevent nausea for 3 days.

  • J-Bug
    J-Bug Member Posts: 626
    edited July 2011

    Even with Neulasta shot and 1st chemo being 7 days ago now (July 1st), my wbc was 1.4 today. Normal range is 3.3-8.7. I did have some bone pain but it was all very bearable when I got up and moved around. I am allergic to NSAID's so I did not try to take any pain meds. I also wanted to see how it felt before taking anything. (I am on Claritin everyday.)

  • rabbit
    rabbit Member Posts: 613
    edited July 2011

    For some reason my onco doesn't want me to have that Neulasta shot, he said not everyone needs and if I can get away without taking, the better, no clue what to believe LOL. 

  • J-Bug
    J-Bug Member Posts: 626
    edited July 2011

    Is anyone losing hair yet in this group? I just picked up my wig today and am anticipating that it may start next week. I have a short cut scheduled for Wednesday but feel I may be waiting too long.

    I am trying to go "incognito" at work. I was let go for my diagnosis because they said that they could not work with the chemo schedule and such. I have another freelance - contract job, but I work at home and stop in every couple of days to drop off files. I just want that situation to be about work - not cancer, not anything that gives them a reason to doubt that I can do the job.

  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited July 2011

    Frances C...glad to see you're here to..We will beat the hell out of it.

  • FrancesC
    FrancesC Member Posts: 346
    edited July 2011

    Yeah Susan ... I simply love logging in to this site ... gives me something to look forward to when i wake up everyday.  There is so much love and support here.

  • ginger77
    ginger77 Member Posts: 16
    edited July 2011

    Hello! I hope everyone is doing good. I start chemo on July 12th! It's also my son's 7th Birthday! I had been dreading this, but now I'm anxious to get it going and done :-) I plan to shave my head Monday night!

  • FrancesC
    FrancesC Member Posts: 346
    edited July 2011

    Hi ginger77 - all the best for the chemo! 

  • rabbit
    rabbit Member Posts: 613
    edited July 2011

    I was just going to post about the hair thing too, I am on day 11 of my first treatment and had my hair cut to a pixie cut, I don't want to wait til it's falling out in clumps so I'm thinking I'll get it shaved in a few days. If anyone knows more about the FEC and when to expect the first clump to start coming out...please post!!!

    Good luck to us all xoxoxo 

  • ginger77
    ginger77 Member Posts: 16
    edited July 2011
    Smile Wello hello!  thank you and best of luck to all the sisters as well!  I'm a little on the fence!!!  My oncotype failed AGAIN yesterday so I can either wait till the 26th or just shave my head and start on the 12th...suggestions?
  • rabbit
    rabbit Member Posts: 613
    edited July 2011

    what does that mean ginger? I'm not sure I know what you mean by your oncotype failing....

  • ewa-swimmer
    ewa-swimmer Member Posts: 49
    edited July 2011

    3rd day out of T/C. Just a little fatigue and gas. Everything tastes very sweet. I was expecting metallic. Took a sleeping pill last night so I would sleep and hopefully not have the steroid crash I hear about.

  • pinkpalette
    pinkpalette Member Posts: 88
    edited July 2011

    Cathy_C ... Pleased to meet you here. We have the same diag. My port site is a bugger - still annoying and it's been there over a month.  Be sure to request a numbing cream rx.  I got poked there for a procedure and it was not very pleasant for me.  Good luck on your first chemo.  Hope to hear from you soon, when you are up to it.  Rest....

  • pinkpalette
    pinkpalette Member Posts: 88
    edited July 2011

    Hi Julee_  Welcome! Join us...I also start July 11th, tho my chemo is a different cocktail than yours.  I'm in for 1 year, a TCH combo - 6 rounds carboplatin and taxotere every 3 weeks, herceptin every week for 18 weeks, then rads for 2 mo. then herceptin continuing every three weeks.  Whew!!! My MO says this treatment is protocol for a lumpectomy. 

    I'm freaking out too. I am preparing a pink bag of goodies and comforts to take on Monday to keep me busy.  I hope that helps.  Thinking of you and wishing you well on Monday.

  • pinkpalette
    pinkpalette Member Posts: 88
    edited July 2011

    Hi Paintingmyw.....jump in!  I checked out your website and enjoyed it very much.  Lovely watercolors---very colorful, positive and fun!  I really appreciate your comment on water.  I've been figuring on gallons of water to wash that poison out of me....but a healthy variety of liquids would be best.  I'm on the fence myself with green tea.  My onc. nurse says its OK, so I will see how I feel on Monday - tho I've already laid off on it pre chemo.

    Hope you are feeling well and no nasty SE's in sight.  Paint on......

  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited July 2011

    Doing Ok today..just burpy and gassy..small amounts of food are best..get lots of juice pops for your mouth...the cold feels great..I go for my neulasta shot soon. Am going to take an aleve now and a claritan tonight...and tomrrw as per what people say ont he triple negative board...claritant he night before, the night of and the ight after. Aleve 1 hour before and then as needed.

    Hoping all will be well but will keep you apprised. We all will make it here..It isn't nice and we need to kick it but I know we've got it in us...that said, do know I cry whenever it hits me and I think it is OK...( that form me the therapist in my day job).

    Check out the american caner society free makeup courses during chemo...they show you how to lookyourbest and give you a ncie bag of makeup..haven't been...also a group iin my town offers grants for massage psot chemo..I am gonig to apply.

    Susan

  • rabbit
    rabbit Member Posts: 613
    edited July 2011

    ohhhh massages sound great, can't afford them right now, any ideas on where to check on that? I am in Kentucky.  

    I remember the first day of my FEC was my worst, I felt like I had rock in my gut and was gassy, bloated, heart burn, really unpleasant funky pains in my esophogus. I've always had acid reflux and that sort of thing and the FEC really triggers it I'm finding.

     Hope we all feel good today!  

  • J-Bug
    J-Bug Member Posts: 626
    edited July 2011

    Rabbit: Do they have a Blue Heron Academy in Shelbyville? Are you closer to Frankfort or Louisville? (I went to high school in Georgetown, lived and worked some in Lexington during college but primarily lived in Richmond for college at EKU.) Some of the larger cities have the massage training schools that charge around $10 for a half hour massage. I used to go to a Blue Heron Academy in Kalamazoo, MI. They were students and you could not choose the person, but it was still awesome!

  • dexxy
    dexxy Member Posts: 229
    edited July 2011

    Ginger- I've heard about them not being able to get a good read on the oncotype sorry about that it must be very frustrating. Looking at your DS I know you don't want to hear this but you really should just jump in and do the Chemo, you are young and you want to throw everything you've got at this so it doesn't come back as the big scary monster that it is.  The one thing I think Docs don't tell woman when they are deciding whether or not to chemo is what the cancer can come back as.  Its not breast cancer usually, it bone, lung, liver, brain or lymph node, and its not stage 1 usually its stage or higher.  I don't mean to scare you but with positive nodes, and grade 3 you want to throw the kitchen sink at it!

  • dexxy
    dexxy Member Posts: 229
    edited July 2011

    I'm curious, did anyone not get any SE's had chemo on thursday and other than a little heartburn I'm doing great.  Do the SE's get worse and we get more treatments?

  • Snoopy73
    Snoopy73 Member Posts: 287
    edited July 2011

    Dexxy, I think me and you are the same; I had my first chemo on thursday and to be honest I am doing okay, apart from heart burna nd my mouth feeling abit blunt (dont really feel like eating anything but when food is presented i eat:-). I also sleep alot (better to be honest, i think because of all the meds). Other than that I am doing good, Thank God. I am afraid things may turn for the worse, i dont know.. I had my neulasta shot yday and so far so good, no joint pain or anything. I am using the cold caps so planning to keep my hair.

  • paulamati
    paulamati Member Posts: 43
    edited July 2011
    not having a good day with SEs...very tired and joint pain, plus when Im hungry I want to eat and I cant Frown..still weird taste.I just wanna be me again
  • ewa-swimmer
    ewa-swimmer Member Posts: 49
    edited July 2011

    I too am just waiting for some serious SE after Thurs. T/C. Gas, everything tastes sweet, and feel week but not overly so. No queasy feeling. Hope I didn't just curse myself.

  • dexxy
    dexxy Member Posts: 229
    edited July 2011

    I'm working today and other than being a bit tired I've kind of gone about my day like normal.  I'm planning a hike in the morning to get that blood going. 

  • rabbit
    rabbit Member Posts: 613
    edited July 2011

    Jbug, I just sent an email on the website to them to see if they have anything near me. thanks!!

    dexxy, I'm guessing that's why they are doing chemo with me before surgery, because I am grade 3 and the MRI showed slight inflammation in 2 nodes. Also, to shrink the tumor, they thought it was 1.2 cm per the US and mammo, but the MRI showed it was 4-5 and I can barely feel the darn thing,it's so bizarre.  

  • ginger77
    ginger77 Member Posts: 16
    edited July 2011

    rabbit-I wish I understood it. It failed TWICE and my tumor was 2.9 cm so it's not like they didn't have enough.  I was told it was rare to fail, well I guess that means I'm just special.  Grrr!!!

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