Chemo May 2011

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  • Cyborg
    Cyborg Member Posts: 848
    edited July 2011
  • DebRox
    DebRox Member Posts: 437
    edited July 2011

    Is everything ok cyborg?

  • MamaV
    MamaV Member Posts: 907
    edited July 2011

    Oh and did I mention I hate looking like a cancer patient too?



    Cyborg? You ok?

  • Cyborg
    Cyborg Member Posts: 848
    edited July 2011

    Yeah. I'll be fine.

  • 40-years-old-now
    40-years-old-now Member Posts: 309
    edited July 2011

    Today was a crappy day. We had fireworks here in town, but I couldnt go because too many people. I havent missed a fireworks in 20 years. It is a big event here. I love to watch fireworks. So does my daughter.

    UGG!!! Well next year daughter and I will go and make a day of it.

    Candice

  • bak94
    bak94 Member Posts: 1,846
    edited July 2011

    AC number 5 is rough. I don't feel good and it is the first day after. goodnight.

  • bak94
    bak94 Member Posts: 1,846
    edited July 2011

    just woke up again feeling crappier....wel l my chihuahua came up out of the covers, snuggled up to me and rolled over on his back, head on pillow, Made me feel better. 

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited July 2011

    bkj66-pets always know how to make you feel better, your chihuahua sounds adorable.

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited July 2011

    Bkj, belly rubs to your chi. I hope you turn the corner today. This was my toughest AC as well as I expected. Even when we know what's coming and with all the mental prep it still knocks us down... We are only human. Much love and support.

  • blondelawyer
    blondelawyer Member Posts: 327
    edited July 2011

    I'm still feeling crappy today. I tried to go out to the farmers market and just couldn't do it. I ran into someone I haven't seen in awhile and I saw on her face how sick I look. That was hard to see. When I finally made it home (the farmers market is only about 4 blocks away), I was so pale and had cold sweats. This round is seriously doing me in!



    Yesterday was also the 8th month anniversary of my husband's death. I was actually proud of how well I "survived" the day. But seriously this is so overwhelming.



    Hope everyone is feeling better today.



    Lisa

  • bak94
    bak94 Member Posts: 1,846
    edited July 2011

    Blondelawyer, this round is also seriously kicking my rear! I hate that look on other peoples faces when they see you for the first time. At least you tried to get out and do something, sorry it ended with you not feeling well.I can't even imagine how overwhelming it is for you, so I am just sending you internet huggs.

  • ---
    --- Member Posts: 197
    edited July 2011

    I am joining you ladies in the "low-feeling" boat.  I try for it not to hit me but every once and a while, I get tired feeling tired.  I try my best to enjoy the moment and the present time but sometimes, I can't help but wish I am not in this situation.  I don't like feeling sick, looking sick, gaining weight, and feeling weak.

  • txladysara
    txladysara Member Posts: 52
    edited July 2011

    {{{{{{{Hugs}}}}}}}} To all the May ladies having a hard time. This too shall pass. It will get better. :)

  • txladysara
    txladysara Member Posts: 52
    edited July 2011

    {{{{{{{Hugs}}}}}}}} To all the May ladies having a hard time. This too shall pass. It will get better. :)

  • jackifp
    jackifp Member Posts: 185
    edited July 2011

    Ditto me what y'all are feeling...trying to put on a good face for son's b'day weekend (29! - how did he get that old? Oh, yeah, I got older, too!) and his girlfriend and friends and family up for 3 days and I'm grumpy but trying so hard not to show it...wan a crawl into a corner and wait til next April when this is over...thanks for the venting - it's good to know we're all in the same boat.

  • twistedsteel
    twistedsteel Member Posts: 156
    edited July 2011

    How's this for chemo brain along with Ativan brain... I went to see the statistics of visitors to my tattoo shop's internet site and noticed there was a page on the site that I had no memory of writing, creating, posting, publishing. No recollection at all! Zero. None. It was well written and conveyed a good message, but I cannot remember even generating the idea to post such a page. I must have done it while on Ativan on one of my especially bad days.



    Then, I left my house without a very important bag I needed. Drove 30 min back again to get it. Got to my destination AGAIN and realized I had no recollection of locking the door. I have no neighbor's contact info so I went again on a 30 min drive to check on the door. It WAS locked, but I had to be sure.



    I hate feeling incompetent. I hate not remembering things. It scares me. I have stopped taking the Ativan for many reasons. This being one of them.



    This BC thing is a humbling experience. Brains, looks, body, sunny disposition... it is affecting all for the negative. I guess the only thing I can try and salvage is my spirit, because the rest is going downhill fast. Lol.

  • Robyn_S
    Robyn_S Member Posts: 197
    edited July 2011

    I am girding the loins for my first round of taxotere tomorrow. So relieved to be all done with the FEC that I am almost welcoming a new set of SEs rather than the nausea . It was getting worse with each round so coming into the last 3 taxotere from a much lower base level of fitness. Worried about losing nails as the cancer centre does not ice, but have applied nail strengthener and am fasting to reduce the SEs like nausea and neuropathy. Hope it works!

    Chemo brain is a pain! I make notes and lists and put timers on to keep the mind on track - and play lots of scrabble. The worst is that I struggle at time to find the right words verbally - my oral presentations during chemo have been hilarious! - lucky only to small groups! the days after tx are the worst.

    Mentally doing fine during tx - i worry about the time that all treatments are over and I start thinking about recurrance. It sems easier when you are doing something, no matter how unpleasant, to fight this disease. I will not do well psychologically with finding that it hasnt cleared everything  everywhere. I had a BMX so it would be distal mets that I worry about. My sis in law is 5 years out and I have seen how that fear tends to play out at every lump or pain.

    After treatment I plan on focussing on the healthiest lifestyle possible.... diet....and sigh...exercise. Only 3 months of treatment to go till I can get my new foobies! 

    Take care everyone!!!! Robyn

  • neecee
    neecee Member Posts: 663
    edited July 2011

    Robyn - I am on Taxotere and Cytoxan, do not ice during treatments, and have not had a problem with my nails.  Good luck with your treatments!  I go for #3 tomorrow (Tuesday).

  • DebRox
    DebRox Member Posts: 437
    edited July 2011

    Chemo brain is funny.  Especially recalling words.  I find at times I cannot think of the simplest word, like elbow.  I had to ask my husband what they call it and point to it.  I knew the outside was the elbow, but what was this - pointing to inner elbow.  I hope this word recall resolves once it is over.  I am usually an articulate persons.

    ANyways, wishing everyone a safe and happy 4th.  And of course ((((hugs)))) to all those in the chair next week - and those that arent for that matter.

    SE free week to all.  Thinking of those in the chair tomorrow along with me.

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited July 2011

    The difference I have found between my stroke experience (at 42) three years ago and now chemo brain is I find that I have chemo brain very severely on some days and hardly at all on others like my other side effects. Whereas my stroke I had to relearn words and practice holding on to my memory of them.



    This was one of my biggest concerns because recovering my brain after my injury was hard work, on days when I can't recall simple words now it panics me :( I can only hope for the best in the future... Until I then, will be my most eloquent when I type! ;)

  • neecee
    neecee Member Posts: 663
    edited July 2011

    Back from treatment #3.  One more to go!

    Hugs to all of us.  May this be a minimal SE round for everyone.

  • bak94
    bak94 Member Posts: 1,846
    edited July 2011

    How was everybodies 4th? Everyone must be busy as this thread has been very slow! I am finally passing the low point of AC #5 and only have one more to go! I am looking forward to getting the ac overwith! Doc told me to use l-carnitine for my painful fingers and it seems to be working, last time it got so painful I couldn't squeeze toothpaste or do buttons. I am not sure if I have hit the worst part of it yet but I am optimistic, as I am only 4 days past my last treatment.

    So, Cyborg and Laureen, are you headed to your last treatment this week? Anybody else?

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited July 2011

    Bkj66 I have this week off, I start Taxol next Tuesday. So glad that you are down to your last AC!

  • MamaV
    MamaV Member Posts: 907
    edited July 2011

    I'm done Thursday but started in january. I didn't find this site until may so joined you all! I had a major meltdown today so it's a good thing the end of chemo is in sight! Hugs to all!

  • bak94
    bak94 Member Posts: 1,846
    edited July 2011

    Beaglesgirl-will that be your first taxol? Are you doing 4 or 12?

    MamaV-sounds like you were in for the long haul also! Glad you are almost done. Sorry you had a meltdown, hopefully you are doing better now! I ran errands today for about 3 hours and it about did me in! It was mostly driving.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Hey ladies! 

    {{{{{{HUGS}}}}} and more {{{{{{HUGS}}}}} to us all! Onward!

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited July 2011

    Bkj66, I am doing 12 weekly taxol like MamaV is just wrapping up. I am worried about the length because I did 4 DD AC every 2 weeks and it seemed like it would never end. Hats off to all of you who having to endure 6 tx of it, that's brutal stuff. Praying for a milder experience from here till the end.

  • MamaV
    MamaV Member Posts: 907
    edited July 2011

    Beaglesgirl - it's sooooo much milder for me! The long haul is tough. BC is not for the weak that's for sure!

  • justme1
    justme1 Member Posts: 223
    edited July 2011

    I get the chair tomorrow 3rd of 4 of a/c .How can someone be dreading and excited to get it done at the same time??I also have got to get my pic line re dressed diferent the burning and iching of changin it drives me as crazy as the nausea and weakness .Well to bed i go and hope & pray  for a good  week  for us all. Oh yes after my a/c i get toxol for 6 weeks do u think  i will get to watch my grandbabies age 2 and 3 .So far on my good days i watch them on a/c like last week for 3 days and today .I hope and pray i still can but since they are weekly i dont know??

  • Robyn_S
    Robyn_S Member Posts: 197
    edited July 2011

    Happy wednesday everyone! I had my first of 3 taxotere yesterday and feeling sooo much better now after doing the FEC first! No nausea.. A bit tired but can live with that. Did I say no nausea!!! :) hopefully I will bypass some of the other SEs and sail through to rads in 10 or so weeks!

    I met with the radiologist and set up a plan to get my plastics referral and reconstruction plan in place so feel like progress is being made to be finished with all tx by the end of the year! Yay !!

    Hope everyone is feeling better than last week! It's a long road but we are all still getting through it! (((hugs))) Robyn

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